anxiety and buses don’t mix

I had therapy today. Seems there isn’t a day when I don’t have therapy. I asked my therapist if she thought I should be in the hospital but seeing as I haven’t had a split episode in the last few days, there might not be a need. I don’t know what else we talked about. Seem to cover the whole weekend and what my pdoc said about the splits. I hope that I don’t become Mr. Hyde again. Those bouts are really painful emotionally to go through. I still have the letter to Jobes. I am debating sending it to him but deleting the part where I tell him I am ending my life. Right now I am not feeling it. I hate when I feel it and then I don’t. These suicidal feeling really don’t last too long but I still am wondering if I am letting myself down by continuing to live. I had a pain flare up after I changed my bedding and after I took a shower today. I just feel like my life would be better off if I were dead. But I have my writing and people in my life that need me. Not to mention my readers on my blog.

I just passed the 10,000 mark for viewership. Ten thousand people read my blog. I feel so honored. When I woke up this morning I got the last 7 views to make 10k. Turns out there was someone in Turkey that read my blog and I thank that person.

I am still feeling down. I have a new project that I am working on. I am going to write another paper about CES, Cauda Equina Syndrome. I have the idea for it where it answers people’s questions about recovery and such. I wish my CES 101 paper got some hits when they view it and I am not sure why it doesn’t get a hit. But then I read it and found that it has no intro so I will work on that later today.

I had an anxiety attack today while on the bus. I took the 15:13 bus, which I have avoided to take because of a certain mentally disabled passenger that annoys me. Today was wicked muggy and I didn’t feel like waiting for the next bus at 15:42 so caught the earlier bus. I wish I didn’t. When we got to Magoun Square, a bus load of kids got on. I don’t know which one of us flipped out first, the mentally challenged guy or me. Well not really flipped, but panicked. Then a lady with a two year old in a stroller got on and blocked the entrance way. That is when I had to get off the bus. I was having such anxiety it wasn’t funny. I haven’t had anxiety like that in such a long time. I had to stand near the rear exit and prayed the bus driver didn’t miss my stop like he has in the past. I will never take that time bus again. I just can’t stand the anxiety this guy makes me feel. I have seen him flip out and with my PTSD, I just get really nervous. I have been in situations while inpatient where you can see guys like him flip out because you invade their personal space or just walk by him and accidently touch him. It was one of those situations. And today he looked like he was out of sorts already. It just makes me really uncomfortable. I still am shaking just writing about it.

Splits

Splits

Lately I have been feeling like I have been losing what is left of my mind. I have been having some strange symptoms, like when the sun goes down, I turn into a villain. Every thing that is me changes to this wicked gloomy, suicidal, depressive self. Since I have been more aware of it, it has been happening less. I have been trying to get on a sleep schedule but my Sox team is on the west coast so have late games. And depending on how they do, I can get really excited and agitated very easily (as my tweets will prove). I just don’t understand why I get this way. I am not under real stress. My pdoc suggested it is because I am lonely? I find that unlikely as I don’t feel lonely. And the fact that it’s usually in the wee hours of the morning I am writing death letters and such more so than during the day time hours. Night time hours, I become a lunatic. To off set this, my pdoc wants me to take a standing dose of Ativan. I feel like she doesn’t grasp the situation at all. I did ask her if I should take some trilafon, a medication I am more familiar with, but she doesn’t want the side effects of that med with the other meds I am taking. So I will try it tonight and see if this offsets what I have been feeling the last few nights.

I didn’t change my bedding like I wanted to. I just got really tired when I came home and was really hungry as I hadn’t eaten anything all day. I will tomorrow as I really have nothing to do except go out for my coffee. I will change my bedding so it can be washed before I leave the house. I wish someone would put the sheets back on the bed for me. Taking them off I don’t mind. That is easy. But wrestling with the sheets to put them back on, wears me out to no end! I figure I will change the sheets in the morning when I get up, take a shower, wash the sheets and comforter, and then go out for coffee. I will then have my jave to juice me up and give me the energy I need to wrestle the bed. I used to love changing my sheets when I was a kid. It would take me a long time to do it because I would play with the mattress first. I would make a fortress and then jump all over the place pretending I was defending my home or something. It went on like this until I made an awful jump down on my bed and misjudged how much room I had with the windowsill. CRASH. I nearly gave myself a concussion. Gave myself a good bump on the head. No more playing after that.

I had a bladder accident today. I should know by now that a venti coffee fills my bladder up completely and that I should go to the bathroom afterwards. Because I am not aware that I am full, thanks to Cauda Equina Syndrome, I dribble some urine out due to overflow. The worse part is that I don’t even feel it or that my pants are wet. Very embarrassing. I came home to a nice mess. I texted my therapist, why should I live??

Well as this is my second blog of the day, I will stop here so that I can read some more of Lincoln’s Melancholy. Maybe he can give me some inspiration to continue the fight.

Midnight Demons Are Back…and it sucks

I did my what has now become my daily routine. I took a shower and then headed to Starbucks for my coffee. Because I earned so many stars (rewards), I earned a free drink so today took advantage of it. I also got another banana coffee cake as I was in the mood for something sweet. I then sat and journaled about my therapy session.

Last night I sent her a pretty nasty text message because I was in so much pain. I told her “fuck you, I am still keeping my date. Ankle has exploded so fuck you.” I didn’t get much sleep last night because I was hyper and because I was in pain. I have had a few hours sleep and the coffee helped. I am getting scared though. I am feeling like I am separating into two people. During the day I am Dr. Jekyll and during the night, I become Mr. Hyde. My moods are drastically different. If given the opportunity last night, I know I would have tried to take my life last night. I was that crazy that much. Now, because I am not struggling to sleep and not in crazy about of pain, it’s like a night and day experience. I have to ask myself, did I really think those things? I know the text message meant what I said and I know I wanted to talk to some one but who do you call at 3 in the morning?? I wrote a letter to Dr. Jobes, telling him of my demise and thanking him all the same time. I don’t know why I did that. I just thought he should know that I was struggling and used his works and it still failed me somehow. Maybe I wasn’t using it right. Maybe I am just a failure and can’t be helped. Maybe I am just too hopeless a case. I don’t know if I will send off the email. He doesn’t know me, not in a personal way anyway. I doubt that he remembers who I am other than the crazy guy that keeps asking him for his autograph in his works. I adore him. I admire his brilliancy in the field of suicidology. Yet why do I feel I should tell him I am committing suicide? Maybe I am hoping he will send me a reply that will give some affirmation that my life is not a total failure and loss. But if I don’t get a reply, how then will I feel? What if he takes my threat seriously and tries to hunt me down to get me help? I don’t know if I can take that chance.

Last night I wanted to chat so went to the twitter boards to see if there were any suicide chats going on. I know twitter isn’t a chat forum but there might be something under trends and such. No such luck but I found a ton of people writing their suicide notes or just making fun of being suicidal. Not my cup of tea. And NO WHERE did I see a prevention tweet. Usually I see one from the National Suicide prevention, Lifeline but there was zippo. Pretty sad to see all these tweets and no one really helping. I asked one person why she was writing a suicide note but didn’t get a response. It was four in the morning. I couldn’t believe the stupid tweets about suicide, such as my math book has so many problems it committed suicide. What is funny about that?? I just don’t get it. I did go to one forum for a text chat but it’s only from 2 pm to 2 am. I guess you can’t be suicidal outside those hours. I guess you could always go to the emergency room but by the time you are seen over the “real” serious cases, you are exhausted and just want to go home and sleep. I know I probably could have called my psychiatrist but I also know that she would be worried as I NEVER have called her that early in the morning unless it was a true emergency. I’m not saying I was not in bad space last night, I was, but I knew she would try and talk me into going to the ER to be admitted or at least evaluated. To me those things are one and the same and I wasn’t going to get near either of those places.

So hear it is day light and I am feeling better than I was 10 hrs ago. I didn’t do anything different. I just go a little sleep and went about my day like nothing happened. Guess the midnight demons are really back.

coffee and therapists

Went out for coffee today. I didn’t feel like it but I forced myself to. I gave myself an incentive, that if I went I would get something sweet. I usually just get my coffee and maybe a sandwich, if I am hungry. But today I really wanted something sweet so didn’t need that much incentive to get a coffee cake. I like that the baristas are getting my order down pat. I don’t order anything fancy, just my favorite flavor, which is now Kati Kati, grande size but in a venti cup. This is so I have plenty of room for the half and half. I also put in several packets of sugar. I need my coffee sweet, which is why I usually don’t get something sweet.

I did accomplish something today and that was finishing the book why do people die by suicide by Thomas Joiner. I had an autographed copy but lost it on the train the first week I read it. Much to my sadness. The book was good and I learned a few things that I hope I retain. He is a cognitive therapist so he focused on that during the strategies for dealing with suicidality. I really liked the book because it not only dealt with personal experience (his dad died by suicide while in grad school), he also listed empirical data to back up what he was talking about. I am a research geek so I tend to like stuff like that. He also used terms that put people that couldn’t understand the technical stuff into words that people could understand, like how neurotransmitters interact. It was a very interesting book. I also bought another book that he wrote called Myths of Suicide, which I hope to read after I finish reading Lincoln’s Melancholy.

My reading voices are back, thank god. I can’t seem to focus unless they are there. I got a comment from my psychotic while reading blog and this person said that she only hears her voice while reading. I find that so interesting. I never hear my own voice. Unless my voice is male sounding, which I don’t think it is, not yet anyways. But then I do have enlarged ventricles in my brain that cause the voices. Not as large as those found in schizophrenia but enough to have a radiologist comment on it. I had the MRI the first time I was hospitalized when I was sixteen. They ran a bunch of tests on me the whole time I was there, from cortisol suppression studies to psychological tests such as the inkblot. I remember how much paperwork I had to do for the MMPI, the Minnesota Multiple Personality Inventory. I hated that. I did that more than once over my lifetime for various studies I was involved in. It is a LONG inventory. I am glad it is not used in clinical practice, unless you go specifically for psychological testing. It would make for a long afternoon or morning.

I have been feeling self-harm urges the past few days. I don’t know why that is. I just have the urge but usually distracting myself or listening to music helps. I have not cut in years and I like it stay that way, though I still have my “kit”. Even though I don’t use it, I still find it comforting to have it around. I also have been getting urges to overdose but these quickly pass as I just can’t do it in my house. Symptoms of my illness.

The dreaded nerve pain has come again. I really tried not to stand too long while waiting for the bus today to get my coffee. I tried not to jiggle my foot in a way that I know would upset it later. But I did do stretching exercises while I was on the phone with my therapist so maybe that is why it is angry at me. I never know what will make it upset. It’s like an untemperate, abusive person. You just never know what will set it off. The cold. The heat. Wearing socks. Not wearing socks. Moving it this way versus that. It’s a never ending battle. I am so sick of it. I am tired of hurting. And nothing helps curb the pain. My pain meds can only do so much, which is knock me out most of the time so I can sleep. But that is only for a few hours. Once the meds wear off, I am screwed. I wake up and sometimes it take a little but to register that I am awake before the pain starts. Other times it is because I am in pain that I wake up. My sleep has not been good the past week. I keep waking up between 0230-430 in the morning. No matter what time I go to sleep, I always wake up during those hours. If I fall asleep before ten, I am always up four hours later. I can’t stand it. I usually play my games or check twitter. If I am bullshit, I might write another blog or journal if I don’t feel like opening my laptop. Sometimes, I try reading and usually that works to put me back to sleep, unless I am in roaring pain. Then I just stay up until the pain meds kick in to knock me out again while withering in agony.

This week’s AAS blog is about finding a therapist that won’t run away or panic at the mention of suicidal thoughts. I want to laugh and say, have you read my therapist blog? I have had ten therapists run away from me soon as I mention that I have had suicidal thoughts in the past or been hospitalized because of them. Course I am hospitalized frequently so that doesn’t help my case. I have been hospitalized at least eight times since 2008. My last hospitalization was last June. So it has been a year but if these damn voices don’t stop, I might have to go back in. The voices and being suicidal doesn’t mix too well. But getting back to therapists, they can be tricky. I kept on being referred to another therapist, who would then refer me to yet another therapist. Before I knew it, I had ten within a month’s time. I finally gave up and stuck it out with my current therapist, even though I don’t see her in person frequently. I think I will see her next week. I will try and get my sister’s car.

I know why therapists don’t want to take on suicidal clients. They don’t want to be liable. They fear malpractice. They even fear losing the client. But I believe that despite this, with the right treatment, therapists can see suicidal clients. It just takes a little bit of courage and trust, a lot of it. Not only on the therapist’s part, but also the client. The client also needs to have a trust in the therapist that they aren’t going to be dumped in the hospital every single fricken time they get suicidal. The therapies out there that help are by David Jobes, CAMS and by using his suicide status form. Also using the Aeschi model helps. Knowing why the client wants to kill themselves says a lot. By not allowing the client to share his story, he gives his therapist a reason to distrust him. I do hope that there comes a day when graduate schools are mandated to have some kind of suicide preventions/treatment protocols in their curriculums. It shouldn’t be up to the therapist’s own style of interviewing that should be dependent on their suicide knowledge. That and the use of no-suicide contracts should be discontinued as long as something like CAMS is in place or the QPR by Paul Quinnett. I forget what QPR stands for but it is a useful resource.