Tag: disability

my thoughts for the day

by Midnight Demon, posted in Chronic pain, depression, mental disorders, psychache, suicide, suicide attempt, transgender

Today was a snow day. I didn’t go out because it was plain yucky out with freezing sleet and rain at times. I have to go out tomorrow so that will be better. I plan on taking a shower tonight so I don’t have to take one in the morning. Sometimes a shower can exhaust me so it is kind of good that I take it at night.

I started writing another paper on suicide. I don’t know where it is going but I decided to define some terms that I think will be valuable and then take it from there. I have to remember to put in copyright at the end of the paper so no one steals my work. I know it could be “stolen” anyways or parts of it very easily with copy and paste, but at least with the copyright it might prevent that from happening.

I made some progress with one of my characters with my game that I play. I am glad I did cause I didn’t think I could as I don’t play it very often. I have three Facebook accounts for this game so I can get the stuff I need to play. Between the four accounts, I use it to advance in the game as best I can. Course I have other player that help out too, but not so much for my other accounts.

Because today was a snow day, I didn’t have therapy this afternoon. I am glad because I was already in a bad mood this morning. I really wanted to go out today but I couldn’t because of the snow. Hopefully tomorrow I will be able to get to McD’s and get a cheeseburger. I have been thinking of it every time it comes on the radio. I know they are bad for you and everything but they just taste so good.

I tried working on my book today but that didn’t happen. I need a break from it for a little while. It is stirring up too much stuff.

I don’t really want to go to group tomorrow. I just feel like I opened up tomorrow and I need more time to process what I said. I just feel really terrible that I talked about transgender and didn’t get a trip to the hospital. It was really weird. I thought I would go in the hospital because people don’t talk about it. My therapist was telling me that Kelly Curic had done a segment on kids that were transgender. That is all well and good but I didn’t have that growing up. I couldn’t express my feelings because it meant I would get smacked in the mouth. Nor did I have the words for what I was going through. I just knew that I was a guy at a young age but I was forced to conform to being the sex I was born with. I had to act like a girl. I couldn’t play sports I wanted to. I couldn’t wear the clothes I wanted to. I couldn’t even wear a baseball hat. My father threatened to cut them all up if he saw me wearing one. So I couldn’t be who I really am without having physical violence with my parents. It killed me whenever he threatened to destroy my property. I just wanted to die all the more. I figured what would be the point in living if I couldn’t be who I was. I envy the kids today that are getting the support and transitioning that they are doing. I wish I had that growing up.

depression and mobility

by Midnight Demon, posted in depression, mood disorders, physical pain, psychache, suicide

This morning started out ok until my grumpy sister started yelling at everything. I ducked out of there before things started flying. Hehehe

I know I should be writing in my “book” but I think I will take a break today. I spent almost four hours on it yesterday and it is now up to eighteen pages. I figure I will add to it a little bit every day but it stirs up emotions and I think that is why I am frustrated right now. It is difficult writing about your struggles with suicide without feeling it when you are still struggling with it. Last night I was in bad shape. I started thinking that I would be better off dead and just wanted to die. I just don’t think I have a purpose and feel like I am just a burden on my family because I am no longer working. I am collecting a social security check and it bothers me that this how my life is right now. I can barely deal with any stress anymore without getting psychotic. I can barely walk around the block without pain. The depression is so crippling me that some days I don’t leave the house. It’s very isolating. I try to go out and even just riding the buses takes so much energy.

Today I just realized I have not left the house since Thursday. I might go out today and go to the store just to take a walk. Maybe I will just buy something that will make me feel better. A little retail therapy never hurt anyone before. Or maybe I will take the bus to Clarendon Hill and head towards Arlington. I have not ridden the buses in a long time. As long as I have my music, I should be ok.

As I’m writing this, I am listening to Linkin Park. I love this group. It always is the right music to listen to when I am in an irritable, frustrated mood. That is the type of mood I am in right now. I am also worried about my foot. I had put a sock on my foot last night because it got wicked cold and this morning the sock was still on, which is unusual as I don’t usually keep the socks on while sleeping. My foot is still some what cold as I can feel it through the sock but the sock is also irritating me. I know that if I take it off I risk angering my foot and it retaliating by causing me pain. Nerve damage sucks. I really hate this type of pain than any other because there is nothing I can do about it. The other night I had zingers, electric type of shock pains in my big toe. It was so annoying. I couldn’t sleep because as soon as I started to relax, the zingers would start, jolting my foot and waking me up. Why do I have this nerve damage? Because of something called Cauda Equina Syndrome (CES). A disc crushed my nerves in my back and left me with nerve damage in my left leg, foot, ankle, and bowels/bladder. But the damage is better than it once was. It take a long time to recover. I have had my last surgery almost seven years ago. This was the second time that I got CES. The first time was the real damage with the drop foot that I still have and also foot weakness. Because of this weakness, I get fatigued in my foot very easily and this causes me to walk improperly. Walking improperly results in the pain that I have been experiencing. And it is different every time it flairs up. I can have a barbed wire type of feeling, a pounding in my foot like someone is using a hammer to crush my toes, to feeling like my toes are in a vise.

This pain also contributes to the depression and not wanting to walk because it brings me pain. But I try to do what I can to get out of the house without too much difficulty. I try not to stand too long while waiting for the bus. I also always try and get a seat whenever possible rather than standing because the pressure and worry of the bus stopping short is always there. When I take the train, I do the same thing.

I didn’t go out again today. I decided to cook and watch the baseball game. I made a spicy tomato sauce, which I didn’t intend to make. While I was pouring a little bit of crushed red pepper, the top came off and I dumped half the container in the pot. I now have a spicy sauce. If I had some beans I could make a chili out of it.

And the closing pitcher for the Sox decides to blow the no hitter. FUCK! I so wanted this no hitter, even though it is still Spring training. Today was media day and the last media speaker SUCKS. Remdawg and Don are not even reporting the game, just letting this soft-spoken speaker speak while the game is playing. I am falling asleep.

ramblings 33

by Midnight Demon, posted in depression, mood disorders, suicide, transgender

Been thinking back on the past to write my book. I don’t know if it is a good thing or bad thing that I can’t remember the last few years at all. I remember some stuff but I don’t remember what classes I was taking at the time all this stuff was happening. What was going on at work. How I truly felt about things. My therapist has my journals at that time frame I am writing about now but there is no way I can go out and get them. I suppose I could go out Tuesday if I wake up early enough. It would be good to take the long drive. I miss being on the road but I just can’t afford a vehicle right now.

Today has been productive as I wrote a few pages about my past. It was difficult because as I said I don’t remember what I was feeling and I was trying to capture it again. I tried my best to write what I do remember and how quirky my therapist was.

I’m bored because the baseball game is not on until tonight. I was hoping for a 1 pm game. Just something to pass the time but all I can do is play my games. I could try cleaning my room but it is too overwhelming for me. Yesterday I slept all day. I had coffee today so I am pretty wired. I guess I could rearrange my bookcase and see where that gets me. I want to go out but it’s cold out. And I just don’t feel like getting dressed. Plus my stomach isn’t feeling too good so to avoid an accident, I think I will stay home.

I want to try and avoid a nap. That was my downfall yesterday. I should have gotten up and had coffee. Maybe then I wouldn’t have felt so tired. I really did need the rest though because of Wed and Thursday being days I really had to go into town. I had appointments both those days. My eye exam Thursday took forever. I swear I had the slowest intern in the world. I have to have visual therapy but I don’t think I can afford it. My insurance doesn’t cover it. It barely covered my eye exam. I had a $40 co-pay so that meant this place was out of network. Sucks. I can’t say that I liked the doctor or not. I barely saw him for more than a few minutes. If I can manage a few sessions with him for the visual therapy I think that I can manage that. But we will see…

Wednesday I had group therapy. It went well, I guess. I still felt really suicidal afterwards which I still have no idea why I do. But I managed to handle it without calling my therapist. I don’t know if it is because of the transgender that I feel suicidal or the fact that I am still being referred to as a female that is bothering me but I talked a little about where I am at with the transgender. I had little feedback but I was respected. I had a member tell me about breast binding and did a Google search. Those things are not cheap!! I don’t know if I can afford things anymore as my benefits are getting slashed. I don’t know what I am going to do. Even going to group next week is going to be tough because I am running out of cash for co-pays. I can probably get the money from my sister as I paid for dinner last night.

Now that the group knows I am transgender, I wonder if I can move forward and get the services for me, like getting the hormones but I have heard other transgendered folk having trouble because of their psychiatric illness. I hope that they don’t take my psych history into account but seeing as I am suicidal nearly every day, I don’t know how they can deny me. 85% of the reason why I am suicidal is because I am not a male.

I know I should probably take a shower but I don’t feel like it. I just don’t really feel like doing anything. I just want to be on the computer and maybe go out later for my walk around the block but that is questionable as it is supposed to snow. And it is bitter cold out. I hate walking in cold weather because it gives me bad back spasms.

tired

by Midnight Demon, posted in Chronic pain, writing

Tired

I took about three naps today. I just couldn’t get my motor running. I just wanted to stay in bed all day and that is basically what I did. I needed the rest from the past two days of running around.

I have been off my diet for the past few days. I really have been bad. But I don’t care anymore. I can’t see starving myself as a solution and I can’t see how cutting back on the food I love is helping because they are the only food that I eat.

I have not written in my book all week. I have stopped at where my therapist cries and I am not sure how to continue from there. I am still thinking about it. I was hoping to work on it today but I have been so exhausted. I picked up my niece and needed another nap. I didn’t have coffee today so maybe that is it. I hope that I can work on my book tomorrow or I will just get behind.