Pain is really bad because i had to leave my house earlier than I would have liked. Both feet are swollen, left worse than right. I can’t deal. Least i had some of my Pad Thai, and by some I mean 5 bites. I was full. Psych thinks I should see my pcp because of the weight loss. Basically losing 5 lbs a week. Told her I am ok. When it is 30 lbs I will be worried 😜 (just have 15 more to go) also thinks I should see him for my flares. I don’t have the energy to. Previous docs have shot me down when I’ve told them every appt flares are worse and i am met with no change in meds or what to do. I’m done getting burned so i am staying away from the fire. Besides with my living situation changing, flares are going to be way more frequent from stress.
I told my psych I’ve been really suicidal. I’ve been trying to keep the demons at bay but pain is a huge trigger and add depression and it just fuels the fire. I’ve never been this down before, well I have. Just not so quickly. Three weeks is a short amount of time. My psych asked me if I could come in next week and I asked if I had to and she said yes. Great. I really don’t want to see anyone. I just feel hopeless about everything and I am overwhelmed with shit I have to do. My sister is driving me crazy because she is stressed out. Stress just causes me more pain. I had my 5th flare in a week last night. I have been going on 4 hours sleep, which I got in 2 hour increments.
I was very suicidal last night, the worst it has been in quite some time. I know I could have called my psych but I really didn’t want to be told to go to the hospital. I am done with going to hospitals, least the unit I was on. There isn’t any help anymore. I don’t have a therapist. Unfortunately I am still not mobile enough to be going. I am making some progress in PT but it is very slow. It has been two months I’ve been going and have been doing the exercises but on days I hurt, I can’t do them or on days like today where I had to fucking leave my house because my pedophile cousin came over with my aunt. His voice still gives me flashbacks and shit. I was out for about six hours. I knew I going to be hurting. I didn’t think I would swell though.
My voice is continuing to change. I had no voice when I got up around 10. Trying to communicate to my mother was a fucking pain in the ass. I literally had to write shit down to tell her stuff. When my aunt came over while I was in the shower, I was a little better but still hoarse. Even while talking to my psych I sounded froggy.
My hair is getting thicker. And omg, my hair on my head is growing faster than ever. I shaved it this morning and now I have a 5 o’clock shadow. Will be a buzz tomorrow. Yet my mustache takes forever to grow back. I shave it off last week because I got a big painful zit. It is growing back but not at the same pace.
I am really exhausted between pain and the depression. My sleep has gotten a little better with the melatonin but if I am in a flare, forget it. I just fight sleep.
I saw my pcp’s social worker yesterday afternoon. She can’t see me like a therapist but will cover me until I do find a therapist. She is easy going but I haven’t shared my suicidal demons with her. I really can’t. Last thing I need is for it to be in my record and then I am fucked. Any provider can read her notes. I am very careful about letting on how suicidal I am. I will tell my psych but that is it.
I had my grocery delivery yesterday. Powerade hasn’t done shit about their lot that is bad. I got 5 more bottles of the crap. Going to have to call again. I wanted to today but was rushed out of my house. I still need to get some as they only delivered 7 of the 30 I ordered. They also didn’t deliver my chicken patties for the second month in a row! Now I need to go to the grocery store to get the stuff. I am going to try and just buy the powerade at a little at a time because I can’t carry a huge load. 5 bottles is my limit on my rolling cart thing. I won’t go tomorrow but maybe Monday. I am sort of dreading it as my sis moves in Sunday. God only knows what it will be like living with her again.