pain and sleep ramble

Got things done today

Last night I started the process of changing the bedding and sheets on my bed. See, half of my bed I use as my “office”. It has books, journals, my laptop and a couple of other items. So clearing it off was the real problem to changing the linen. Once I did that, I got the comforter off the bed and washed it. I knew it would take a couple cycles to dry in the dryer. I already had a set of clean sheets. Trouble was that today after I took my shower, I didn’t want to do anything. I had a rough night sleeping and thought a shower would wake me up. It had the opposite affect. But once the comforter was drying, I knew I had to change the sheets. I forced myself to do it and it went quicker than I thought it would. Usually I only have one clean set of sheets because I always put the clean sheets somewhere and forget where I put them. But the last time I washed my sheets I put them in my bureau where it wouldn’t get lost and hopefully the clean smell would stay on it. Score for me.

This is hard because it always hurts my back when I do change the sheets. It would be easy if I didn’t keep my bed as an “office” but it is easier to work from my bed than from a desk. I know sleep docs would have a fit if they knew. But I won’t see them as I know my problem with sleeping comes from my mood disorder than any other cause. Last night, I slept a few hours and was up at 0230. I wrote a nice blog, something about demons and that is all that I remember of it. I was in a lot of pain when I wrote it and also was a little drugged up with my pain meds. But I had to write. It was the only way I would get back to sleep. Around 7ish, I was finally ready to call it a night. I wish my sleep schedule would be normal but when I am in pain, all bets are off. And I was in so much pain last night it woke me up. Then I started getting cramps in my neck that just wouldn’t allow me to go back to sleep. It was a really bad night. Probably the worse since being home from the hospital. And I was so angry at my treaters. Angry that they had kept me alive. Angry that I was in so much pain and couldn’t sleep. Angry that I couldn’t vent with someone because it was 3 in the morning. I was so WTF at everything.

I am to have a lunch date with my aunt this week. But I don’t think it is going to happen because I have my appointment with my PCP this week. It’s an appointment I am not looking forward to. My blood pressure is still borderline high to high at times. It seems to be worse in the evening. I don’t know why. I will mention that to him as well. He isn’t going to be happy with me because I gained a few pounds while in the hospital. I have been trying to work it off but it’s been so difficult as all I want to do lately is sleep because my nighttime sleep schedule is so fucked up. Maybe I will go for a walk tonight. It can’t hurt. Well, I suppose it can. I just never know what will jack my pain up. Sometimes it is over activities. Sometimes its doing NOTHING but resting. I just don’t get it. I know that if I go up and down the stairs more than a few times, I will hurt. My ankle just doesn’t like the normal flexion it is supposed to have. But I really have no idea why I woke up in excruciating pain last night. I am so baffled. I know part of it is because I was sleeping on my left side (I usually sleep on my right). But I was in a deep sleep and for me to be woken up in severe pain, I just don’t get it. I wish I could talk to some doctor about it to help me figure it out. My PCP is useless when it comes to trying to figure out my pain. But then, he is not a pain specialist. And the pain specialists don’t have any answers for me either. So I am stuck with figuring it out on my own. I need to become a pain expert and study pain but the brain is so damn complicated. I am lucky if I remember the structures of the brain. I can’t even remember the amygdala from the gyrus. It has been too long since I looked at it and its pathways. My memory is not the same as it once was. I used to have photogenic memory. Now, I am lucky to remember things such as when I had lunch or breakfast.

They say not to use the word “demons”

They say not to use the word “demons”

In recent news about suicide, attempt survivors are asking that the word “demons” not be used and that the real “thing” be used. I forgot the term as it was many days ago and I don’t have that much of an attention span that I used to have. It got me thinking about my blog as the word “demons” is used.

I don’t really care what these people say, I am still going to have my blog and though I don’t talk about the “demons” in my blog, I mostly talk about how I feel, which is often suicidal. These suicidal tendencies often come out in the middle of the night, when I can’t sleep, and when I am in pain. I would write some horrible stuff and get a lot of people concerned.

Tonight the “demons” are out. I am hating everyone that has kept me alive the past few weeks. Though I could kill myself now. It doesn’t make a difference with the time frame. I am in excruciating pain and just want to end things. I am so tired of fighting pain. It used to be just psychological that the fight was about. Now, it is both physical and psychological and I am sorry but I can’t keep fighting both. It is too hard. I know that I will feel better in the morning, when I get a few hours of sleep. But right now I could write an email to my psychiatrist and tell her how much I hate her for keeping me alive. I could text my therapist with the same hate. But instead of doing that, I am just going to blog until I fall asleep.

What makes my life so special that I can’t commit suicide? Robin Williams was special. He did the deed. So do a lot of people, every year. They say that 39,000 people will take their life in a year in the US. And the number of attempts are in the hundreds of thousands. Or maybe it is a hundred thousand. We just won’t know because it is so underreported. Many people survive their attempt and often don’t seek medical attention afterward. It is so hard to kill the human body. It boggles my mind when I hear of homicide, though. Seems like that should be higher than suicide but it is not (and please correct me if I am wrong).

But aside from the global effect of Williams’ death, I still feel like it is my turn to die. I really don’t want to live knowing I am going to be in pain the rest of my life. It’s too much of a burden to think about. But I am lucky that all I need are a few pain pills to ease my pain. It doesn’t get rid of the pain entirely, but just enough that it takes the suicidal feelings away. I just took these meds but it takes a half hour or more to work. Chronic pain is a big risk factor for suicide. I know because I live with it every day. My treaters know that. That is why I am hating them at this moment. My foot is throbbing up a storm. I don’t know if it has to do with the weather change. My body can’t tolerate huge gaps of temperature changes. But I have no control over that and I am not about to move to another state. Yes, moving to California might help my pain but it will be isolating because I have a few friends there and most of my family are here. Isolation and being suicidal do not mix. That is why I stay at home. It is a preventative factor for my suicidal brain.

I don’t know why I am up at 3 in the morning. I woke up in pain and still my pain meds have not kicked in. The “demons” are still around me, wanting me to try and take my life. But that will involve getting out of my cozy bed and I am too tired and in too much pain to do so. I guess you can say I am too lazy to take my life. So I write about it instead. I won’t write about the methods that have been swirling around my brain. But one of them include the method Williams chose. He is a brave person. It takes a lot to kill yourself. I am not giving him praise, the media has already done that. But I am happy for him. People in the hospital didn’t understand that. And maybe you might not either. I am happy for him because HE is no longer suffering. HE succeeded where I am a failure. His suffering has ended while mine is still going on.

He died as a complication of depression. I like that term. “Complications of depression” yes, I like that term very much. But I doubt it will be used for my death. The throbbing has escalated. My foot is now on fire. And there is no extinguisher in the world that can put out the fire. So I take another pill. I hope that I am sleeping soon.

Perfectly made coffee, AHHHH

Perfectly made coffee

Today I am at Starbucks again. I am only out of the house because I have an appt with my pdoc. Tomorrow I get to rest, if I am able to. I just plan on staying in and playing my game, to try and catch up on the missions. This is the third day in a row that I have been out of the house. And I am glad because the new guy at Starbucks made my coffee perfectly. I am in coffee heaven. Today’s coffee is from Hawaii called Ka’u. It’s delicious. And reading the cup, I realized why I didn’t get a half cup of it. I goofed and ordered a tall instead of a grande. OOPS. I still was able to make it a venti by putting cream in it. And a lot of ice.

I have been taking my blood pressure since I am on a new medication for that. And I still have high blood pressure. I am not sure what my PCP is going to do other than tell me to restrict salt and lose weight. The weight part is a given and unfortunately, while I was in the hospital, I gained a few pounds. Boredom will do that to anyone, especially when there is food around. My favorite thing to make was graham cracker cereal. I just broke up some graham crackers and poured milk on them. It was good. I plan on buying some crackers next week and making it at home.

I am nervous about meeting him though. I know I will have to tell him I just got discharged from the hospital, hence why I was on the BP med. I am just afraid that he will be giving me a two week supply of my pain meds to “test” me. That is, making sure that I am not going to overdose on them. He still doesn’t get that I don’t want to go out that way. I have more creative ways to die. I doubt I will be able to lose the pounds I gained in a week, unless I starve myself, which I don’t think is a good idea. I can cut down on my eating but then I get really hungry and if I go to sleep, I dream about food. Trouble is my mother hasn’t gone shopping because one of the main chains we go to is on strike. It’s so stupid. Two brothers are battling over the store chain. One brother fired the other, the good one, and thus, the strike ensued. The other grocery stores are too expensive for my mother (me too, but I shop there for convenience).

I finally solved the mystery of how people have been getting my blog email. I have it in one of my blog comments. Doh. It was curious because I have not given out my blog email to ANYONE so when I started getting a few emails, I was suspicious. But I totally forgot I had left my email in one of my blog comments for attempt survivors to contact me if they needed to talk. Now I got to figure out which blog it is so I can edit it so I don’t get spam.

I haven’t told my writing partner that I am planning on writing a coping book for attempt survivors. I think it will be a good use of my time. Though I have no idea how to write this thing. I am going to have to ask her for some help. I will have to bullet point some of it and I am not sure how the format is going to be once I do. I had problems with this with italics for my book.

I also have begun the process of editing a few of my blogs for my next book. It is a laborious task. I just edited one blog and though I was expecting it to be longer, it only took me a few minutes. 700 words are not that difficult to edit. I don’t have my list with me to edit the others. But I know I have to make this blog longer. I might add the pink pill part 2 blog to it so that it is one blog, or at least one story. If I had a brain today, I would have brought with me the legal pad that has the “Brick Wall” that I wrote while I was in the hospital. I could have typed that up while I am waiting for time to pass. I am such a shithead. Oh well, something to do when I get home today. I am including that story in the new book.

I just finished reading another CES (cauda equina syndrome) story in my CESSG mail. It is so sad that doctors don’t recognize the symptoms of CES right away. This poor guy waited a month before being seen by a neuro surgeon. Now he has permanent nerve damage. I feel horrified every time I hear a story like this.

Meeting with my pdoc went well. I was also nervous about it, which I am sure didn’t help my blood pressure. We talked about all that went on in the hospital. Told her about the anxiety attack that lead to a new bp med. I just took my bp and it is still high. I am worrying about this and I know I shouldn’t because it doesn’t help but I am. I told her how the case manager wanted me to stop my suicide research and stuff and my psychiatrist just shook her head. She knows how much the research means to me. It doesn’t trigger me like the CM thinks. I just want to die to end my pain and suffering, something that no one seems to understand other than my therapist and psychiatrist. I was asked point blank why I wanted to kill myself by this moron (CM). She just couldn’t understand why I wanted to end my life and I just shook my head like really? The past few weeks you have no clue? Everything that could possibly happen to me, happened to me while I was in the hospital. If I wasn’t in the hospital when it happened, I know I would have tried to kill myself. It’s just stupid and the hardest part was that I couldn’t educate these people in treating suicidal patients. They had their own ideas on how best to go about it (all wrong in my opinion as the re-admits will show). I really hope that I don’t get admitted again there. I really hated it because nothing was done to address my issues. They just were put aside every day and nothing was really done to actually help me deal or cope. That was left to the group leader or to the staff. It’s just mind boggling to me. The one place that you are supposed to get help, you don’t get it. Or you just get spurts of it. Just ridiculous!

Runaway Train

“Can you help me remember how to smile
make it somehow all seem worthwhile
how on earth did I get so jaded
life’s mysteries seem so faded”

These are the lyrics to Soul Asylum’s Runaway Train. These lyrics have been resonating with me over the past few days. The meaning is quite clear. I feel I don’t remember how to smile. Life seems jaded, far away from me. Another line is “somehow I’m neither here nor there” I ave been struggling with my alter Mr. Hyde the past few days. Last night he really wanted to come out and play. So I let him write yesterday’s blog and the lyrics to this song for my therapist. He seemed satisfied.

Runaway Train has been my favorite song since it came out in the early 90’s. The lyrics touch me very deeply. It’s a song about abuse, neglect, and the need to escape these things. Yet not matter where we go, they always follow us. Like the lyrics state “Runaway train never going back, wrong way on a one way track, seems like I should be getting somewhere, somehow I’m neither here nor there”

Every time hear the song my heart aches because I can never escape the pain. One of the tracks is “bought a ticket for a runaway train, like a madman laughing at the rain, a little out of touch, little insane, Just easier than dealing with the pain.

I interpret the ticket with suicide and how pain is dealt with. Suicide, for me, has always been my ticket out of this world. I read about it to understand it better. I write about it to feel better. Yet I know one day I will lose the battle, like Robin Williams, and take my own life. There is no way I can educate my family for my loss. For they refuse to acknowledge that I have mental illness. According to my sister “there is no mental illness on her side of the family”. This was said three weeks after my last hospitalization for depression. It’s tough to deal with. Yet I have no strength to educate them after all these years. I am surprised my brother in law hasn’t called me. But then, he, too, is in denial about things.

The last line of the song always gets me. It says “I runaway but it always seems the same” And it’s true. No matter how many times I have a depressive episode, it’s like my first and aways feels like it’s never going to end. Then I remember, usually by the scars on my wrist, that things were worst. Things always seem the same with depression but they never really are. Each episode takes a piece of you that cannot be replaced or taken back. Each episode tears you apart ad brings you to the edge of suicide nearly every time. And it hurts in ways you cannot describe. So I am on the one way track, trying never to go back, but I’m neither here nor there.