Category: chronic physical pain

feeling distraught and confused

by Midnight Demon, posted in bipolar, chronic physical pain, transgender, writing

I’m a little distraught today. Today is my BFFL’s birthday. He called and told me thank you after I called him to wish him a happy birthday. He then told me some stiffening news. His ex-fiance died in a car crash last week. I remember hearing about it on Twitter as I get the State police tweets. I just felt really bad because in my mind, I had “ruled” it a suicide because it was a single fatal crash. Turns out she had a seizure while driving and crashed into a tree, causing her car to explode. Not a good way to die. She was only 33 years old. I feel for her family.

I didn’t know her that well. We didn’t know each other at all, only through my BFFL. I met her a few times while they were together. She didn’t like me because she was a jealous type and thought I was going to steal him away from her. I kept telling my BFFL to say that I was gay and that would end any animosity but he wouldn’t. I guess he liked having a jealous girlfriend. She worked for the Mass Pike Authority so the last time I saw her was at a toll booth. I didn’t and she didn’t realize who we were until after we left. It was one of those do I know you but hurry up and leave type of situations. I can’t be spending all day at a toll booth. The cars behind me wouldn’t like it! I just feel really sad about the way she died.

I tried walking today, despite being in pain. It was horrible. By the time I was half way home, my ankle felt like someone was ripping it apart. I came home, got back into my pjs, took some nerve pain pills, one pain pill, and now I am writing my blog. I am not doing anything else today and hope to God today isn’t a crap day. I have nerve pain in my butt so bad I can hardly sit as I am typing this. I know I should be working on my editing my book. But I am in too much pain and soon will be in lala land. Besides, if I work on it today, I won’t be able to work on anything the rest of this week.

I have decided that half of my cash funds are going to Starbucks. I HAVE to be able to leave the house and go to Starbucks or I will just go insane in the house. My mother is now playing Yatzee, a dice game, instead of watching TV. It is so very annoying!! I rather hear the speakers of the TV than the roll of the die. She plays by herself, just to keep herself occupied. It is driving me crazy so I need to get out of the damn house.

In addition to seeing my therapist this week, I am seeing my pdoc. My pdoc sent me an email asking to come in for an earlier time. I asked again if she wanted me to come in early but I haven’t heard back from her. I think she got confused when she sent me the email but now I am confused. It’s a later time than I usually see her, which isn’t a problem, because I have nothing better to do. But I like to occupy my time accordingly. If she wants me to come in earlier, I would like to know.

I haven’t worked on the TG piece that I wrote a couple of days ago. I am going to wait until my therapist has a chance to read it before I work on it some more. I really want to re-write it, just write about how I came out to myself and where I am today with it all. I bought a reward for writing it. I felt like I should be rewarded for writing such an emotional piece. My BFFL doesn’t know I want to be a male. I think he will flip out or I might lose the relationship if he ever were to find out.

The editor for the AAS has given me a month to work on this piece. But I have so much time on my hands that I can’t possibly sit on it for that length of time. But I suppose I can alternate between my second book writings and the TG piece. I know the TG piece is going to be a huge part of therapy sessions in the upcoming weeks.

Saturday Blog 9

by Midnight Demon, posted in chronic physical pain, sports, writing

I watched college football for the first time this season. I didn’t think I was going to wake up early enough for it because I usually forget. Luckily, the game was on the cable network so I got to see it on my living room TV instead of the small kitchen one. It was OSU vs Navy. I had a hard time rooting for either team because both are my favorites. But in the end, I went for my most favorite team, OSU.

I forgot to take my morning meds again. It is way too late now to take them as I will be taking my night time meds in a few hours. This sucks. I also have not taken my blood pressure at all today and I am afraid to because I know it is going to be high. So I will skip that too.

After the game, I was very tired for some reason. So I took a nap before my bladder woke me up, angrily. I forgot that I drank 32 ounces of fluid before taking my nap so I was FULL. Not a good thing when you have CES. I am still wearing a pad because of my menses so if I leaked, I didn’t care.

I have to take a shower today. I am all icky and stuff. It looks like my menses are finally going away, which is a good thing because then I can restart my hormone pills. I just have to remember when I stopped the pills. This sucks that I have to stop the pill every three packs. What good is it if I do that?? Three months off is not enough time to forget the awfulness of being in the wrong body. And then have to deal with it again, three months later, just sucks.

Since I woke up this morning (around 11 or so), I have been eating constantly. I finally stopped around the time the game ended. I am now bloated. I don’t think I am going to have anything else to eat today. If I do get hungry, I will just have a bowl of cereal.

Ruby De La Rosa is pitching tonight for the Red Sox. I don’t want to even watch or hear the game. Ever since the Sox traded away three good pitchers, I stopped watching or listening to the game. I would, however, keep track on Twitter. Or if I really cared, I would go the website and check out the score. But usually they would have a lead and then blow it. Such is the story of the season. This year’s sox just cannot hold on to a lead for nothing. The only team that we seem to be able to beat are the Blue Jays. Tonight is a much more competitive team, the Tampa Bay Rays. I hate that team. So if I happen to sleep through the game, so be it.

The agitation that I was feeling yesterday is gone, thank goodness. I guess, all I needed was sleep, even if it took a few Ativan to get there. Right now I am just feeling sleepy. But it’s not even eight o’clock yet so I can’t take my meds. I mean I could, it’s not like I am on a schedule or anything like I was when I was in the hospital, but if I take them too early, the chances of me waking up in the wee hours of the morning is greater. I have done that before and I woke up at midnight or 1 am. Not good because then I have the energy of three people and I don’t know what to do with it.

I didn’t work on any writing today. I didn’t even have a cup of coffee today. I have a feeling the coffee is what is causing the jitters that I get. So as my writing award for next month, and seeing as I can’t afford Starbucks, I will try to make a Starbucks award for my writing next month. That is, if I can afford it. I am going to try and promote my book this month so I have a few dollars on the side. I sold 3 books this month. I want to try and sell 5 next month. That is going to be a huge task. It would be easier if I had a printer but I don’t. My sister does but she doesn’t have ink for it. I am screwed. But I can still hashtag away at Twitter every day a couple of times to try and sell my book. If I had the money, I would take an ad in a professional psychology journal promoting my book. I still have to mail my editor her copy of the book, which I will do on Tuesday. Monday is Labor Day so post office is closed. I am still debating if I should send my book to be reviewed by the American Association of Suicidology. I want to so bad but I don’t want to be criticized either. I have a lot of personal information. But they didn’t give me a lot of information to put in the book. “Just send two copies to this address” is all I have to go on. And I have the package all sealed up and ready to go. So if they needed me to sign the book or include my address in the book, too late for that. I just hope that I don’t have to be a current member because I let my membership expire. Dammit, the things I think of now.

My foot is killing me. The pain meds that I took earlier have had no effect on it. I am so tired of being in pain all the stinking time. I just want to chop my foot off right now. Sure it will be bloody and messy but I don’t be in pain, well not the type of pain I am experiencing right now. I think I will feel another type of pain but I am hoping that will go away with time. And if I happen to bleed out, so be it.

I am starting to get worried over a blogger friend of mine. She is having difficulty with her illness. I tried reaching out to her but got no response. She has been blogging saying that she what she is doing and I don’t like it. Even though she doesn’t know it, I think it is a form of self-harm. I just want to help her but if she doesn’t respond to me, that is kind of hard to do. I just hope she is sleeping off what she took and no harm comes to her. I will really miss her if she should die.

Friday Ramble

by Midnight Demon, posted in bipolar, chronic physical pain, depression

So I just got my delivery of groceries for the month. Every time I place an order, my mother always has something negative to say as if she spent the money for an item. I didn’t get that many things. Just water and my powerade, which was probably the most expensive thing I bought as I buy 20 at a time, sometimes 25. I do this because I have a back problem and can’t carry these items up two flights of stairs. So I have Peapod do half the work for me. The water (bought two cases and two gallons so I can make my iced tea) I leave on the living floor so that saves me a trip. I also bought my half and half, which my mother doesn’t use. The food I buy should last me a few weeks. I mostly bought cereal as I use more of it than my mother does.

Today I didn’t leave the house for anything. My foot has been feeling awful and I didn’t want the chance of pain tonight so just stayed in my room most of the day. Except for when I was having something to eat. I also watched two episodes of Rizzoli and Isles, my favorite TV show. I thought about watching a third show (I have them saved on Tivo) but I got bored. I have a lot of shows to catch up on but I just don’t have the brain power to watch TV all day like my mother.

I have to harvest my game but I lost interest in playing. I don’t know why I continue to play when no one gives me the stuff I need to complete the missions. I usually play if I am killing time for my therapy appt or something. But even the news feed on FB doesn’t have the stuff I need. I feel so out of it when I came home from the hospital because there were items my neighbors were asking for and I had no idea what mission they were playing for. It is so frustrating so I lose interest.

I worked on the transgender piece today. It was very difficult to do. I think it’s the most emotional piece I have written since my book. But something like this is personal. I came close to coming out to my mother this morning with it. I don’t know what came over me, but I just felt like saying to her, “ma, I am a male”. I don’t think that would have flown over very well, but at least I would have said it! It would be out there. Whether or not she took a nice response to it, is another story.

My best friend from childhood’s birthday is this weekend. I was going to mail him a card but I think I will call him instead. It’s the same day as my cousin’s so I never forget. He always forgets mine, always has but that is ok.

I feel really drained today. I slept fairly well, even though I woke up again at 0430. I stayed up for about an hour or so then went back to sleep. I was in pain so I took my pain meds and was quickly back to sleep. I didn’t play on the computer or write because sometimes that really wakes me up and I can’t go back to sleep. But I didn’t do that so I went back to sleep about an hour later and slept until almost around noon. I didn’t drink coffee today. Sadly, this is the first month that I can’t afford my Starbucks funds. I have around 4 bucks left in my account and that is it. I don’t know what I am going to do. I have $40 cash but that has to last me for the month. It is so hard living off disability. I still am waiting for the 3rd deposit for my book sales. I know it won’t be much but maybe I can squeeze in a Starbucks drink or two during the month.

I need a job…

agitated ramble

by Midnight Demon, posted in blogging, chronic physical pain, depression

I didn’t have therapy today. I was hoping a spot would open up but it never happened. Now I have to wait till Tuesday to talk to my therapist again. This sucks. I had a very busy day and need to talk about it.

I took my father to his appointment and surprisingly, he didn’t cause my already high blood pressure to skyrocket. I went to my appointment and just as I thought, my PCP increased the new blood pressure medication that I am on. Luckily, I was spared the weight issue/reprimand.

I have been feeling anxious all day. I have been up since 0530 and I can’t seem to calm down. I took an Ativan when I took my morning meds, hoping that would calm me down some but it hasn’t. I don’t know why I am such a friggen wreck. I am wicked tired, actually, I am beyond tired. I know that I won’t be able to rest as I am too restless to stay still long enough to sleep. I just have been going all day. I had a bad dream that caused me to wake up at 0530. I don’t remember what it was about now. I know it had to do with my mother. I just hope the dream doesn’t come true.

I think most of it has to do with the transgender piece I wrote yesterday, not the public version but the password protected one. I don’t think my therapist has read it yet and I am nervous about it.

I got an email from my pdoc asking if I can come in earlier tomorrow and I am like whoa, our appointment isn’t until next week. I really don’t want to do ANYTHING tomorrow because my leg is acting up. I got the nerve pain zaps last night and my foot has been on fire since it happened. I haven’t been able to calm it down because there is nothing I can take for it. I need a day to rest after I spent most of the day in my AFO brace (ankle/foot orthotic). My leg is also angry at me because my PCP had to press on my leg to see if it hurt. Fucker. Now I have to take my pain meds to quiet that down too. I am just going to have a party tonight with my meds and see what works and what doesn’t. I got to get rid of this anxiety first though. I think I will take an Ativan and hope for the best. Then I can take the nerve pain med and hope it puts the fire out in my foot. It sucks to have your foot constantly burning and knowing there is nothing you can take for it. I was driving today so I was limited in what I could take. It is just driving me crazy and I know that is probably one of the reasons why my anxiety is up and why I am so restless. I just can’t sit still. But writing has given me something to focus on, least for the time being.

I don’t really feel like I am hypomanic as I do not have a good mood. I am still really depressed. This agitation is killing me though. I think I am going to take some of my nerve pain meds and see if that calms me down. If it doesn’t, I will take an anti-psychotic. I just cannot stand being like this. And I really want to take a nap, though it is getting close to bed time so I probably shouldn’t. UGH!!! So frustrated.

I am happy that my PCP didn’t restrict the number of pills I got for my pain meds due to my psych hospitalization. He asked if I did something and I told him no. He doesn’t need to know what lead to the hospitalization, just that I was there because my blood pressure was crazy! This is the second time that my blood pressure was out of control during an inpatient psych visit. I don’t know if it was because of the stress that I was under or what. But I do know that I need to lose some weight to keep it under control with ONE medication rather than two. My biggest fear is that I will become hypotensive (low blood pressure). But I have been monitoring my bp at home so I don’t think that will be a problem. I take my blood pressure twice a day and the pressure seems to be worse at night. Happened while in the hospital too so no change there. Though I did want to slap one of the mental health workers when she asked me if I was drinking enough. Stupid dumbass. My pressure would be low if I was dehydrated. And I drank lots while I was in the hospital. Mostly ginger ale and juice cocktail (OJ and cranberry juice). I wish I could have had some vodka with the juice sometimes. I swore I was going to have a shot of gin when I got out but I still haven’t had it. I lost the feeling for drinking. Plus, it doesn’t mix with my pain meds.

I took my nerve pain meds. It better knock out the stupid burning pain that I am experiencing. I don’t usually have this type of pain. I usually have a physical type of pain that is helped with pain meds (narcotic kind). The nerve pain meds are not narcotic. And it doesn’t make sense since I have increased my mood stabilizer as that also can knock out nerve pain. Man, things are really messed up. I am on too many meds. I got to find a way to get off them.