Psychosis is a Funny Beast

1 March

Psychosis is a funny beast. It terrorizes you, yet when it’s gone, you miss it. It stimulates you like nothing else can. Yet it’s a completely individual experience. No two people will ever have the same type of voices/hallucinations. These voices/hallucinations can be visual or auditory or both. Such a common ailment in mental illness, yet so different in people.

You can have command hallucinations that tell you to do stuff or tell you to harm yourself. Or have other voices that tell you are great and powerful. Others that are more sinister and mean that cause paranoia. It doesn’t have to be people, per se, that give these commands. It can be words from the TV or voices on the radio, even if the appliances are turned off and unplugged. These devices can still speak and it can cause great anxiety and nervous agitation.

Sometimes when I am reading a book, the words will fly off the page giving me new meaning. It is magical and majestic. Most of the time, a man’s voice “reads” to me. It is the only way I can comprehend the paragraphs. Without this voice, the words have no meaning and I don’t know what the book is trying to say. The words are empty and meaningless.

There was a time when my paranoid thoughts got the best of me while I was at work. I was utterly convinced my email was being monitored by a doctor colleague I had a row with. Well, not really a row. He just called me incompetent. I told my boss that I didn’t want to work with him again. In retaliation, he was “watching” my email activity to get me fired. Every email was tagged to him somehow. I was convinced of this because the voices said so. When the emails started doing their dance like the words of the book, I became nervous that something was wrong. I called my psychiatrist. She told me I needed to be in the hospital. Psychosis such as this required urgent care. But I did not feel sick. I may have felt a little insane, perhaps. The delusions and hallucinations were bad that year. It caused me to quit college. I have yet to return to university, but mostly that is because of financial reasons than psychosis.

Soon after my release from the hospital, the delusions started again. This time with another co-worker. Voices had me convinced she was out to kill me. We had been good friends. I talked amicably to her so not to offend her. We played this game for three weeks. With each passing day, the paranoia got worse. I finally asked this woman, to test my reality, if she intended to harm me. She thought it was a preposterous question. The voices lied, again. They always do but they are so convincing, you believe them. No one else hears them. They are never visible though I often imagine what they must look like. A general overview of a female or male voice. It is when they start arguing amongst each other that things become confusing. Sometimes they make sense, other times they are incoherent. It’s like they get weird languages so I can’t follow what they are saying. The language is not any that I can discern. I have been exposed to different languages over the years and this is like nothing I have heard before. The language they speak, however undiscernible, is alien to me. And when I question what they are saying, only then do they talk English again.

These voices have been a part of my life for more than thirty years. I have adapted to them well. Only time they ever really leave me is when I am highly medicated. When they leave, I am utterly alone. It is a lonely place to be in. I cannot think without the voices. They have become so ingrained to my thoughts. They can “read” my thoughts so I don’t have to speak, at times. Yet we do have conversations that either I will initiate or they will. Especially at night when I try going to sleep, is when they come out and talk. There is this one voice that pops in just when I am trying to sleep just to have a chat. This voice inquires how my day went, and other general questions relating to how I have been. This is usually because it has been a while since we last chatted. It’s annoying because I want to sleep, not talk. Yet if I ignore the voice, the louder she becomes. Then I can’t sleep because I get agitated and extremely annoyed. There is no arguing with these voices. They don’t have a sense of time like we do. If they talk and ask questions, they must be answered, no matter what time of day it is. Many nights of lost sleep mean nothing to them. They are demanding creatures of the night.

I read a quote today that stuck with me. “I never understood the ‘psychosis isn’t illness, just an expected response to stress’ line. Bleeding is an expected response to a cut”. Alex Langford. What strike me with this quote is that it is true. People who have stress do not become psychotic. They usually suffer from anxiety of some sort, but they don’t become delusional and hear/see things that others cannot see.

Like most of my psychotic episodes, stress is usually the precipitant factor. Two weeks ago, I was getting stressed over financial matters. I am on a fixed income so trying to pay for everything can be a juggling act. A delusion of command tweets started. We have had heavy snow the whole month of February. I kept getting tweets to clear the roof tops. With each subsequent tweet, I took it as a command to clean my roof off. I started worrying that my roof was going to collapse (highly unlikely as I don’t have flat roof tops). But I couldn’t shake the notion that something terrible was going to happen if I ignored the tweet. So I started taking one of my PRNs (as needed) medication. It helped to ease the agitation and helped me to see that I was safe in my home. But taking this medication caused the voices to go away, temporarily. I have never felt so empty and alone before. I could function, do my every day things, but it was eerily quiet in my room, and in my head.

Not everyone who has stress becomes psychotic. If stress was the reason, there would be more schizophrenics or those suffering from psychotic depressions or manias in the world. Most people who are stressed, as I stated before, have anxiety. I become psychotic for reasons I don’t know why. I start having conversations with myself, out loud, with the voices when I am stressed. It just looks like I am talking with myself, but I am really not. I do know that once I am on medication, the stresses don’t bother me as much and I can handle them better. I sometimes like to think of myself as a functional schizophrenic.

It’s hard to explain the voices as they can be random. They come out more when I am tired, stressed out, or overwhelmed. They also come out when I am in an agitated state. I also feel like I am losing my mind. I wonder, am I depressed? Am I manic? Or am I just mad, bordering on insanity?

My drug of choice when I am in an agitated state is trilafon (perphenazine). It helps to keep the “bad” voices away. The “bad” voices are the voices that tell me negative things, give me paranoia, start with the delusions, and give me commands. If they are not controlled by medication, I usually end up in the hospital.

These days, the “bad” voices don’t come around much since I take a regular anti-psychotic everyday. What is striking is that this pill has no effect on my “regular” voices, the voices that I hear every day. This is good because without these voices I cannot function. Although these regular voices can be annoying, critical, and negative, they can also be helpful to sort out problems or have discussions with.

Pain and despair can also bring about a psychotic episode for me. Physical pain is the not the kind that I am talking about. It’s more like a weight on the chest, making breathing difficult. It’s not like an anxiety attack upon the nerves that I sometimes get. It is more cerebral in nature but hurts like that of a broken limb. Despair will cause madness to intensify and with it comes the suicidal thoughts. Anguish also is felt like never felt before. It is unbearable. The combination of these feelings create a breeding ground for the voices to become unhinged. Delusions of persecution also become acute. I feel everyone is against me and are trying to kill me. I try to fight the rightness of the mind but it unthinkable. My thoughts are just too incoherent. Voices get their way and the insufferable feelings fuel the paranoia. The pressure to resist is futile and to cognitively deny their words proves to be impossible. The torment continues with the increase in despair and suffering of unbearable psychological pain.

In this state, lyrics of songs become perturbed and twisted. The meaning of songs always revolve around death and destruction, even if that is not what the song is about. Hallucinations of hearing the song over and over even when music is not playing is common. I hear the song even when the MP3 player or radio is silent. I once had a song by Pearl Jam run rampant in my head for weeks. Then the lyrics changed and were telling me that I had to die, even though there were no such lyrics in the song. There was no escape from this turmoil. The only place I found solace was in the hospital and being drugged up to calm my overstimulated brain.

These types of voices, paranoia, and delusions respond best to medication. The longer I go without meds, the worse my condition becomes. I deteriorate, losing whatever faculties I may still possess. I have noticed that as I get older, there is an increase in episodes. These episodes are profoundly devastating and scary. It used to be I could be on my medication until the episode passed. Then I would stop it and not have another episode for years. That doesn’t seem to be the case any longer. I must now take this pink pill every day to be sane and prevent symptoms from happening. Since this regimen began a couple of years ago, my psychotic symptoms have decreased. But if I skip a few days, I am in trouble again. Then it is harder to be back in control of the symptoms. The balance of dealing with the psychosis is never easy. It’s a fine line between sane and insane, despair and despondency, psychache, severe depression, and suicidal thoughts. These are the evil conundrums that medication cannot cure or control. Talk therapy is somewhat effective but only as a maintenance. Despair is its own miserable evil that sucks the light out of every window. It’s power cannot be underestimated.

two cups of coffee kind of day

I am babysitting my niece because she is sick. I told her I am planning on making malted chocolate chip cookies and she looked at me funny. She never has seen me bake before. I still am undecided as to which kind of chocolate chips to use for baking these cookies. I might make two batches. One batch, I plan on substituting ½ cup of oatmeal for flour. I think it will come out good, least I am hoping it will. I have been watching my niece since early this morning and just had my second cup of coffee. I can’t be sleeping on the job. She is 9 and can do her own thing, but I still need to keep an eye and ear out for her.

Soon as her mother comes home, I am taking a long, hot shower. I am cold and stinky as I didn’t take one yesterday like I wanted to. I fell asleep soon after I published my blog and didn’t wake up till around midnight. I stayed up for a few hours until my meds knocked me out again. I didn’t mean to sleep so soundly but it just happened. I think if I had taken the alarm off for my meds I probably would have skipped my meds and slept through the night, possibly.

I emailed my psychiatrist this morning to tell her I am feeling less paranoid than I was last week and that I am feeling a little bit better. She wants me to keep her informed, so hence the email. I think the increase in the trilafon has helped me. I no longer feel like people are watching me all the time. And my stress levels have been down, though they will be up again tomorrow when I see my father. He better be satisfied with what I give him and not complain like he did last year. Otherwise, it will be the last birthday gift he ever gets from me.

I was talking with a friend today. His birthday was yesterday. I totally forgot to call him so I am glad he called me today. He wants to have a get together with my friends that are south of Boston. The plan is to meet up on the 8th of April. I just hope that my leg pain is still nil and that I can walk without pain. He also wants to go to the Museum of Science because they have a Maya exhibit. I am a Maya freak. I have studied them while I was in college and find them fascinating. It will be interesting to see this exhibit. I have to find out if my sister is still a member of the museum so I can get in for free.

I have been reading more of the “Idiot” while I have been babysitting. I find the story interesting and I am wondering if I can write like Fyodor. I am totally in love with his style of writing. I just don’t think I can write fiction like he can. I am still thinking of writing up my story of the delusions but changing the names of the Goa’uld to something else so I don’t get in trouble for copyright issues. I think it will make a good short story. I will also have to change ISIS to something else. I am sure my brain can come up with something.

My sister went to the funeral today. It was sad and a lot of people went. I am not surprised. I have seen young peoples wakes and funerals be very long as they know a lot of people. My friend Danielle’s wake was like that. I must have been in line for at least a half hour before I even entered the room she was in. I was thankful the casket was closed because I would have lost it. I still feel the pain of her loss. We weren’t close as we lost touch over the years but we were good friends in high school. She died last year at the age of 37 from complications due to diabetes. Our whole class was heartbroken.

I think later today I am going to work on my psychosis story now that I have the brain power to do so. I just have to input the corrections I made while editing the story. It is cold out today so I don’t think I will be going out, especially after I had two cups of coffee at home. I am going to be wired for the day so need to focus my energy on something productive, like my writing. Maybe I can add the delusional thinking to the psychosis story and I don’t have to create a new document. There is an idea!! And with me adding to the story, it will be longer than three pages! Sweet.

One of my blogger friends posted a “get to know me” blog but it had over 100 questions. I don’t have the patience to answer over 100 questions. The last “get to know me” blog, I wanted it to be over after the 10th question. I might do it though, but now right now. I am still too paranoid to be putting myself out there.

I am still sad that my game is coming to an end. I have lost the will power to play but continue to play for those players that, like me, will be playing till the end. I have over 900 friends on FB, most of those are my gaming friends. Eventually I will weed them out. I already have deleted some that are annoying and are blaming Zynga for stupid shit. I understand they are upset but why attack someone that is not going to be paying attention to what you are fucking writing! Makes no sense.

I have started a new food shopping list on my phone so I remember what I have to buy for my cookies and for the month. Tomorrow I will have my sister’s car and I hope my LTD payment comes in so I can do the shopping. Otherwise, I am going to have to wait until possibly Thursday. I was thinking about getting the Galaxy S5 with this payment but I might wait until the S6 comes out. I will know then that the price of the S5 will go down. Only trouble is, they are being cryptic with the release date! Pisses me off when they just send you an email saying be on the look out and not give you a time frame for something. For all I know, it could be three months from now before the phone becomes available. I won’t be getting it, just want to know when the price will drop for the lower model. I am going to assume that the S4 will become free and the S5 will be $99. Least I am hoping this because right now it’s $200, even with my upgrade discount. And the only reason I am considering getting a new phone is because my phone keeps crashing apps, even if they are not in use! For example, my Walgreens app was crashing and I hadn’t used it in a few weeks. And now my contracts crashes after I look up a contact. It’s bad because sometimes I cannot close the crash report window in order to end a call. Just fucking stupid. But then I have had the same phone for almost three years. There is a new Nexus available but it’s like a tablet. I can’t imagine talking on the phone with something that big, not unless I was using a headset. The price for that phone is the same as the S5 so there is that. I just want to see it and play with it first to see if I like it. Unfortunately, when I was at the Sprint store, the model was “dead”, meaning it was a display model and not a “live” model like some of the other stores have. I actually prefer to go to the store in Brookline as I like their customer service better. I have always gone there with my phone issues and upgrades. But, we’ll see. I will wait for the S6 to come out before getting the S5. I just hope my current phone can endure the wait.

feeling better today

Feeling better today

I woke up early this morning (before 7), made breakfast, and then went back to sleep. I should have made coffee but I didn’t feel like it. I need to start using my half and half before it gets bad. I know one of them is expiring soon. I will make coffee tomorrow as I am not planning on going out. My last two orders of Brazil coffee has not been satisfactory. And besides, I am running low on my Starbucks funds until Wed when I get paid next. I have a little grocery shopping to do. I just hope that I can make the cookies I want to make. Sometimes the depression gets the better of me and I end up doing nothing. My thoughts are a little bit more coherent though I still believe aliens have invaded the militant group.

I think the trilafon at night has been helping me stabilize during the day. I was talking to a good friend today and I told her my thoughts about the militant group, including the alien part. She just “okayed” it and that was the end of the conversation. Just as well. I really didn’t want to ramp up my feelings on the matter.

I think I need to take a shower today but I just don’t have the energy. I just want to sleep. I hate when I wake up early and then go back to sleep. It wrecks the day and sucks whatever energy I had into an abyss. It really sucks because I got nothing done today. I really would like to change the sheets on my bed but it is always a hassle because I have to get the stuff off my bed. Last time it took me close to a week to change the sheets. I kept on getting one or two items off the bed until it was a manageable pile. Then I had to psych up some energy to actually get the sheets off the bed. It never was this difficult when I had a twin size bed. But then, there would be no room to put my stuff on my bed! I don’t even sleep in the middle, I sleep on the left side of the bed and I stay there. But that is the struggle I face. Wrestling with bedding and my “office”.

In a few weeks, I should know if I won the writing contest I entered at the end of last month. I am anxious to know if I won or not. After the winner is announced, I plan on posting it on my blog. It’s a piece about being transgender.

I didn’t go to the wake today. I kept on reading what my cousins were posting on FB and I just started bawling. There would be no way for me to keep my composure knowing my cousin was hurting so much.

Have I mentioned how tired I am? Think it is going to be an early night for me. I really can’t stay awake and it’s only around 1830. Maybe I will have a shower and it will wake me up. But like the bedding, I really don’t feel like showering. I really just want to read “The Idiot” until I pass out. I love Dostoevsky’s writing. It is so similar to my own. Back is aching so I should be lying down soon. I can do that while reading. Myshkin is a wonderful character in the book. I believe it is really the author who is writing his experiences. And I have a similar disposition like the author. He wrote the book while he was in a depression and I am reading it while in a depressive state. And he loves run on sentences. I think that is why his books are so thick. He just kept writing and writing until all the words ran dry.

I don’t have therapy tomorrow. But I am planning on seeing my therapist on Tuesday if I can get my ass up by 0900. I have to take a bus to my sister’s work to borrow her car. I figure I can get a coffee and then make the trip in no time. But it all depends on my energy levels and such. And if I have pain the night before or not. Lately, my pain has been minimal, aside from my back pain. My ankle/foot has been behaving the last few days. Which is curious because I have been more active the last few days and usually when I am active, I am in more pain. I haven’t done more walking than I usually do, just been going out more than I have since the weather has been nicer. Maybe the AFO was causing me more harm than it should have. I haven’t used it since October when I had PT in the next town over. The PT guy said I didn’t need it anymore so I stopped using it. It is curious that the rest has helped heal me. I am not saying I am cured but I have been in less pain since I have stopped working. But, here is the rub: if I don’t pay attention to what I am doing, I will have a flare up. I know my walking distance is 0.4 miles. If I exceed that, I am hurting. Luckily, my sister’s place is around 0.4 miles so I am saved, as long as I don’t walk back to the train station. Then, it is 0.8 miles and I am going to hurt. Once the weather is a bit warmer, I plan on trying to work on an exercise program to increase my walking distance. I will start with walking to the grocery store, which is 0.6 miles twice a week and then slowly increase it. I will just take the bus home so I am not doing 1.2 miles. That will come when I am ready. This is the plan I have in my head and now on my blog. Whether it will come to fruition, only time will tell.

Don’t know how I feel

Don’t know how I feel

I don’t know how I feel. I just woke up two hours ago. I just couldn’t wake up. I kept on having strange dreams. Nothing scary, just weird. I wish I could remember them but they have escape my mind. I am still feeling pretty tired and want to order pizza for dinner. But I just had lunch and right now I just want to eat ice cream. I hate when I sleep so late in the day. I guess I needed the sleep as this week has been awful but still. It sucks.

I just took the daily mood questionnaire thing that I am participating in. I guess walking from my room to the kitchen and back equals 1 minute of walking time. I don’t know why I bother with this. It’s not like my answers change daily. They mostly stay the same, unless I am having a bad day. I really don’t care anymore about my the damn data points. I should uninstall the app but I will give it a little more time. I forget which Twitter buddy sent me the link. If I find it, I will share it here in case you are interested in participating.

I have been playing my game, though I don’t know what is the point. The game shuts down in a month. I guess just to finish up what I am doing as much as possible. The crops that used to be for horseshoes are now for coins, so that helps. I hope I can get a few missions completed in a month.

I still feel like maybe I should be in the hospital. It’s not that I feel like harming myself, I just don’t feel safe. I still feel pretty paranoid, like I am always being watched and I can’t shake it. My psychiatrist has given the ok to take the trilafon as needed, but she prefers that I don’t use it. But I sort of need a PRN to help with this stuff even though it causes me to feel nothing. I kind of feel like I am a piece of stone while taking it. My thoughts are a little bit more clearer when I take it though right now, everything seems fuzzy. I still think that if I wear my headphones, thoughts will get implanted in my head. So I haven’t been wearing them. As long as my phone plays the music through its speaker, I will be ok, I think.

I read more about my cousin’s boyfriend, or should I say, fiancé. He was a really good kid, though I am not surprised. It’s always the good ones that get taken early. He apparently fell 60 feet while snowboarding. He succumbed to his injuries five days after the fall. He was 23 not 24. I feel so bad. Wake is tomorrow and I have decided I am not going to go. I feel bad and everything but I really can’t handle grief right now. Call me selfish, but I need to think of my own suffering right now. Besides, being in a room full of grieving people might set off my already increasing paranoia. I have always been sensitive to others but their grief might set me off the edge.

I feel depressed but I don’t know why. It could be because of the sadness I feel for my cousin. I don’t know her very well. She is my Uncle’s daughter. I probably would have known her better if they didn’t move to another state close by. I really love my uncle. He is the one that is not really a jerk or an asshole. He is a very good guy and a hard worker that always is there when you need him. Unlike my mother’s other brothers. I know this will pass but it just sucks right now. My sister feels so bad that she keeps thinking about it. It really is a just a tragic thing to go through.

I often why I am fixated on Allah. He isn’t really my “god”, though if all gods are the same, then I guess he could be my god. I don’t really believe in a god. I believe there is a higher Providence or Power that rules things. I used to believe in the three spirits but all that was shaken when my family broke up. See, my priest at the time, said that if you go to church for a year, things will change. I went faithfully for almost a year, sometimes twice a week I went. And then when that year was almost to a close, I was suicidal and my family was apart. Some change. I blamed God for this and that priest. Oh, how I hated him. I don’t even remember his name, now. I never knew about Allah, or any other religion, until I was an adult. I grew up Catholic so I naively thought everyone was Catholic. I didn’t know there was Protestants, Jewish people, etc. Everyone I knew was Catholic and we all went to the same church, or one like it. I don’t really know the exact moment I heard about Allah. Maybe while I was reading the History of God, though in the book, he was called Mohammad. The book was very dense and didn’t offer too much breathing room. I never finished it because I just couldn’t get through it. But I guess, I learned about Allah when Muslims started entering the US and I wanted to learn more about them. I don’t believe that ISIS are Muslims like they say they are. They are aliens that want to kill and control people. Because why would these people kill their own kind? Doesn’t make sense. From what I have learned, Allah is a peaceful god that wants peace in the world. Why he wants to control me, I have no idea. It is what I believe. He isn’t being too vocal. Meds are keeping him quiet at the moment. I hope he stays quiet.