Tag: chronic pain

baseball and other things

by Midnight Demon, posted in bipolar, cauda equina syndrome, chronic physical pain, depression, mood disorders

Baseball and other things

Two pitchers that are on opposing teams have made the post season. Jake Peavy (SF Giants) and John Lackey (St. Louis Cards) used to be pitchers for the Red Sox organization and then were traded so the team could be worse. I am happy that one of them will make it to the World Series again this year. I am just having trouble rooting for one of the teams. I like both pitchers, though I am partial to Lackey because of all that he overcame with his Tommy John surgery. I am undecided for now and will wish them well until they reach the final playoffs. Then I will root for the NL team because I don’t think the Royals have what it takes to be WS champs. I could be wrong but I know with rest, team doesn’t do well when they get back into the game. I have seen it time and time again.

My ankle is absolutely being a brat today. I woke up around 6 with it hurting and it hasn’t stopped since. I don’t know what I am going to do anymore, or not do. I wanted to get some cream for coffee today but it was pouring cats and dogs out so I stayed in. It’s been a miserable, muggy day. And today I hate CES more than usual because I had a BM that caused me to have nerve pain in my bottom for the last few hours. That is driving me crazy but it seems to be dwindling now that I have taken my pain meds. I was going to take some gabapentin for it and I might tonight to help me sleep better. I am trying not to drink. I forgot to take my heartburn medicine last night and now I have heartburn up the wazzoo. I know if I drink gin, it will flare up worse than it is now.

In other news, I heard that one of my favorite pitchers wife was hacked. She had nude pics on her phone and hackers hacked the phone. Why in the world would you take nude pics of yourself?? I don’t understand it. Stop being a dumbass and things like that won’t happen!

I feel really rotten. My ankle is still being a bitch. Pain meds have lowered the pain but not by much. I am going to have a nervous breakdown if I don’t get pain relief soon. I am already on the verge of crying. It won’t take much to let myself go, especially after what happened this week. I just hope that when I buy the diapers next week, I don’t get funny glances. I would purchase them in Amazon but I would pay too much for shipping and they are more expensive. Plus they don’t have the size I want. Sucks man.

I still have to write something for this book that I am co-authoring. The ideas have been percolating in my brain but no clear thoughts have run through it. I was going to do it today but I can’t seem to write when I take pain medication. I either get hungry or I need to sleep. I will try to do it tomorrow, if I don’t get interrupted by anyone. I am expecting just one phone call tomorrow from my father’s surgeon’s secretary. He finally agreed to have surgery. I am thankful for that. Now he won’t be such a grump and be hopefully more comfortable.

I had therapy today and like all days toward the end of the week, she is quiet. She was animated yesterday but today she was quiet. I really didn’t want to talk to her. By half way through session, I was thinking about hanging up on her. But I knew she would call back and I would hate that. I don’t remember much of what we talked about, only that we talked about my blog and the last blog I sent her about being mad at her. I think we are going to be seeing less of each other next week as next week I got a few days where I am taking my father for doctors appointments. I just hope that I can squeeze her in on Thursday. Otherwise, we are not talking that week. And that will suck.

Saturday blog 11

by Midnight Demon, posted in depression, mood disorders

Saturday blog 11

I spent the morning with my father in the hospital. It got bored very quickly so I took my niece with me to the lab, where I used to work. It was very strange being there and not working as I always worked on Saturday. I wanted to go into the sendout room and log on to one of the computers but I no longer have computer access to the network. I miss working there so much it pained me being there. I said hi to those I knew and introduced my niece. It has been a long time since she was there. There are a lot of new people in the lab now so I don’t know everyone. Lot of turnover. I kept getting asked when I was coming back. I wish I could come back but even while I was standing there, my ankle was flaring up.

It’s still bothering that I was let go because of my medical issues. But I am a little happier that I am no longer at the “slave” lab. They didn’t care if both your arms were cut off, they just expected you to show up and work. That part I don’t miss.

My ankle is hurting me big time today. I really didn’t do too much other than walk around the hospital. I guess I went passed my limit. I know there is no way I can work an 8 hour shift there anymore. Not until I know that my ankle is better. I should have worn my brace today but I didn’t feel like it. Plus we were close for comfort in the car so it would have been really uncomfortable to wear.

Because I was so wiped out yesterday, I didn’t see my psychiatrist. I don’t know when I am going to see her next as her schedule is jam packed the next few weeks. I have been emailing her but she hasn’t given me a date or a time. I hate when she doesn’t respond to my emails. It drives me nuts. I didn’t have side effects from the pink pill last night. I think it was because I was too tired. I wish I could stop taking it but it is too risky. I can’t risk being off it or I might become psychotic. But I am going to play with it for a few nights to minimize the side effects. I hate feeling like I am not in control of my own body. And the side effects I felt the other night were horrible. I felt like I was having symptoms of MS or something. I was so spastic. But it was only in my forearms, not anywhere else. Usually, when these side effects happens, it usually affects my limbs. It will either be my lower legs or my forearms. So odd, but that is me. To prevent them from happening tonight, I took an Ativan earlier than usual.

While I was in the lab, I showed off my book. A couple people were interested in it but they didn’t buy my book. They just thought because they were my “friend”, they should get it for free. Too bad. They are working and can afford it. I am struggling with disability and my own finances. It really burned me, especially when they were like, oh this should be “ten dollars”. Whatever. You don’t have to buy it. I am not forcing you to buy, but don’t be telling me how to set my prices.

I really want to have some gin tonight. But I took so much pain medication that I don’t think it will be a wise choice. I just feel like drinking, not that I have to, but I just like the taste of gin. Granted last night was a battle but I slept good, even though I woke up a couple times during the night and finally ended up waking up at 0630 this morning. I have not taken a nap so I am hoping to sleep good tonight. I might have some gin a little later when the meds have a chance to wear off. I don’t drink often, just when I am hurting, emotionally, and I can’t express it.

I really want to take a shower, but my mother is cleaning the bathroom so a shower is out, unless I use my sister’s. But I can wait until my mother is done. What is one more day, really? It’s not like I am in a hurry to be clean. My leg will probably kill me afterwards so I am saving some spoons by not taking one. I really also want a nap. I don’t think that is going to happen, or maybe it will. I know that if I get some gin in me, it will be more than a certainty.

I have been trying to think of things to write about for my next book. But my thoughts have been clouded. It’s been a crazy week with dealing with my father and all. I am surprised my therapist called me on Thursday, and she texted me! I think she read part of my blog. I deleted most of the messages that I sent her. I am still so tired of our relationship. I just am not getting anything out of it. And she doesn’t see things the way I do and we just keep going round and round. I just don’t know what to do anymore.

Nobody Knows…

by Midnight Demon, posted in cauda equina syndrome, depression, mood disorders

Nobody knows…

Today was a horrific day. I spent the morning at the hospital with my dad, having his testing done. Apparently they found something and it had to get checked out. Like today. Not tomorrow or next week. Today! I was so pissed. But luckily, I was able to squeeze in my therapy appointment, though we again just talked about how my father takes up so much of my time and that it is not appreciated, at all. And I still got to finagle getting medical records from one hospital to another. I don’t know how I am going to do this, as I know my father needs to sign his release form. I can’t do it. It’s not my records. Which means I got to drag him to get the forms released. And I have a week to do this. Talk about pressure. But I think I can talk my sister into it. He has another lovely appointment on Tuesday and I don’t have to be apart of it. I just get to hear about it.

I had about a half hour before I had to go to South Station to meet up with my friends for dinner. It was a race to the bathroom soon as I got off the bus. Both bowels and bladder decided they were going to race me to the bathroom. I lost, they won, though I didn’t realize it. I thought I had just peed myself but the second race on the way home proved that I was wrong. I changed my underwear, washed up, and now I am typing this blog because no one will fucking care that I crapped and peed my pants. The only ones that will understand are those that suffer from CES, or some other neurological condition that affects the bowels and bladder. I think MS might affect both, but I am not sure.

Nobody understands what I go through on a daily basis. No one stops and thinks that I am disabled. No one enters their mind that I might be in too much pain today to do something. Nope, they just want ALL of me there, right now, right away. Even my therapist doesn’t get it. She could have cancelled the appointment today but instead she kept it. It would have been a weight off my mind so that I didn’t have finagle the bagel to find a spot to talk to my therapist, and then keep my voice low so that people are not hearing what I am saying. I don’t know what I wanted to talk about with my therapist but I know I didn’t want to talk about my father and how he is making me lose spoons I don’t have.

I should have canceled my dinner plans but I am stubborn and I wanted to see my friends’ kids. I haven’t seen them since January. Now I am hurting and frankly, I don’t care. I am not doing a damn thing tomorrow except to eat my fettucine alfredo with butternut squash and chicken. I also have bruchetta and garlic breadsticks. I will have a good lunch tomorrow. And besides, if I didn’t go out, I would have missed the free pasta and tomato sauce they were giving out when you exited the train station. My mother is going to like that, the pasta anyway. A free box of 32 oz. will last us a good while.

But nobody knows that I lost all my spoons today and more that I cannot reclaim. I am in the negative and even though tomorrow I might be eating a good meal, I won’t be able to do much else. Which further adds to my depression. Nobody will know that I messed my pants. Nobody will know that on the way home, I almost couldn’t make the last block. My leg just had enough. But like everything else in my life, everything gets dumped on me when I can barely lift it. I am just so tired of it all. I am tired of crapping and peeing my pants. I am sick that I have to wear diapers if I want to go out of the house for more than 4 hours. And I don’t know where I am going to the money for diapers. It’s not in my budget. I still have two medications I need and I don’t know where I am going to get the money for them.

Nobody cares that my blog can be crap at times, that my writing is just isn’t good enough (by my standards). I am just sick of all the running around and not being appreciated for it. I am sick of being in horrible pain and not having a rest day in between. I am sick of being in pain, period! And nobody cares.

Totally out of spoons

by Midnight Demon, posted in cauda equina syndrome, chronic physical pain, depression, mood disorders, suicide

Totally out of spoons

I am so spent. I did too much today and now I am paying for it. I just had my meal, a bowl of cereal. Now I can hopefully relax as I am hurting.

I had to do some stuff for my father, surprised? Tomorrow I get to do the same things I did today, minus going to his house. He must have called me like 6 times today. He is in pain and the medication doesn’t seem to be working. I told him he can take two medication but he refused. Let him be in pain then. I am tired of dealing with him today. Tomorrow he will be seen by his doctor and hopefully they can give him stronger pain medication. I don’t care about that right now.

I have to conserve my energy (spoons). I have a long day tomorrow as I have to deal with my father and then I will be going out to dinner with some friends in the evening. At noon, I am supposed to have therapy but I am not sure I will be home for that. I haven’t quite decided what I am going to do after my father’s appointment. I know I probably will go home so I can rest, but it all depends on what time the appointment ends. I hope that we aren’t there all morning. That will just suck.

I was not in a private space to really talk to my therapist today. She kept going on about how many spoons I have lost even before I went to see my father today. I had a productive morning, all with no coffee on board. I was hoping to have a cup when I got to Starbucks. But for whatever reason, the coffee sucked today, even the blonde roast didn’t taste right. I wasted my money today for the first time. I am so disappointed. I hope tomorrow is better, I am going to need the coffee to get me through the day.

My therapist was funny today. She called me a geek and I think complimented me on being very “Bostonian”. LOL I guess I said “wicked” too much today and it just got to her. I was glad for the light conversation, as like I said, I wasn’t in a private space so talking about my suicidality or self harm urges were out. I actually haven’t had any urges to cut since Sunday. We however briefly, talked about it today. I some how developed a pimple on one of my scars and it was triggering me to cut. It was very itchy and course, when I popped it, made it really angry. I really thought about cutting for the first time in months. I kept thinking about how to make the scar “better”. I know this doesn’t make sense, but it really was how I was thinking that day. I almost had to call her Sunday to talk me out of it or to contract for safety.

I am looking forward to going out to dinner with my friends tomorrow. I am going to go even if it will kill me. I will just bring my cane and I should be fine. We are going to go to one of my favorite restaurants so I really don’t want to miss it. Plus, I haven’t seen my friends all year because of my stinking pain. I don’t see them often. The last two times we were supposed to meet, I couldn’t go because I was on bed rest. I really am looking forward to seeing them, we have a lot of laughs. So even though it will hurt me, I am going to see them anyways. I will take my pain medication with me just so that I can mingle. Luckily, there won’t be too much walking involved once we get there. My friends live south of Boston, almost near the Rhode Island border. I have to take the commuter rail to get there. I am going with my friend, who cordially invited me and will be treating us to dinner. He does this at least a few times a year, usually when it is my friends’ birthday. He is nice like that.

I think I am going to have to take a strong medication to kill this pain that I am in. I have been at an 8 on a scale of 1-10 for the past hour or so and obviously, my regular pain meds aren’t touching it. I didn’t think they would. I just did too much today. I was on my feet for more than 20 minutes, I walked long distances, and generally ran out of spoons by the time I even got to my father’s house. And there was one errand that I forgot to do, and that was mailing my therapist’s letters. Totally forgot to grab the envelope before leaving and didn’t remember until I got to Starbucks. I’ll have to remember tomorrow to do it because the rest of the week I will not be leaving the house. I need to recharge my spoon counts.