Tag: chronic illness

Twitching-Good or Bad?

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, depression, mood disorders

Twitching-Good or Bad?

Last night before settling down for bed, my right (good) leg started to twitch. It was having spasms and then my left leg joined in. I just decided to go to sleep rather than to read or write because it was so annoying me and laying down usually settles it down. I woke up about an hour ago because I was hot. After I took off my fuzzy socks and long sleeve t-shirt, my leg started doing its dance again. I am not like it because it is painful twitching, more so now than it was last night. I don’t know why this is happening. I usually never have symptoms in my right leg so something is definitely wrong. I took a nerve pain med, an Ativan, and some pain meds. I hope to be back to sleep soon.

Yesterday afternoon, I was talking with my sisters and we finally settled on where and what time we were going out for my birthday dinner. It will be next Saturday, the weekend before my birthday. I picked Chinese because I want Lo Mein. It’s been at least two years since I’ve had good Lo Mein. The restaurant that I usually order out from just has one good thing, General Gao. And I haven’t been able to find another restaurant in my area that delivers good food. The one good restaurant that did closed down about a year and a half ago.

As I have taken sleeping meds because of pain, I don’t expect to be doing much today. I really wanted to start the next chapter in my book last night but my niece wanted to watch one of her movies. She is so funny. Half way through, she asked me if I wanted a beard. I said yes but I was left with this goatee. I haven’t shaved in a month so it was prominent. Then she snuggled up next to me as we watched the movie. I didn’t tell her I wanted to be a boy and she didn’t make any gender references at all. She is too young to have that kind of conversation.

I guess it is good that I am resting today. Just hope it will give me energy to face this week. I so want the week to be over, like if tomorrow was the end of the week, so be it. I just really don’t want to deal with it. Two doctors appointments, one for me and the other for my father. Yuck. Then I have to go to my father’s for his pills. Three days in a row I will be out and about. So I need my rest now. Hopefully whatever if going on with my right leg will be gone by Tuesday.

I hate being in pain. It just isn’t fun. It takes a lot out of you and you don’t have to do much. I made breakfast and I am completely wiped out. All I had was a bowl of cereal. When I wake up later, I will make my breakfast burrito. But all I did was have cereal and then I washed the bowl and spoon. I am wiped out. It’s ridiculous. I know part of it is because I am hurting, but damn. I never in a million years have felt so wiped out after having a small meal. It just really sucks that I can’t do anything. It’s also very frustrating.

Just got the “Daily Post” from WordPress. I get it sometimes several times a day. Today’s topic is Hate to Love. I might write about it later today. For those bloggers that read my blog, it is good idea starter. A fellow blogger friend recommended it and I have been getting these emails every day. Today was the first time that I could write something that fits my blog.

Hurting Really Bad

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, depression, mood disorders, suicide

Hurting really bad

I went out to have dinner with my friend. I am paying the price because I was standing/walking too long while waiting for him. I was early and I was hot as I got stuck on a warm train so I didn’t go into the restaurant to sit and wait for him. I was at my boiling point and really wanted to take off not only my jacket but also my sweater and be just in a t-shirt. I felt funny going to that level and didn’t go there. But the pain that I am feeling right now, I don’t want to go out the rest of the week. Unfortunately I have to and that is killing me. I don’t have to go out tomorrow so I am having a rest day. I am doing two, possibly three things tomorrow: having therapy, calling my father to remind him of his appointment, and possibly call the dentist if I remember. I need a cleaning as it’s been almost two years. I hate the dentist.

Like I thought, my therapy appointment went by so fast and we talked a lot about everything that went on between last Wednesday and today. She does think I had some kind of withdrawal thing going on, though it isn’t too clear because I also didn’t eat and it could have been hypoglycemia as well. We talked about the SSD review that I am under. If she doesn’t think I should add something more to what I already wrote, then I will mail it Thursday when I am out and about again. I am not looking forward to it. I hope that my father doesn’t need a damn wheelchair because I might just run him over with it. I also need to go to his house after his medical appointment to do his fucking meds. I had a hard time filling my meds this week. I just was too depressed to fill it for the week. So I played hodgepodge. I just took what I felt like taking but I filled it before I left the house to have dinner with my friend.

I had a nice time out. It’s a shame that it ended with my ankle flaring up. Right now the pain is at an 8/9 on a scale of 1-10, 10 being the worst pain. If it goes up a notch or two, I am going to have to take the strong pain pill again. If I do, I can kiss having a BM this week goodbye. I just will be too constipated. Hate this side effect of my pain meds. Having a BM is so painful, sometimes I just want to die because it hurts so bad. Add in being constipated and hard stools and I really want to kill myself.

Thanksgiving 2015

by Midnight Demon, posted in Bipolar Disorder, blogging, cauda equina syndrome, chronic physical pain, depression, mood disorders

Thanksgiving 2015

There are a few things I am grateful for that I would like to share this Thanksgiving. One is having my story published in the New York Times. Having two sisters that accept me for being transgender, even though we don’t talk about it. Having three nieces and a nephew that I love dearly and love me back.

It has been a difficult week. I haven’t felt too grateful for things because the depression has been so bad but today is a better day, least for now it is. I can’t say it will be better this evening when my lows return. I think eating has a little to do with my mood. I ate this early this morning and was still hungry when I woke up a few hours later. This is surprising because I had a good sized piece of steak last night. Usually when I have it, I am not hungry until later in the afternoon.

I texted my family members this morning. I haven’t called my Godmother yet. I probably will after this blog. I am thankful she is still alive. Still 91 and kicking, even though she has a multitude of health problems. I feel bad that I am less than half her age and have my own set of health problems.

I get to see her asshole brother aka my father today. I have to remember to bring the wine he gave me though I was very tempted to break the bottle on the way home yesterday. I could barely walk and he gives me something to carry. It wasn’t that heavy but it was light either. I know he is going to drink half the fucking thing. It’s white wine so I won’t have any. White wine always gives me the worst hangover, even having one glass gives me a bad headache.

My mother is making the turkey and the house smells so yummy. I can’t wait to eat it. I hope that my father doesn’t be an asshole today. My leg is still aching so I will be using my cane again. It’s just a reminder that I am never 100%. I have to take a shower, though I don’t feel like it. My shower is making a funny noise after a few minutes of running water. My brother in law thinks it’s the valve in the turn off valve. I think there’s air in the lines because the water loses pressure when the noise starts. But I have to stick with my every other day schedule of showering and today is a special occasion so I need to bathe. I am not getting dressed up or anything but need to be clean.

I have been invited to my cousin’s 16th birthday party Saturday. I really don’t feel like going as Saturday is usually my me day. I watch my college football games and just do what I feel like doing. I can be a bum and not feel guilty about it. But my cousin from Texas wants to see me so I need to go. I can’t believe my cousin is 16. That would also make 16 years since my uncle passed away. He died on the 22nd and she was born a few days later. I think today is her actual birthday, but I could be wrong. There are so many birthdays on my mother’s side of the family in November alone that it’s hard to keep track.

I really wanted to get a haircut this month but I don’t think it’s going to happen. It might happen after I have my dinner date with my friend. I just want to make sure I have enough cash for that as I am treating him. I don’t think it’s going to cost more than $100 but I want to make sure I have enough just in case. We will be going to our favorite Thai restaurant. I can’t wait because I have been wanting Pad Thai for some time now. They make the best Pad Thai I ever had. I have had it at a couple of places in my area but it doesn’t compare. I am excited about seeing my friend again. We always have a good time. He is an older gentleman that I used to work with when the lab was called chemistry. It’s now called Core Lab because we merged with Hematology. I do miss working there.

I am still addicted to Eric Church’s album “Mr. Misunderstood”. There is not a song that I don’t like on it. It is a really good CD. It is the first album that I bought from him. I have bought a couple of songs in the past but never an entire album. I am glad I got this one as the music moves me.

Seeing as I could not get my Combos snacks in the store, I have ordered them through Amazon. They have shipped and will be coming to my house sometime next week. Add that to the junk that I bought through my grocery list. I bought more carbs than I know what to do with. All breakfast stuff, but still carbs. The rest of my order was yogurt, hamburger patties, tater tots, and cottage cheese. I did get my burrito wraps so I had a breakfast wrap when I woke up. I love making breakfast burritos. It’s so fun. This one I didn’t make tight enough as some cheese fell out. I also bought shredded Monterey cheese for my eggs. I really didn’t know how much stuff I bought until the guy delivered it. It was a lot of stuff to put away. No wonder my leg hated me afterwards.

Pain in the thigh and other things

by Midnight Demon, posted in Bipolar Disorder, blogging, cauda equina syndrome, chronic physical pain, depression, mood disorders, suicide

Pain in the thigh and other things

I still feel low and in the dumps. As expected, my therapist told me all the reasons why I should be living. She even wants me to publish the blog I wrote last night. I don’t know why. I don’t think it’s any good. But then, it has so many hits today that it must be good. People don’t read something bad. I just feel like I am wasting my time living and all I can do is express myself the best I know how.

I did the errand for my father. I was walking with a cane because my leg is not feeling so good. I had twitches last night and it left it sore as hell. I can barely walk. He laughed when he saw me with the cane. That is my father for you. He only cares about himself and that is all. I feel worse after my excursion to his house and back. I don’t know what I was thinking. I just know I really didn’t want to go to his place tomorrow so I did it today. Now I am hurting more and all I want to do is take my pain meds and go to sleep.

Groceries came today. Putting them away was the start of my agony. I was walking all over the house putting the groceries here and there where they belonged. The fridge was full so I had limited space to put my refrigerated items. I got “permission” to eat my pumpkin pie as my sister is making one. I think that will be my dinner. I was going to make my steak but I don’t feel like cooking. I haven’t eaten too much today. I had a yogurt, some cottage cheese, and a pop tart. Now I feel like puking. I don’t even think I am going to go over my sister’s for Thanksgiving tomorrow. I really don’t want to be around anyone. I am just feeling so miserable.

This thigh pain that I am feeling really scared me. It reminded me about the time nine years ago I had my surgery. It took months to get it back to functioning. My therapist called it PTSD as I had an anxiety attack about an hour and a half before our session. The pain was so bad that it just caused anxiety for me. I told her about my feelings last night where I wanted to drink alcohol after I took my night meds. I thought better of it as whiskey and baclofen probably would not be a good idea. I hadn’t taken any pain meds because I wasn’t in any pain. I just had this twitching going on. I emailed my psychiatrist but I haven’t heard back from her. I also emailed her my story. I did take some Ativan too to stop the damn twitching after it went on for about two and half hours. I am so sick of worrying whether I am going to get cauda equina syndrome again or not. Every time I have some weird pain in my leg, I freak out and panic. I have been on edge all day. But the pain isn’t radiating and it’s not affecting my bowels or bladder. I have to go through a checklist every single time I get pain in my leg or back. If I don’t have this then I don’t have that. It’s awful. That is why I can never recover from PTSD. I am always triggered.

My heaviness in my heart is still there. The fact that I have found a song that equates my feelings perfectly helps. Jennifer Nettles just came out with a new song called “unlove you”. It’s another good sad song. But it doesn’t touch me as much as “Mixed Drinks about Feelings”. My therapist today was quiet most of the time. She really wanted to listen to me today though she wanted to go off on me. I don’t think she can tolerate my sadness. It brings her to want to do something to help me but there is nothing that she can do. Listening to her when she did speak did help me. It gave me some hope that there might be a tomorrow. I can’t tolerate today. It’s too painful.

A childhood friend of mine posted a meme about transgender. It was something like we shouldn’t make processed foods so why should we have processed people, meaning transgenders. It was that most offensive thing I have ever seen. I stopped following him. He has been irritating me for a while now and now I have to unfollow him because of his ignorance. This is part of the reason why I don’t seek treatment. I am too afraid of the discrimination I will face.