Tag: chronic pain

being triggered and other stuff

by Midnight Demon, posted in blogging, CRPS, depression, FTM, gender dysphoria, mood disorders, transgender

Being triggered and other stuff

I was reading Twitter today and there was a post where a mother said her son was being teased by another boy at the pool for being a girl. It brought back memories of when I was called a boy growing up but then people would say sorry I mean girl. It would always hurt me though I never said anything. How could I? I felt like if I did, I would be corrected and told I was not a boy because of my genitals. I had some vivid memories come back and it just made me sad that I had to hide myself for so long.

I wanted to go out today but it was too muggy. I should shower as I don’t remember the last time I did. I want to shave my beard off. I had two cups of coffee to ward of naps. There still isn’t a baseball game until tomorrow. I am going to have a black bean burger for supper.

I’ve been feeling blah today. I just don’t know what to do with myself anymore. I should go to Starbucks and write. I miss doing that and Starbucks has opened up seating again. I am fully vaccinated so I should go.

I just texted my niece as to when will I see her again and she said she is spending the night tonight. Yay! I get to hug her and see her for at least 24 hours. I miss her so much. My nephew has been such a grump since he is unemployed. He barely leaves his room to talk to anyone.

Tomorrow I am meeting with my psychiatrist and surgeon, back to back appointments. Going to be a little stressful. I got a list of questions for the surgeon. I have a countdown of the days till surgery and I am both nervous and excited for this to happen. I also need to talk to psychiatrist about possible med changes. I was going to ask to be put on Pristiq but it can cause nausea and I don’t want to be nauseous. I might just ask for an increase in the citalopram as there is room there for some increase.

I watched a YouTube video on a hysterectomy. I was a little grossed out at first but then was ok. I wanted to see what was done while the procedure happened. It wasn’t as bloody as I thought it would be but I know I am going to be wicked sore, to say the least.

bad news

by Midnight Demon, posted in blogging, CRPS, depression

Bad news

Today has been a rough day. It started at 6am when I woke up and couldn’t go back to sleep. I had to get up and shower anyway so I got up and had a cup of coffee. I then showered which flared up my back. That took forever to calm down. I didn’t want to take a Zanaflex because I knew it would make me sleepy. Once it calmed down enough so I could get dressed, I called an uber and went to my appointment. I was thankful I did this because I knew I wasn’t going to be able to walk to the bus stop and then walk to the building I needed to go to with my back being the way that it is.

There was traffic but I made it to my appointment in time. The doctor was running late. About a half hour after my appointment was to start, she called me in her office. I explained why I was there and thought the CRPS was spreading to my shin. She took a history and then examined me. She confirmed that it was CRPS and went over medication options which were not many. She said an SNRI might help the pain but I would need my psychiatrist to prescribe it as it is a psych med. I see him next week so will talk to him about it.

I feel devastated that the CRPS has spread. Right now it is flaring up because of all the walking I did today. In the afternoon I had PT and got dry needled in my back. I hope that this works in calming down the spasms and cramping I get when I try and do stuff.

Today has been a long day and it has been really difficult. I am angry that it took so long for me to get diagnosed with CRPS and now it is spreading because I couldn’t treat it within the time frame of when it started. I am now left to deal with pain every fucking day for the rest of my fucking life. Makes me so mad that I saw more than 20 doctors in and out of Boston and no one was willing to tell me I had CRPS because it wasn’t a typical presentation. My PCP at the time kept sending me to doctors to find out what was wrong because he just thought it was a mechanical issue with my ankle. All the while I was working my ass off, 50-60 hours a week between two jobs. Once I had to go into the AFO I had to stop one of the jobs and then four months later I was deemed disabled. And I still didn’t have a diagnosis of CRPS. That didn’t come until five years later. It took 8 fucking years to get a diagnosis. 8! A bone scan proved I had it. It was in my damn bones in my foot and ankle. Now it is in my shin which is the large bone in the lower leg called the tibia. I wonder if the new neuro would order a bone scan to confirm CRPS in the bone again.

I sent a message to my therapist and psych about the spread. I haven’t told my psychiatrist yet. I will when I see him next week. I hope by then the correct time I am supposed to see him is in the patient web thingy. Right now whoever does his schedule has me seeing twice and one of the times is booked when I am seeing another doctor.

Chronic pain and worth

by Midnight Demon, posted in Chronic pain, chronic physical pain, CRPS

up early

by Midnight Demon, posted in blogging, chronic physical pain, CRPS, depression

Up early

My day started around 530 because I had to use the bathroom. Little did I know it would turn out to be colon blow day. I must have gone to the bathroom three times already. I think I am done as usually three is the magic number of finishing emptying my bowels. I had coffee afterwards. I still have to brush my teeth. I didn’t do this yesterday. I meant to but never got around to it. I should shower today.

I am planning on going to the square as I have a few errands that need to be done. I want to get my lemonade flavor Gatorade at the store there. It seems to be the only place that sells it. I will also get some meat and chicken. My mother wants chicken wings so I will get a package as long as it isn’t too expensive. Last time it was like 15 bucks for a package. Ridiculous.

I went to BJ’s for food shopping. I used the rest of my food stamps for all the stuff I bought. My sister had to put in $25 more. I bought chicken wings, breast, fish, tuna fish, steak, and then little stuff for quick meals. I also bought my favorite ice cream. We didn’t go to the square so I did when we dropped the stuff off at the house. I took the bus and then I got a macchiato at Starbucks as well as a sandwich.

I am so tired. My back hurts. I just took a BT med and some Tylenol. My calf started cramping up when I was going up the hill to my house. I had just gone to the pharmacy to get my meds and the hill was too much. I was only three houses away from my house, too. Seems I did too much as my leg/ankle/foot just flared up on me. I am in so much pain. I spent $127 on food and I just want to eat ice cream for dinner. I think my mother is making supper. If not I am not eating. I am in too much pain to make something.

I haven’t heard back from my uro. I sent a message the day I got results of my urine culture. It still hurts when I pee. Today I had colon blow. My bowels just erupted. Luckily I had no accidents. I haven’t cathed today. I have been having good urges so been voiding on my own.

My sister made the fish I bought. It was good. I am going to have ice cream later once my pain is lower. It really flared up when I went downstairs and sat in a chair. I had to take an Ativan because my right calf and left foot cramped up at the same time. OMG was it painful! I am depressed that I am in so much pain. I am having suicidal thoughts but that is all that I am having. I sent my therapist a message that hopefully she will read before our appointment. I asked her if there was something that could alter the path of SI àplanning date as my thoughts sometimes have been going that way the last few times my pain has been bad. I just got a workbook by Kathryn Gordon PhD on suicidal thoughts workbook. It will take me a week to work through it to see if it will help me. I really, really need to make the time to go to Starbucks with my bag and journal and this book to read it until closing time. I will write a review blog when I finish it.