Category: chronic physical pain

Another Day in the Life of Midnight Demon

by Midnight Demon, posted in blogging, chronic physical pain, depression, suicide attempt

Another Day in the Life of Midnight Demon

I participated in the weekly BPD, Borderline Personality Disorder, chat on Twitter. This week’s topic was about social media. I gave a few thoughts and shared my friend’s blog. She has BPD and writes about the struggles quite frequently. I will also be participating tonight on the SPSM chat later this evening. I just hope that I will be up.

My boys won today, 6-1. I am very happy they did. We needed a win and now fall within 2.5 games of the Rays, who are currently in first place. I am glad it was a day game today. I don’t know if I could handle a night game and then a chat. Or chat while the game was going on. I don’t particularly like SPSM because I feel it doesn’t validate my statements most of the time and I get talked down to a lot. I know it’s probably not the case but it feels that way.

I plan on making pancakes for supper. I just don’t know what kind to make. I am leaning toward oatmeal because I do love them more than buttermilk or original. The last time I made them, they came out kind of sucky so I am going to play with the ingredients a little bit to make them better. I only once made them perfect and that was a while ago.

Sometime in the last few hours, I re-read the article I am writing a review on. I wanted to get back to it but I have been lazy today. My brain just isn’t there. I didn’t sleep too well again last night as I went to bed around 0230. It seems if I am up past 2300, I get hyper and have a hard time falling asleep. I get my second wind, so to speak.

My mother needed a box for the cleaning that she is doing. I was happy to oblige and gave her two that were in my room. Now I just need to figure out what to do with the clothes that are in its place. I am slowly making my way to the closet but I am just not there yet. It is a struggle and maybe before the chat and after I had some food, I will be able to clean a little more or at least go through some of the stuff that is there. It’s so hard for me to make decisions on what to do with the stuff that I just get overwhelmed and don’t do anything. I keep telling myself just one thing but sometimes, that one thing leads to another that leads to another that leads to another. Then you have several things and you start feeling overwhelmed by it all and just say fuck it. At this point it will become my summer project. If I can clean out that part of my room, I can then hang my jeans and clothes that can be hung and not be on the floor or on top of boxes.

I still have my menses, much to my disappointment. I thought it was going away as I had less stuff coming out of me but my last trip to the bathroom proved me wrong. I hate it so much and was so looking forward to wearing boxers. Now I just want to take a shower and do nothing. I am so disgruntled. And what kills me is that I have no one to really talk about it with. I have my therapist, but I don’t talk with her till Tuesday and by then it will most likely be gone. It just kills me that I have to put up with this every few months. I know I should be grateful it isn’t every month but I am a man and shouldn’t have to put up with it period (no pun intended). It just kills my ego and how I view myself. It’s like it takes a little part of me every time it comes around. It definitely makes the suicidal part of me grow. I really rather be dead than to deal with this shit. And the trouble is no one understands. They just think that I have to endure it because I am a “woman” and that is what women do. God, it hurts me so much. No matter how much I try to be a man, I just can never be enough of one.

I am sad to report that one of my friends just told me she tried to attempt suicide twice in as many weeks. That makes three attempts, maybe four, since I have known her. I really don’t know what to do. She is having a hard time getting services where she lives. And I just feel helpless. We used to talk every day and now it’s spotty. She feels like she is a burden to me and no matter how many times I have told her otherwise, it hasn’t clicked in her brain. It is just upsetting to me that she uses my illness as a way of not reaching out for help. I know I am just one person, and she obviously has the right not to seek my help, but to tell me she attempted after the fact just strikes me as painful. I want to help her, I really do, but I can’t if she doesn’t talk to me. I haven’t responded to her message and I don’t think I am going to, least not right away. I need to regroup and think about this and how to approach her.

bored to tears

by Midnight Demon, posted in blogging, chronic physical pain, depression, mood disorders

Tonight my mother will be making fish. I saw the heads and tails were still on them. I won’t be eating that tonight, because ewww. I know that is how they come but her having to dissect them just freaks me out. And it is tilapia, which I don’t particularly like anyways. It’s a very thin fish that just doesn’t taste very good after it’s been thawed out. I’d rather have cod or haddock.

I have been pretty bored today. And my foot is a jerk. Just when I wanted to take a shower to go out, it starts hurting really bad. All I did was move it a little bit and it explodes in pain. I had to wait for pain meds to calm it down some so I could shower. By the time I was done showering, my hip went on strike. I give up. I guess I am not going to go to Walgreens to see if they have the new Oreos S’Mores cookies. I will try again tomorrow.

I was looking for a photo mailer to mail a pic for a friend. I have been meaning to send it to him and I just came across it. I failed to find it, which is why I wanted to go to Walgreens, too. I need a couple of mailers as I have some stuff to send out. Why must pain always dictate what I do? It totally sucks. And seeing that I am incapacitated, I decided to write a review for a research article I came across while looking for the mailer. I must have at least three copies, if not more, of this article. I thought it was a good idea but then the pain meds turned my brain to mush. Now I can barely write this blog. I am kind of blunted in my thinking patterns. It also doesn’t help that my vision seems to be impaired. I have been having a hard time focusing today for some reason. I really think it is because I have been solely using single vision lenses for the past month and not my progressive glasses. I can’t wait till next week when I can order them. I really hope that they can make the lenses out of the existing frames that I have. I really don’t want to buy another set of frames. I have too many old pairs of glasses laying around my room. I am also hoping that if the glasses don’t cost me that much, I can get a new phone. My phone keeps acting up and it’s pissing me off. Yesterday my therapist was calling and it took four rings for the stupid call answer button to come on. I am just glad it didn’t go to voicemail by then. Usually the call answer button comes on before the number even registers but this time it was the reverse. I am so done with this phone. And if I can’t use it as a fricken phone, what is the point of it?? My therapist was kind of in distress last night. She doesn’t know what she did, but she erased all my text messages that I sent her. She was literally panicking when we were talking about it. I kept telling her it was ok, that I am sure it’s there but hidden some how. After we talked, I sent her a text of my latest short story. She said it was the only text from me. OOPS. I think she needs another phone, too, but that will give her super anxiety. I find it funny and I do laugh. She is just so anti-technology, I just don’t get it. I mean, I use my phone for emails, texts, Twitter, Facebook, and the main thing, a phone. She just uses it for texts and phone.

I am going to write the review for that article. It will be another blog post and I will share it with my therapist friends on Twitter. I haven’t written a review in some time and it will give me something to do. I have written about this article in other papers that I have written, but never solely on this material.

I thought about editing the blog I wrote the other day but didn’t. It just seems like I don’t have the brain power to get my thoughts coherent enough to put on paper. And it’s very hard to write when you have a foot that explodes just because it feels like it. Also sucks when you stand up and your hip decides to go wonky. I hate being in pain all the time, every single fucking day. It just takes so much out of me and I end up doing nothing. Then I am bored to tears. I just want to give up. Just take my life and end things so that I won’t be suffering anymore. Because me not even being able to write because my brain turns to mush due to the medications I have to take to control my pain, just sucks.

Pain and suicide

by Midnight Demon, posted in Bipolar Disorder, cauda equina syndrome, chronic physical pain, depression, suicidality

I started off my day in pain, around 0400. I hate waking up in pain. I stayed up for a little while and finally gave in to taking pain meds around 0800 when I just couldn’t take it anymore. I texted my therapist and she gave me a time for today. I really need someone to talk to. I feel like I am losing my mind with this loss of sleep. I went back to sleep after I had breakfast and the pain meds kicked in. I had weird dreams about my psychiatrist. We were on a boat and she wanted to give me a cortisone injection in my hip. That was the first dream. The second dream was also on a boat but other than that, I don’t remember much. What was weird, is that when I woke up, my hip was hurting me. I think I need to go back to physical therapy to get it looked at. It has been bothering me for some time now, since November of last year. I sneezed and pulled my back out. It took me a month to recover and then I sneezed again right before Christmas and took it out again. I have been limited in what I can do. Today I walked to Walgreens which is only a block and half from my house. By the end of the block, my hip was in agony and I didn’t think I was going to make it but I pushed through. It got a little better by the time I reached the store. I only went in for a couple of items and by the time I reached home, I was still sore. I haven’t done any lifting or sneezing the past few days so I am not sure why my hip is bothering me so much. I know it’s muscular because if I rub where it hurts, there are knots there. I just hope that it’s not the beginning of getting my nerve condition again. I have no other symptoms, like radiating pain down my leg or increase in loss of my bowels or bladder to make me think I am in trouble. But the thing with CES, Cauda Equina Syndrome, things can escalate quickly and without warning. The main reason I don’t want to make a fuss about it, is that I know most physical therapists don’t understand nerve injuries. Yes, muscle pain is common in back injuries but my back muscles have been injured because of nerve damage. That is why my hip goes out when I have a horrific sneeze attack.

My foot still hurts. It has been hurting more since I came back from the store. I can’t stand that I am still having trouble walking after all this time. Last night, I had swelling, severe pain, and the veins popped out in my foot. I don’t get how this is not CRPS, Complex Regional Pain Syndrome. I know the skin changes are not that drastic. But then when I see a doc, I don’t have the worse pain of my life. I might be a 3-5 on a scale of 1-10 when I see a doc. What annoys me is that my PCP doesn’t believe that I have this condition, even after three doctors have told me I have it. It just makes me want to kill myself in frustration. Severe pain always brings out the suicide part of me, not like it isn’t already there to begin with. The pain just gives me the little push I need to think about it more. I just feel trapped. I know that if I kill myself, more than 115 people will be crushed. The people most devastated will be my family and psychiatric team (therapist and psychiatrist). It is this reason why I haven’t attempted. I think that if I had a place to go to, I might be more willing to try. I don’t want to kill myself at home because I don’t want my family to find me like that. But I can’t afford a hotel room and I can’t risk someone finding me in a public place, like a park or something. I can picture myself going through with any of my methods that are running in my head, but I just don’t have the guts to actually go through with it. I am pathetic.

Balancing act with Chronic Pain

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, depression, mood disorders

I stayed up pretty late last night as the baseball game was on the west coast time. We kicked “King” Felix’s butt and seeing as we took care of Sonny Gray the other night, I have to say this road trip is going fairly well. Sure we have had a couple strings of losses but overall, the hitting and pitching has been much better. I hope it continues. Today’s game is at 1600 so I will most likely be lurking in the BPD chat. It happens every Sunday at that time. Last week was a good chat.

I slept till 0330 today, so my day did not start off well. I just woke up from a nap as I so needed it. I even had coffee before I took a nap and it didn’t keep me up. I feel rested. I didn’t go into a deep sleep, but slept enough to feel better than I did before the nap. I didn’t have any dreams. Lately, my dreams have been really weird. But I don’t remember them long enough to write down or keep in the memory banks. I just wake up feeling discombobulated.

I made breakfast when I got up late morning. I had a bacon sandwich. I really don’t feel hungry for lunch or dinner right now. My bowels have been going most of the day. I guess the senna is working really well, maybe a little too well. Only thing that I think I am going to eat next is rice or a grilled cheese. My mother is most like going to call me soon. I don’t care that is what I want for my dinner, when I get hungry. And I got no appetite right now.

I need to take a shower today but my back has been acting up while I stand. Even sitting, my lower back just wants to cramp out. I don’t know what that is about. I haven’t done any heavy lifting or twisting of any sort. But there has been a change in the temperature so that probably is what is causing this havoc. I can still move, just gingerly. I had set a goal for myself today to shred some old prescription papers. I still haven’t done it, yet. I keep meaning to when I go downstairs but I just don’t grab the stack to take with me. I probably will do it after the game as I won’t have anything to do this evening.

I have been feeling really low today. Actually, the last few days my mood has been lower than it should be. I haven’t thought of suicide but I am not that far from it. It’s always in the back of my mind. It’s when it’s in the front of my mind that things get from bad to worse. Every day I do this Mood Traces app activity. It lists all the criteria for depression. Each day you rate how your mood is. If this app is accurate, I have been pretty depressed the last few days. Of course, I don’t really need an app to tell me this. But it’s nice to monitor my symptoms. It is going to suck when I switch phones. I don’t think I am going to keep the app. As great as the app is, I find it depressing to know how depressed I am every day. It kind of makes me feel guilty about my moods, like I am not trying hard enough to make myself feel better. Every day it also records your daily activity levels. Even on days when I don’t leave the house, I can get a few minutes of activity as I walk around my house as I am always carry my phone, usually. But then there are days when I have 0 minutes of activity and it makes me feel bad that I didn’t go out or at least try. Mostly those days are rest days because my ankle needs to rest. If I have too much activity, my pain levels are going to spike. Then I am going to be in a worse mood. It’s always a balance act in dealing with chronic pain.

I read my “idiot” book today. The plot thickens. I am really enjoying reading this book. I think the next book I am going to read from Dostoevsky is “the Double”. That was a very interesting story. I finally wrote the review for the “Graveyard Book”. I posted it on Goodreads and Amazon.com. It was a short review, nothing elaborate. Just short and concise, which I think every review should be. When I was reading the reviews for the book (which was over 1200), I couldn’t believe how long some of them were. It was like reading a book report on some of them. And if you didn’t read the book, the reviewer gave away most of what the book was about, which I thought sucked.