Tag: complex regional pain syndrome

day four of no internet services

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, depression, mood disorders

Day four of no internet services

I got a lot accomplished today. I woke up before 0800 and decided to go to Starbucks to work on my blog project. I checked my net to see if it was turned on but it wasn’t. I wasn’t going to sit around waiting so caught the next bus to the Square. I had breakfast and my espresso and then got to work. I had two chapters to read and write up to finish the project. I was done by 1130. I included a little conclusion. Then I went to CVS to get a Father’s Day card for my mother. She wanted a 99 cent card but they didn’t have any. I bought one for $4. She may flip but I don’t care. I couldn’t spend all day looking at cards. My ankle was getting angry just walking to CVS. I had to go home and take my meds.

I came home and still no net. I called and they said I should have service after 1400, but it could be until 1700 for the wiring to be completed. Fucking great. So I am typing without distractions from the net. I am tired and want to nap. I really don’t feel like typing up what I wrote as when I opened the document I started, I was on chapter 3, which means I have 7 chapters plus the conclusion to write up. I hope some people are appreciative of this work that I am doing. It has taken me a long while to do because of pain flare ups and depressive mood swings where I don’t want to do anything. I started this book in Feb and I am just finishing it today. Well, it’s almost done, once I get to typing up the seven chapters.

I slept pretty good as when I woke up, I thought it was after 10 as my mother wasn’t up and the house was quiet. Then I looked at the kitchen clock and it wasn’t. I am glad I had a good sleep. I didn’t want to go back to sleep because I would have felt unmotivated to do anything today. I am glad I got out. I had two meals at Starbucks. Lunch was their new protein box of BBQ chicken and carrots. It also contains apples but I didn’t eat them because they had put stuff on it so it doesn’t turn brown and I don’t want to ingest those chemicals. I just ate the sandwich and carrots. I drank an iced tea/lemonade. I got a medium rather than a large.

I am pretty tired. Reading always makes me tired for some reason. I also think I am tired because I have the damn runs from the senna. I have gone to the bathroom three times today. I am physically exhausted. I hope I don’t go anymore or I will take some Imodium. That usually settles things down.

Feet are frozen and it’s 76 degrees today. I had to shut off the ceiling fan because I was cold. I’ve had the AC off since last night as it’s been comfortable. It was supposed to be humid today but it’s not. It will be, of course, humid when I have my therapy appointment on Monday. I am tempted to cancel on him again but I will see him one more time. If I don’t get a vibe from him, I am going to tell him see ya later. I just don’t want to invest in someone that is not going to give a damn about me. I don’t know where I will go. I have this Life Support group that is next door to his office. They contacted me the day I had my first appt with him. I told them I would keep them in mind should I need them. I will contact them on Tuesday if this guy doesn’t pan out. I really would like a male therapist, not that I have anything against females. It’s just out of the 13 therapists that I have had, most of been female. I’d like to see if a male can be better suited to my needs. If not, I will take what I can get, I guess.

using hotspot, again

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, depression, mood disorders

Using hotspot, again

I didn’t go to sleep till well after 0300. That was when I had a bowl of cereal and the pain had settled down enough for me to sleep. I slept for almost 12 hours, waking up only twice to use the bathroom. I checked my internet service and still had not access. I was hungry so decided to have something to eat before being on hold forever with Verizon.

I called and there is a problem with the central office so my account hasn’t been cleared yet. I should have services tomorrow. Fuckers. I am glad I can use my phone for net on my laptop. I would use my phone but typing up a blog is difficult and my phone likes to change simple words whenever it feels like it. Like I typed is and it changed it to us. So annoying!! I constantly have to double check what I wrote to make sure it is what I wrote.

Foot is still hurting but it’s not as bad as it was last night. My Achilles has calmed down as well. I thought about going to walgreens to return something but think I will give it another day’s rest. I really don’t want it flaring up again as the pain is hard to control.

I had emailed my PCP’s office to see if I could expedite my appointment with the CRPS specialist and I will be seeing one of her colleagues rather than her. Great. Don’t know when that will be. I hope it will be sooner than February 2018! Last night’s pain was terrible. I had to take a boat load of meds just to stay on top of it.

It is much cooler today than it was yesterday. I shut the fan and AC off. It’s comfortable in my room, though my feet are fucking freezing. I need to put on my thermal socks so they can warm up. I hope the temp stays the same over the next few days. I like it this temp, neither too hot or too cold.

Sox won last night in extra innings, again. I was so tired last night that I didn’t really pay attention too much. I tried but it was a lot of bullshit in between the Twitter line about the idiot Sessions’s testimony. It went through most of the night and today. When I woke up, I saw on Facebook there were two shootings, one in Virginia and the other in San Francisco. Just terrible and then you have the fire in London that was devastating. I should go back to sleep so I don’t have to hear it.

in so much pain I can’t sleep

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, depression, mood disorders

In so much pain I can’t sleep

I had bought a compression sleeve to help my ankle pain. I made the mistake of wearing it tonight to see if it would help my Achilles and it flare it up, severely. The shorts I was wearing were bothering me so I stood up to change to my PJs. Another mistake. The pain had settled down some but now it’s flared again. UGH. Both my ankles hurt. I feel really depressed. I want to sleep but I am in too much pain despite taking meds for it. I also have songs playing in my head full blast so I took some trilafon for it. It’s so loud I can’t hear my regular voices.

I was talking with a friend tonight about various things. She lives west of me, near the New Hampshire border. I was telling her about how my mother treats me and she offered me her home. She said there is room for me there. I thought that was sweet but there would be a major problem as I am a city boy and she is out in the sticks. I would have a hard time getting around because I don’t have a car. I appreciated the offer though.

The pain in my bad foot/ankle is causing me to have PTSD symptoms because it’s all over the place and the pain is severe. It reminds me of when I was diagnosed with cauda equina syndrome and I am kind of in a panic about getting it again. I know I am not because I am not numb and I don’t have weakness. I just have pain confined to my foot and ankle. But the brain and emotions don’t always sync with one another when you have suffered a trauma.

I am so damn tired. My neck is aching because I need to lie down. But every time I lie down, my pain gets worse and so does my PTSD. I sometimes wish I could sleep sitting up but it puts such a strain on my back. I wish there was something I could take for my PTSD but the only thing I can take is Ativan and I already took 1 mg. I can’t take anymore, least not for the next six hours or so. I am also maxed out on my pain meds. I can’t take anymore for another six hours as well. I wish I never put on that stupid sleeve. I can deal with one ankle hurting but both drives me berserk!

I emailed my PCP’s office to see if he could move up the specialist appointment. I don’t know if he will be able to do anything about it but I figure it’s worth a shot. I talked with my psych today and she is going to try and find me another doctor that specializes in CRPS that I can see faster than the other doctor. I don’t know if it will happen or not. But she doesn’t let me down. I just have to wait. I just know I can’t go on with this pain anymore. I have taken Neurontin and other pain meds to quiet it down and still I am in pain. I makes it less so I can sleep and function throughout the day but it doesn’t make it so I have zero pain, ever. I don’t think there is going to be much that the specialist is going to suggest. I have been on other drugs but Neurontin has been my main stay. It helps me more than any other drug in its class. The only thing I don’t like about it is that it makes me gain weight. I have to really try and control the food cravings to keep my weight where it is but it is so damn hard when you are hungry all the time.

I don’t know if I am going to be able to sleep tonight. My pain seems to be fluctuating between tolerable and intolerable with the slightest movement. I can’t decide which foot hurts more, my left or my right. This is just awful. I’ve never had BOTH feet hurt me at the same time in such severity. I am waiting for the meds to kick in so I can sleep. I can take another strong pain pill in about a half hour. Hopefully that will settle down one of my feet. I don’t know what else to do. Time is going by and it’s getting later and later yet I am not sleeping because I am in such pain and my PTSD symptoms are keeping me up, too.

I’m going to try and sleep. If not, I will write another blog until I pass out.

another wicked hot day

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, depression, mood disorders

Another wicked hot day

We are in the third day of 90+ degrees. I had to go out today to get my script at my PCP’s office. It was brutal after I spent all fucking morning waiting for the Verizon tech to fix my internet. He upgraded everything and I still don’t have it working. UGH!! So I am using my phone as my modem. Thank you Sprint for this service. I can’t stay too long on my laptop because I only have 10 GB of data. I hope to have my services back tomorrow.

My ankle is just about killing me now. I took a shower when I came home because I was a sweating mess. I turned the water to a colder temp and really cooled down but it caused cramps in my foot. It felt good on my head though. I didn’t stay in the cold water too long, though I would have loved to. It was very refreshing. I went to my room to get dressed because it was too hot downstairs.

I got my meds filled and I took them when I left the pharmacy because it’s been more than 24 hours since my last dose. I didn’t want to go through withdrawal. That is yucky. Looks like I came home just in time. The thunderstorms have started. I hope it cools off some, just for my mother’s sake. I worry with her blood sugar in this heat.

I was going to move things back to my room, but I am too tired and hot to do so. I will do it tomorrow. It’s supposed to be cooler, but then they said the same thing today and it was hotter. We’ll just have to see.

All I had to eat today was a turkey bacon sandwich at Starbucks. I might order a burger for dinner or maybe have a frozen dinner. I haven’t decided. I am getting hungry though. I would have made breakfast but I didn’t know what time the stupid tech was going to come. They said between 10 and 11 and he didn’t show up till around 1145. Then didn’t come up to my room till an hour later. He was shocked that I didn’t have a TV in my room. I told him I don’t watch it, just play on my laptop, which is why I need the damn net! Luckily, he didn’t comment on how messy my room is.

I am going to try and keep my printer on my desk. If I can keep a pathway to it, it shouldn’t be a problem. I had it on a chair before. That was only because I didn’t have access to my desk as shit was piled in front of it. I cleared a good chunk of it away and threw out a lot of old mail and recycled what I could. I figured whatever was on the floor was junk as it’s been there for at least 5 years, since my disability. I know the stuff on my desk I need as it’s stuff pertaining to my father’s death and my disability claims. I don’t know how long to keep them for but it’s only been at least three years. Eventually I will go through it and put it in a folders to organize it better. Who knows, I might actually be able to use my desk afterwards! I need to junk my desktop computer that I have. It’s a dinosaur now. I reformatted it the last time I used it so there is no useful files on it. I just can’t sit in a chair for too long anymore. I rather be on my laptop in my bed, where my “office” is shared on half of it. It’s a good thing I am not all over the bed when I sleep. I just stay in one position most of the night.

HOLY FUCKING WIND!! The house is shaking big time! It scares me. I never had a house shake from high winds before. I hope a tornado doesn’t happen.

Update, the high winds causes two trees to be knocker down, forcing the police to close my end of the street. My niece was on the news! She described what happened. She was so cute. I love her.