insomnia strikes again and I’m exhausted

Insomnia strikes again and I am exhausted

Insomnia hit. I didn’t go to bed till around 0700. I slept for an hour before I woke up to pee. Took my morning meds and then went back to sleep for a few hours. I then had some coffee and a Belvita biscuit before heading off to the grocery store to finish getting my ingredients. I forgot to buy onions that were premade. But my mother had a chopper thing so I was able to dice them up. I had place an order on Amazon Fresh for some ingredients and milk for my mother as I was going to have difficulty carrying a gallon of milk home on the bus.

I tried to nap when I came home from the grocery store but I couldn’t sleep. Then it was dinner time and my mother made fish. I made a spinach salad and had that and the fish and potatoes that she made. I then got an alert that my amazon was shipped so I started cooking. I just got finished now. I am totally exhausted. I just hope I can sleep tonight and not wake up at midnight again. I have to leave the house around 1030 tomorrow to be at the barber’s shop by 1130. I have to look at the schedule as I don’t know what time the bus will be here. I was going to let my hair grow but I am going to get a bald cut again as my friend in South Africa wife has leukemia. Poor woman battled through breast cancer and now she has this.

I am going to take my night meds and go to bed. I won’t be doing any reading today. I am so fricken exhausted. I found out today that if you pay $12K to Switzerland, you can die an assisted death. I am going to start saving my money.

4700 Steps

4700 steps

I woke up around 1230 feeling hungry so I had something to eat. Then I stayed up for a bit and the next thing I knew I wasn’t tired anymore. The pain flare caused insomnia. I was up half the night. I waited until my check came in my bank account and then I started paying bills. I am now broke. I half didn’t want to go into Boston today so I tried to change my appointment to virtual but I didn’t get through on the phone so I said fuck it and caught the next bus out to the station.

The appointment was good. I got the medication I wanted and I asked her about the CRPS and bone scan and she said to contact my neuro about it. So I did while I was waiting for the train to come. I had walked to Whole Foods to get some spices that I need for a dish I am making for my barber. He told me last night that his sister died that day. I feel so bad for him. So I am making his favorite dish to help cheer him up some. I did a lot of walking after my appointment.

After my appointment, I went to the pharmacy to pick up my meds. There was a line and people can be so damn stupid about their meds. It just annoys me when they go and they want to pick up but it isn’t ready because there are no refills left. I hear it over and over again every time I am in line. Just drives me crazy. My meds were ready by the time I was called to the register. I only had to pay for one of the meds. I finally met my $300 deductible so now I don’t have to pay for my meds the rest of the year.

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I started the blog yesterday but didn’t finish it because I was tired. It is raining today and I am aching. I also just want to stay in bed and sleep. I saw my psychiatrist. Things are going well. He was my last appointment for the week. I am now free.

Because today is raining, I plan on going to the grocery store tomorrow to pick up the ingredients I need for the dish I plan on making. I just hope I have enough energy to make it. There is a chance it could rain tomorrow too but I am hoping to avoid it. I will take a cab home if I need to.

a busy past few days

A busy past few days

I have a busy week with a lot of appointments. I had two today, back to back. Tomorrow I see my pcp to discuss my cardiac markers and a BP med. I am hoping she listens to me and puts me back on labetalol rather than another med. But if she isn’t open to it, then I will go on what she suggests.

I saw my TG doc today. She had a fellow interview me first. Things went well. The fellow tried to get me a 5mL vial of T but the pharmacy just filled a 1mL vial. I have enough T to last me the next few injections. She also referred me to plastic surgery so I could get a top surgery consult started. I am glad because my pcp never responded to my request from last week. The fellow also answered my concern about whether T had caused the dislocation in my shoulder. It didn’t. I am glad. She did say that because I had removal of my ovaries, I have to be concerned about my bone health. But I am still young enough that I don’t have to go for a bone scan. The only bone scan I want to do is on my shin to see if the CRPS has spread to it. I have been having severe pain for no reason and it is worrying me.

After my TG appointment, I had the chronic pain group, which had already started. I was about fifteen minutes late but they accepted me anyways. We had a good chat about families not getting our disabilities and I told them how rough it was living with my sister who triggers my PTSD often. I also came out to them as transgender and they didn’t seem to care, which I was glad about. We also talked about how our families don’t believe our pain and disability. It was a good group. I did talk about how my therapy session went and got support around it. There maybe future discussions about CBT.

I had therapy yesterday and we talked about my ED visit went. I told her I was freaking out over my lab results, thinking I was having a heart attack. Tomorrow when I see my pcp I am going to discuss what the lab values mean as having this marker in the blood indicates some kind of cardiac injury. I also asked my therapist if we could role play a bit about me asking for the blood pressure medication that I want so that I don’t get turned down. I didn’t want to come off as obstinate but I really think this med will be better as I have been on it before and had little to no side effects from it. We talked for more than a few minutes about it and I wrote down how to approach my pcp on this issue. I just hope I remember.

We then talked about how I feel we are divided and not on the same page about things. That is when she said to me “take the reins”. I was like what? She repeated what she said, adding that I was in charge. I was flustered. I couldn’t believe what she had said so I got my journal that has the notes to the bCBT book and shared with her what a structured session looks like. It had listed “agenda” and then went on to list other things. I asked the author of the book what is meant by this and he gave me a more descriptive outline of what the session looks like. I think there should have been an “:” to indicate this. So I went to my blog for the crisis response plan (Suicide Crisis Response Plan – midnightdemons7). This needs to be reviewed. In it, it said that if I get specific I should contact my therapist or psychiatrist. I should ask them if this is right or if I should just go to the psych ED. My therapist might not be available but I will bring it up with her when I meet with her next as that is when we will start with the new sessions I guess. She agreed to allow a new skill to be introduced and to practice it while in session. I think this is going to work out now as this seems more collaborative than what it was in the past where I spent the time just talking or not talking during session. I asked her if she was more DBT oriented or CBT. She said she was CBT so that will help a lot during the next few weeks. I am glad this is happening because I really felt like we were going on different directions. It just seemed like we would talk about stuff and then she would ask what is helpful but never follow up on what was helpful during the week or if I had practiced or done what was helpful. Mostly that meant me reading this manual for discussion. I felt like I was alone in reading it but it not going anywhere. I also felt like it was pointless to read if I couldn’t share what I was reading.

I have a busy week. Tomorrow I see my pcp and that is going to take a lot of energy. I wanted to get my hair trimmed but my barber had a death in the family. I contacted him today and he said his sister died. Her breast cancer had come back and it wasn’t a good prognosis. I am surprised she last this long. It was more than a year since she was diagnosed with this. I set up an appointment with him for Sat. Fri I plan on making his favorite dish, chili cornbread. I just have to get the ingredients. I will Thurs after my session with my psychiatrist. I will also ask him if I can contact him in an emergency as we have never discuss this before. There wasn’t really a need to as I really haven’t been in crisis since he became my psychopharmacologist.

By Sunday, I am just going to rest as I will need it. I don’t know when I will be able to read. I got hit with a flare up and couldn’t finish this blog yesterday. The flare was so bad that the bones in my foot and leg were aching very deeply and intensely. The pain in my leg is higher than it was and I fear that the CRPS is spreading. I want to contact my neuro and see if I can get a bone scan to see if it is CRPS or something else. I don’t think an X-ray will show anything as It only hurts when my ankle or foot is flared up and when I am resting on my bed. It doesn’t hurt when I put weight on it or walk on it. It is a very unusual type of pain when it comes on. I am feeling better because I got some sleep. I woke up around 0030 and had something to eat as I was hungry. I had honey nut cheerios. I emptied my bladder because it had been more than five hours since I last emptied it. I probably will have to go again as I drank the milk in the cereal and had some water afterwards. It’s 0130 now and I am not so tired. I might read the book for a bit until I am tired and can get back to sleep. My pain has finally settled down.

Kitty pic

Wanted to post but am wicked tired. Have lots to write about. Hope to get to it after dinner