Tag: chronic pain

suicide ramblings

by Midnight Demon, posted in chronic physical pain, mood disorders, psychache, suicide, suicide attempt

Today was not a good day. I got hit with pain early this morning and I couldn’t go anywhere. While I was watching the baseball games I started knuckling my calf muscle to take the knots out of it. It helped the pain along with pain meds. I tried stretching my calf but it still would not get loose. But the pain is gone now so I am glad it is. Now I just got to remember what I did so that the next time pain hits that part of my leg I know what to do.

I wrote a paper today, again on the Aeschi model. You will hear me talk about this because it is essential to get the word out for people who are suicidal. I believe in this model because it is so straight forward and humane. I also talk about CAMS but even though I know more about the assessment of CAMs than I do about the actual CAMS model. CAMS is Collaborating And Managing Suicidality.

Yesterday was a big day for me. The blog that I write for, What Happens Now, http://attemptsurvivors.com/ , was put into print for the Associate Press on suicide attempt survivors. It made the news and the sad part is that I cannot share it with my family. I am somewhat saddened by this. I can share this with my friends and the internet world but I can’t share it with those I live with. It is sad. But I chose to not share it because I am afraid it will lead to questions about my own suicidality and I cannot bare the thought of sharing this information with my family. It’s bad enough when my Suicide and Life Threatening Behavior journal comes in, I get the glances of disgust. Suicide is not a topic of interest in my house like it is an interest of mine, if only because I think about it nearly every day.

Suicide has been an interest of mine since I was young. Now at nearly thirty years later and I don’t know how many attempts, I still think it is the only way out of my suffering. I have made a date this year that if things aren’t improved, I will go through with it. I can’t help but think that being dead is the answer to my problems. I know that people say that suicide is the permanent solution to temporary problem, but my leg pain and depression are not temporary. I have to live with this the rest of my life and if I choose not to, isn’t it my choice? Don’t I have the right to die if I so choose? I am not saying that I will commit suicide tomorrow but it is in the distant future that I will die. I am not promised tomorrow, no one is. I just think that I don’t have a purpose with my life. And a lifetime of being in chronic physical pain is not appealing to me. I just can’t go on knowing that every day I will be in some kind of pain that has no end. Or the fact that I have to be on pain medication for the rest of my life. I just can’t fathom that. I worry that one day I will be denied the medication because I have been on them for so long. I just can’t risk that happening. I am scared of that happening. I’m also afraid of people not believing that I am depressed because I joke around so much. I’m sorry that I have a sense of humor. It has helped me with my depression more than anything. If I didn’t have it, I told my psychiatrist, she had permission to commit me somewhere. My heart is so dark at times I can’t stand it. I feel like it should stop beating because I feel so dead inside. And this goes on day after day. There is no relief. I never feel alive and joyful. Just sad and despairing.

more about nerve pain

by Midnight Demon, posted in cauda equina syndrome, Chronic pain, chronic physical pain

Watched the baseball game. It went to the 10th inning and my boys came through. They beat the Rays 2-1. It was the first extra innings game this season they won so I am hopeful for the season. The Sox improve to 6-4 and still are leading in the AL East.

Was happy to get an email about the blog I write for the American Association of Suicidology has made the news http://hosted.ap.org/dynamic/stories/U/US_SUICIDE_SURVIVORS?SITE=AP&SECTION=HOME&TEMPLATE=DEFAULT&CTIME=2013-04-13-12-09-11.
It was good to see something come off of the hard work of the AAS president, Michelle Linn Gust to get the blog underway and now we have a voice.

It is not even six o’clock yet and I am exhausted. All I did today was run to the pharmacy to get my prescriptions and go up and down the stairs a few times to help my mother with some groceries. I have been up since seven. Seems I cannot sleep later than that. And I even stayed up late too. I didn’t go to bed until around midnight, after watching Lincoln and reading for a bit afterwards. I kept on going on twitter and facebook to wait for my meds to kick in.

Last night my foot acted weird because of the CRPS, complex regional pain syndrome. It got really cold, like ice and really painful. I put on some socks that were heavy and still my foot was cold even under my blankets. My bones were hurting really bad and if I had a chain saw, I probably would have used it to amputate. That is how bad the pain got. Then after it warmed up, it really warmed up. It got really hot and felt like it was on fire. I had to take the sock off and leave my foot hanging off the bed away from the sheets and blankets because it just was burning me. Nerve pain acts this way. The doctors don’t really understand why this happens. I am seeing a specialist on Tuesday to talk about this. I really hope she can give me some answers. All I can take is pain medication to soothe it or use a gel to try and calm it down some but touching it hurts like hell, which makes it difficult to use the gel sometimes. I find that oral meds work well for this type of pain, but the problem is that most doctors don’t want to prescribe it. I have not run into problems but I know I will soon enough. I’ll get the opioid speech how it is not good to be on these meds long term. But I have been on these meds for almost a decade now and aside from constipation which I control with some senna, I have no other side effects. It might make me drowsy but it’s not like I am operating machinery or driving like I used to. Now I just take these meds when the pain flairs up, which will be again tonight. Every night I am in this horrible pain but it’s never the same. Some times it is bone crushing, other times it is a burning sensation like my foot is on fire. Other times it feels like a barbed wire is surrounding my foot ready to be garroted. I can’t say what will be in store for me tonight after going up an down the stairs four times in a row this evening. I am not looking forward to it and there is no sense in taking the meds early. The pain hit unexpectedly, when I least expect it to so I can’t judge a good time. That is the most frustrating this about this condition. I have a HIGH pain tolerance and it usually isn’t until a pain is an 8-9 that I will feel it. Right now it is simmering on a 4-5 on a scale of 1-10. I have heavy thermal socks on to prevent it from getting cold because it is still winter in New England. My house is cold because my mother doesn’t want to pay a large gas bill, which we shouldn’t have to turn the heat on in the middle of April anyways!! So I try and protect my foot from getting cold anyway I can. But sometimes even having socks on will not prevent my foot temperature from dropping. My left will be cold as ice and my right a balmy 98.6. I hate this condition and wish I never got it but I got to learn to live with it and that is the hardest part.

midnight ramblings

by Midnight Demon, posted in Chronic pain

Last night I was in pain again though I don’t know why. It’s a late hour so my mood has tanked south. I don’t know what it is about the night that makes all the pain come out but it sucks. Thoughts of death are swarming around my head. I’m listening to The Band Perry’s new CD to try and relax. I haven’t listened to music in a few days. I do tend to feel nervous when I don’t listen on a regular basis.

I tried taking a break from my therapist this week. It didn’t happen the way I wanted it to. Usually I take a break and become more analytical and come up with these great ideas. But this time, it just didn’t happen. I guess being wrapped up in pain left no room for thinking about things. I usually end up writing her these long letters about how I am doing and what I am feeling. I didn’t so much as do that.

I came up with some idea to write about songs that I have a knack connection with but have not started that project yet. I just haven’t decided what songs should go into this. I guess I’ll know when I hear it.

Tonight I have my cousin’s wedding. I know I am going to get asked about my work and I’m going to talk about my disability. It gets old after a while but I can’t help but feel like a loser after I tell my family that I am no longer working and why. It kills me that I am no longer able to function to the point of working. And what is really tough is that I haven’t had surgery in seven years. That was the last time I was in rough shape. People usually think you get better by now. But I am not. Nerve damage takes so long to heal and no one understands that.

Monday I am to see another doctor for the same problem. I don’t know why I am bothering. It’s not like she is going to have any new answers for me other than to lose weight. That is the doctor’s cure all. If you lose weight, you won’t have this problem. Lose weight and you won’t be so depressed. Lose weight and your back will feel better. I wish I dropped a pound every time someone told me to lose weight. I would be skinny in no time. But I seriously doubt that my weight is the ONLY reason I am hurting. Even if I weighed 80 lbs I would still have a bad back and still have nerve damage. Weight cannot change the fact I have had four back surgeries. I have been trying to lose weight for the past three months. It is wicked hard. It takes a lot of work and with the depression it just makes it that much harder. I don’t always stick with it because I get the fuck its. But lately I have been having no appetite so I just been eating cereal as my caloric intake. Also been eating yogurt to try and get my bowels on track but that is the harder road. It sucks eating healthy or at least trying to when junk food is so accessible.

There has been a quote floating around twitter the past few days, that if a crush lasts more than four months, then it probably is love. Then I guess I am in love with my therapist. I have had a crush on her from the very beginning. Another quote fact that has been circulating is that relationships that last longer than seven years tend to last a lifetime. I have found this true with my therapist and psychiatrist. I have known my psychiatrist for nearly half my life and we just past the twenty year mark of working together. I’m screwed.

My left foot is on fire as I am writing this and I’m finding myself feeling empty hearted. Not really downhearted, just feeling empty, like I have nothing inside. And because I feel nothing, I also think I am nothing, that I don’t matter at all to anyone. I’ll just be better off dead.

What would being dead look like? Frankly I don’t know. I’ll be dead. I won’t be in existence anymore. The pain that I feel will cease to be. I will finally be free of pain and misery. Lest I hope I will be. Being free of pain is all that I want. If I didn’t have pain, emotional or physical, I probably would want to live. And I don’t know what that would look like. Probably the same as it does now.

another day of pain

by Midnight Demon, posted in cauda equina syndrome

Usually after a night of pain, I am ok the next day. I usually don’t have pain until later in the evening right before bed. Today was different. I woke up to my foot still hurting so I made some breakfast and took some pain pills and went back to sleep. I have been sleepy all afternoon since waking up at two o’clock. My foot is still hurting, not as bad so took another pain pill. Now I am ready for a nap.

I hate it when I have days like today. It just sucks because I don’t do anything but stay in my pajamas. I wanted to go out today to get my coffee and maybe write in my journal but that didn’t happen. It’s just another day in the house where all I can do is keep my foot up to stop it from hurting. Having a pain syndrome sucks.

I am very tired from the meds and feel a little dizzy, probably because I have not been drinking enough fluids. I could go to sleep right now and I am going to try and resist.

I started reading a new book. It’s about Lincoln’s first 100 days in office. So far, I think the book is badly written as the author has repeated himself a couple of times with in a few pages of each other. I don’t know if I can get through a book like this. Makes me wonder what the hell the editor was thinking or if he or she even read the thing. The book is supposed to be about the first 100 days but yet the author keeps talking about the Emancipation Proclamation, which is not until Lincoln’s second year, which is MORE than 100 days after he is in office. I’m already confused as to what the author is trying to convey.