I’m up in pain and listening to Casey James. I love his music and guitar playing. I think the guitar is the best instrument to listen to when you are in a bad mood. It just does something to the brain. Or maybe I just like it because I like it.
So I am in pain tonight because I did too much today. Can’t do stuff that a normal person can do like go up and downstairs, put a bookcase together and then carry it up the stairs even though it wasn’t that heavy. I plan on getting a bigger one, maybe a six shelved case. That ought to be able to get my stuff off the floor. Right now my new book case is half full and I haven’t even really started putting stuff in it yet. My “bible” of suicidology books doesn’t fit in it so I am going to have to put it in the bookcase in the hallway.
I wish I could do things that I used to be able to do without pain. My left foot feels like it is being stabbed repeatedly. In addition to being stabbed, it also feels like it is going to snap if I move it the wrong way. Oh the joys of nerve pain. Always changing. It never is the same night after night. Makes it interesting and then when you go to the doc you have to explain to them that the pain has changed. No you no longer have a barbed wire across your ankle, you just have a constant drilling feeling. Sometimes I think the doctors think you make this stuff up just to get drugs but without the drugs, I would be a suicidal nightmare. It is bad enough that I want to cut. But that I because of another issue.
My back is aching like I did manual labor for hours. I can still move but I know I will probably be a little stiff tomorrow. I will do some of my exercises to loosen up the tight muscles before getting out of bed tomorrow. That is all that I can do to prevent a relapse. If it hurts too much I can always drug myself to obviation.
I thought that would happen by now but I still have some words left in me that I have to get out before succumbing to pharmacology. I am hoping tomorrow I get my hair cut. It is getting pretty long and I don’t like it long. I especially don’t like it when I have wisps of hair sticking out of my ball cap and glasses. It is driving me crazy but my cousin has assured me that tomorrow afternoon he will cut it, though he didn’t call tonight to confirm.
Did I tell you that my foot hurts? My ankle is having weird pains and my leg just is on fire? I can’t win tonight. Why am I in pain other than the fact that I did too much today? Why does doing too much bother me? No it’s not because I am fat and lazy. Its because I have been left with a nerve condition known as Cauda Equina Syndrome, CES for short. It’s when the horse’s tail part of your nerves get disrupted because of a trauma or disc material gets embedded in it. In my case I had this syndrome twice due to a disc rupturing. I have had four back surgeries, 2 at different levels. If I had them closer together I might have needed a fusion and then I would be permanently out of work forever. Right now I am out of work on disability. Mostly because of mental reasons. I also suffer from mental illness as I constantly want to kill myself every day for this reason or that but I am forbidden to do it. I just can’t muster enough courage to end my life. I constantly wish I was dead just so I wouldn’t have to deal with my physical or mental pain. Right now I am just dealing with the physical. But throw in some mental pain and I am ready to be committed and that is no fun.
I wish I had normal control of the lower part of my body again. But I don’t think it is ever going to happen. If anything this pain reminds me that 12 years ago I messed up my back due to a chiropractor. She adjusted my spine and my disc responded by exploding. It left me with something called foot drop and I have been in trouble with my left foot/ankle/leg since then. I get tired easily. I can’t walk long distances like I used to. My foot will just become weak the more I try to use it. It sucks. And I am only 37 years old. I don’t know how I got to be this old but I know I won’t make it to be 38…
Thats what i like about your blogs they say it as it is and i often use them just to let family and friends know what it is like living with this shit!! if you pardon the pun.
People just dont understand what we mean when we try to explain CES to them, either that or they just dont care as long as they are ALRIGHT JACK!! Gone are the days of “im just nipping for a pee” or “im just popping in the shower” and thats what upsets me. What i used to take for granted like waking up with a “stiffy”(erection” for you female members) lol or rolling about with my two young sons and fighting with them is well and truly a thing of the past. Of course it dont stop them getting a dig into my ribs before running off in the opposite dircetion lol. I am 49 years old and hope to get married in july this year and im doing everything in my power to be there, however feel free to try talk me out of it as it may just work lol. As for this talk of being 37 but not being around for 38 well…………….. The guys over here from the uk are going to come over there and “wop your ass” if you say that again 🙂 in fact my 9 and 6 year old sons are going to come over and beat you with there new “light sabers” lol.
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Lots of new options for RSD…
Have you looked into Calmare?
Tried Hemp oil?
Done mirror therapy?
Increased vitamins (especially D) and tried eating raw/organic and juicing?
Many more on my site
http://www.rsdscrpsnews.wordpress.com
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I’m 39 don’t know how I got here either stay till I’m 40 at least
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