Tag: cauda equina syndrome

how I manage being suicidal

by Midnight Demon, posted in cauda equina syndrome, chronic physical pain, depression

It’s well past 2 in the morning. This may well be a Mr. Hyde blog as I am very tired but feel the need to write. Mr. Hyde likes to write things, very bad things and depressing things at this hour so this is a warning that this might be a suicidal blog.

I have been up the last few hours battling pain. My foot exploded around 11 pm (2300) and has now settled down some after putting on some gel and taking my pain meds. But then I got sick, I felt like I had to go throw up. So I laid down only it made it worse with reflux.

I wrote my psychiatrist a letter that I am hopelessly depressed and why bother with treatment of any kind as it is not helping me. I tried to get out of therapy with my therapist for today’s session and failed. I just don’t see the point. I am deeply depressed and if I could I would do something to end my life but I have no idea what I would do. Sure I have pills, but that might just make me sick and I hate to clean up vomit, if I survived. My luck, I probably will. I hate being in pain and can’t sleep. It drives me absolutely nuts.

A fellow blogger is battling her demons too. Her psych team wants to hospitalize her because she is suicidal. I suggested an alternative, the SSF to help deal with suicidal thoughts and to come up with a treatment plan. I told her to get the Managing suicidal risk book. It is a good book, if you are trying to manage suicidality. I don’t know what I did with my copy of the book. I know it is somewhere in my room or in my office. I can never find it when I need it. I have the SSF (suicide status forms) all over the place but not the actual book. And, no, because of copyright rules, I cannot post the forms as much as I would absolutely love to. There is one online, used, but helpful just to give you an idea of what they look like. I think I might ask my therapist to use it tomorrow. Or use Holden’s psychache scale. And again, as much as I would love to post it, I cannot because of copyright rules. I just am so hopeless. Everything is dark and gray, and I don’t mean the weather. I feel like I have no future, no purpose in life. Sure I published a book and that is a huge accomplishment. But why am I being “punished” with this depression?? What have I done that is so wrong? I hate my life.

My ex blocked me on Facebook today. I am actually glad because I was getting uncomfortable with the questions she was asking. She wanted to get back together. That is not going to happen. I guess me telling her I just wanted an online relationship pissed her off. Oh well. First time I have been blocked by someone. But this is kind of good because I don’t need her drama in my life. Yes, it bothers me but only because I thought this time we could just be friends and I have no idea what set her off and I will never know. Oh well.

Tonight was the first time all week that I took all my meds that I was supposed to take. I think that is why my stomach is bothering me. I usually have something to eat when I take them but tonight, I didn’t eat anything. I just am not hungry. And feeling sick to your stomach doesn’t make you want to eat anything. And oh joy, I think I may have a UTI. I have been leaking the past few days, more so than usual. Oh the joys of CES. That has me down too, because who likes to piss their pants? I am so tired of dealing with wet underwear. And having to take a shower every time I leak. It sucks because I hate showering. I had a good shower tonight. The water was nice and hot and it relaxed me. It was the first time in a while I felt that way. But I couldn’t stay too long because I knew my foot would act up and it did. Damn foot! Always ruins things. But I did a lot of stairs today and walking so it is my fault it flared up. I wish I could chop it off. Least with the ghost pain, it will be a real reason why it hurts. I don’t have a clear reason why my ankle/foot hurts. They think it is tendonitis. I think it is just nerve damage and over usage from fatigue. My foot gets tired and then it needs to rest but I don’t know it so I keep using it and then it flares up on me late at night. I then write blogs like this because I have nothing better to do and I can’t sleep anyways. I wish I was dead than deal with this pain every night. My heart is so heavy with heartache. I really don’t know why I keep going on. But tomorrow I will call my PCP and hopefully not talk to the stupid nurse about my UTI symptoms because other than leaking, I have no burning or pain. I don’t feel it because of nerve damage down there. I just have had bladder spasms. But those have subsided. But now my urine reeks so I know something is going on. Fucking CES always has to throw a wrench in the works. Can’t always be a simple case. I still will need to give a urine sample and I hope I will be able to. That is always the tricky part. I have to make sure I drink a lot before the appointment. Otherwise, I might not go when they give me the cup to pee. Oh the joys of retention! I no longer get the signal to my brain when I am full. Usually, I have to start leaking and then the signal goes to my brain that I am full. Fucking CES. Wrecks your life forever. And people don’t get it when you tell them. I was telling my cousin tonight the story about how I got CEs and the surgeries I went through. He still didn’t get it. But oh well. Not his life to live.

Easter Sunday

by Midnight Demon, posted in cauda equina syndrome

Happy Easter to those that celebrate it. I had a good family outing that wasn’t stressful. I ate too much though, so my stomach is killing me at the moment.

For the past two weeks or so, I have been having bladder spasms, either following a urination or just before. Today I decided to take a home UTI (Urinary Tract Infection) test to see if I do indeed have one. Sure enough, I do. Just great. I am going to have to call my doctor tomorrow and see if I can get some antibiotics. I hope I don’t get the nurse when I call. They are clueless with nerve injury patients. Because I don’t feel right, I don’t get the burning or pain on urination like normal people get. It usually is bad enough when it reaches the bladder. I am very uncomfortable. This is my first tract infection in almost three years. Not bad, I guess, considering.

I have not been feeling well the last few days as the spasms have gone from a few times a day to all the time. Or it is just pain. I really can’t tell the difference. I just know that something is not right and I feel discomfort in my lower abdomen. I just hope tomorrow, if I have to go in, I can pee. I cannot pee on demand. I will have to make sure I drink a lot before the appointment so that I can go. Just another lovely consequence of cauda equina syndrome. Something that I neglected to put into my book.

I am hoping to have a session with my therapist tomorrow. I hope she will have a time available for me. I still am feeling stressed over my anxiety and my issues with a couple of friends. I was overreacting with one of my friends and the other I still don’t know what is going on. It will be good to talk to her to get a sense if my paranoid self is playing a part in this. Yes, I am taking my meds, but it takes a while for it to work.

I have been more tired lately than I have been. It is most likely due to fighting this infection that I have than anything. Plus being in pain/discomfort all the time is tiring. I haven’t been running a fever or anything. Just been feeling worn out. I just hope I get to see my doc because if I get someone else, I have to explain the whole thing about my nerve injury and how I don’t feel things anymore thanks to a disc pressing on my nerves. I once had to hand my doctor’s nurse information about cauda equina syndrome because she was so difficult. She just couldn’t understand why I couldn’t feel and thought it must be something else that is causing it. Air brain! Course, it doesn’t help that I have been eating asparagus the past two days. I just feel so icky. I think I am going to take a nap again. Seems every night around 18:30 (630 pm) I feel the need for one. I don’t know why as I got up late today (after 0900). Oh well, and I had a cup of coffee around 1600. So much for that waking me up…

Midnight Demon, The book detailed

by Midnight Demon, posted in cauda equina syndrome, depression

BookCoverImage

Having a crazy day. I got up early this morning, for no reason other than waking from another weird dream. I went to see my pdoc today, which was good because she always calms me down when I am psychotic/delusional. She thinks I am just anxious over what is happening with my book and everything. She is probably right. I am not used to anxiety. I hate it and feel very uncomfortable when I feel it.

I got to sign my book for her. She really is proud of what I have accomplished. She even showed my book off in her class as a writing example. I am so happy she really likes the book.

The book is about my blogs and my struggle with mental illness and cauda equina syndrome. Cauda Equina Syndrome (CES for short) is a neurological medical emergency when a lumbar disc ruptures and you have weakness in your legs, lose your ability to control your urine/fecal matter, and have numbness down your legs. I write about this because people should be aware of what can happen with more than back pain.

My mental illness consists not only of depression, but of psychosis, paranoia, and delusions as well as Post Traumatic Stress Disorder. I write about my suicidal history more than anything because it is a suicide attempt survivor book.

I also have my personal experiences with the mental health system from the various therapists that I have seen over the years as well as the multiple hospitalizations I went through.

I hope you will support me by buying a copy of my book! It is available through Kindle and paperback through this link. Unfortunately, those are the only formats available at this time. I am going to look into iBooks eventually so iPad users can have access if they don’t want to download Kindle app. I am also trying to get it available via Nook but that might take some doing as I am not familiar with that format.

Chronic Pain is No Joke

by Midnight Demon, posted in cauda equina syndrome, chronic physical pain, depression

Chronic pain is no joke

It has been a while since my left foot has been acting up. The last two days have been really bad. I think it is because of the weather changes, temps going from 30 to 60 always wreck havoc on me.

Though I have had a rough day, my thoughts right now are focused on my foot and its throbbing. I seriously want it to stop but there is nothing I can take to calm it down. I already took my pain meds two hours ago and can’t take another dose for another two to four hours. I am in such agony that I want to cut my foot off. I don’t have any power tools in my room so that is a good thing. And I can’t bear weight on my foot so I can’t get to the basement where there are the tools that I need. I hate being in so much pain.

I didn’t do much today, in the way of walking or standing. I did stand a lot yesterday, which is probably why my foot is killing me. There were a bunch of kids at the bus stop yesterday and I couldn’t sit down like I normally could. And it wasn’t like the kids were going to let me sit down. They were running and jumping all over the place. One little kid was actually looking at me like I had ten heads when I decided to move to another spot while waiting for the bus. It was like I wasn’t supposed to move. Now I am paying the price in increased nerve pain and physical pain. Plus my foot is swollen so that is NOT helping my case at all.

I am so tired but I can’t sleep because of the pain. My foot needs to settle down to at least a 5 on a scale of 1-10. Right now it’s a 9. I am glad I already took my night time meds because to get up again will be torture. I just hope I don’t have to go to the bathroom any time soon. Going down the stairs will kill me.

Why does my foot hurt? Because it is an asshole. But seriously, no one knows why. I have nerve damage in my foot and a little of what is known as Complex Regional Pain Syndrome (CRPS). I got the nerve damage from a ruptured disc thirteen years ago. Then I got another ruptured disc five years later but at a different level. I have had many problems with my left leg, mostly stemming from my back. I have herniated discs throughout my lumbar spine. I just hope that me lifting and carrying three cases of sprite didn’t hurt me in anyway. I will find out tomorrow. I know my arms are going to be sore.

THROB THROB THROB. That is all my foot does to aggravate me and put me in a bad mood. And there is nothing I can take for the throbbing. I just have to wait for it to settle on its own. Sometimes, if I feel like it, an NSAID gel will calm it down. But right now, I can’t touch my foot. Just the sheets on my bed are bothering it. It is that sensitive. I also love how all the veins in my foot are popping out like no tomorrow. Another sign that it is CRPS. And my foot is so hot, like it is on fire. I wish I had a fire extinguisher for it but none exists. That is what kills me all the time, the burning sensation in my foot. So I have the throbbing, burning, stabbing, bone-crushing pain going on. I really want to lob off my foot. I could cry but I am not a crying guy.