the thing

The thing

I am up past my “magic” hour because my thing aka my ankle/foot is causing me severe pain. I have taken all the meds I could possibly take and have just put on some lidocaine. I’m waiting for it to dry so I can possibly go to sleep.

I emailed my psych because I can’t sleep. It seems if I am up past 0200, I don’t go to sleep until the hours between 0400-0600. It’s a guessing game. I took an Ativan but I am so overtired, I don’t think it is going to calm me down enough to sleep. I really think I need a sleeping pill on nights like these, but I am afraid to take it because of the sleep walking or other strange things that people experience while taking it.

I am not expecting my psych to respond to my email, but she might. I was going to make a sauce today but I don’t think it is likely as I will want to sleep. I have therapy at 1600. As long as I can make it out of the house by 1400, I should be okay. Then I can have my espresso at Starbucks, which I hope will keep me up for a little bit. I think I might fry the ground beef and then refrigerate it until I make the sauce so the meat doesn’t go bad.

I am so tired but my damn thing is being a fucking bastard. I have decided to call it thing because different parts of my foot/ankle will hurt so it’s just easier calling it thing. I’m tired of having to differentiate what hurts and what doesn’t. The pain likes to hop around and go up and down and all around. It’s so infuriating. My physical pain was taken cared of by my pain meds and then it changed to nerve pain which isn’t taken cared of by my pain meds. I have to take Neurontin and that works whenever it decides to work. UGH. So in the meantime, I am suffering and can’t fucking sleep.

My toes are now part of the thing. The last three always fucking hurts and it’s like I am stubbing all three at once. It’s so painful. I guess I am not going to make any phone calls today. I will be too sleep deprived to make them. I wish I could move my therapy appt to another time but it’s too late to change it. I have 24 hours before the time to move and/or cancel it and it’s less than that time. I really don’t want to keep going to therapy. I just think it is a waste of time. I am fine handling things on my own. I have for a very long time.

I am getting hungry but I don’t want to go downstairs to make something to eat. I don’t think standing on my foot will help the pain any and I really don’t want it get worse. I won’t sleep until later and that won’t be good. It’s supposed to rain off and on all the day and tomorrow it’s supposed to rain all day. I have a dinner date with a friend of mine tomorrow night. We are going to my favorite restaurant for Thai food. I can’t wait. I haven’t had Pad Thai in a long time. It should be a good night out, despite the wet weather.

Did I mention I have songs shuffling in my head? It keeps jumping from one song to another and back again. It is driving me crazy. There is nothing I can take to stop the music playing unless I actually turn on my MP3 player but it’s too late for music and might keep me up rather than help me sleep.

I really need to call the dentist to reschedule my appointment. They had called me a few weeks ago saying that the dentist is no longer seeing patients on Tuesdays. Apparently he moved his schedule to Thursdays and Fridays, I think the message said. It’s fine with me, but I just need to call to make the appointment, which I have been procrastinating about. I hate going to the dentist. I hate the scraping of my teeth. I used to like it when I was a kid but now that I am an adult, it bothers me. I do have a cavity that needs to be filled, which further makes me want to postpone the appointment. I know that isn’t good because it could get bigger and cause me more problems, which is why I try and brush my teeth every day even if I don’t feel like it.

I need to lie down. Maybe if I do lie down, I will fall asleep. My back is starting to hurt from sitting the past several hours. I will write more later.

Sunday Blog 30

Sunday Blog 30

I’ve had a decent day despite waking up in pain. I honestly didn’t know if I would be able to see my aunt later in the afternoon because the pain turned to spasms. Meds knocked me out for the rest of the morning. I woke up around noon and made coffee.

After coffee, I got dressed and met my sister. I couldn’t get a hold of my middle sister so she didn’t come with us. We had a good visit with my cousins and aunt. She has dementia due to Parkinson’s disease. It was hard because one minute she knew who I was and the next she didn’t. She asked the same questions multiple times and asked who I was. In one minute she could speak clearly and the next it was all mumbles. It was pretty sad and when my cousin was explaining her condition to me, I thought she was going to cry. After the visit, I wanted to cry. It’s so hard seeing her this way and I know it’s taking a toll on my cousins (her son and wife). My cousin said she will be going to day care starting tomorrow. I hope it works for her, just to get her out of the house for a few hours and socialize.

I’m glad that I shaved my goatee off because my aunt flipped out over my haircut. She would like the hair on my chin. I was debating it but in the end I decided to cut it off. It was getting a little unruly anyway so just as well. I will grow it again.

One of the groups that I joined on Facebook just shared an article about two men that have CRPS. They have my symptoms down to a T and experience what I do every day. I feel like a weight has been lifted off my chest because I no longer feel alone. Most of the people in the FB group have color changes in their ankle/foot and I don’t, so I just thought I didn’t have the pain syndrome but some variant of it. But when they were describing it, it was what I experience nearly every single day. I am going to contact them and see if I can find local support or at least be friends with them. I haven’t connected with anyone on the Facebook group. There are a lot of women and they just seem to post their pics of the color changes or massive swelling. I don’t have severe swelling but the pain is unreal.

I am wicked tired from my visit. It was just emotionally exhausting. I can’t imagine how it is for my cousins on a daily basis. It’s so hard. My sister went food shopping afterwards and that always makes me tired. My mother needed eggs because they were on sale. I hate shopping for anything. But it was better that we split up because my mother also wanted American cheese, which meant spending some time at the deli. Boring.

Pain has come back so I took my meds as it’s been hours since my last dose. I am glad that I filled my med box before leaving. I really don’t want to stand up unless I have to. I still have no idea what I am going to have for supper. Only thing that I have eaten today was two cookies and a little piece of tiramisu. I didn’t like the tiramisu very much as it was mostly just cream. I feel like ordering Chinese again. I might because I am hungry and my mother had the last of it today so I don’t have leftovers.

burrito fix satisfied

Burrito fix satisfied

It was cool in the house, so I thought it would be the same outside. I wore my new Sox hoodie and I was sweating by the time I reached the bus stop. My cousin saw me and gave me a ride. While we were talking, I told him I was trans. He accepted it better than I thought he would, though I don’t think he really got it. He just thought, I think, that I meant I was gay. I told him I was going to transition to being a male. He seemed ok with the idea, much to my relief. I told him that my mother just pushed me over the edge and I had enough of not being who I really am.

I got my burrito at Chipotle and took it to Starbucks where I had a iced tea Lemonade. I didn’t want more caffeine because I just had coffee. The burrito was good. And then I wrote in my journal for a bit. I wanted to go to the butcher shop to get some ground beef. My mother wanted me to check the price of the chicken wings and fish. The fish was too expensive and the chicken was too fatty. I’ll get them at Stop and Shop.

I’m feeling really good that I came out to my cousin and him accepting me. I wish my mother could. My foot acted up on the bus ride home and got worse when I got up to my room. I’m going to rest and then try to take a shower. I think that will help my mood a little bit. I really want to change my sheets so they don’t keep coming undone but I am too tired and I really don’t want my back to hurt. I’ll do it sometime next week.

Another hit to the chronic pain community. I just read an article that stated addiction treatment centers do not routinely test for drugs because of various reasons, mostly due to the “cost”, yet it’s perfectly acceptable to test a chronic pain patient at random or routinely. This really pissed me off because I am one of many chronic pain patients that get tested, even though I do take my meds the way I am supposed to. I don’t use more, I don’t sell or give away my meds, I adhere to the policy in the contract that I signed because I need these meds to function and want to have some kind of life outside the four walls of my room. I am so sick of pain patients going through this rigmarole because addicts have taken over the truthfulness of true chronic patients. It just saddens me.

I’m going to have some ice cream. I have been thinking about it since leaving the Square. Until later…

when you want a burrito but GrubHub is too expensive…

When you want a burrito but GrubHub is too expensive

I had a peanut butter and jelly sandwich when I got up around noon. I made coffee afterwards and had a butterbeer cookie that I made. It was good but now my tastes are turning towards Mexican and I want a burrito. Unfortunately, GrubHub was too expensive and I wasn’t sure what kind of meat “Muchaka” is. I wasn’t going to pay $30 for two items when I can get more than that at Chipotle. So in an hour, I will go to the Square to get my burrito fix.

It’s kind of good that I will be going to the Square because I can get some ground beef to make my dirty gravy on Monday. I would make it tomorrow but I am going to my Aunt’s house and I just don’t have time. My mother just made a gravy but she froze most of it. I really would love to have penne pasta with my sauce.

I’ll probably got to Starbucks to write after I eat. I still haven’t showered and I really don’t want to. I just feel really blah and my foot/ankle is a mess. It’s really bothering me so I know that standing is going to be painful. It most likely will exhaust me so I will try and take it tonight so it might help me sleep. I had a shitty sleep last night, waking up in the middle of the night and not being able to go back to sleep.

This month is Pride month and I so want to tell my mother I am trans. Monday I plan on talking to my therapist about going forward with transition. I am just afraid my mother will flip out and kick me out of the house. I know that is my fear and there is a 45% chance she would. I am just afraid it will further strain our relationship. I am just tired of being called “her” and “miss” or “missy”. It just hurts and drives my suicidal drivers.

More later…