Am I a hopeless case?

Am I a hopeless case?

My med alarm woke me up. I reluctantly sat up to take them. I wanted to go back to sleep but my bladder said it had to go. It was really quiet in my house so I thought my mother was out. I went downstairs and peeked in the kitchen. My mother was there and the TV was on mute, hence why it was quiet. I did my business and brushed my teeth. I went upstairs wanting to go back to sleep but I needed to pick up my package at the FedEx office. I was debating on how to get there. Then I got a phone call that wrecked my day.

The phone call was the social service dept at the hospital where all my doctors are (except my neurologist who is at a different hospital). I could tell by her voice she wasn’t going to give me pleasant news. She was speaking slowly which was annoying. I let her say what she needed to. The whomever decided I needed “long term care” and they do not provide it. So she gave me some other places I could try. I got upset. One of the places she “recommended I try” was Psychology Today’s website and I told her the therapists there do what you are doing to me once they hear my history. She was taken aback by that. It is true, that is why I am stuck in therapist limbo because I have a history of suicide attempts AND could possibly be in crisis, which makes therapists uncomfortable. Rather than dealing with it, they just don’t see you or pass you on to someone else. So I got a few contacts, one was a social worker referral line. I am not going to call them. I sent a message to my PCP’s social worker to let her know I was upset they denied me services.

After the phone call, I just cried. I was so frustrated and angry and when I get like that, I just cry. I felt pretty hopeless. I feel like I am just this hopeless case no one wants to take on. I still have the other therapist I put on hold but I really don’t want to go back to see him when he really hasn’t helped me in the year I saw him. All I got from him was venting my frustrations on my medical care and other stresses, like my mother being an asshole. I wrote to my psychiatrist to let her know. She told me the hospital does not provide therapy (then why are they number 1 in psychiatry???) and we will talk about this more tomorrow. I didn’t respond to the email. I had started to cry again.

I feel utterly defeated, worse than I have ever felt about not having a therapist since 2016. I keep replaying the scenario in my mind when I asked my therapist if we should end, not expecting a yes but got a yes. I was shocked. Then I couldn’t get a hold of her as it was the holidays and I just thought when I spoke to her next things would be eased out and we go back the way it was before. Nope, she was going to terminate. In a month. With no appointments in between that January appointment and the February one. Since then I had to call like seven therapist before I landed the one I saw until my physical mobility was shot. I think I stopped seeing him in January. I wasn’t getting much from him anyways. More than a few times, he pissed me off so much I would cancel the next appointment. He never asked why, just did it and never talked about it. All my previous therapists always asked why I canceled and got the third degree when I did so. In a lot of ways he is different than all of the ones I saw before. But he was okay with me being suicidal. I could talk about it with him like I couldn’t with anyone else. But that is all it was, talking. No plans or structure or anything else to cope with how horrible I felt. So even though I had someone I could talk to, I often felt alone with what I talked about because there was a lack of care with the heaviness I spoke about. No idea if I am making sense. The last straw for me with him was when he told me to Google relaxation techniques after I told him my PTSD was keeping me from sleeping. He just said it was “anxiety” keeping me up. So now I will have Google as my therapist. No one else wants the job.

Psychache scale

hello,

I am probably breaking the rules but this is my version of the Holden psychache scale that he used in this paper Development and preliminary validation of a scale of psychache.
By Holden, Ronald R.,Mehta, Karishma,Cunningham, E. Jane,McLeod, Lindsay D.
Canadian Journal of Behavioural Science / Revue canadienne des sciences du comportement, Vol 33(4), Oct 2001, 224-232

I modified it from the original to suit my needs. You can get the original scale by getting the article. Here is also a blog I wrote on the research article (click here)

PS blank

About suicide hotlines: My thoughts

About suicide hotlines: My thoughts

some hotlines: Crisis text line 741741, National Suicide hotline 1-800-273-8255, Trans Lifeline 877-565-8860, Trevor Project for LNGTQ 866-488-7386

After a 9 year old that came out as gay to his friend and then killed himself, there has been an increase in sending out the suicide hotline numbers. While I know that sending out and calling does help people, there are other that feel too hopeless and alone, maybe feeling ashamed, maybe feeling no one will understand, and therefore won’t reach out.

One thing that is often said in hindsight of a suicide is why? Why didn’t I see the signs? But knowing the signs are not enough. Often when confronted, people with suicidal thoughts or maybe even planning a suicide, will deny it. It is a sensitive issue. A private issue. I know when my best friend told me at the age of 11 to seek help, my response was “I am not crazy”. With stigma, it is hard to approach someone who is suicidal. Often, there is the thought, no way this person is thinking of suicide, not my child, friend, co-worker, etc. They may deny it and say they don’t because it is against their religion or maybe the person who asks, frightens their friend or family member for fear of being stopped or if they do say yes, the person who asks responds with “don’t do something stupid” or “I will kill you if you do this”, which further alienates the suffering person. I’ve had this experience from two different people. I’ve never understood this logic. I still don’t.

My point of all this is people who are depressed ad suicidal need to feel safe in order to talk openly about their feelings. Often calling a hotline takes a lot of effort to even pick up the phone or dial the number. It is so scary because they are afraid they will be turned away and that holds people back. Or maybe they have phone anxiety like me. The Crisis Text Line is super for those people. But it is still scary to admit they are having suicidal feelings. They don’t know what will happen when they call or text.

In this case of this little boy who apparently was bullied, I don’t know if he would have had access to a phone to reach out and seek help. We often think those under the age of 10 cannot think about suicide but the numbers are growing. I know when I was eight I started having suicidal thoughts and made my first attempt at age 10. I didn’t tell anyone about this besides my best friend. He was probably sick of me talking about it so told me to reach out and then I shut down. I stopped talking about it but the thoughts were still there. When I was 12 I did reach out to Samaritans. I talked to a nice British speaking lady. I was very scared to call. I never had another good experience calling a hotline again. I was often rushed off the phone once I mentioned that I was suicidal.

suicidal turmoil

Suicidal turmoil

***note this is just talk. No action. Just expression of feelings of suicide. If this bothers you, do not read***

My mood has been all over the place today. Last night I was feeling really suicidal. I was exhausted after a chat and wanted to sleep but my thoughts wouldn’t let me rest peacefully. I wanted to email my psychiatrist but I couldn’t come up with the words as my exhaustion out ranked my thought process. Eventually, I did find sleep.

I woke up in the middle of the night because of pain. I took my pain meds, made note of the time, and then went back to sleep. I woke up before my med alarm as I had to use the bathroom. I decided to stay up because I knew that if I went back to sleep, I’d feel like shit.

I got hungry and so made breakfast. I then had time to catch the bus, even though it was an hour earlier than I wanted to go to the square. Oh well. I took my time getting dressed. It was cool out so I had to switch things to my jeans from my shorts. I decided to wear a long sleeve T shirt rather than a sweatshirt. I figure it would be light and if I got hot, I could take it off. It was a beautiful day out. My pain was there but it was manageable. I got to Starbucks and had my espresso. Then I got my journal out and started writing as I wanted to keep it updated with what happened with my appt with the pain doc.

As I was writing, my mind kept going to suicidal thoughts. I wanted to write some more about suicide but I didn’t know what to write. It kept forming in my head. I looked in my bag for a notebook or notepad and there wasn’t one. GAH! Seriously??? I had bought a million notebooks and notepads and this bag was “empty”??? Guess I was off to Bob Slate in Harvard Square to get my favorite kind. I wrote down some more things in my journal and then went to get my med scripts before going to Harvard.

I got to Harvard and the place had change. I don’t remember the last time I was there. The newspaper stand had closed and it kind of changed the whole place. There was a new CVS next to the bank, which was also new. It was a jewelry place before. Starbucks was besides it. There was still construction going on in front of the Au Bon Pain. I still have no clue what they are doing. The construction has been going on for a couple years now. I went to Bob’s and got two notebooks. I only needed one but the other one was a composition type and was for quick notes. I thought it was cool so I bought it. I stayed away from the pen aisle but talked with the guy at the pen desk about refills. There are a couple of pens where I want black ink as they have blue ink right now. The lady became insistent that I bring in the pen to make sure I buy the right one. I am not a naïve pen person but thought it a good idea to do so. I asked what the price range for them were and she said $5 and up. I said I would be back. I’ll probably go Friday before my psychiatrist’s appointment.

I started walking down Mass Ave, not sure if I wanted to catch the bus down to my therapist’s office or just walk there. I got to the corner where there were some benches and sat down for a bit to drink some water. My bladder was telling me it had to go so I waited a little more, just taking in the surroundings and nice weather. I miss being in that part of town so much. It was like going down memory lane. I just started walking toward my therapist’s office. It was farther than I thought it was. I kind of figured that as the numbers were higher at Harvard than the other train station I usually get off. That part of Mass Ave had changed a lot. There was an Indian buffet restaurant, a Domino’s, a Dunkin Donuts. It was amazing to see all these new businesses.

By the time I reached my therapist’s office, I had walked off my suicidal writing energy. I went up to the floor and used the bathroom, then sat in the waiting room for an hour. I played on my phone for a bit and then I took out my journal to write some more. I tried to remember what I wanted to write about but nothing was coming to me. The bug had worn off. I wish I could walk off those feeling whenever ever they occurred. It would be a huge help to me but I know that might not always work due to pain.

I told my therapist right away about my suicidality and how my week went. A lot of stuff was stirred up. I forgot how much my PTSD was flared because of what happened in PT and then with the pain that activated the Cauda Equina Syndrome memories and surgeries, relearning to walk, etc. We talked about it and he listened to my suicidal ramblings. He didn’t ask if I was safe, didn’t get me off topic with plans or crisis stuff. He just listened and inputted his thoughts when I had finished. He does want me to see him twice a week just to have someone to talk to. He thinks I am too isolated. I explored it a little bit and I told him that was scary to me. I don’t know why. He playfully said that he shaves down the horns. LOL I told him I would think about it and let him know next week. I told him I would be on the new pain medicine and hope that would calm down flares and help me regain some things that I have lost.

When I got home and was thinking over the session, I wanted to cry. I never had a therapist that listened to my suicidal thoughts, plans, and other stuff before, in detail. I felt good about it and it made me feel better knowing I had someone to talk to about this stuff, the hardest stuff I can possibly talk about. He told me he wouldn’t be able to stop me unless I was telling him right then and there I was going to end my life after I left his office. It is Massachusetts law to protect someone from themselves or others. He didn’t give me an ultimatum, a do this or else scenario. I was appreciative because I never had that before. I never talked about how much I was feeling about suicide because safety was always first and foremost. Then add in a therapist’s anxiety and the whole thoughts about why you are suicidal are lost, never to be spoken about. For 27 years, no one heard me out after I said the “S” word. It was like the why are you suicidal didn’t matter and containment was more important. By then, the session was over and you were more frustrated because you were in this bind where you promised if you were going to act on your feelings, this and that had to happen and if it didn’t, you were on your way to the hospital to be admitted for a few days or more.

This is where suicide prevention gets mucky. You have a suicidal person and instead of listening to what they are going through that is making them think about ending their lives, they need to “prove” they are safe when they walk out that door until the next session with the therapist or psychiatrist. The client/patient may get angry they are being put in a bind and not heard. This has happened my entire suicidal career. Now I have someone that cares about me, wants to listen to me, and knows that if I really want to end my life, there is nothing he can do to really stop me. He is the perfect therapist for me and it is scaring me because I am expecting metaphorical handcuffs on my thoughts but they aren’t coming. I am free to talk about suicide as long as I don’t act on these feelings. It is freeing. It is validating. It is helpful. And I am grateful that I have someone like this.

I don’t know if I can see him twice a week because financially, that will be double the copay a month. Not to say that I will be able to make every session because I can’t always do that. We talked about that too. He understands that I have a chronic health condition that makes going out impossible some days. But he still wants to help me. He isn’t going to slam the door or give me an ultimatum saying I need to see him every week or else, which was what I was fearful about. He is a laid back therapist and I like this. I have to admit that my suicidologist instincts about him not using CAMS or some other EBP was freaking me out. How could I talk to him if he wasn’t going to measure the level of suicidality on a piece of paper? But I realized today, you don’t need that stuff to make suicide prevention/intervention happen. You just *need to talk*.