it’s 2 am…

It’s 2 am…

It’s not quite 3 am yet but I love this song. It’s by Jason Aldean and called Why.

I am having a rough time. Pain is bonkers. I’ve lost track how many times the pain has moved from my ankle to my foot and back. Then my ankle bone hurts only for it to travel to my foot bones. Now my foot is on fire so I think the pain meds have done their job. I just don’t want to chance it flaring up again by laying down.

I researched the psychologist I will be seeing in 13 hours. He mostly has focused on head, face, and neck pain. Not my kind. Also promotes CBT. He suggests that for me and I will kill myself. I don’t fucking care. I hate this therapy and think it is bogus. Not everyone responds to it and I know I won’t because I think it’s bullshit. There are some aspects of it that are worthwhile but like anything else, it takes time to practice and use it well. I really don’t want to wait another 18 weeks or more to see if this is “for me” and still have fucking flare ups without pain control in any other way.

I tried writing in my journal but the pen I decided to use was being difficult. Sometimes it wouldn’t write and I had to go over letters to make them visible. It was annoying me rather than helping me. I don’t know what I did with my left arm. It feels weak, like I lifted something heavy, which I didn’t. I haven’t carried anything so no idea what I did but it’s annoying me. It doesn’t hurt so that is good.

My migraine has gone. I hope it stays away. I am really tired and know I should try and sleep but my foot and ankle pain is just so intense. I can’t even give it a number because it just hurts. It is also indescribable. I hate that kind of pain. It’s so hard to know how to treat it. Do I treat it with this med or that med? I just don’t know so I take both and hope it works. I didn’t take any Neurontin tonight. I don’t want to be foggy later on. I think these late nights are causing me to be a night owl. I know that if I am not asleep by midnight, chances are it is a guessing game when I will be asleep. After 0200, and I am really up for the night. Just sucks because I have to leave the house by 1245 to make it to my appointment on time, which means I will have to eat something at Starbucks. I think I will get the cherry mocha again with 3 shots of espresso. That was yummy. I will try and remember to bring my reusable cup I bought the other day. They only have this drink until Wednesday. It’s too bad because it tastes so good! I love mocha anyway. It’s my favorite drink beside having the espresso alone with soy milk.

I am going to try this thing called sleep. Maybe you’ve heard of it? It’s supposed to be good for you yet I never feel refreshed afterwards so don’t get the appeal. I’ll let you know how it goes…

chronic pain and quick to anger

Chronic pain and quick to anger

I didn’t sleep well last night. I fell asleep sometime after 0200 because of pain. My reminder med alarm went off around 0815 and I wanted to throw the phone across the fucking room. I was so sleepy to finagle the phone to shut off the noise. I took my pills then went back to sleep for a few hours. I woke up around noon in pain. I felt hung over, like I had been drinking hard all night. My head and neck were hurting because I was somehow trying to meld with my headboard. My head was under the pillow and my head was on the headboard. It was an odd angle that made my neck hurt. I have no idea what happened to the pillow I was using. When I got up to put my slippers on, I found it on the floor. I really didn’t want to leave the house but I wanted to try the new cherry mocha at Starbucks. They would only have it until Wednesday.

I didn’t feel like going back to sleep. My sister was getting a new furnace put in and the guy had my number in case he needed access to her apartment. I got dressed and before I left for the bus stop, talked with the plumber to see if he needed anything. He didn’t and he said he would need another day to finish the work. He said he would call my brother in law if he needed anything. I said ok and left. I was kind of grumpy because I didn’t leave the house yesterday just in case they needed something, I would be around. If I had known my brother in law had given them instructions, I could have gone out to start my story. Oh well.

It was fricken cold as the wind was blowing. I had to put on my hood to block the wind. The bus came and I got to Starbucks. I had a sandwich and the cherry mocha in a reusable container. The drink was fricken expensive but it was for a limited time so I didn’t fuss about it. It was really good so worth it. It tasted like drinking a cherry chocolate bar. After I finished my sandwich, I wanted a cookie and got that. Then I started writing in my journal. I had taken out the notebook as well to start my story. I noticed it was only 80 pages. I don’t know if it was because of the pain and not sleeping, but I became really angry that I paid 2 bucks for less than 100 pages when I had bought a few months ago for $1.89 120 pages for the same kind of notebook! I was fuming! I know now it seemed trivial but for some reason, I just felt ripped off. I couldn’t write anymore so decided to go home. I went to CVS to see what they were charging and for how many pages. It was $3.19 for 100 pages. That is a rip off! I bought some pens that caught my eye when I bought the 80 count notebook. Bic has these pens called Atlantis that are pretty smooth to write with. I was hoping to possibly write when I got home but it didn’t happen. I was exhausted. I felt like I had been hit by a truck. Just moving my arms felt so heavy.

I got out my laptop and went to the email for the number for Dell. I wanted to know what the hell parts were on my laptop so I knew what they were. I was told in the email to contact the customer service department. I talked to them. Then they said I needed technical sales. I was transferred to them. I explained again what I was looking for and was transferred back to customer service. I told them the story only for them to tell me I needed technical support. I said wait a fucking minute. I was told that when I first called and then have been transferred back and forth and now you need to transfer me again? He said he didn’t know anything about parts and had to transfer me. I said okay as my temper flared again. I got transferred, spoke the the girl for not even 10 seconds when the line was cut! WTF!!! I was fuming. I sent a message on twitter to Dell as sometimes you get better service through twitter than you do on the damn fucking phone. Haven’t heard from them but one asshole tweety buddy told me one word, MAC. FUCK YOU I wanted to respond!! I didn’t. I fucking hate when you have a PC problem they tell you to go to Apple and vice versa. UGH Not fucking helpful!! Though I do have a few Apple people who has had their hard drives crash on them so they are not 100% reliable either or have been stuck in the store or on the phone for hours. I still don’t know what the hell parts I have or if I can upgrade. In the meantime, I am just going with it. As long as my Microsoft Office Word works and I can upload my blog, that is all I will use this lemon for until I can get my other laptop fixed. It takes too much memory just to use Facebook so I go on my phone most of the time. Twitter isn’t so bad though if there is a cute kitten or pup pic, I will go on my phone to save it. I have been collecting cute pics for a while now to look at when I am in a grumpy mood and need something cute to cheer me up.

My kitchen tracking lights needed to be replaced so I ordered new bulbs. I got them today and they are the wrong size. My sister said she “told me” they were the wrong size. I am like how the fuck can you know by looking at a website that it is the wrong size??? Then she was looking at the bulb I took out from the socket and she was like see, it says blah blah blah. I am like see the box says blah blah blah. My anger rose again. Now I got to go to the fucking store and change them. I hate returning shit. I would have gone today but my sister was going out to eat so maybe she can take me tomorrow. I got such a headache and my ankle is being a fucking asshole. I better fucking sleep tonight and my head better not try to be one with the headboard again. I am too fucking tired to stay up all night again.

Let the imagination run

Let the imagination run

I had a great therapy session today. I told him about the appointment with the LGBT doc and how I liked him. I also told him about how I wasn’t sure if I have been putting too much pressure on myself by wanting to be the person I was before I was disabled. It just seems like I am unable to keep up with my appointments and just doing daily activities, such as making meals and stuff. My pain is so unpredictable but this weekend, my pain was manageable for some reason. I think the appointment stress of meeting with the LGBT doc and moving forward with my transition was weighing on me more than I realized.

We also talked about my writing difficulties. I told him about the story that has been in my head the last few months and the difficulty of writing it because of how I felt about it. I also voiced my trouble with setting time aside to write. Sure, I write my blog every day, but some days that is tough. I get distracted by my phone or the internet or social media. Some days I start a blog and lose my concentration because I don’t know what to write and nothing is coming to me. Then there are days where things flow and I can get it done within an hour or so. But I want to get this story out and it has been burning for far too long on the back burners. I want to write it out but I am scared that I am going to go nuts. We talked about it, having a back and forth conversation. It was such a relief to talk about my writing and how to go about it. I felt validated and supported in what I was doing.

So as I was leaving, I felt pretty good, like a weight has been lifted. I went to Walgreens to buy some new composition notebooks. I have two that I bought maybe a year ago but I wanted to get some more (I have a thing for these kinds of notebooks like I do pens). I was thinking about the session on the way home and how I was going to implement writing time. I honestly don’t have a clue. Getting the notebooks and putting them in my bag is a start. I felt like buying more pens but, I uh, have like 5 boxes of pens so fought off that impulse. I am kind of excited about this and hope that I can do it. I do better writing with pen and paper than I do trying to write on a laptop. Typing up what I write is challenging as sometimes I can’t read what I wrote or what I wrote didn’t make sense. He said to let my imagination run so I am going to give it a go and see where it gets me. No one has to see it. He’s not like my former therapist that wanted me to share everything with her. It is just for my benefit. And maybe the crazy flashbacks will stop once the stories are out. I sadly realized that it has been 30 years since all this was forming in my brain. I do have to watch one episode of Star Trek: the Next Generation, though I don’t know when I will do that. It’s kind of like the base of when the story started and it took off for ten years and then stopped abruptly because I got sick.

I came home. I must have taken about two or three steps after I stepped off the bus for my ankle to act up. I limped home and now my bones are aching. I am trying not to take the strong pain pill as I just took my regular pain med when I left my therapist’s office. I am so tired of being in pain just by walking. It is so frustrating.

A friend had emailed me about her frustration with the game last night. I shared in her grief. I wrote a response. I still am thinking about what to do with physical therapy. I see my PT Friday so I have a few days. My gut is telling me to stop and I think I am going to listen to it. I will tell my PT when I see her. I just don’t think continuing to go is going to benefit me and the stress of going is not helping me or my pain.

strip it down

Strip it down

I’m listening to Luke Bryan and this is the song that is currently playing. I couldn’t come up with a title so thought I would use the name of the song. Corny, but it works.

I went food shopping today. I didn’t get much as I didn’t have that much money on me. I just bought the bare essentials until next week when I get paid. We were out of juice and that was the important thing. Always need juice in case my mother’s sugar goes down. I got a little of this and that. Then caught the bus to the square to get an espresso. I also treated myself to a cranberry bliss bar. Those are so good. I haven’t had one in a couple years. They only come out during Christmas season. I then hurried to catch the bus home.

I wrote a pitch for my second book and submitted it to a mental health press. It will be a few weeks before I know if they will print it. I had no idea if what I did was right as I never submitted a pitch before. I was really tired after writing it up. I went to nap and then my mother called just as I was ready to drift off to sleep. I was robbed of a nap. I didn’t want to get up. I wasn’t that hungry but I went downstairs. My mother made pasta for me as I wanted some. She made asparagus and eggs. I had a little of it while the pasta was cooking. She made it really al dente. I am not a fan of al dente. I ate it and now I am super full.

It has been snowing on and off today but now it’s snowing pretty steady. It’s supposed to snow till Christmas morning. Don’t know if that will happen. We haven’t had a white Christmas in years. It would be nice.