Category: Chronic pain

I don’t get nerve pain

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, depression

I don’t get nerve pain

Truly I don’t. My room got freezing cold because I had the a/c cranked because it’s hot outside. My foot gets freezing ice cold, even under the blankets and a pillow so I put a sock on it. Now it is warmed up and hurts like holy hell. I am so sick of this shit. I know I put off my suicidal plan but it is back on again. I am not going to live with this shit. No fucking way. I didn’t do anything to my foot though it feels like someone is stomping on it. I have it up on a pillow and it still hurts. I just don’t get nerve pain. I was doing good all day. I thought today might be a day that I won’t have to take my pain medication but NOOOOOOO. My foot had other plans.

But such is my life with CRPS (complex regional pain syndrome). Thing is other than my foot getting really cold and then really hot, I don’t have any other symptoms other than pain. My foot doesn’t change color. It doesn’t swell up like it used to. I just have this exploding pain that comes for no reason. While I am at REST, when I want to go to SLEEP. And the pain isn’t the same. Sometimes it is exploding. Sometimes it is like it is in a vise. Other times it feels like some one is taking a hammer to each individual bone and trying to crush it. It is agonizing. Other times, if it’s not the bones in my foot, it is my ankle bone, the lateral malleolus. This is right where my peroneous tendons are. I have chronic tendonitis of these tendons. And they hurt big time. And when this pain starts it is like someone is driving an ice pick right through my ankle bone. It starts off the same way as my bones in my foot. They get really cold even though to the touch they are warm. Then it gets warm and it hurts like fucking hell. All I know is that I can’t sleep when I am in pain despite taking the meds because then my anxiety creeps in and it’s all over.

See, when my Cauda Equina Syndrome (CES) started, way back when, it started in my left leg/ankle. So now I have a bad association with pain in my ankle flaring up and me thinking I am going to get CES again, which is worse than the pain in my foot! I could lose total function of my bowels and bladder, my back could go out, I could lose motor function of my legs and end up in a wheel chair. It’s not pretty. But it is what I fear because I have a disc in my back that can make this happen at any time. I have been living with this fear for the past few years and it especially troubles me that the disc touches the nerve roots that control all these things but the docs won’t do any type of surgery because there is no compression. So I live in fear instead. My anxiety goes up and it takes an Ativan to get me to calm the hell down and music to put me to sleep (sometimes). I usually have my anxiety in check but when I am in serious pain, like now, it takes forever to calm down from it. I have to constantly move my toes or realize they are there and not numb to make me feel better. But sometimes during these flare ups, I can’t move my toes and that just sends the anxiety up to panic mode. But as long as I can move my hip, leg and ankle, I know that I am ok. But living with this anxiety is no fun. It drains you like no tomorrow.

Meds are kicking in so I will stop here for now. For those that read this, know that you are not alone with your symptoms.

End of Story

by Midnight Demon, posted in blogging, Chronic pain, depression

I had a difficult day, though I slept through most of the day. I still have bad cramps and after taking a shower tonight, my leg is not acting up. I thought I was done with the pain and dreams of going back to work were filling in my head. But I guess I stood too long in the three song shower. Literally it takes me three songs to take and be done with a shower, four if one of the songs are short. I brushed my teeth.

It has been a hot week so I have taken a shower nearly every day. But today I guess my foot had enough. I just took pain meds. There isn’t a baseball game on tonight so I won’t be up late.

I am thinking about calling my cousin Paul but I don’t know if I want to talk. I kind of am discouraged and feeling really bad with the menses and the cramps are really getting to me. I still can’t believe that I got my menses. I really thought the patch was going to work. I will try again after. I only have about a month and half to live so I don’t see the point in making an appointment with my endo doc.

Been feeling down since last night. I think the good mood that I was in evaporated with the heat. I have been trying to feel good today but it has been such an effort. I got my hair cut from my cousin but he didn’t cut it short enough for me. I might go to the barbers on Wednesday like I was planning. I don’t know. I know a good hair SHORT haircut always makes me feel good.

I had therapy this morning. I don’t remember much except that I fibbed. I told my therapist that my plan was off but she didn’t believe me. I just couldn’t take talking about it with her anymore. She kept on asking stupid questions. She wants me to see a consultant. What am I going to say to him, really? I am going to kill myself and there is nothing you can do, have a nice day? Why bother involving him? Doesn’t make sense to me. Not like he is going to help me. He doesn’t have anything useful that I could use. I would have found it by now. I am tired of being in pain. END OF STORY. And by the end means taking my life, so be it. I am kind of scared though. I never have meant it like I mean it now. I just want relief. I want to be pain free. I don’t want to be stuck taking pain pills for the rest of my life. Funny how I am comfortable taking my psych meds though. I know I need those for my well being, not that they work the greatest. It is just enough to keep me out of the hospital. But I still get psychache at points in my life and it brings me down. I want reprieve. I don’t think I am asking too much. I know a lot of people suffer every day, but I am now one of those people and I can’t bear it anymore.

games and suicidal thinking

by Midnight Demon, posted in blogging, CES, Chronic pain, chronic physical pain, mood disorders, suicide, suicide attempt

Woke up feeling energetic today but after my therapy appointment, my throat was hurting from talking for an hour and I lost my zip. I took a shower, brushed my teeth, and then went back to bed, though I didn’t sleep. I just kind of played on the computer. I am still playing Pioneer Trail, though I don’t know why. I think only about 10 of my 150 neighbors are still playing, which makes it difficult to get things for your homestead. I am also playing the dreaded Candy Crush saga. I had to see what the hype was about and wish I never did. I started playing on my phone then moved on to the computer. HUGE MISTAKE! So after I am bored with twitter and checking status updates on Facebook, I will be playing candy games. One thing I HATE about playing it on my phone is the dreadful music. It sounds like a funeral march or something. I have to turn the sound off to avoid it but then when I play my MP3s and no sound comes on I am like WTF till I remember that the sound is off.

I read my therapist my last blog entry. I think I really have a bozo for a therapist. She didn’t get the point of the blog. Think we spent like 5-10 minutes talking about it and then she wanted me to write a blog about constriction. I was like, where did that come from. She really thinks that I am in this blinders thinking about my plan. I know I am, that is why I am planning on killing myself! DUH! You don’t have to tell me I am suicidal when I am planning on killing myself. I can’t seem to be able to talk myself out of it. I am going to be true to my word this time around. How can I not be? I am tired of being in pain. I am tired of fighting everyday. I am tired of struggling. Why should I continue my lousy existence?

I tried again with my psychiatrist to get an appointment though I am feeling what is the use? Not like she has some radical new drug for me to try to help this ache I feel inside. I doubt a pill would help cure me of my suicidal tendencies. My therapist has threatened to tell her what is going on with me but has not. I can’t bear to tell her for fear of her throwing me back in the hospital and it’s not like the hospital is going to do anything for me except piss me off, and screw up my pain meds.

I see my primary tomorrow. I hope that he can do something about this throat pain that has been bothering for almost two weeks now. Every time I think I am getting better it flares up again. I still have a cough that likes to kick up every now and again. My sides are killing me from it. It is annoying. I am kind of thinking I will be placed on antibiotics but I am hoping not as I hate taking them.

My writing friend is in England right now. She will be there for a week. She said to write emails to her about my writing progress but I kind of don’t want to. It’s not that I have to or anything. I don’t think she is going to respond as she doesn’t have internet connection up there. I guess she is in the countryside of England so why bother when I know I won’t be getting a response. Much like my psychiatrist that doesn’t respond even with all her gadgets. I get frustrated with her when she doesn’t return emails, in a reasonable amount of time, like a day or two. I know she is busy and might not get the email right away but come on, it has been almost a week since I last emailed her and still NOTHING. So I sent her another email today asking for an appointment. I still have not heard anything. FRUSTRATING!

So maybe I will write a blog about constriction over the weekend. Not like my therapist is going to read it anyways…

RAMBLING 40

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, suicide, suicide attempt

There have been many times in the past few days with this pain cycle I am going through that I have wanted to just throw in the towel. but then I can’t be there for my mom and that bothers me. I hate to think that if I wasn’t here on Tuesday, if I had gone to Framingham like I was hoping, I would have lost my mother. I know my sisters would never forgive me. I just feel with this much pain I just can’t fucking cope. How can you cope with this shit. this shit is so fucking tough to deal with. I take my meds and I usually get knocked out. I took them today as if they were nothing. I am still coherent and not drunk but my foot is still rearing its ugly head saying I am still here and you can’t do nothing to touch me. i just took my second round and i am wondering if i am going to sleep tonight. Ice just made my foot numb but then the feeling came back worse. And yet I still have to live and put on a happy face because I can walk “correctly” and look good to people. Fuck that shit. I am done being the nice guy. I will tell people I am struggling but I never mention suicide. I told my friend in the UK my plan and all she can say is don’t do anything silly. What am i supposed to do? I can’t cut my foot off, though I would love to. at least with the possible phantom pain I will have a reason for the pain and maybe welcome it better. I don’t know. what I am reading about suicide doesn’t cover chronic physical pain. I took a psychache assessment today but couldn’t finish it because my head can’t distinguish my physical from psychache. I have no idea if I am making sense or if i am rambling so I will stop here.