my suicidal career (short version)

My suicidal career:

I write about this not in the sense that Ronald Maris created it as that would be a completed suicide and I am not dead. But my relationship with suicide is a long one, from the time I was eight up until now. It is a struggle I deal with on a constant basis. It along with my depression makes life very unlivable for me. I often think about death in so many ways. I plan my death in so many ways yet I am unable to act on it.

When I was younger, I had no problem acting on my impulses to kill myself. But then protective factors such as my niece and nephew entered my life and I couldn’t bring myself to go ahead and kill myself. The loss was too great for them. I couldn’t imagine what my sister would say to these young kids who adored me. They were my saving grace whenever I had a bad day and really wanted to end my life.

Then chronic pain entered my life and made the balance of protective factors seem out of reach. I felt that I had to ignore them in order to let myself get into the suicidal mind frame to end my life. And I got there several times in the last few years. I had one friend call me every single day for a week until the storm had passed. I had therapy with my therapist several times a week. Nothing stopped the pain and the hurting that I was feeling. And when the pain got worse, so did the suicidal feelings. The feelings turned into plans that never were executed. This is the story of how it evolved and how a few suicide attempts lead to more hospitalizations than I can count.

I first thought about killing myself at the age of eight. I don’t remember the particulars but I thought it would be a grand idea not to be alive anymore. This got worse when I was nine. I really thought that ending my life was the answer to my problems. I hated myself because I felt like I was a burden to my family. I felt I had let them down somehow. I started planning my death at my birthday that year because I couldn’t stand the pain of living anymore. But for some reason, the age ten had a significance for my family and my mother was throwing a big party. I don’t know why she was throwing the party and making a big deal out of it but I figured I might as well stick around and see what I got. I was disappointed that I didn’t get a tape recorder that I wanted. I didn’t try to kill myself that year. But I did try later that year when I had an argument with my mother that now I don’t even remember what we were fighting about. I just told her I wish I was dead and went to my room to try and kill myself. I placed a pillow case over my head and prayed for death to come take me away. It didn’t work. The pillow case was too breathable. I was left crying in my room what seemed like hours. I don’t recall if my mother ever checked on me. I hated my life from then on. Suicide was always on the back burner for me.

This is a book detailing my career in suicide and the journey I went on to deal with it. There have been a couple of close calls but nothing recent, though I still feel the need to kill myself at times. But I do not act on my thoughts. I have attempted suicide many times and according to all the statistics, I should be dead. The one study that I often am in awe at is the one where they found that suicide attempt reactions often predicted future suicide deaths. I am in that category of not wanting to live yet I am still here. I am the outlier. And I hate being the outlier.

This story is my life that centers around my suicidality and the works that helped me get through it. Without finding the American Association of Suicidology, the works of Edwin Shneidman and David Jobes, I doubt I would still be around to talk about my life in this way. There are concepts of these people that I hope to explain in layman’s terms so people know about them because they have had a deep impact on trying to keep me alive.

The first is Edwin Shneidman’s conception of the word psychache. It is a word used to describe psychological pain which is defined as the combination of hopelessness, despair, loneliness, guilt, worthlessness, unbearable anguish, intolerable pain, and helplessness one feels when in deep despair. It is the pain one feels that is deep within you when contemplating your life. His other concept, the twenty frustrated needs is another brilliant sign of what constitutes suicide. They are:
ABATEMENT The need to submit passively; to belittle oneself
ACHIEVEMENT To accomplish something difficult; to overcome
AFFILIATION To adhere to a friend or group; to affiliate
AGGRESSION To overcome opposition forcefully; fight, attack
AUTONOMY To be independent and free; to shake off restraint
COUNTERACTION To make up for loss by retrieving; get even
DEFENDANCE To vindicate the self against criticism or blame
DEFERENCE To admire and support, praise emulate a superior
DOMINANCE To control, influence, and direct others; dominate
EXHIBITION To excite, fascinate, amuse, entertain others
HARMAVOIDANCE To avoid pain, injury, illness, and death
INVIOLACY To protect the self and one’s psychological space
NURTURANCE To feed, help console, protect, nurture another
ORDER To achieve organization and order among things and ideas
PLAY To act for fun; to seek pleasure for its own sake
REJECTION To exclude, banish, jilt, or expel another person
SENTIENCE To seek sensuous, creature-comfort experience
SHAME-AVOIDANCE To avoid humiliation and embarrassment
SUCCORANCE To have one’s needs gratified; to be loved
UNDERSTANDING To know answers; to know the hows and whys

When you have frustrated needs your thoughts of suicide go up. One feels the need to be loved and nurtured and when that doesn’t happen a certain loneliness occurs and it is painful. According to Shneidman, one must rank these needs so the final sum of all is 100. I have never been able to rank them but I find that these needs are important in everyday life. He got them from another psychologist, Henry Murray in his famous book explorations in personality. The theory is that frustrated needs are a causal factor in suicide. Decrease the frustration and reduce the suicide. Then you have the ten commonalities of suicide (suicidal mind):
I. The common purpose of suicide is to seek a
solution.
II. The common goal of suicide is cessation of
consciousness.
III. The common stimulus in suicide is intolerable
psychological pain.
IV. The common stressor in suicide is frustrated
psychological needs.
V. The common emotion in suicide is
hopelessness-helplessness.
VI. The common cognitive state in suicide is
ambivalence.
VII. The common perceptual state in suicide is
constriction.
VIII. The common action in suicide is egression.
IX. The common interpersonal act in suicide is
communication of intention.
X. The common consistency in suicide is with
lifelong coping patterns.
Within suicide you have a vocabulary of suicidal terms. The list is exhaustive but I have a few favorites:

Hopelessness, psychache, lethality, perceived burdensomeness, thwarted belongingness, press, perturbation, fearlessness and competence.

Perceived burdensomeness, fearlessness, competence, and thwarted belongingness are not Shneidman’s term but of another suicidologist Tom Joiner. I read his book why people die by suicide and found it fascinating. It really is a good read and helped me to understand my suicidality a little better.

Hopelessness, the feeling of being lost in hope, that nothing is ever going to change, that things will always be the same no matter what.
Psychache is defined as despair, intolerable anguish, hopelessness, guilt, worthlessness, and unbearable psychological pain one feels. It is like pain in the heart that no one else can feel. Your heart feels heavy and you feel like a burden because of it. Nothing soothes this pain. No medication can touch it. And suicide seems like the only answer for this type of pain and anguish.
Lethality, the degree to which someone is at risk for suicide. Whether it be a loaded gun or a few bottle of pills or some cuts on the wrist. This is what determines how suicidal a person is and how they are going to act. If the risk is high and eminent, involuntary hospitalization is called for. If the risk is low, then more contact is need and assessment at every visit.
Perceived burdensomeness, the idea that you are a burden to those around you but in reality you are not,
Thwarted belongingness, the idea that you don’t belong anywhere and feel the need to belong somewhere. It is a very awkward and lonely place that hurts very badly. Everyone wants to feel like they belong somewhere or to something and when that need is not met, they feel detached and alone.
Press, similar to stress. It is as if the building of the press is similar to the pressure of a volcano ready to explode. It can lead to further perturbation and make things worse.
Perturbation, the need to feel or do something to ease the pressure and anguish and despair they are feeling and to feel better. It can lead to want to do something but the idea is that you need to do something to relieve the pressure of the feelings on your chest.
Fearlessness, the absence of fear. In this regard, it means that people may be fearless when trying to take their life, like a type of Russian roulette.
Competence, the meaning is the level of competence to carry out the means for their suicidal plan. Examples include rope for hanging, gun handling and shooting, knowledge of drugs, etc. High competency is a high risk factor.

My therapist

My therapist

I know a couple of my blogs have dealt with my therapist. Today she came back from her vacation and I could tell she is glad to be back.

We talked about a couple of issues while she was gone that I had texted her about. I had to keep her in the loop while she was away. I don’t know who else’s therapist does that but mine does.

Friday I was telling my psychiatrist that I was lucky to have her and not to have her drop me when she was going through all the moves that she was making. And also I didn’t connect with anyone while trying to find another therapist that was closer to me. My psychiatrist did bring up a point, that I didn’t drop either one (my therapist or my psychiatrist), though I did try to drop my therapist, many times. It just never worked out. And today I am seeing why. She really cares about me. And I think her hounding and nagging isn’t helping me. We talked about that today after she tried to assess my suicidality. I told her I was fine but she didn’t believe me. She never does. And it pisses me off because sometimes I really am fine.

I have known this bozo for the past 12.5 years (technically 13 if you count the initial session we had). I had an initial session with her in Aug 2000 but because she didn’t take my insurance, I had to wait till January to see her. It was a trying time. I was in severe back pain because I had a herniated disc. I was severely depressed because a therapist (one before her) had just left me after a year of working together and I was hurting really bad because I had just broken up with my girl friend. I was seriously thinking of killing myself because feelings of abandonment were rampant and I didn’t know if I wanted to go back to therapy again. I had so many therapists over the course of 10 yrs already and I wasn’t going to go again just to get hurt again. But something in her demeanor made me think that she was the one. And now after all this time, I realize that we have a lifetime commitment to one another (well, maybe not but it feels like it!)

I’ve had love and love’s had me
I’ve been held and been set free
And I have lived enough to know
That you might stay or you might go
So here I am one more time
Call me brave call me blind

I’m gonna count to 3
I’m gonna hold my breath
Try not to be afraid
Tho it scares me half to death
I’m out here on a limb
Altho I know that it might break
My heart is gonna want you anyway
And if this love has any chance at all
Someone’s gotta be the first to fall

The best is just a touch away
We’ll make forever day by day
It’d be a shame to let this go
How sad to think we’d never know
How the morning light would fall on us
After we make all night in love

I’m gonna count to 3
I’m gonna hold my breath
Try not to be afraid
Tho it scares me half to death
I’m out here on a limb
Altho I know that it might break
My heart is gonna want you anyway
And if this love has any chance at all
Someone’s gotta be the first to fall

So here I am one more time
Call me brave call me blind

I’m gonna count to 3
I’m gonna hold my breath
Try not to be afraid
Tho it scares me half to death
I’m out here on a limb
Altho I know that it might break
My heart is gonna want you anyway
And if this love has any chance at all
Someone’s gotta be the first to fall

When I first heard this song by Terri Clark, it was the perfect song for my therapist and I. I was just getting over my relationship with a previous therapist and I didn’t know if I would go on. I was going out on a limb, trying my luck with Bozo.

I didn’t always call Bozo bozo. I used to call her by her formal title Dr. E. But as the years went by she wanted me to call her by her first name, A. Her middle name starts with a B and I didn’t know it for the longest time. And it is an unusual name. So I just started calling her Bozo hoping that she would get mad at me and stop seeing me. Turned out that no matter what I called her (including some explicit language), it never changed her mind. And wasn’t I in trouble!! She and I always had a connection from day one. I like to think that it was the song by Kenny Chesney, you had me from hello that explains it all.

One word, that’s all you said
Something in your voice called me, turned my head
Your smile, just captured me
You were in my future as far as I could see
And I dont know how it happens, but it happens still
You asked me if I love you, if I always will

Well you had me from hello
I felt love start to grow
The moment I looked into your eyes you won me
It was over from the start you completely stole my heart
And now you won’t let go
I never even had a chance you know
You had me from hello

Inside I built a wall
So high around my heart, I thought I’d never fall
One touch, you brought it down
The bricks of my defenses scattered on the ground
And I swore to me I wasn’t going to love again
The last time was the last time I’d let someone in

But you had me from hello
I felt love start to grow
The moment I looked into your eyes you won me
It was over from the start you completely stole my heart
And now you wont let go
I never even had a chance you know
You had me from hello

Thats all you said
Something in your voice calls me, turns my head
You had me from hello
You had me from hello
Girl, I’ve loved you from hello

I don’t know how I got to be lucky to have this woman in my life and have such a good relationship with her. It took a long time to trust her especially after dealing with a diagnosis of Cauda Equina Syndrome. That diagnosis brings such a loss of dignity that you cannot imagine what it is like until it reaches you. But through all of my illnesses she has been there.

She doesn’t have a traditional track, like CBT or psychodynamic. She has what is called relational therapy. I am guessing she picked it up back in New Mexico because I can’t seem to find out about it anywhere else. More than that she takes the Aeschi model to a whole new level. She really wants to know me as a person and not as a diagnosis. I think if she were a strict therapist, I might not be with her after all this time. Even though I might not have frequent in session sessions, we still are able to read each other on the phone by the sound of our voices. I can see the faces she makes when we talk, though for a long time, I rarely had any type of facial contact. I think by having phone sessions has increased our eye to eye contact more than it has in the past. It really helped break the barrier of what I felt I couldn’t talk about and really talk about it. She also allows me to having input in the kind of treatment I want. If I didn’t bring in the works or Dr. Shneidman or Dr. Jobes, I doubt that I would be here today. She altered her practice style for me and I never take that for granted. Her style might be considered eccentric but it works for me. I am grateful that she allowed the use of the SSF and Holden’s scale for psychache into our work. I think even if I brought in the most ridiculous form of therapy, she might just be game. Though she has brought some ridiculous forms of therapy to me. The works of Janina Fisher seem a little bogus to me. But she believes in them so I have no chance of changing her mind. I met the lady and boy was it an eye opener to complete bullshit!!

Voices and Other Musings

I don’t know why I am writing this as I am very tired and want to go to sleep. Except the voices are having conversations in my head about things. Some stuff I can decipher, others I cannot. It is very annoying. I wish they would just go away and let me be but they are not so accommodating.

I have lowered my dose of my antipsychotic because I was having side effects. I don’t think I can go back up without my doc’s ok. I just need a little time to adjust to this dose and I am hoping the voices will go away. Something tells me this is just wishful thinking. I really don’t want to go back into the hospital. I won’t have my music to listen to and having music with me calms me down. I will get agitated if I don’t have music, and well, you don’t really want to have a meltdown on a psych unit. It is not pleasant. I guess as long as I am not feeling paranoid I am doing ok. But then, there isn’t much interaction with people I don’t know. I am grounded in my house because my funds for Starbucks have ended. I can’t have my coffee until next week when my paycheck gets in. It’s just as well because I think the caffeine might have had something to do with the tremors I was experiencing. I have been ok the past few days but I still get the feelings like my arms are like stretched out elastics. I know that is a little of the dyskinesthia I experience. I am also worried that this feeling is going to drive me nuts more than the voices will.

In case you are just reading my blog for the first time, I have been hearing voices since the age of 5. They started off as imaginary friends but have always stayed with me growing up. The voices have changed over the years. My latest new voices have an English accent. I think that was because I was preoccupied with England for a time. They have gone away but sometimes still creep back. I also have experienced paranoia while on the bus. I thought it was anxiety but if anxiety caused paranoia than why would I think one of the passengers were going to harm me in some way. I have not been taking the bus that often anymore because of this.

Sometimes I have delusions. When I was younger I had delusion that I was living on the holodeck on the Enterprise. I created this other life that I still somewhat believe today. Or I wish it still existed. Lately my delusions are related to the type of voice I hear. If the voice says he is Allah I will have religious types of delusions. Usually these new voices are often commanding voices (they tell me to do things) and always lead to a hospitalization. I don’t know why voices are an automatic reason for getting hospitalized. I just know that I could be ok otherwise but soon as I say I have voices that are not controlled, they put me in the hospital. It drives me nuts, no pun intended. Other delusions that I have had in the past centered around my coworkers conspiring to fire me or have me fired by planting devices in my email. I felt like every move I made was being watched and every email I sent was being monitored. Usually, it would center around one person. And eventually, I became fearful of this person though I had no real reason to be. When I seriously asked my coworker if she was going to kill me, she gave me a crazed look like “you kidding me”? I then knew that it was just my illness talking and that it wasn’t real.

The hard part about dealing with psychosis is that your view of reality becomes blurred. You often don’t know what is real and what is not. There was a good period of time when I thought God was always watching me and that I had to watch what I was doing so not to offend him. These feeling persisted even when no one was in the room with me, I still felt his presence and it was not a good feeling. I felt like I was constantly being watched and the voices helped to confirm my suspicions. It wasn’t until I started on the drug olanzapine that all this went away. For the first time in my life, I felt free. But then out of fear of me getting diabetes, my psychiatrist took me off this drug. I was fearful that this paranoia was going to come back but it has been over ten years since being off that drug and so far I am still free from that type of paranoia. I often wonder how other people react when someone tells them that God is all around them. For me, I ended up with paranoia for most of my childhood and early adulthood. And it all stopped by taking medication. I was on other anti-psychotics at this time, but none of them took care of that presence I felt all the time. It feel good knowing you don’t have to always watch over your shoulder. That is why I am fearful that I might have to stop this medication. I haven’t had any symptoms since Monday and I hope it stays that way. Maybe it was just a little hypoglycemic attack (low blood sugar). But that still doesn’t explain why I had symptoms later that night AFTER I ate a good meal. It doesn’t make sense.

I see my psychiatrist tomorrow. I hope she has answers for me that doesn’t include me being taken off my medication. So far she has not responded to the emails I sent her so I am hoping that by reducing the dose, I am doing the right thing. But in doing so, I hope that doesn’t mean it’s also open season on a voice attack and that paranoia will start coming back. I am just fearful of this happening. But I think if she really wanted me off this medication, she would have responded and told me so.

medication and feeling scared

Meds and being scared

Yesterday I was in a panic more so when I have to take a bus some place. My hands were trembling uncontrollably for several hours. I was scared. Then when I started writing with pen and paper, it got worse. The only other time this has happened to me was when I was on high doses of trilafon. But I am not taking trilafon for my psychotic symptoms. I am taking another medication called Abilify. And it is causing these symptoms. I am scared because it might mean I have to get off this med and if I do, the voices will run rampant and I will have to be back in the hospital. Usually, taking the Ativan will help bring me down and so far today I don’t have any symptoms. I emailed my doc and she has not responded so I think I am on my own with this. I wish she would respond so that I know I am on the right course. I skipped my dose last night and I am only taking half the dose tonight. We’ll see if I get any symptoms tomorrow.

I have been on this drug for more than a year now. I have never had to take a long term anti-psychotic drug before. Usually the bad voices would go away after taking the meds for few weeks and then I could stopped taking them but after my psychotic break in 2008, this has not been the case. One doctor called me schizoaffective because my symptoms were so bad they were considering putting me on clozaril. But then during one of my admissions I was placed on Abilify and it worked for me better than any other drug. I can no longer take Seroquel or risperadone because they give me worse side effects. I rather have the trembling than my legs kicking uncontrollably or my heart giving me palpitations.

Right now the voices are under control. I am still having break throughs. I have a new voice that likes to talk to me just as I am falling asleep. She just pops her head in and starts talking away. I don’t suffer from visual hallucinations but if I did, that is what I imagine is happening. Then the other voices start up and chime in with their own questions and wondering why I am still here and why am I not working so I have to go into that whole debacle. Or the other voices will talk with the new voice and the whole thing will keep me up because I get agitated by them interfering with my sleep. I sometimes have to referee them. It is very exhausting keeping up with them while listening to music to try and drown them out.

If I have to stop this medication, things will change. I really don’t want the paranoia and delusions to come back. I don’t want the commanding voices to start up again. I will not be able to function. I will really hate not being on this medication. But I am hoping, that I can take another medication to counteract its affects. I kind of feel like Dr. Pearce from Perception where he goes through life unmedicated and still be able to function to some degree. He is able to embrace the voices that he knows are not real. I don’t want to go through that. I went through it once and it was not pleasant. I can handle the three or four voices regularly but I can’t handle the paranoia and delusions. That is more debilitating to me than a conversation of voices in my head.