decisions

Yes, my baby has been returned to me and she appears all well and good! I got the delivery just before 1. Now I have a decision to make regarding the hospital, should I go in now or tomorrow. I still am feeling edgy, though the psychosis seems to be lessening. I just don’t feel right. Maybe talking with someone will help and being in the ER environment sometimes is enough to get me back to where I need to be. If I just pack a few clothes in my back pack and stuff, I might just look like I am going in to talk. If I do get hospitalized at least I have my larger bad packed and my sister can give it to me. But then I will be dependent on her and I hate that. I just know that if I carry all my stuff they will talk me into the hospital where as if I just carry light, I might not.

I hate these decisions and I know that it just comes down to me. I just hate when it always falls on my shoulders. I feel is so much responsibility and I just can’t bare it. I would love a ride to the hospital as that would make it easier than taking public transportation. I just wish I knew what to do. I just called my therapist. I already texted her but she doesn’t always respond right away. I would page my pdoc but she would just leave the decision making to me. I know what to say to get admitted and what not to say. Thing is, being psychotic never bodes well for just saying hi and bye. I am really struggling with myself and I don’t like it. It’s like I am drowning and every time I come up for air, I get pulled back down.

I really hope my therapist has a session today. Then maybe we can talk and tomorrow morning I can just go in without worrying about canceling my appointment with her.

ankle chronicles 4

Woke up this morning and I am still in fricken pain. It’s so bad that I really can’t move my ankle/foot. It’s the same type of pain I felt yesterday morning that lasted all day and into the night. I slept for about six hours before it woke me up again. I just had breakfast so I am hoping I can get back to sleep. Looks like I won’t be going out today, and if I do it will be comfort food like donuts. I had a good donut at Starbucks yesterday, a raspberry/blueberry one. It was very good. I like their new line of pastries, though it is kind of expensive.

All of this psychosis that I have been having is making me think that life is not worth living. I keep thinking of the studies that show that people that are psychotic are more likely to die by suicide than non-psychotic individuals. Great. Why can’t I go through with what the voices are telling me to do? I am scared though, scared that I might start cutting again because that is what the voices want. I haven’t told anyone outside this blog how things are. My sister wants me to babysit my niece tonight. The only good thing about that is I will have a huge screen TV to watch the game. The little one will be asleep so I don’t have to worry about entertaining her. I have been meaning to tell one of my sisters I am doing poorly but I just can’t seem to bring myself to. It’s not easy telling others that you are psychotic. I told my psychiatrist I was crazy and of course she tells me I am not. OK, like normal people hear voices all the time. And without the stupid “normal” voices, I can’t read like I used to. I need the narrator voice to concentrate while I read. It’s the only way that I can retain the information.

But I am in the middle of a pain flare up. There is no way I am seeking out psychiatric care other than my therapist and psychiatrist. I know that I will be in put in the hospital and I probably won’t have access to my pain meds. That will NOT be good at all. I am so tired of being in pain all the time. I didn’t do anything to my fricken ankle so I am not sure why it’s so angry with me. It hurts all around the bone on the outside of my ankle. It’s like something is crushing the bone, or trying to. It is maddening and despite not trying to think about it, it doesn’t work. The pain is just too intense. I am really hurting and wondering why this is happening to me now. I know that is one of the things that I will be asked when I am in the damn hospital. “What set things off”? I don’t fricken know. Maybe I put too much pressure on myself to complete the book. Maybe it is because I had a dissociative episode and now I am paying the price by hearing voices. I just want it to end, to have the voices stop. I am not hearing them now because I am too tired to listen to them. And somehow when I am in great physical pain, it’s like my psychiatric symptoms are on hold except for the depression. The depression is always there no matter what. And I still feel like I am carrying around black clouds. The thing is, that while you are in the hospital, your medical care goes out the window. They really don’t care about your physical complaints, unless you are having a heart attack or something, then they care.

I am just worried sick about where I will end up and if it will be close to public transportation or not so I can get home without bothering my sister. But if I end up in a faraway hospital, I will need a ride home. I know I shouldn’t be stressing about where I will be placed but it just helps me to know. But none of that matters right now because I am in a pain flare up and until my pain levels are under control, I am not going anywhere.

I had planned on watching college football today and the Sox game but I just don’t feel like it. The Nebraska game will be on at noon today, Sox game is I think at 6, and OSU is at 8. But I just took my pain meds and soon will be seeing Morpheus. You would think that I would be used to taking two pain pills that it wouldn’t affect me now but it still does. Funny how it only seems to affect me during the day and at night, not so much, unless I take an Ativan.

I am mostly packed for my stay. I just need to put in my hormone pills. I hope this works and I don’t get my menses this month. I will really be upset if I get it. Being in a locked psych unit is one thing, but having your menses on the unit is quite another. I am bringing my stuff with me just in case I do have bleeding. I just hope I don’t have to use it.

Damn this ankle pain is so fricken bad. I should probably ice it but I am starting to feel the effects of the pain meds so I know I will be knocked out soon. I don’t want to keep the ice on my foot longer than twenty minutes because that isn’t good. I once fell asleep with the ice wrap on. My foot didn’t like it and was grateful when I woke up and took it off.

For those that are reading my blog for the first time, I have cauda equina syndrome and complex regional pain syndrome that is causing my pain in my ankle. I also have chronic tendonitis in this ankle that no one knows why and has not been helped with standard treatment (rest, elevation, ice, compression). I have nerve damage in this ankle/foot and it becomes fatigued very quickly as I have weakness also.

moment in time

I had an appointment with my father today. It went well though we were waiting a very long time to be seen. I hate it when docs run late. Just want to walk out.

I was able to get an appointment with my therapist today. I have mixed feelings about it. But seeing as last night things kind of got crazy, I think it is for the best. I don’t know where this depression is going. I know I have been writing more about it lately and that is helping me but it also is worrying me that I might end up back in the hospital.

Since I am working with my old laptop, I have decided that I not going to work on my manuscript until the newer laptop is fixed. I don’t have the brain power to work on it anyways. I thought I would be able to do a little bit today but I just can’t. Things are just not making sense to me. And the notes that I wrote up on the previous copy I had, I can’t read my fricken notes. It is in my handwriting, but it’s so scribbled that I can’t read it. MAN, I hate that.

Last night in the morning hours I apparently dissociated when I wrote “Tell Tale Heart”. I am not sure what happened. Last thing I remember is writing the title and everything after that is lost. I think I went to bed afterwards because I remember my mother waking me up because she went downstairs around 0330. I emailed my pdoc about it. Have not heard from her nor do I expect to. She can’t really do anything for me. I talked to my therapist about it because I totally had no recollection of writing this blog. Not even reading it over do I remember it. It is dark and something Mr. Hyde would write, my alter. I am kind of upset by this. I am going to bed early tonight. There is no baseball game that I really want to see as the Sox are off. I am feeling strangely disconnected. Maybe it is because I am tired. I don’t know. I am not in a lot of pain today even though I ran around taking my father to his doctor’s appointment. The coffee I drank did nothing to really wake me up. All noises annoyed me. I just wanted to be back home and in bed. Maybe tomorrow I will just hang out in bed and sleep all day as I have decided to put the manuscript off, for now.

My therapist thinks I am also dissociating with my pain as I am not really feeling it. But I think it is more compartmentalizing than actual dissociation. I don’t lose time like I do when I dissociate. I just put the pain off on the back burners. I have an extremely high pain tolerance so it takes me a while to get in touch with my pain. But if it is being a brat, then I am in trouble and can’t put it in a box so to speak. But me writing that blog…that was pure madness. I was seriously suicidal. It is a good thing I don’t act on it. I had to check my pill counts to make sure I didn’t take more than I thought I did, and I didn’t. I have no new cuts on me or other evidence of self-harm. I just have this blog that got written while I was sleep deprived and no memory of having written it. My therapist liked it. It described accurately how I was feeling at that moment in time. I am just sorry that I worried a friend.

tattooed in Black

Hey… oooh…

Sheets of empty canvas, untouched sheets of clay
Were laid spread out before me as her body once did.
All five horizons revolved around her soul as the earth to the sun
Now the air I tasted and breathed has taken a turn

Ooh, and all I taught her was everything
Ooh, I know she gave me all that she wore

And now my bitter hands chafe beneath the clouds of what was everything.
Oh, the pictures have all been washed in black, tattooed everything…

I take a walk outside, I’m surrounded by some kids at play
I can feel their laughter, so why do I sear?
Oh, and twisted thoughts that spin round my head, I’m spinning, oh,
I’m spinning, how quick the sun can drop away

And now my bitter hands cradle broken glass of what was everything
All the pictures have all been washed in black, tattooed everything…

All the love gone bad turned my world to black
Tattooed all I see, all that I am, all I’ll be… yeah…

Uh huh… uh huh… ooh…

I know someday you’ll have a beautiful life,
I know you’ll be a star in somebody else’s sky,
But why, why, why can’t it be, can’t it be mine?

Aah… uuh..

Too doo doo too, too doo doo [many times until fade]

This song is the perfect way I feel right now. I’m tattooed in black. Song is by Pearl Jam.