A Rough and Boring Day

A rough and boring day

I had a rough night sleeping. Seems I can only sleep in three hour spurts. I was again rudely waken up by a family member while dreaming so that added to my exhaustion. I don’t know why I can’t sleep. I emailed my psychiatrist but I haven’t heard back. I also told her about the trilafon situation and how the voices have become kind of commanding. I was going to page her today but never got around to it because of my sleepiness. I had set my alarm so I wouldn’t sleep all day as I bought a book yesterday and wanted to pick it up. It’s just being added to my “to read” pile I have going on in my room. There are 10 books right now in that pile, not including the books on my Kindle. I just finished one book so I am happy about that. Now if I can get through another book by the end of the month, I will be happy.

I got home and immediately felt paranoid for some reason. It was hard to shake but I think the feeling is gone now. I distracted myself with Twitter. One of my Twitter buddies was in the area where the local bookstore is and if his schedule permitted, we could have met up. Unfortunately, it wasn’t meant to be. Maybe another time. I seem to be getting books at least once a month from this bookstore so maybe next month we can meet up.

I went to the Square to have my coffee. I think the person making it used regular cream instead of sweet cream because it didn’t taste all that sweet. I drank it anyway. I wrote in my journal until half the coffee was gone and then took off for the local bookstore. I really didn’t do much else. It just feels like a boring day. Nothing interesting happened. I did have a new sandwich that I liked at the Au Bon Pain. It had avocados and their zesty Dijon mustard that I love. This one had turkey in it with some kind of cheese. It was really good. I might get it tomorrow if I go out. It depends on how my damn ankle/foot is. It started flaring up on the walk back to the station after leaving the bookstore. My right also acted up but the left was worse. I wish I brought my cane but I didn’t carry my regular bag with me today. I just brought a cloth bookbag because that is what I needed it for. My regular bag has my cane in it.

I was debating getting a haircut at a new barber shop in the Square but didn’t. I couldn’t decide how I wanted it cut. I really got used to the bald cut that I had a few weeks ago. Now that my hair has grown back, I look like a chia pet so I need it cut again. I think I will go tomorrow morning to the same barber’s shop I go to. My mother isn’t going to like it but oh well. It’s my head not hers.

I will be placing my grocery order tomorrow. I can’t wait because I am out of Oreos and I have been craving them. They cost too much at Walgreens, but then, everything is a little overpriced at Walgreens. I think you are just paying for the convenience rather than the value.

I’m not doing anything tonight except possibly read one of my many books. I have three that I am actively reading. Harry Potter, Common Struggle, and Dostoevsky. The other books listed on my GoodReads section of my blog are books that I read when I have the mental energy to. They are quite dense. One of the books I have no idea where I placed it last. I think it is in a hamper that I have junk instead of clothes. The “junk” is more papers and books than actual junk. I have to go through it one day to sort it out. I just need to find the motivation to do it. Maybe I should set up a reward system or something. If I do it, I can get some stuff on Amazon. Amazon is becoming my new addiction for buying things I need but don’t absolutely need. I bought two more books. One of the books is by JK Rowling’s pen name, which I can’t think of at the moment. It’s a fiction/mystery book I think. I think they are turning it into a movie in the UK so I want to read it. There are three books in the series so if I like it, I will get the other two. I do like Rowling’s writing so I know those books will be a good reward to clean out that hamper.

Therapy, Bags, and Other Things

For the first time in four years, I almost slept through my therapy session. I woke up ten minutes late. My therapist called twice and I didn’t hear the phone. I was listening to music and I guess when her ringtone came on it didn’t disturb me enough to wake up. So I had a 40 minutes session, which is better than nothing. She read part of the short story that I sent her the other day. She didn’t finish it but she liked what she read so far.

We talked about my day’s activities and how I was doing. We did talk about the voices but I told her I had taken the trilafon in a text message. I took double because I didn’t want to hear the voices. I have like 6 pills left. When I get down to 2, I will notify my psychiatrist to see if she will refill some more for me.

I have been so tired because I woke up at 0300 and couldn’t go back to sleep right away. Then my mother called while I was dreaming and that always makes me exhausted when I wake up like that. It’s just disturbing and then I am tired the rest of the day.

I took my niece out for a bit and beat the rain. I got pizza and fries for us. We had a good time and then I went back up to my room because it was so hot in her apartment. They didn’t have AC. I think my room is the only room in the whole house that has AC so you know where I am hanging out most of the summer when I am not out.

I ordered another book. This book I found in the Facebook group, “history of Boston”. It’s called “White Trash” and is about the class system of America for the last 400 years. I find books like this interesting. I ordered it through a local bookstore so I don’t have to wait for delivery. I will pick it up tomorrow as I don’t feel like going back out today. I forgot to mail my letter for the birth certificate again. I am so mad at myself. So I will do this as well.

I placed another Amazon order because I am an addict. But seriously, I needed to get my allergy pills because I am running low. I also got the DVD “Liar Liar”. I love that movie. It’s one of my favorite Jim Carey movies. It will give me a laugh when I think about something from the movie, especially the pen is blue scene. He is a brilliant actor. I also bought another bag, another addiction I have. Pens and bags are my biggest things that I will spend money on. This one is similar to the Pearl Jam messenger bag I bought back in January. It’s a little smaller and fits my laptop. I hope that if I find a bag that I like that fits my laptop, I will take it with me more and maybe do some writing outside of my room. I found that I have gone away from backpacks and gone toward laptop/messenger bags. As long as it can hold a book or two as well is all I care about because I will need my journal wherever I go. My paranoia about someone stealing my bag or worse my laptop is sometimes so great that I leave the laptop at home. Or someone breaking into my laptop while I am on a network. I don’t store my personal information like my SS number on my laptop but I have visited websites that have that information because they needed it. This isn’t to say my network is secure but I hope that no one breaks through. Mostly what they will get are my blogs. I really don’t have anything else of value to a would be robber of my laptop, though it will suck to get a new one. Only one of the reasons why I leave my laptop at home.

Therapy, Chinese Food and other things

Therapy, Chinese Food, and other things

I had therapy today. I rented a zipcar and went out to see her. It was a good session. We talked more about the voices. I think she was trying to see if I was suicidal as the voices keep telling me to take more of my meds than I should. I don’t feel suicidal, unless it’s subconscious. I wore my necklace today to protect me from the alien parasites. Ever since I was triggered Friday, I wear it outside. My therapist wasn’t curious about it like my psychiatrist was. That was good because then I didn’t have to explain why I was wearing it.

While I was there, I read my discharge summary. It was very funny. On one page they listed my diagnosis correctly. On another page it listed Mood disorder NOS, psychosis NOS as my diagnosis. They weren’t sure if I had a psychotic disorder or an affective disorder. On the final page, the diagnosis changed again. I couldn’t believe it. Most consistently was the diagnosis of PTSD. The other diagnoses they aren’t sure about and this was just ONE hospitalization that lasted about six days. The funny part was that in one sentence they would call me “her” or “she” and the next line would be “he” or “him”. They were all confused. And this was a top notch hospital, too. I think my next hospitalization will be at the local hospital. It will suck big time but at least I will get a consistent diagnosis, hopefully. And despite me telling the top notch hospital that my therapist was a psychologist, all the paperwork given to her stated she was a licenses social worker. But at least they spelled her name right.

I told my therapist that I emailed my psychiatrist but I don’t want to do so all the time because I am afraid she might hospitalize me. I just been sending her updates when I feel up to it. We also discussed going back to the hospital but I know they will just dope me up. I don’t want that. I can do that on an outpatient basis. If my voices get too commandeering, I might have to go in, but only as a last resort. I do have a pesky voice that I really want silenced but it is resistant to meds as even when I was on the abilify, it was loud and obnoxious. It’s been a week since I have been off this med.

When I got home, I was hungry. I didn’t have lunch so I ordered Chinese food. I had to do it on the sly because my mother made supper. When it came, I brought it downstairs to my sister’s apartment. I didn’t have much because I had the pea soup my mother made. I was full off a couple of chicken fingers and scallion pie. I had ordered some rice but I didn’t feel like eating it. I will have it tomorrow, if there is any left over. I am watching my niece most of the day.

In my haste to get the zipcar as I woke up late, I forgot the piece of mail I was going to send out today after the appointment. I will have to mail it out tomorrow. I can take my niece for a walk, if she wants to. I plan on getting pizza for lunch. If she wants to, I will take her with me to Starbucks. I still have to read the psych book that I bought. I have so many books to read it’s not funny. I brought my Kindle out with me today but I didn’t use it. It just stayed in my bag. I really didn’t have time to read anyways. Driving always makes me tired, especially when it’s over a long distance. I just wanted to write and so I did that while having a latte.

My new pen arrived today and I love it. I think it might replace my current pen but the nice thing is that it’s refillable. I might get one for my therapist as I haven’t given her a gift in so long. I wish I could get it engraved for her but it’s not that kind of pen. And it’s not a 0.7 point like it was advertised. It’s a 1.0 like my other pens are. I can’t wait to write with it tonight.

blog post 2008–short story

This is a short story I wrote back in June of 2008. Hope you like it.

Walk the dog. Water the lawn. Clean the ceiling. That’s what he says every Tuesday evening while driving me home. He has seen many things in his lifetime and I wonder if I will live to be his age. He is a man aged sixty-four. He loves working with children and has spent his life as a teacher and guidance counselor. He never married and still takes care of his aging mother, who has better hearing (and a better memory) than he does.

Eyes of a child come around frequently, then they are off to watch the fairy godparents give Timmy childhood wishes that adults would like to have. Just make a wish, and “Poof!” it’s done. Bills are paid, school is finished, and degrees are earned all in the blink of an eye. No hard work to be done, no studying all night to cram for that final. Just a wave of the wand and like magic — degree earned.

When I was little, my godmother used to make me Easter Sunday dresses. I didn’t know much about my godfather until I became a teenager. My last memory of him was his giving me a plastic mechanical dog whose tail waved when you walked him. Life was simple then. You knew you were different, but it did not matter what anyone thought of you. To this day, I still hold on to that value of not caring what people think — a good measure of one’s self-esteem.

Times changed; presidents changed. You learned about the cold war. The Berlin Wall fell, though you didn’t know why it was built to begin with. You read about Edgar Allan Poe and fell in love with him. His stories seem to talk to you and you could understand the pain and anguish of his writings better than most people. Russia was then called the U.S.S.R. Now it is a cluster of little, separate countries that you still do not know or care about. If you do care, your friend Google can help you find the information and more. Trips to the library are now practically nonexistent. Who needs an encyclopedia when you have Wikipedia.

This country interested you because of the vast differences in the government structure. You can never understand why people were prosecuted or executed because their religion is different, or they dared to write something against the government.

Grade school you remember the war between Nicaragua and Costa Rica. Something to do with guns is what it was about and decided it was a place that you wouldn’t want to go vacation anytime soon.

One spring you decide life’s not worth living anymore and one Sunday you decide to end it. No Easter dress was worn. You were sixteen and life was just too much for you to go on. You had sought help but that help decided to leave the state. It was your third counselor in a year. The hopelessness was too much to hold on to.

Hope for life ends when you woke up the next morning. You realize by summer that medication might work but your therapist says you need to work through the pain not go around it, whatever that means. Found another friend, PDR (physician drug reference). It tells you all about meds and how to take them, what side effects, and how much needed for an overdose. Everything you need to know when you speak medicalese.

My first psych hospitalization was when I was sixteen. I met a guy who wanted my Tigers hat so I sold it to him for ten bucks, said he will give it to me when he sees his lawyer. Never saw a lawyer enter the ward, never saw my money either. I learned many things about the loony bin that summer. Trilafon made the voices go away but then things got too quiet and couldn’t think. Most people called it anti-psychotics, I just called them nothing.

Voices kept me out of the Navy which kept me from seeing the world, which kept me from college, which kept me from medical school, which kept me from being a commander of the fleet. A place of hate, a place of despair, a place of loss is always inside me and I couldn’t get away. How I longed to leave home and never return. But a sense of responsibility always kept me from leaving.

I didn’t need the USN for being a commander in Starfleet. What better place to travel the galaxy and back. A secret life I created that no one knew or cared about. Commander One was someone important, someone who was strong and happy. An orphan who was raised by Starfleet officers. He could do anything. The holodeck was all that I needed for my escape. I started living a double life, one in the twentieth century and one in the twenty-fourth.

I graduated from high school near the top of the class. Women were more attractive than men. I got a plan for higher education. Finally going away, thought Maine was my ticket out. But my learning would be life instead, or trying to see if it would work for me. I met a Jewish doctor who finally cared. Least until the voices said she didn’t. I went to the one of the best U.S. psych hospitals. It didn’t offer me much other than mashed potatoes and a diagnosis that didn’t fit my style. Staff wanted me to “talk to my feelings and give them a name”. I gave the staff names like asshole and bastard instead. Found out that a bagel can be set on fire after 8 of the 20 minutes in the microwave. It also evacuated the floor pretty quickly, causing havoc on a trauma unit. I saw it as revenge on being kept against my will and having a diagnosis that wasn’t correct.

Therapist number ten was my match. She tried to help with the aid of DBT, different bullshit therapy. She didn’t like me refusing her and we fought for control of the driver’s seat. I eventually won. During this time I had found my first love, someone who had been a pen pal and thought would always be there. My match was burned and so was my love at the same time. Time for a different matchbook and this time all fires were out. Red Tape prevented four months of work but it eventually found its way in.

The journey to adulthood has not been easy. Strife with auditory hallucinations at the young age of five is where it all begins. Voices became friends and took control of the young life, constantly telling the child that everything she did was wrong. The voices were always negative and had their own secrecy. When they were discovered, they told the teenager to commit suicide. They knew they would be destroyed. But after the medication and the solitude of the mind, the bearer missed the voices and stopped the medication to have some noise again, to not feel so alone. But suicide did not go away. It lingers because, as one knows, it is the ultimate escape from pain — not the kind of pain you get from a broken limb, nor the kind that comes from the flu. It is the mental pain that comes from despair, sadness, and hopelessness.

During all of this tragedy, the hero in our story seems to find resiliency that no one else can seem to bear, this despite having a father who is a pathological gambler, who would spend money on his narcissism, rather than household bills and necessities such as electricity.

The perfect escape had laid in joining the service. How I wanted to be that Starfleet officer I had always dreamed about.