A bad night followed by a tiring Sunday

A bad night followed by a tiring Sunday

I had a bad night of pain last night. I was beside myself. I felt like going to the emergency room but I didn’t know which one would be best for me. It was after 10 pm so it would be crazy hour with drunks coming in and such. Or maybe it would be too early for them. I don’t know. I never went. I just took a strong pain medication and tried my best to sleep.

I was in pain and wanted to kill myself and I wanted to kill myself because I was in horrible pain. I got away this night unscathed. But I am wicked tired today. It hurts to think. I woke up around 0630. I could make a pot if I really wanted to but I think I will pass. I have been trying distraction as best as I can but it’s not working for me anymore. I am listening to music but it doesn’t help my mood. Nothing is helping. I am hearing voices again. They started off as British but now they are just remnants of conversations I have had with my father. It is very disturbing. Hopefully a little perphenazine will work.

Even if I did know what to do last night, I doubt my needs would have been met. That is if I knew what they were. I felt like calling my psychiatrist and asking her what to do. I just was in a bad place and pain was the chief cause of it all. I felt like I needed to talk to someone, someone that knew what I was going through and would be an understanding ear. There are few of those around on a Saturday night. My one blogger friend has started dating so she wasn’t available. My therapist certainly wasn’t available. I wasn’t having a neurological emergency so my neurologist was out. It was a combination of it being a med/psych emergency. And who really deals with that?? I wasn’t staring down a bottle of pills. I wasn’t contemplating hanging myself. I just didn’t want to be anymore. The pain and the “demons’ had collided. Not even blogging was helping because I couldn’t think of what to write. I was in a tough spot and needed someone to talk to that knew about chronic physical pain and being suicidal.
Right now my ankle is killing me. I can barely move it without pain. And I haven’t done anything. I guess two days straight of activity is a no-no. I wanted to change my sheets today but that doesn’t seem to be in the works for today. My mother is hurting too. She wanted to clean the kitchen floor until her back went out on her. I swear it is the weather that is causing most of our pain. I suppose I should call my father and see how he is doing but I really don’t feel like it.

But I finally found something to control my appetite. Kellogg’s mini frosted shredded wheat. I love it. And it has fiber so I have been going a little more regularly without pills, which is a bonus. Any thing that gets my bowels moving without a pill is nice. Now if only I can psych myself up to take a shower, that would be nice. I have gone almost a week without taking one. I think Tuesday night was the last time I took one, but don’t quote me on that. This sucks. I just took a couple of pain pills so I can take a shower. This is what my life has become and no one gets it. It is so frustrating to try and explain what I am going through and be heard. Sure my therapist gets it, but there is more worry in her voice than understanding. She will just go off about how many spoons I don’t have when all I want her to do is listen to me, not tell me what I already know.

The temp dropped over night. There is a chill in the air that wasn’t there yesterday. My mother had the damn kitchen door open when I got up to have breakfast this morning. I was freezing and I am usually not one to complain about the cold. But I was grumpy because I was awake and I was hungry. It was bad enough that I had to wear my slippers to go down the stairs. I really need to take a shower today. I think it will help me feel a little bit better. But it might cause me more pain and that is what I am afraid of.

Playing games on Saturday

Playing games on a Saturday

My ankle is still pretty sore so I have decided to stay in another day. I probably will stay in tomorrow too as there is no bus service to where I need to go. I have been playing my games since 0500, when I woke up this morning. I have four Facebook accounts and I just use them to play this silly, aggravating, annoying, mindless, game. I have to get the stuff I need, and when I don’t get it from my neighbors, I use my other accounts to get the items. So all morning and into the afternoon, I have been playing this game. My mother seems to be bored with TV as she is playing her game, Kismet. It’s a Yatzee type of game.

I don’t know what I did, but I seemed to have pulled a muscle in my groin after using the toilet. I got up the same way I always do, but when I got to my room, I was spasming and in horrible pain. It seems to have settled down some but it is still tender. Just what I need, to be laid up further with my back. I hate being in pain, but it has become my normal. My life would probably be abnormal if I didn’t have one pain or other.

I really wanted to go out today. I wanted to mail my therapist her letters and to buy coffee for the house. But I am sleepy because I took some Ativan to calm down the spasms. There is always Monday to get these things done.

It is kind of cold here in Boston today. I should probably see if there is a college football game worth watching. But I really don’t want to leave the comfort of my bed. I have the internet so I can check the scores. Twitter is no help. I have too much nonsense feed to weed through to find my scores. There are only two colleges that I care to watch, Ohio State and Nebraska. I don’t really know how I fell in love with OSU, but I do know I fell in love with Nebraska when I watched the Tostito bowl back in 1996. That was one incredible game. I never seen a quarterback rush like I did that game. It was really cool. And as my Patriots were sucking that decade, it was pleasurable to watch a football game that was winning. I was in Nebraska when I was watching it. I was visiting my friend’s family. It was the first time being away for Christmas and New Years.

My mood has sucked the past few days, most likely because I have been in pain. I am really worried about the appointment with the foot doc that I have in about two weeks. I just have a feeling that he is not going to find anything wrong and I am going to be back to square one. Worse is that he will only offer injections and that is something I am NOT willing to do. My ankle has been through enough. But I am worried with the ankle swelling reaching my Achilles. I wish I could chuck if off as just doing to much but there was real pain when I touched it. Not a good sign. Swelling appears to have gone down and so has the pain, except in my usual spot. I can’t get the swelling down there behind the malleolus bone. I just have been floating with suicidal thoughts the past few days. Nothing serious, other than that they are there. I haven’t made any plans or anything like that. I just wish I would stop breathing or just not wake up. I am so sick of living with this pain. For three days I have not left my room except to eat and use the bathroom. I want to change my sheets again but I don’t have the energy and besides, the other sheets have not been washed. They are just sitting on the floor of my room. I suppose I should get them washed but everything is an effort. I will bring them down the stairs the next time I have to. Until then, I will continue to play my game.

Totally out of spoons

Totally out of spoons

I am so spent. I did too much today and now I am paying for it. I just had my meal, a bowl of cereal. Now I can hopefully relax as I am hurting.

I had to do some stuff for my father, surprised? Tomorrow I get to do the same things I did today, minus going to his house. He must have called me like 6 times today. He is in pain and the medication doesn’t seem to be working. I told him he can take two medication but he refused. Let him be in pain then. I am tired of dealing with him today. Tomorrow he will be seen by his doctor and hopefully they can give him stronger pain medication. I don’t care about that right now.

I have to conserve my energy (spoons). I have a long day tomorrow as I have to deal with my father and then I will be going out to dinner with some friends in the evening. At noon, I am supposed to have therapy but I am not sure I will be home for that. I haven’t quite decided what I am going to do after my father’s appointment. I know I probably will go home so I can rest, but it all depends on what time the appointment ends. I hope that we aren’t there all morning. That will just suck.

I was not in a private space to really talk to my therapist today. She kept going on about how many spoons I have lost even before I went to see my father today. I had a productive morning, all with no coffee on board. I was hoping to have a cup when I got to Starbucks. But for whatever reason, the coffee sucked today, even the blonde roast didn’t taste right. I wasted my money today for the first time. I am so disappointed. I hope tomorrow is better, I am going to need the coffee to get me through the day.

My therapist was funny today. She called me a geek and I think complimented me on being very “Bostonian”. LOL I guess I said “wicked” too much today and it just got to her. I was glad for the light conversation, as like I said, I wasn’t in a private space so talking about my suicidality or self harm urges were out. I actually haven’t had any urges to cut since Sunday. We however briefly, talked about it today. I some how developed a pimple on one of my scars and it was triggering me to cut. It was very itchy and course, when I popped it, made it really angry. I really thought about cutting for the first time in months. I kept thinking about how to make the scar “better”. I know this doesn’t make sense, but it really was how I was thinking that day. I almost had to call her Sunday to talk me out of it or to contract for safety.

I am looking forward to going out to dinner with my friends tomorrow. I am going to go even if it will kill me. I will just bring my cane and I should be fine. We are going to go to one of my favorite restaurants so I really don’t want to miss it. Plus, I haven’t seen my friends all year because of my stinking pain. I don’t see them often. The last two times we were supposed to meet, I couldn’t go because I was on bed rest. I really am looking forward to seeing them, we have a lot of laughs. So even though it will hurt me, I am going to see them anyways. I will take my pain medication with me just so that I can mingle. Luckily, there won’t be too much walking involved once we get there. My friends live south of Boston, almost near the Rhode Island border. I have to take the commuter rail to get there. I am going with my friend, who cordially invited me and will be treating us to dinner. He does this at least a few times a year, usually when it is my friends’ birthday. He is nice like that.

I think I am going to have to take a strong medication to kill this pain that I am in. I have been at an 8 on a scale of 1-10 for the past hour or so and obviously, my regular pain meds aren’t touching it. I didn’t think they would. I just did too much today. I was on my feet for more than 20 minutes, I walked long distances, and generally ran out of spoons by the time I even got to my father’s house. And there was one errand that I forgot to do, and that was mailing my therapist’s letters. Totally forgot to grab the envelope before leaving and didn’t remember until I got to Starbucks. I’ll have to remember tomorrow to do it because the rest of the week I will not be leaving the house. I need to recharge my spoon counts.

in so much pain

I don’t normally write these types of blogs. But dammit, I am in so much pain that I just don’t know what else to do but write. It started when I got home from my appointment, around 3 pm. I didn’t walk too much, except to get my haircut down the street from the hospital. I just don’t know why my pain meds are failing me. Usually they work and I should be sleeping by now. I am listening to music to distract myself because I am staring at the bottle of my pills and thinking about just emptying it. It will harm me, there is no doubt. Might even kill me as I took my night meds as well. I just have to get through the next hour so that the meds can work. I have tried going to sleep or snoozing but I just can’t get comfortable. my foot is throbbing so bad.

I really want to talk to someone yet i don’t. I have had enough of trying to talk to people today. If my psychiatrist doesn’t get it then I doubt anyone will. I just feel like no one believes me anymore when I say that I am in pain. Course I act like a “normal” person. No one can see the hurt. No one else feels the hurt. I don’t even have a limp. I might drag my foot but that would be it. But right now, I am not doing anything but sitting on my bed, having my foot up, resting as comfortably as I possibly can. But it’s not enough because I am still in pain. My foot is not swollen, least not as I can see. But it hurts like a SOB. I really hate feeling like my world is ending because of this pain. I know it should be getting better but it’s not. It feels like it is getting worse. I have to wait two weeks for my new doc appointment to find out what is wrong with my foot. I bet you 100 bucks that they find nothing wrong with it! That will just about kill me, I swear. I see my psychiatrist the week before my appointment. I am going to tell her that if they don’t find anything wrong with it, I am done seeing doctors and I am done with life. There is no reason for me to go on if i am going to be in pain all the time. This just sucks so bad.

I don’t know what my therapist is going to say. I texted her that I was thinking of emptying the bottle. I doubt I will get a response. I never get a response from her. I get frustrated with her, too. I am just in agony and no one knows about it, except for you, the blogger world and internet. But will anyone care that I am in horrendous pain? I doubt it. I am just so tired, exhausted, of dealing with this pain all the time. Sure it is worse at night. At night I battle it more. I don’t know why that is. No one knows why that is. I guess because I am at rest? but that doesn’t make any sense! I shouldn’t be in pain if I am at rest!! I should take some neurontin. Maybe what I am feeling is nerve pain, not physical pain and that is why the pain medication isn’t working. I don’t know. I really don’t want to get up again to get more pills. I am tired of taking pills. I take so many pills for different conditions. One for this, another for that. It is so redundant. Yet without these pills, I can’t function properly.

I don’t want to die right now. Yet I don’t want to live either. It is such a conundrum. I just want the pain to stop. I don’t think that is too much to ask for?? I really feel like no one understands the pain that I am in. If they did, they would try and help me more. I get to see one more doctor for the same condition that i have had for the last three years. I thought that the AFO would have helped me but no, it is making things worse. Yet if I don’t walk with it, I am in more pain than without it. I know I am probably feeling sorry for myself. But if I don’t, who is?