Mr. Hyde and nerve pain

I have been thinking the past few days. Yes that has been the smoke that has been circulating in the air in Boston. Apparently on Tuesday in the throws of another pain episode I was barely aware of, I sent my therapist a text. It said that I cannot go on living like this, with this level of pain. I have no recollection of sending it. I knew I sent it because it is my phone but it sounded more of Mr. Hyde. I have been trying to wrap my head around Hyde. He likes to come around at various times and sometimes I can “catch him” and other time he alludes me. But I am cracking down on when he is likely to occur. When I am deeply hopeless, suicidal, and in severe physical pain. All three must be present for Hyde to emerge. The sucky part about this is my safety because Hyde want to die. I wasn’t in danger of dying, as far as I know, Tuesday but I could have. I just wanted to sleep, and fairly succeeded on doing that. I also have to be in a sleep state to bring Hyde out. He is more likely to show himself while I am overtired. Like I am now.

I just had zaps go through my foot. Just imagine the shock you get when you place your tongue on a 9 volt battery, minus the metallic taste and you have the zaps I get in my feet. Sometimes they are stronger than a 9 volt. And they jolt me awake, like tonight. I was ready to turn in but my PTSD symptoms (hypervigilance and anxiety) have taken over. It is going to take another Ativan to calm down. Hyde doesn’t like Ativan too much. It makes me really sleepy so I do sleep. It doesn’t cause me to do other weird stuff like Neurontin does. I know that I am not having another attack of CES and that things will be ok but in my head, I am “excited” and fearful of when the next zap is going to come. Usually if I stretch out my legs, it makes it worse. So I have to sit with my legs up so they don’t get zapped. And there is nothing I can take for it. The zaps come and go as they please. They don’t last long enough for me to take anything, but boy do they cause havoc!!

I am listening to Luke Bryan. He has some really good songs that I love listening to over and over again. He has that southern voice that I just love. It can be a fast song or a slow one and I just swoon over his voice. It’s not relaxing like Mary Chapin, but it will do.

I really need to go to bed soon. It’s after midnight and I need to be up at six. I need to take a shower and get ready to take my sister’s car. I will need a large coffee to help my mood. The good thing is that I don’t need to rush because I don’t have to pick up my father till 830. I then have to take him for a blood draw for his Coumadin test. He doesn’t know it yet but he will.

Well, I think the zaps have settled down some. I hope I get some sleep tonight. Or tomorrow is going to suck…

beyond Exasperated

Had an early morning today because my father had a doc appointment. It went ok, though my father had no clue what was going on and didn’t understand what the doc was saying. I had to explain it to him in smaller words.

While I was at the doc’s office, I had to use the bathroom. I found out, much to my dismay, that I sharted. Now I am in a very dark mood. I came home, washed up, and while making my way to my room, my ankle exploded. So in addition to losing my dignity, I am now in wicked bad physical pain. I took some pain medication and am calling it a day.

I wrote my therapist a letter that I had hoped to mail today but forget it now. I wrote her an excerpt of the blog I wrote last night. I felt she had the right to know what I wrote. I also added some things to it. I also texted her to try and have her call me. I really need to talk to her because I don’t think I can be ok till our next appointed time. I don’t know if she will call me or not. Some times she is able to and others she is not. I really am hoping someone cancels one of her appointments and I am able to get their time. A session would help me today. I could call my psych but I know she will just tell me to go to the ER and I don’t want to go. Besides, I don’t have a car and with my ankle the way it is, I can’t walk there. I just feel stuck.

Since the shart episode, I feel like I can’t trust myself. I am afraid to do anything that will cause my bowels to move. I hate feeling like an asshole. I know it isn’t my fault but the hardest part of dealing with CES is losing the ability to trust your own body. It’s gone and there is nothing I can do to get it back. The sensitive nerves are damaged and there is no getting these nerves back. I can’t feel myself and haven’t for the past eight years now. It’s the little things like this that bother me the most. And what is worse, is that I have no control over it when it happens. There are no warning signs. Just soiled underwear and skid marks. Luckily today I was wearing a feminine product because of my menses so my underwear didn’t get soiled. And that is the other thing that is frustrating me. That I am having to use feminine products because of my menses. I am beyond exasperated. I should not have to wear them but what choice do I have? It’s either that or really soil my underwear. I am just so frustrated by this. And no one understands, except another CES sufferer.

Why am I dealing with this? I should just be dead. To me that is the answer that I am looking for. I am tired of constantly dealing with a body that isn’t working anymore. I am tired of dealing with depression that makes my soul dark, that sucks the energy out of me. And that also goes for my body excretions as well. You have no idea how tiring it is to have a bowel movement sometimes. I feel like I am in labor. I sometimes am so weak afterwards that I need to rest. All because I can no move my movements because of the nerve damage. I literally have to push and push to get it all out. It is a very tiring process. And if this grosses you out, well, I am sorry. Every time this happens I want to kill myself. I just don’t think I can go on living this way. It’s just too much for me to bear. I am past my breaking point, well past it! I am so far from the edge that I still haven’t realized I am on standing on nothing. Yet gravity hasn’t knocked me down yet to kill me. Or maybe I am just falling in slow motion. I refuse to grab on to anything that might save me. I just am not good enough to go living anymore.

Suicidal thinking

It’s finally a nice day, at least seventy degrees out. It is making it warm in the house. I am watching the Sox game. I had spent the afternoon with my sisters for Mother’s day and then retreated back upstairs. I am still feeling really tired, even though I had a good sleep last night.

I had a rough night. I was in severe pain. It was not unbearable but it was more annoying me than anything because it was the third night in the row that I have had to deal with this pain. I texted my therapist because I was feeling really suicidal about it. I just didn’t want to deal with the pain at all but what choice did I have? I couldn’t chop my foot off as much as I would have liked or downed my pain medication like I was thinking about. I guess I am lucky that my pain medication has Tylenol in it because if it didn’t, I probably wouldn’t care. But I don’t want to lose my liver and die that way. Plus I probably would never be on any pain medication ever again if I did OD on my meds. That is something that I take more serious and I don’t want to lose that ability.

Dealing with my menses have just made dealing with pain that much more intolerable. I just am very grumpy and the slightest thing annoys me. I just can’t seem to tolerate things I used to tolerate, my annoying pain included.

Little things such as my pain can set off suicidal thinking. It is extremely hard to pull back when you are annoyed. I am trying to better identify this and to seek help so that I won’t make an attempt on my life again. In the ideal world, most therapists would like clients to call someone when they are on the brink. But rarely does this happen because of hopelessness. You just think that no one would understand what you are going through. I once texted a crisis line that I was thinking of overdosing on my medication. Instead of dealing with the idea of overdosing, they decided that I should talk to a nurse to see if it was safe to take another dose. HUH??? I have all but given up on calling for help when I need it.

Sucky day

Not having a good day. My pdoc’s schedule was all messed up so she was almost 30 mins late to see me. I felt like leaving but I stayed anyways. I asked her multiple times if I was a waste of her time. She said I was projecting. A nice psych term. It basically means I am putting my feelings (being a waste of time) on to someone else. She wants me to consider going in the hospital but there is no way I can. I have to take my father to his numerous doctors appointments this month. Next week is a double header so there is no way for me to go in. Plus all they will do is babysit me. I refuse to go to groups because they are useless. I never get anything out of it and the group leader (who runs most of the groups) is an idiot. We constantly butt heads. She is very condescending and I don’t like her.

I texted my therapist about this. She also wants me in the hospital. But then she knows that I am feeling really bad if I want to stop therapy. I also told her that my pdoc increased my mood stabilizer so hopefully that will help. If I remember to take it. I won’t be able to take it while I am driving my father around the world. It makes me sleepy sometimes.

I also put in a call to my repro endo doc because my fucking menses showed up last night. I am so mad. With all the technology that this world has, why is it so difficult to stop a menstrual cycle?? At this point, I am seriously thinking of a hysterectomy because what the hell do I need it for anyways? I am not going to have kids this late in my life, not like I was waiting to have them anyways. I never wanted to have children because I don’t want to pass on my depressive genes.
Saw my PCP and it was determined that I have a yeast infection under my arm. FUCKING great!! Now I really have to shower every day. I was really hoping it was just a dermatitis thing and would go away with some cortisone cream. Nope. UGH. Today is not my day.

My mood still sucks. I just want to die. Told my pdoc today that I just don’t have the energy to kill myself. I don’t have the energy to do anything. I just want to hibernate, which, if I go in the hospital, that is all I will do anyways. They don’t force you to go to group. I will just isolate and be by myself. And it’s not like they will start me on an antidepressant. My pdoc would if there was one out there for me. I hope increasing my mood stabilizer works.

I am supposed to pick up my niece tonight. I really don’t want to. I want to keep my foot up because it is hurting but I told my sister I would. I am just so tired. I had two doc appointments today. Then was standing in line forever at Walgreens, in my AFO. I hate standing too long because there is no cushion, just plastic so my foot hurts. I won’t wear it again when I pick up my niece. It’s already swollen so I probably will make things worse trying to force my foot in boot.

Did I mention my mood sucks? My pdoc thinks it is because I got my menses. I have to deal with them for a week. I am not happy about this but it’s the only course of action. I have to stop the pill for a week and then restart it. Might as well do that today and then the following Sunday, restart it. So not happy about this. Another reason why I need to shower every day. I have to tonight because I just feel gross, even though I took one yesterday. I need to buy some nice smelling shampoo to motivate me to take a shower. I think that might help. I really hope I don’t get cramps. I usually don’t, haven’t in a while but I still have knots in my stomach because of constipation. I still haven’t found a regimen that regulates me everyday. It sucks. And soon as I find something that works, I forget to do it every day. I am my own worse enemy. I know that if I were to go in the hospital, my meds would be given to me and I wouldn’t have to dish them out every night. That would be the only benefit of going on the hospital. I also wouldn’t have to worry about what to eat. Meals would be given. I wouldn’t have to cook some thing for myself. The food is not that bad.

I have been thinking about writing another paper. I was talking with my therapist yesterday about it and I wish I was writing down what I was saying. Now I forgot. It will be about different suicide theories. That is all I will say for now.