Tag: Blogging

waking up in the morning sucks

by Midnight Demon, posted in blogging, chronic physical pain, CRPS, depression

Waking up in the morning sucks

I woke up at 7 because I had to pee and I have been up since. I took my shot and my morning meds. I had difficulty drawing the syringe today. The plunger on the needle didn’t want to move so it was hard to draw. I hate when that happens. After taking my meds, I went downstairs to shut the fucking kettle off as my mother just let the thing whistle. I am so damn annoyed. I hate sounds and I just glared at my mother when I saw her. She had nothing to say. I got my coffee cup and made coffee. I had ordered donuts last night so I had that for breakfast. I left them in the box and they were kind of hard this morning. They were still good though.

Today I am going to try and take my recycling out of my room and put it in the bins. I also need to take my trash out. I need to shower today and I might trim my beard. Depends on my energy level. It doesn’t take too long to do but there is always a few hairs that I miss that I need to do the next day. LOL

I bought a new book called “When it is darkest” by Rory O’Connor. He is a suicide researcher that I have been following for years now. The book is about suicide and prevention. I can’t wait to start it but I already have three books that I started and none that are close to being finished. I really need to “schedule” reading time otherwise I just don’t read. I had to do this the last time I read a book and it worked out. I would make note of the time I started and read a chapter. If I finished less than an hour, I would read another chapter. I find this helps me keep track of my time and reading. I have a kindle book that I started but I don’t think I am going to finish it. There are too many words I don’t know because the book is written about the Middle East area and uses words to describe things that I just don’t understand. Thing is, I don’t know if the word is really a word or a made up one and I really don’t want to be spending time looking up words in the dictionary because it just distracts me. If a movie comes out about it, I will see the movie. The book is too hard to read.

The books I am currently reading is Dune, a baseball history book, and Sooley, John Grisham’s new book. I like the baseball history book and will read more than a chapter at a time with it. But sometimes it gets my mind going and thinking and I have to pause to reflect on it and where I want to go with it. With Dune, I am trying to remember what it is about as I have not seen it since I was a kid and kind of found it scary with the sandworms. I know Patrick Stewart played in it and I loved the movie but it has been so damn long, I forgot what it was about. I never read the book before so this should be interesting. Sooley has been interesting, like all John Grisham novels. It is about my 2nd favorite sport, basketball so I am all for it.

My allergies have been off the wall today. Started with my eyes watering like crazy. I had to use the allergy drops to calm them down. Now my nose is stuffy so I might have to take Benadryl to clear it up, which will end up putting me to sleep by the afternoon. I still need to brush my teeth. I’ll do that either before or after I shower.

3500th Blog post

by Midnight Demon, posted in blogging, chronic physical pain, CRPS, depression

3500 blog post

This is my 3500th blog post. I have been blogging since 2012, the year I got disabled. It was a tough year and I was depressed and suicidal most of the time. I had a lot of time on my hands and so I think writing about how I was feeling helped to get stuff out of my head. This blog has been a lifesaver for me. I don’t know what I would do without it.

Yesterday was a really challenging day. I had therapy in the morning. It was stressful. We talked about things that were hard to talk about. She is good at keeping me on point rather than going off on a tangent. I told her I would work on self-care and brushing my teeth/showering. I have been bad at doing these things. I don’t like brushing my teeth but I know it has to happen. I have been showering at least once a week but sometimes I can go 10 days without a shower. I need to work on clearing my bed for the week as I have nothing scheduled the rest of the week. It would be good to change my sheets.

After therapy, I had an hour before I had to leave to get my 2nd vaccine shot. I took public transportation to the hospital and back. I was seen really quickly at the vaccine clinic. I was in and out in twenty minutes. I then went to the square and got a caramel macchiato. I had a half hour before the bus was to come so I just sat on a bench and drank it. It was peaceful at the station. Not too many people were there. I was already feeling pretty tired. I brought a Powerade bottle with me to drink so I would stay hydrated. PT was torture. She had me do one of the machine and within a minute or two, my CRPS ankle flared up. I went as slow as I could possibly go. I didn’t care. I was exhausted and just wanted my bed. Afterwards she worked on my legs to get the knots out. She accidently put too much pressure on my nerve injured thigh and I screamed in pain. She avoided the area the rest of the session. My legs felt better but I got up too quick and got dizzy. She had me drink some water and rest. I then realized I had not eaten all day. I ordered Kung Pao chicken on the way home from PT. It was so good. I really love this dish.

Today I have been tired because I was up in the middle of the night again. I woke up at 1 to pee and had trouble getting back to sleep. It could be a side effect of the vaccine as well but I am going for my long day yesterday and being up in the middle of the night as a reason why I am so exhausted today.

I don’t know if I will listen to the entire game but I am going to listen to the first couple of innings. They are facing the Braves, which has been on a hot streak. We have been on a losing streak so will be fun to see what happens. I love baseball so much. I am keeping track of games lost/won again on Twitter. Right now their record is 29-19 and we are in first place.

I got a craving for donuts so I ordered them. Now I am happy because I haven’t had donuts in more than a year since the pandemic started. I am going to try and take my night meds around 7 but it might be earlier. I am just so damn tired but if I go to bed now, I most certainly will wake up before midnight and be up all night.

Mother’s Day Weekend 2021

by Midnight Demon, posted in blogging

Mother’s day weekend 2021

I’ve been having difficulty sleeping. Friday I woke up around 1 and never went back to sleep. I stayed up the whole day and didn’t go or try to go back to sleep till 2300 or so. I still didn’t sleep soundly because my shoulder kept waking me up in pain. I still am tired but can’t seem to sleep. I just want one hour of uninterrupted sleep.

Sox won last night and I was happy. My buddy Eddie got the win. He is 5-0 this season so far. I am happy for him. He is my favorite player. I need to get his jersey or t-shirt. I will get it sometime this year.

I still have this bloody UTI that hurts so bad. I am peeing like every two hours, regardless of what I drink. Such a pain. I woke up at 345 then again at 545 and couldn’t go back to sleep. I just had coffee. I am not sure if I am going to go to the pharmacy to get a card for my mother. Just the thought of getting her something fills me with disgust. I hate this holiday more than any other, probably more than my birthday.

I really do not like my mother after the treatment she has given me over the years. She still doesn’t accept me for being trans. And I don’t know if I can ever forgive her for the abuse she put me through when I was younger.

The other day I was having gender dysphoria really bad because my weight has gone up now that I am back to eating. It triggered me so I wrote to my pcp about how much it is bothering me that I have to be a certain BMI to have top surgery and his response was to go to a weight clinic. Not helpful. I don’t need to feel more shame than I already do around my weight thank you. I sent the same message to my therapist so I am sure I will be talking about it tomorrow when I see her. So much stuff to talk about.

Other than therapy, I have no other appointments this week. PT was booked so I get the week off. I still need to do my exercises she gave me. I don’t get off from doing that. My shoulder has been bothering me the past few days for some reason. I have been trying to massage it out but it’s difficult to do with one hand. I can’t seem to reach where it is bothering me. I have gone back to taking Zanaflex to try and ease it a bit.

I finally cleaned the dust off my ceiling fan blades. I was growing bunnies but it was weird that only one side had more dust than the other side. My ankle is hurting from standing on my toes for the few minutes it took to dust. Now my nose is full of dust. I need a nap. I don’t know what time I am supposed to go to my sister’s for dinner. She said she was going to make steak. My brother in law is working out in the yard so I don’t think he will be eating soon so maybe this evening. I’m listening to Taylor and am going to relax for a bit.

Back on Twitter!

by Midnight Demon, posted in blogging, gender dysphoria, grief, mental disorders, mood disorders, transgender

Back on Twitter.

I am back on Twitter. I was really getting down because I couldn’t access my account and Twitter support finally reached out to me to clear the error that was causing the text messages not to go through. I took a screen shot of the backup code so that I would have it should I get locked out again. I missed my tweeps so much. I deactivated the acct I was using.

I sent this to my therapist and PCP: “hi,

I am having a hard time with the gender dysphoria around top surgery and the stupid limitation of the BMI. I can be so suicidal at times because I can’t stand to look at my chest and knowing weight is what is keeping me from this goal is killing me. I lost some weight due to covid but gained some back once I started eating again. I’m not good with diet and my appetite is either there or it isn’t due to the depression. I am 192 right now and was 187 last week. This is stressing me out and I am not sure who to talk to about it.”

I hate that a BMI is preventing much needed suicide prevention work. I am in the mood to take a lot of pills right now but I won’t. It is just a feeling that will pass. I hate feeling this way. I don’t know why there is a restriction for surgery. This is so fucking stupid. I feel like it is discrimination against obese people. I just want these things off my chest! They don’t belong there. And it sucks that now they are hairy and will only become more hairy as the T dose has increased. I just want to be flat chested. What is wrong with that? I am a fucking man for crying out loud. I don’t even care if I have nipples or not. Just want the damn things off.

My therapist canceled therapy yesterday due to an immediate personal problem. I guess dealing with my mother on this Mother’s day is all on me. I have decided to get her a son card. I will get it tomorrow when I mail my letter. My cousin sent me a box of her husband’s things. Her husband is my godfather. I haven’t opened it yet because I am so emotional about other things that I just can’t deal with more grief. I miss my godfather so much. He was such a good man.

I am so tired today. I have been up since 0100. I have tried going back to sleep but I keep failing. This UTI is kicking my ass. It still hurts to pee and my urine is cloudy. It probably smells but I can’t smell things right now because of covid. I had Covid PT yesterday and it killed me. Made me so fricken tired. I thought I would sleep through the night but I only slept for a few hours before waking up at 1. The UTI is making me pee every 2 fucking hours. It sucks. I can’t do anything until I finish the antibiotics. I haven’t cathed at all because it hurts.