Tag: complex regional pain syndrome

Saturday Blog 28082021

by Midnight Demon, posted in baseball, blogging

Saturday Blog 28082021

Last night I bought some soup that was Panera and it had ginger in it. I reacted so I took some Benadryl. I was out by 8pm. I have been listening to the Sox all afternoon. Game is in the 10th inning now as they have been knotted at 2 since the second or third inning. They have had chance but no good hits until now!! JD hits a 3 run homerun 5-2 lead. OMG fucking awesome. Sox win 5-3 in the 10th. OMG the bottom of the tenth had me going…

I still have this stupid infection and I can’t help but think I have accidently infected my bladder because of the gook that is on my skin from the discharge. I am going to have start using the cleansing wipes to really clean myself before inserting the catheter. The problem is the urge to pee doesn’t always allow me time to do this so I have been voiding more, which is good I guess. I have been peeing frequently and I can’t do anything until Monday. These weekend infections so suck. I stuck taking pyridium to try and control the urges to pee. It is still painful to void as I am straining.

I didn’t do anything today. I was told to limit my activity because of the abdomen pain which I still have. If it gets worse I am to go to the ED. It has been the same for most of the day so I have just sat and listened to the game. I finished one of the antibiotics yesterday. I am still taking the gross one. I still have to take it till Thursday I think.

My brother in law’s sister passed away yesterday. It has been a rough time. I also found out a dear friend passed away yesterday as well. I am not sure when he died but news of it made me sad all day and then when I got my sister in law’s news, I was more distraught. There won’t be services for her. She will just be cremated.

It was finally cool today, windy as hell but cool. I finally turned my AC off for the first time all week. I wish the temps could stay like this. Yesterday was brutal. I got my haircut and did some shopping at the grocery store. I didn’t get anything heavy. I am still under restrictions for the next 7 weeks.

another day of recovering from surgery

by Midnight Demon, posted in blogging, CRPS, depression

Another day recovering from surgery

I wanted to go to Starbucks today but after I had my coffee and started coloring, I felt weak and tired. It is over 90 degrees so I decided to treat myself to Starbucks rather than go out to get it. Only when it was delivered I realized I forgot to order a pumpkin scone. They already have their fall items out. The scone is my favorite along with their pumpkin bread. I am hoping tomorrow is cooler so I can go out, even if it is a walk around the block. I just realized I forgot to mail my ballot so will need to go to the post office tomorrow.

I have a wedding to go to next Saturday so I booked an appointment with my barber for next Friday. Mid-morning appointments tend to go fast so I am glad I booked in advance. I ordered a new shirt, belt, and tie for the wedding. I have a pair of dress pants that I will just throw in the wash. I just don’t know what I will do about my catheters. I don’t have a small bag that is stylish enough for a wedding. I hope by next week I am back to wearing boxers and not pads. I am still having discharge but it is getting less with each passing day.

I had to look up some appointments as they are not in my calendar. I came across the notes from my surgeon for Monday. In the notes was the path report for my reproductive system. Apparently I had endometriosis. I wonder if that was why I was having cramps nearly every month since being on testosterone. I feel better that it could be that rather than my bladder. I am still having cramps and pain but it is much more mild than it was yesterday. The real pain that I have is my thigh. I don’t know why I am having so much pain there. I haven’t done anything that would cause it. I might take some gabapentin if it continues as I am sure it is nerve pain. I wish there was a stretch I could do to stretch it out some but with my lower leg being not as mobile as my right it is difficult to do it.

I see my psychiatrist next week. Feels like ages since I last saw him. I have been in contact with him with the patient message system. He has been responsive. He is a good guy. My psych thinks highly of him. She hasn’t been my psych for almost three years now but I have known her for thirty years so I still call her my psych. I don’t think that will ever change. I still keep in touch with her, more than I write to my psychiatrist. I have never met him in person because of Covid so I don’t really know what he is like. I think telehealth is something that is going to happen for some time and I don’t think is going to change in the near future.

Sox had an ugly loss last night. Pitching fell apart as usual. At this rate playoffs seem hopeless. There is a month of playing left and if the pitching doesn’t improve it doesn’t look like they will be playing in Oct.

nervous and just waiting

by Midnight Demon, posted in blogging, chronic physical pain, CRPS, depression, mood disorders

Nervous and just waiting

I got everything sorted out as much as I can. I think I will get up at 6 tomorrow so I can shower and take my meds. T shot has been given. It was a little bloody but it got done. I hate when I hit a vein. I am so nervous about tomorrow. I treated myself to a chicken, ziti, and broccoli dish and was only able to eat half of it. I haven’t eaten anything else. Nerves are too much. I might have an Ensure with my night meds as last night I took it on an empty stomach and felt sick. I am supposed to have at least 350 cals with the Latuda. Usually I have a big meal around 4-5 but I wasn’t hungry yesterday. I can’t eat anything after 10pm and then can only drink clear liquids until 830a tomorrow.

I had my last PT session today. She gave me some tips for after surgery. I really am going to miss her. She encouraged me to get PT after surgery once I am able to. She left it up to me as my doc said I didn’t need it. I can always get the order from my PCP. I picked up a thank you card when I was at the pharmacy to pick up my psych meds. It was the last of the meds I needed for the month. Everything else is all set.

I keep doing little things as I think of them. Like making sure I have a bag of Gatorade by the bed. It might be hard to bend down so I am going to put some on a shelf by the bed so I just have to reach for them. I haven’t moved the basket out of the way yet. I will in a little while. I am so fucking nervous and I am trying to calm down. Sox had a double header and lost the first game. Our bullpen sucks now and I don’t know why that is. It has been months since the sticky stuff ban so they shouldn’t still be bad but they are. Also doesn’t help that when bases are loaded and no one is out, no one can get a fucking hit. They will ground into a double play or have a pop out or strike out. Kills me hearing it. I don’t watch the games because sitting up hurts my leg.

I shaved after I showered and I think I missed a spot on the back of my head. I will have to go over it the next time I go to the bathroom. I like that I have been keeping up with the shaving. I don’t know if I will after surgery. Depends on how much pain I am in standing up. I am worried about post op pain. I have enough meds so I know I will be comfortable or at least I should be comfortable. I have a friend that went through this not too long ago and she helped talk me through aftercare. I am hoping to be numb for a while.

anxious about upcoming surgery

by Midnight Demon, posted in blogging, chronic physical pain, CRPS, depression, mood disorders

Anxious about upcoming surgery

My anxiety is helping me get things done that I need to. I took out my trash and recycles today. My new sponges came early today so I took a shower with it. The special soap got really lathery with the sponge so I think I am going to use that from now on. It was tough getting in the shower because I didn’t feel like taking one. I knew this was going to be an issue. I didn’t wash my hair as I washed it yesterday. Tomorrow I will shower when I get home from PT. I will probably be sweaty. Today was cooler but there was humidity in the air. I had to have the AC going to keep the air dry in my room.

Therapy went ok. I don’t know if I will see her next week. It depends on how I feel. I honestly don’t think I will be able to keep an appointment. Maybe the end of the week I will but not our usual Mon time. I am to text her the end of this week to let her know how I am doing. One text though. I probably will text her Thursday when I am up to it. Most of the anesthesia should be out of my system by then. We worked on a pain schedule where I would have an alarm go off every 4 hours to remind me to take my meds. She was insistent on this. I created a timer on my phone for meds and I will create one on my med alarm app as well. Sometimes I can sleep through the timer sound. It would be good for me to be up then I can empty my bladder.

I plan on giving my T shot tomorrow so I don’t have to worry about it for Wed. I have to take it a day early because I am not sure I will be in good space to take it on Wed. They want me to hold taking it till after surgery that day but I don’t want to be a day late in taking it.

Sox are off tonight and have a double header tomorrow. I don’t know when game 1 is. I will have to check the website. I should be home for it. It will keep me calm somewhat. It will definitely be a nice distraction. I am sure my anxiety is going to be worse tomorrow. I just home I am home by at least 7pm Wed so my friend doesn’t have to wait all day to pick me up.