my heating system sucks

Today started off ok. I got my niece ready for school and walked her to school. We took the way I normally take because there are no inclines or hills, which is normally good for my foot. But I guess all the up and down stairs yesterday and the few that I did today to get my clothes finally took its toll. My ankle and three toes are aching like no tomorrow and feel like I have my foot submerged in a bucket of ice water. I have it wearing a sock and under 3 blankets. There is no warming this foot up and frankly, I don’t want it warm because I will be in more pain. It will get warm then VERY HOT, like it is on fire. Happens all the time. The weather is very cold today even though the weatherman says it is 56 degrees. They are lying as Google just told me that it is 42 degrees. It is so cold in my room, despite the heat being on, that I think my radiator finally shit the bed. It was hot last week. I don’t know what happened. Maybe I didn’t turn the heat up high enough. My heating system sucks. It has to be the worse heating system on the planet. The only way to get it to turn on is putting it higher than 70 degrees. Then the house melts, you lower it and it stays warm for a little while. I am not as cold as I was earlier but it doesn’t matter. My foot has its own heating/cooling system since it has nerve damage. That is why I try to keep it as warm as possible during the colder months of the year. It is not easy as even in the summer it will be cold. I have to wear socks 90% of the time. I miss being barefoot but I just can’t risk getting my foot cold, especially as we have ceramic tile floors. They get REALLY cold, and fast.

I did nothing this weekend but vegetate. I needed some time away from the blog and my book. I got wicked stressed out Friday and didn’t want to risk another psychotic break so I stepped back. I had to for my own sanity. I thought I would be able to get back to editing today but I didn’t sleep very good last night and then had to wake up early for the kiddos.

Today’s WordPress challenge is about Dear Abbey. I thought about posting a good piece of advice but that is not what my blog is about. Most I have is to have a good therapist that is willing to work with you, and that goes for all professionals, from doctors to physical therapists. If the doctor already has it in his mind about you before you walk in the door, see someone who has a brighter bulb in their head. It is hard for chronic pain patients to get treatment because these doctors have been sidelined by the fake patients who say their back hurts and get pain medication just to use it illegally or to sell it. But the sad part is that these pain patients are undermedicated sometimes which leads to possible overdoses because they cannot get a flare up under control. I know, I have been there. I might not overdose myself all the time, but when I do, it is for a good reason. And that reason is PAIN. I don’t mean overdose in the sense I take the bottle. NO I DO NOT DO THAT, though I may be thinking that. I mean that instead of my allotment of 4 pills a day, I might take 6 or 8 a day. Fortunately for me, those 6 or 8 pills a day are far and wide in between. My doctor trusts my judgment. I am fortunate that he does otherwise I would be six feet under, NO JOKE. And it all stems from that day that I saw a chiropractor to adjust my spine and she ruptured my disc, permanently disrupting my life forever. I always will have nerve damage. I always will have weakness in my foot. It might not be visible to the world but I can assure you it is felt every single day. My minimum pain level is always a 3 on a scale of 1-10. That is what I live with on a daily basis and my surgery is coming up on 13 years. So that is why my heating system in my foot is all messed up.

Paranoid troubles continue

I have been having a facial migraine all day. One side of my face is numb and tingling. I have had them before. They usually are caused by bright sunny days and being overtired. I have been up since very early this morning. I wanted to get my editing done on my book and get to Starbucks early to get a seat. I got there around eight-thirty this morning as I was up at seven. I got the migraine when I came home. I guess I am stressing about this book a little bit.

I’m getting tied up in the details and when I asked a friend about quoting she said it’s different than quoting for a paper or article. CRAP. I have to find out if I can use this information with consent or half my book goes bye-bye. Not helping my migraine today.

Then today as I was looking for my migraine medicine, I realized I have two packages of old birth control patches that I am never going to use. I called the pharmacy to find out what to do with them and they tell me to call my city for medication dump. Well, it’s too late now to call. I was annoyed because I was on hold for like five minutes but it felt longer than that because of this damn migraine. I just feel pressure all around me and I just can’t get a hold of myself. I hate feeling out of control. I don’t know what effect the migraine med and my anti-psychotic pill will have so I don’t want to mix the two right now. I just have to ride it out and I can’t tolerate it. I feel like I am being pulled into different directions. It’s not even eight o’clock yet and I am ready for bed, which I might do but am afraid I will wake up early in the morning again, but this time at two or three o’clock. I can’t win no matter how hard I try with sleep. My days of sleeping for more than 7 hrs straight are over.

It’s a terrible feeling being watched by an unknown entity. Thankfully the voices aren’t chiming in with banter or I would really be losing it. Not that I would harm myself, just feel like I need to be back in the hospital again or something for fear of losing control. Maybe this book is just too much for me. I am starting to have second thoughts about it. I already feel like it will suck anyways. My therapist keeps trying to tell me that my book will be good like my blog is but my blog is different. I can write what I want to without being censored, per se. And I can quote pretty well to promote that things are not my ideas, least I hope that comes across. Maybe I am just worrying about nothing. My friend wants me to contact my idol about his stuff and the Aeschi model that I wrote. I just have to find it and make it in a document that is readable to him and pray he has time to read it and consent and then me not have a heart attack if he says yea or nay. This is the big leagues and I don’t want to fuck up on my first book. I would be utterly devastated if I got sued or something for what I wrote. I am like totally paranoid, and possibly with good reason. I wish I had my therapy appointment tomorrow but I don’t. I had to cancel because I am seeing my PCP. My monthly pain management appointment. I know he just is going to comment about my weight again. I put on a few pounds while I was in the hospital, I know I did. I haven’t weighed myself because I am too scared. I hate myself for it but sometimes I have no control over my eating. I sometimes eat when I feel it and other times I don’t eat at all because I have no appetite. Such is the struggle with depression. You would think a medical professional would know this but they don’t. They just want you in their set guidelines of a healthy weight, which is ridiculous. Technically I should be 125, at the most, and I haven’t weighed that much since high school. Medication is to blame and my back and ankle issues. It’s hard to exercise when it hurts. I try to push through it but it always backfires on me. Like today after I came home, my sister asked me to pick up my niece. It was a good walk from my house and now I am hurting because of the hills in my area. I don’t do inclinations too well with my bad ankle and there was no other way to get to my house without going downhill, unless I wanted to walk another three blocks or so. I know I shouldn’t be complaining because other people have it worse than I do with CES. But being in chronic pain every day changes you. For two and half years I have had pain nearly every single day, all day on some level. It gets worse at night, part of the reason I wake up in the middle of the night. My doctor calls this “inactivity” while I call it trying to sleep!! Sometimes I really think he doesn’t get it when he says he does. Did I also mention that he stresses me out going to see him? I never know what new thing he will come up with about my ankle pain or what kind of doctor he will refer me to next. I won’t go. I am tired of seeing new doctors and they always tell me the same thing, nothing is wrong with my foot or they don’t know why I am having pain as there is nothing wrong with my foot/ankle. I have seen them all and I am DONE. I just want my pain medication and just send me on my merry way. The end.

I am just tired. Plain and simple.

I have done a lot today. I started the editing process of my book and shouldn’t have added some pieces but then I took away some things, so things evened out a little bit. The page numbers do not correspond to anything right now so I have to go through page by page which is a hassle. The title chapters are becoming clearer so I am happy about that. If I stay on course, I should be ok with a Nov 16th publishing date so stay tuned!!

After the editing, I decided to watch the football game. At half time we were leading 21-13. Or maybe it was 21-17. I don’t know. I was kind of sleepy and not interested in watching the game but felt I had to. I had some French fries for my lunch/dinner and then retired to my room where it is fricken cold. I am waiting for my brother in law to come take the AC out of the window. I just texted him to let him know that I want it done today. I am so proud that he has learned to text. When he got his new phone, he had no clue and thought it was a game. I guess they text him a lot at work and he got a little aggravated one day, saying to my sister that this game just won’t stop. She laughed and said that is the text messaging. He can be a little old fashioned but I love him. He really is a good guy.

It has been good that I am home. I didn’t do too much yesterday as I was so sleepy. I said I was going to sleep for a half hour before the game and the next thing I knew we won and the game was over thanks to Victorino’s grand slam! I can’t believe I missed the game!! I am so mad at myself.

I think I kind of got my therapist worried a little bit. She asked if I was suicidal and instead of giving her an answer, I said that I don’t care, which is true. I don’t care if I am suicidal or not anymore. It’s not like I am going to act on it so who cares! If I was going to act on it, I think it would be more dangerous. So I just don’t care if I feel suicidal anymore. It’s not like they lock you away in the hospital anymore for days on end. In fact, unless you actually act in the hospital to harm yourself, they will just discharge you no matter how bad you say you are going to harm yourself. So I am just DONE with the whole business of it all. And it’s not like she helps me while I am suicidal. She doesn’t implement the SSF or safety plan or any of the other things that will ease the tension of suicidality. She just increases sessions where we don’t really talk about anything. My psychiatrist just relies on me to tell her about my symptoms. If I am not telling her I am having symptoms, then to her, I am fine. I just am so sick of being in a constant suicidal state and not being able to do anything about it. I can’t take my life so why bother being suicidal? I mean I can take it, but it’s too much of a damn hassle. I am tired of the planning that goes into a suicidal plan. I am tired of the contracts for safety telling my therapist I will not act on it no matter how bad I really want to kill myself. I am just tired. Plain and simple.

stress and psychosis

This was the first day that I have been out of the hospital. It was nice. I got to meet with my psychiatrist and we went over my medication plan. She doesn’t want me taking too much trilafon for a long period of time and I told her soon as I stabilize on the abilify, I should be able to come off it. So far today, I haven’t needed it so I am hoping that is a good sign.

I went to Starbucks today and typed out my admission experiences. I filled in where I felt I needed to. I thought it was cool to write it down but didn’t expect it to be so long, so I am sorry about that.

It feels so good to be back in my own bed, take my meds when I want to rather than on a schedule and also to have my pain meds when I need them. I flared up my pain over the last few days because I did too much. My ankle is pretty swollen and hurts really bad so I am hoping to stay in the house tomorrow and do nothing except edit my book, least the few pages that I have already done so. I feel that I need to get going or this thing is never going to get published.

I am glad the fog has lifted enough for me to write this blog. It was so painfully difficult to write while I was in the hospital because my head was out in outer space. The few lucid moments I had was when I was writing my experiences or writing to my therapist. I honestly have no clue what I wrote to her.

This hospitalization was a scary one. I have never felt unsafe on the unit before. Usually it is my safe haven. But the paranoia kind of got out of control and things went from bad to worse with in a few hours. I was needed more support than I ever did during this admission. I never was so scared before as I was this time. I hope that I never become as psychotic again. I told my psychiatrist today that I don’t want to mess with the abilify dose at all anymore. I can’t afford a melt down when the dose is lower. She agreed with me. I also have to work on my stress levels. I can’t get overwhelmed too much because it always causes havoc in my life. No matter how insignificant it might seem, I always become psychotic when a little stress enters my life. This book is a big deal to me and I know it is stressful but I have to take it in spurts and not do it all at once or I will end up back in the hospital. The sad part is that not too many staff knew about psychosis and so I wasn’t treated properly. They wanted me to use grounding skills, like if I was having flashbacks or other trauma symptoms. Psychosis is not a trauma symptom. It is its own illness and the staff didn’t get it. My treatment team did for the most part but the nursing staff could use a little more training. I should have written that as part of the exit interview thing I had to fill out before being discharged.

I did have a good staff member that did understand. She wants a copy of my book so I will send it to her when it gets published. So far she is the only one that seemed interested in my work. I had a few patients that were interested so I gave them the website to my blog as there will be information as it becomes available for it. I am hoping to get it done within a month or by the end of the year. It all depends on how quickly I can go through the editing process and have at least two people read it to make sure there aren’t horrible grammatical errors or repeats in information.

I still can’t believe how much I was doped up while in the hospital. But it was a good thing. I didn’t harm myself or barricade myself while I was there. I did try to manage what I was eating but that was difficult. I did go to bed after I took my meds because my day always started off early and most nights I was there I woke up around 330 in pain. I am so glad I can take my pain meds now and not have to bother anyone with it or tell them my scale of how bad it hurts. I can just pop two pills and be done with it. I do have to find another flavor or powerade or Gatorade though. The ones that I have been using suck after the first sip. My taste buds have been awful lately. Nothing really tastes good. Even the coffee and donuts I was eating today was terrible. I know part of the reason is because I am still depressed. I just hope this phase passes soon. This is the first depression in which my taste buds are affected.