Tag: CRPS (formerly RSD)

burgers and nectarines, Oh My!

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, depression, mood disorders

Burgers and nectarines, oh my!

I didn’t go to sleep till around 0600. Then I woke up nearly every two hours. I had shut off my phone so I could sleep without interruptions. I am glad I did because my sister called me around 1130. I didn’t wake up fully till about 1415. I was wicked tired and had a headache. I made coffee and the first sip woke me up. Nothing better than that!

I thought my sister would have made the burgers but she wasn’t home. I thought about going to Walgreens to pick up my scripts and the order I placed, but my ankle started acting up about half way through my coffee. I didn’t feel like going out. I will just get them tomorrow.

By the time I checked the score of the ball game, it was around 1600. I briefly participated in the weekly BPD chat on Twitter. Then hunger got the better of me and I got the burgers from my sister. I made them for my mother and I. My mother didn’t like them. She never likes food that she doesn’t cook or buy, especially when it comes to meat. I had one and half burgers and then a nectarine. It was good. I was pretty full and then went up to my room.

While I was up in the middle of the night, I wanted to try out the camera on my phone so I took some selfies. I have a fairly thick set of chin hairs and took pics of them. Then I titled the pics about it saying I was a transman. My 2nd oldest niece liked the pics. I don’t know if she knows what transman is. I haven’t come out to her as she is a little immature and has a blabber mouth. I was hoping to give her the phone that I got her but she hasn’t come by yet. I don’t know when she will. Kids.

I’m hoping to take my meds a little later than I usually take them so maybe that will be the trick in me sleeping before midnight. It’s getting dicey staying up that late because if I am in pain, I am up all night or most of it. I emailed my psych before I went to sleep to tell her of my sleep troubles. She responded asking me to check in with her tomorrow and is hoping staying up all night reset my sleep cycle. I feel really tired and can go back to sleep but I’m not going to. I will try and stay up till 2100 and then shut off my electronics to sleep. I think I will read and see if that works.

Damn ankle is stabbing me. I just took some pain meds while I was drinking my coffee so I can only take the strong pain pill, which is my breakthrough med. Thing is, I am constipated so taking more of this pill will just make matters worse. I will put some lidocaine on it when I finish writing this blog. Lidocaine has been a lifesaver for me. It was working well last night until I moved my fucking ankle. Then all hell broke loose and I couldn’t sleep till 0600. Guess I am not taking a shower like I wanted to. I’ll have to take it tomorrow or whenever this pain settles down.

Lately, I have just been eating one meal a day. Yesterday I had some soup and eggplant followed by a steak and cheese sub with fries. Today was just burgers and a nectarine. I think I will have some cherries later. They are good. My mother doesn’t like them but whatever. I swear her taste buds are going as she ages. Nothing tastes right for her anymore, unless she makes/cooks it. I don’t get it. It kind of worries me that something neurological is going on.

telling a turtle to run fast

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, depression, mood disorders

Telling a turtle to run fast

I woke up in the middle of the night due to pain. I took some meds and then had something to eat. I couldn’t go back to sleep so decided to set up my new phone. I had charged it while I was sleeping. There were plenty of updates like the phone I was giving my niece. It took a while for every thing to download. I think I finally went back to sleep around 0600. I woke up around 1415. I had a bad dream that I was diagnosed with lymphoma and was telling my father’s side of the family. In the dream, my cousin was my doctor (which is weird because in real life, he’s an architect). I woke up after we hugged one another. It was very strange.

I went down to go to the bathroom and then make coffee. I asked my mother if she wanted a cup and she did. I made it and gave it to her. I then went upstairs with my coffee. As I was drinking it, I was updating my apps to my new phone. Some had transferred over and some didn’t. I didn’t realize I had a 64GB internal memory. That is neat. After I played with my phone and my coffee was half done, my sister wanted to see me so I went downstairs. I got to the bottom and my ankle gave out on me. Lovely. My mother makes some funny comment and I’m like whatever. Then she says I sleep too much. That pissed me off. I told her I am not sleeping at night and so I need to sleep during the day. I must tell her this nearly every day. I think the next time I wake up at 0300, I am going to wake her up so she knows I’m up and see how she likes it. I am so mad that she gives me no fucking support. I said so to my sister, and she said it’s like telling a turtle to run fast. It is still annoying.

I had some eggplant and some soup that was left over from the other night. I’m still kind of hungry so I might order a sub. I had to shut the AC off because it’s quite cool today. Luckily, my back isn’t hurting from the drop in temps. I don’t get how it can be this cool in July, but I will take it over scorching hot. It’s cloudy today, least it is now. I hope it doesn’t rain because I want to try and listen to the ball game.

My Hawaiian coffee came today. I will have it grounded on Monday and then have it Tuesday. I love this coffee. I am going to use it sparingly because it costs a lot but it’s worth it. Monday I see my dipshit therapist. I have no idea what to talk to him about other than how the hospital stay didn’t help me at all but keep me safe. It did annoy me to the point of giving in to my suicidal urges/tendencies. I haven’t acted on it while I have been out but I am still planning. The other therapy place hasn’t called me and because I slept most of the day yesterday, I didn’t call them like I wanted to. I will call Monday before I leave to see dipshit.

Before I went to bed last night, I called Sprint to see if the return kit was on its way. I wanted to make sure the idiot I was talking to did the right thing and that I don’t have three phones I am paying for. He said the kit will arrive on Monday as it takes 3-5 business days. As long as it’s on its way, that is all I need to know.

I put the otterbox and screen protector on my new phone while I was up around 5. It is much thinner than my other one. I tried not to get bubbles with the screen protector but I did. I am not that great at putting on protectors. I am hoping that this new phone will allow the functions of my Bluetooth headset to work. It didn’t work with my old phone. I seemed to have thrown the pin used to take the extended storage card out. I don’t know what happened to it after I used it. Hopefully I don’t need it again. The only thing that sucks about this phone compared to the old one is charging takes forever. It takes at least two hours to fully charge. I do like it in every other way. I found how to make different screens while I was updating my niece’s phone. My ringtone transferred over so I don’t have to change that. I hope it did for my contacts as well, though I don’t know because the ringtones are different. I have to find annoying ones for my mother and her crazy sister so I know who it is that calls me.

Just another painful day

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, depression, mood disorders

Just another painful day

The temps jumped twenty degrees so my back didn’t like it at all. I have been in pain since I woke up. I didn’t take anything because I thought just resting it would help. I checked on my niece and then the package from Sprint came. She was having a bowl of cereal. I brought the package to my room and then slept. I didn’t mean to sleep the afternoon away but seeing as I have been up in pain most of the night, I was tired.

My mother woke me up around 1530. I checked to see when the next bus was coming. She was making fish for dinner and I didn’t want that. I wanted a burrito. I should have stayed home but I wanted to take my niece out. I texted her to see if she still wanted to go out and she did. I got dressed and then went downstairs to hurry her up. She was taking forever. Finally, she was ready and we walked to the bus stop. My back was killing me by the time we got there. I gingerly sat down on the bench. It was humid out. We waited for the bus and I thought the age for the bus was 12 and under but it was 11 so I had to pay for my niece.

We both had burritos and it was good. I didn’t have anymore cash on me for the bus so I had to go to CVS to get cash back. We just missed the bus so had to wait for the next one. My niece was like can’t we go to the other stop and I was like no way. My back is not going to make it. It was really hurting by the time we finished dinner.

I had to stop at Walgreens to pick up my prescription and my niece wanted a snack. I gave her the rest of my cash to get it but I also got a chocolate bar. She is too funny. I dropped her home as her mother was there and then went upstairs to my room. I immediately put the AC on. That sucker is not being turned off unless the temps drop again.

I still haven’t opened the package with my phones. I was checking out the screen protector that I bought and it looks like it’s going to be a project. Any protector that needs directions with a glue stick is a project. I’m not looking forward to it but oh well. Sprint has yet to send me the return kit or charge me $400 for the return of the phone. Now that I think of it, I should have just kept the phone and then upgraded my line. Comes out the same. But I am going to take my night meds and deal with it tomorrow. I don’t have the brain power to do it today.

Ramblings 474

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, depression, mood disorders

Ramblings 474

Today’s pain is not much different than it has been in the early morning hours. My ankle gave way just as I was having supper. I am in mega pain now. I have been trying to relax all day. I watched the movie Moana as it was free on Netflix. It was a good distraction and I really liked the movie.

It rained today so my back was acting up. It has settled down now but it’s muggy so I have the AC going. I can’t stand humidity at all. I emailed my psych to ask for a refill for the Invega as I would run out before I see her next. It’s ready at the pharmacy but I will pick it up tomorrow. I am hurting too much to walk outside. I am watching my niece tomorrow and was going to take her for lunch but I just got email saying my phones will be delivered tomorrow. I will wait for the delivery and then take her out. We’ll have lunch at Chipotle’s. This is the plan as long as I am not being tortured by my ankle. I just found out that it’s supposed to rain tomorrow and all weekend so I may not go out as planned. My sister will be leaving me cash so maybe I’ll just order pizza and fries for us.

I had taken an Ativan when the pain started to get really bad so I could possibly take a nap. I watched the movie instead and that helped to settle down the pain anxiety I was feeling. I really just want to chop my ankle off. It is so uncomfortable and I hate being so miserable all the damn time. It’s like every day I keep on having severe pain and I just can’t keep up with it. I’ve been taking my meds around the clock and they do work to lower the level of pain but it’s still there all the time. I’m never at a zero. My foot and ankle always tell me it is there. I hate it.

I’m going to try and go to sleep at a decent hour so I don’t wake up in the middle of the night. Think I will take a strong pain med at bedtime and see if that prevents me from waking up in the early morning hours. I need to sleep. There is no baseball game today as they are off. They won yesterday. It was a day game but because I was on the phone most of the day with Sprint, I didn’t watch or listen to it. I just caught the score on Facebook. The rookie had his first major league hit with a homerun. That was sweet. I hope we get good things from him and that management didn’t bring him up too early.

Was going through Twitter and Jason Aldean tweeted his video for his song “Night Train” and it brought back memories of his album. Now I am listening to it. I love these songs. I think this was the last Jason Aldean album that I bought. The rest of his songs are just individually purchased.

I am to take my night meds in about an hour. I will take the strong pain pill then. I need to try and get this pain under control. I know it is sometimes an uphill battle because all it takes is movement or a touch to set off my pain. It is so frustrating. I need to take a shower but it’s not happening tonight. Maybe tomorrow morning. My pain levels tend to be lower in the morning than any other time of day, not always but usually. If I have severe pain in the morning, it doesn’t bode well for a good day.

The pain group coordinator’s office staff called me to set up an appointment. It’s in October. Lovely. My October schedule seems to be getting filled. I see my PCP, the new neuro, and now this coordinator. I don’t know why I have to have a new intake when I saw her a few months ago. The only thing new is that I am seeing a therapist, which was her requirement before I went to the group. I don’t really care. The way that things are going, I might not be around come October so it doesn’t really matter.