paranoia and other fun things, not

Paranoia and other fun things, not

I met with my therapist today and told him that I have been increasingly paranoid the last few days. I am not sure if it started with my email being hacked or not. I just can’t shake the feeling I am being watched by someone/thing. It’s making me feel really uncomfortable. I also have been feeling like my psychiatrist and PCP have been conspiring against me and putting things in my medical record as well as watching me. When I told him, he thought my meds should be tweaked and I should call my psychiatrist. I was scared of calling her, because she is out to get me. I said I would when I got home.

I came home and got a dizzy attack. I think it is probably because I am dehydrated because despite it being cold, I have been sweating. I wore a heavy sweatshirt and when I walk, I just sweat. I was expecting it to snow or rain so wore my winter jacket. I was also roasting in my therapist’s office. It was way too warm. I broke down and called my psychiatrist. I didn’t want to email her because I knew that would feed into my delusion of her feeding my medical records. She called back and we talked. She told me she wasn’t watching me or adding stuff to my medical record. I felt a little better but wasn’t 100% convinced. She didn’t want to do anything med wise but wants me to call her in a few days. I am tempted to take some trilafon but that hasn’t helped with paranoia at all. Helps with my delusion and voices but not the paranoia. I really don’t want to increase the Invega anyways because that will just mean weight gain. I still haven’t been able to lose the weight I gained since starting it. Course I haven’t really tried either. But that is another story.

I haven’t had dinner yet. My mother called me when I got to the station just as a train was pulling in asking when I would be home. I told her I was on my way home and she said dinner was ready. That’s nice. Least I will have food when I am hungry later. I think once the dizzy spell subsides, I might be hungry.

I’m feeling really scared because of this feeling of being watched, even when I am alone in my room. I am tempted to close the window and drapes but then it will get hot in my room. I really hate this feeling and I can’t shake it. Music has been helping as a sort of background noise for me. I don’t know why, but it helps. I guess it just takes my mind off the feeling and I feel something else through the music. I think it’s kind of weird that since this has started, the music stuff that normally plays in my head has stopped or isn’t as loud as it was. My voices have stayed the same, no new ones. I hope that doesn’t change. It’s awful feeling like you are being monitored, even when you are alone. I might close the window and just turn on the ceiling fan. There has been a weird light that shines in my room and then goes off which hasn’t helped my suspicions.

I need to go to the LGBT website to see if there are papers I need filled out before my appointment with their doctor. I can’t believe in less than two weeks, I see him. It felt so far away before but now is becoming a reality. I just hope there isn’t some medical or psych reason to prevent me getting testosterone. I can’t live in the body like it is. It is driving me crazy because I feel like a man and stuff and then I look at my chest and it just crushes me. It hurts so bad inside and makes me just want to crawl under a rock and die. I know I won’t be able to handle any rejection about this. It will kill me. But I am trying not to think about it or it may feed into my paranoia. Last thing I need is to reschedule the appt because of a hospitalization so I hope this passes soon or at least doesn’t get worse.

Saturday blog 86

Very dull day on the unit. The new med made me so hungover that I slept through the only group today. I think I have a uti so I saw medical. They are not doing a culture which I think is dumb. They are putting me on some med that will make it hurt less to pee. I also asked for some miralax as I haven’t moved my bowels the last few days. Taking the strong pain med has really shut things down.

I’m hoping a friend visits today but I haven’t heard from her so it may not happen. I think today is my aunt’s party so I don’t think I’ll be hearing from my family today until tonight.

I’ve been writing in my journal as nothing else has come up. I’ve sort of had a writing itch but things have been cloudy with the meds. Today has been really tough getting going. I hope the hangover feeling goes away.

One of my favorite staff members is on tonight. I had tried to send her a copy of my book but there was new policies in place so staff can’t get mail from pts anymore. Told her she would have to buy my book now. Haha.

I’m trying hard to stay awake but it’s hard. I want to nap so bad. I had sent an email to my therapist telling him I wasn’t happy with what he told the social worker yesterday. I think I need to find a new therapist. I tried to find the email my psych had sent me but my phone is unable to retrieve it. I put it in one folder and nothing is coming up when I access it.

I’m pretty bored. I might start a book on my kindle or read some Dostoevsky. But I’m going to watch the Sox. That will keep me occupied for a while. Unfortunately it is too loud where the tv is. I can’t hear the game. Annoying. But I can’t tell the other pts to be quiet. I’ll just follow it on twitter. Besides, the announcers are annoying me.
I’m starting to finally wake up and my brain is on fire. Fuck. Was hoping it would stay quiet.

Pain has been up and down today. I had a brief surge of pain while in my room but it quieted down. I hope that is the only flare I have today. I really don’t want to take the strong pain pill.

Pain Insomnia

Pain insomnia

I never wanted to believe in this phenomena called “Pain Insomnia” because I feared it would happen to me if I did. Well, it’s happened. It’s after midnight and I am not sleeping because of pain. I am still listening to music but my foot and ankle are having a war as to which is going to hurt me more. So far my ankle is winning.

I started writing in my journal. I figure that would help me sleep. But nope, it didn’t. I wrote out my “suicide note” in my journal so in case someone reads it should I die they know they aren’t to blame for my death. I have tried everything I could to keep going but the pain is just too much. I just keep on taking pills left and right and that is not the kind of life I want to live. It’s bad enough this pain took away my jobs, my walking ability, basically my dignity. And still no one knows why I am in pain. Some docs have given me the elusive diagnosis of “complex regional pain syndrome” but I don’t fully meet the criteria for that because I don’t have color changes. I just have pain. All the damn time. And it’s worse at night so no doc can see what it is when I am not in the office during the day because that is not when I have pain.

My psychosis is not helping. I skipped a couple of doses and it caused the symptoms to return. Part of it is because my doc wants me on 1 dose a day but I need 2 a day to get relief. So I have this battle with the voices about taking my meds and it isn’t pretty. Mostly the battle is just take the bottle rather than a couple of pills. They don’t understand that by doing so, I might die. But they don’t care. Since when do auditory hallucinations care what you do when they command you to do something? They just want you to obey them. It’s gotten better now that I am back at 2 a day. I still get paranoid though. There was a guy at Starbucks today that was really antsy. I thought he could read what I was writing in my journal. Honestly, anyone that can read my handwriting, I give credit to. It’s complete chicken scratch.

My strong pain pills is ready to be picked up. I will head into Boston tomorrow and get it. I hope there isn’t a problem in the pharmacy. All this talk about opioid awareness has me wicked paranoid about filling my prescriptions. I haven’t had a problem but I don’t want there to be. It’s bad enough I have problems with my antipsychotic getting filled because of the new fucking system my hospital has, and that isn’t a controlled substance!

So while I wait for pain meds to make me sleepy or exhausted, I write till I am completely out of words. Insomnia sucks but pain insomnia is worse. One of my new Twitter follows was talking about how CBT (cognitive behavioral therapy) helps those with chronic pain but her insurance doesn’t cover it. I find that very discriminatory. I wish I could help her with it. But I don’t know where she is in the world. Hell, I am even trying to get into a CBT program yet I haven’t been called yet. I was hoping to hear from them by the end of last week and here it is a week later and still no word. I just hope my suicidality doesn’t hold them back. I am always fearful about this. I have had so many therapists deny me their services because of my suicidal history.

I need to go to the grocery store tomorrow to get pumpkin puree so I can make pumpkin cupcakes. I like to bake and I have this new recipe. It looks easy enough. I want to bring them to my therapist when I see her on Tuesday. I also have an appointment with her on Monday. I hope it goes well. She knows that I am suicidal. We have been talking about it for the past couple of weeks. Seems I am more suicidal this time of year than at any other time. She wants me to see me through the new year but I think she is wasting her time with me. I just feel so awful and not sleeping doesn’t help matters.

I had picked a date but I don’t think I will go through with it. There are a few things I haven’t done yet that I want to do before I end things. I was hoping to do it this week but pain stopped me yet again. Next week I will be really busy so the things I need to do will have to be the following week. And again, it all depends on my pain levels to do these things. I hate that I have to be dependent on pain to basically tell me what I can and can’t do. It really sucks.

I remember the last time I visited my cousin in Washington, DC. We went to the Smithsonian and saw a few museums. It was really fun even though my camera wasn’t too cooperative. My leg flared up the next day and I was laid up for most of the weekend. I felt really bad because I couldn’t do anything but put my leg up. Some vacation that was. I stood too long and it just flared up pain in my ankle, much like it’s doing tonight, except I didn’t stand too much today. I did go up and down the stairs a few too many times though.

Writing Itch 2

Writing Itch 2

I have been trying all sorts of things to get my mind of the writing itch, I even tried writing in my journal but nothing has scratch it so it calms down.

I am listening to the ball game because it usually calms me down, even though I get excited while listening. They have a new player on the team and I am excited to hear how he pans out.

I have been trying hard on what to write and I still got nothing so this might just be a rant of sorts or just a random thoughts put on a computer screen. Today I read about how my favorite actor, Wil Wheaton was having trouble finding work as an on-screen actor. He really misses being an actor. I miss seeing him on the screen. I wish they would give him a chance because I really think he is a good actor. But I guess as young actors age, they don’t find work so easily. He is busy writing, which has kept him busy. I guess it’s better than doing nothing. And I know how hard it is to write. But he is more creative than I am. I write every day but I don’t think it’s substantial. I have questioned whether what I write really helps people because I don’t get many likes like I used to and my comments are down.

I don’t know if people reading this right now have read my previous blog of the day. I am reading a chapter on the psychologist/psychiatrist Adler. He has a unique perspective of how to treat diagnosis by treating the whole person rather than the diagnosis. It’s kind of what my therapist has been doing, treating me as a person rather than a diagnosis. My psychiatrist also does the same thing. She has been the most liberal psych that I ever had, but the she has been the ONLY outpatient psychiatrist I ever had. I say liberal because she is not a drug pusher like some psychiatrists are. She rather you take less medication than more. That is why I was kind of shocked that when we restarted the Zoloft, I thought she wanted me on 50 mg and instead she wanted me on 100 mg. That is the only time that we kind of disagreed but I am glad I am on 100 mg because it is helping me cope better. It hasn’t really “cured” me of my depression, like most medications, but it does relief some of the symptoms.

I was reading an old notebook that had some journal entries about therapy way back in 2001. It talked about my therapy sessions and what was going on then. I found that despite the years, I am no better. Even though I was reading some blogs from last year, things are the same as far as being depressed and suicidal. I want to “fix” myself but have not been able to find the right treatment even though I have been in treatment. Medication and talk therapy only goes so far. I think that if I wasn’t in chronic pain all the time, I would most likely be better off. I guess you really have to be careful what you wish for because there were times before Cauda Equina Syndrome entered my life that I sometimes wish I was in physical pain than in emotional pain. I had no idea how debilitating physical pain could be. I thought it would be “easier” because there are medications for physical pain. But the daily pain that I have is so exhausting. Even with me trying to take a shower this afternoon was tiring and painful. I could barely stand for 10 minutes to shower. I had to sit for a little bit before I could shut the water off and dry myself. It was terrible. I don’t wish this on my worst enemies. I knew back then in 2000 that I had a bad back. I never should have gone to a chiropractor but I did because it was some relief. I should have stopped going when I was better but they just suck you in for more adjustments because it’s “better for your health”. Yea, right. I wouldn’t recommend them for shit now and especially if you have herniated discs in your back or neck. That is just causing trouble.

This month marks sixteen years that I have known my therapist. We met for the first time but unfortunately, I couldn’t see her right away because of insurance issues. I was so thankful that in January she was still accepting patients. I really don’t know what I would do without her. She has been my voice of reason at times, even though she can be a real pain in the ass as well. She has saved my life numerous times, by telling me she cares for me and sometimes she loves me. I know it’s a kind of love that two people have because I love her, too, though I don’t show it often. I was pretty much in love with her the day I met her. I remember a session where I finally admitted my feelings for her and the next day I saw her, she wore a mini skirt and her legs were and are gorgeous. She doesn’t wear skirts anymore, least not short ones since she is married but good god almighty, I could hardly speak that day. And I was totally like, you got to be kidding me. I got her a birthday present that I will give her at the end of the month when I see her again. Her birthday is this weekend. Got to love Google for helping me find these things about her.

There is a LOT of stuff that I have given her over the years. She must have a file cabinet just for my letters alone. I used to write to her all the time when we were seeing each other. That was when I had a car and she was local, not out in the boonies like she is today. I do miss seeing her but talking on the phone is fine. I think it’s better because I have more face to face contact with her when I see her than I did before. I still might look at the floor than talking with her but there is definitely more face contact. Before I would just spend the entire session looking at a chair or the floor or something on her rug. Anything but her face. It was too scary because I didn’t want the connection. Now that we have the connection, I can look at her without worry, though it still is scary at times.

I sent her the link to my blog again about Chronic pain and suicidality. I want her to read it before our next session because I think it’s important for her to know. She didn’t have time to read it on Monday or before today’s session. If she doesn’t read it, I feel like why bother sending her stuff. Same with the letters. That is why I don’t write them anymore because she doesn’t read them or it takes her a long time to get to them. I know she only has a few minutes between sessions but I just feel like she is missing out on my work if she doesn’t read what I send her. I rather her be late to session than her not reading my blog or letter. If I am putting effort into this thing, the least she can do is try to read it.

I counted my antipsychotic pills (trilafon) and found that I will run out before I see my psychiatrist again. I will have to email her to send another script sometime next week. I thought I wouldn’t run out but if I am taking 2 a day, I will run out. I need to take 2 to keep the paranoia and voices down. I find that it works best if I take it twice a day than once a day. I know my psych just wants me to take it once a day but it doesn’t cover me the whole day. I have tried to just take it at night because that is when the voices are at the worst. It just doesn’t seem to hold me and then a few hours later I will need another dose because I am still up battling the voices so I can sleep. I don’t want to bother her as she is on vacation. She did ask me if I was set on meds and I thought I would be okay with the trilafon but I miscalculated. 30 pills only gets you so far in two weeks. Some days I need 12 mg because the voices are so damn bad. I have been getting musical hallucinations lately that have been god awful. I hear a song over and over like it is playing but it’s not. And it plays the entire song over and over. I have tried listening to music to stop it from playing but it doesn’t help. Then there are a battle between what is in my head and what is actually playing on my MP3 player. It sucks. Least the lyrics haven’t changed so that is good. Sometimes the lyrics will tell me to do things, even if I have heard the same song a million times. It’s just odd. But it’s just part of the psychosis. And it’s worse at night than during the day. Everything is worse at night. My pain, physically and mentally, the voices, the songs, the paranoia, the delusions. Everything.