Tag: CES

Random 215

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, depression, mood disorders

I woke up around 0430 and didn’t go back to sleep till around 0800. I had breakfast. After breakfast I took some pain meds and an Ativan to get back to sleep. I also took some Neurontin. That was my downfall because when I woke up, I really didn’t want to get out of bed. I had wanted to go to Starbucks, just to get out of the house, but I needed a shower and it just wasn’t happening. I was too groggy. I made coffee, hoping that would give me more energy but it made me sleepy. Or it just wasn’t strong enough to override the need for sleep.

I called my PCP’s office to see if my prescription was ready. It was but wasn’t. No one printed it out for me to pick up. That would explain why I never got a phone call saying it was ready to be picked up. I hope to pick it up tomorrow either before or after my appt with my psychiatrist.

After that, I called my mother to see what she was doing for dinner. She was going to heat up some lasagna from Sunday night. No thanks. I ordered a burger and onion rings. I waited an awfully long time for it to be delivered and the food was not as hot as I wanted it to be. Plus, they were very skimpy on the onion rings, though they did put some in the burger. That was weird as they never did that before. I still ate it and it’s probably going to be the only thing I eat today.

I am going to try and shower after I write this. My ankle is giving me grief so I am not sure I can just say fuck it and shower anyways. That usually has dire consequences. I am running low on my pain meds because it’s close to the end of the month so I can’t afford to take “extra” meds to quiet down a flare right now.

Last night was torturous. I had really bad pain, which began around 2 in the afternoon. I took my strong pain pill and then hoped for the best. Around 10 PM, the pain was still there and worse so I took another pill. While waiting for it to kick in, my ankle went berserk on me and I did, too. I got this band feeling around my ankle and that triggered my PTSD. I was flipping out I was going to get CES again. I tried to calm myself but the anxiety took over and I was very, very scared. I called my psychiatrist and had her tell me I wasn’t getting CES again. That seemed to calm me down some. I stayed up till around 1 am. I got hungry so I had something to eat around 0030. After eating, it seemed to settle me down so I could sleep for a few hours. I knew my sleep was going to be bad because I had taken two strong pain pills within 24 hours. It happens every time. I don’t know why.

I need to go out tomorrow so I will be going to Starbucks. I need to see my psychiatrist because I need some refills. Actually, all my psych meds need refills on them. I hope she has had better luck trying to find a therapist than I have. I’ll find out soon enough.

Blizzard on National Pi Day

by Midnight Demon, posted in Bipolar Disorder, blogging, cauda equina syndrome, chronic physical pain, depression, mood disorders

Blizzard on National Pi Day

We got some snow this morning when I woke up in pain around 7. I went to the bathroom and then checked the conditions. It was barely snowing so I thought that was going to be it. I was wrong. Two hours later it was really coming down and the wind hasn’t stopped howling. We usually get a drift by our back door on our porch. Now it’s towards the wall as that is where the wind is pushing all the snow. Most of the shingles are covered in snow on that side of the house. It’s really cold and of course our heating system isn’t working right. My brother in law had to tinker with it so I am freezing in my room.

I haven’t been in a great mood most of the day. Suicide has been on my mind for some reason, though I don’t feel really depressed. I got a call from a therapist who referred me to another therapist. I will google her later. I am not up to searching for therapists. I have to get the spelling of her last name though so I might so a reverse lookup with the phone number he gave. He also didn’t specify what degree she was. Not that it really matters. You don’t need a PhD to be a good therapist.

My sister invited us down for dinner tonight. She is making lasagna. Not one of my favorite dishes but I will eat it to be polite. My mother is making a coffee cake and some asparagus. We have no idea how the asparagus came to us as she didn’t buy it. It was just put on the kitchen table. I know I didn’t buy it because I don’t buy vegetables. I always get yelled at because they are either poor quality or I spend too much for it. I have no idea what to look for when buying so I just leave it to my mother. She has to cook it anyways so better she buy it.

I took a nap after I had breakfast. I was dreaming about Richard Gere for some reason. If I was straight, I would be so after him. He is so handsome. But it wasn’t that kind of a dream. We were working together doing something though I don’t remember what. I woke up from the dream and wanted to make coffee. I was congested so was coughing up stuff and gagging on it. It was making my mother cold because I was just in a T-shirt. I didn’t care. It was cold in the kitchen and my brother in law was inspecting the heat. He says it’s on but it doesn’t feel like it is. The wind is making the house feel much colder.

Boston already cancelled school for tomorrow. I haven’t heard anything about my city. I won’t be too surprised because if Boston cancels, usually other cities and towns follows. It was good that not too many people were on the roads. The Lt. Governor showed a video of a semi wiping out on the Zakim Bridge. If there were cars in front of the trailer, they would have been smashed. It would have been a bad scene.

I have been following the Zero Suicide chat on Twitter that is going on in Missouri. One of my friends is tweeting about it and is being totally hysterical. It cheered me up some.

Despite having coffee, I still feel tired. My mother just called me to say that dinner is ready if I want to go down to my sister’s. I told her I would after I finish this blog. A lot of people have been reading my “Knackered” blog today and been commenting on it. It’s one of my most read blogs and I am very proud of it. It is also a chapter in my memoir, “Midnight Demon”. It makes me feel good to know that it helps people know that they are not alone with Cauda Equina Syndrome and its affects. I usually share my Facebook group or the website for the private Yahoo group. Some people prefer one or both to get support. I should probably create a support page but most people don’t read my pages unless it brings them to them via a search. Or they are just exploring my blog. I have a few CES pages up.

Sunday Blog 24

by Midnight Demon, posted in Bipolar Disorder, blogging, cauda equina syndrome, chronic physical pain, depression, mood disorders

Sunday Blog 24

I didn’t get much sleep last night. I was up till 0400 or so. I couldn’t settle down because of pain and then my anxiety shot up because I was in pain. I had to take another Ativan to get to sleep. I felt like paging my psych but I knew she would just tell me to take an Ativan and try and get some sleep. I slept most of the day, though I was up in the morning. I finally had a BM, though now I am scared because when I woke up I took two more fiber pills before I went. That could be trouble.

I participated in BPD chat this afternoon. It was good and I got a couple of new follows. I don’t know if I will chat with these people but whatever. Lately my tweets have been centered around my pain issues more than my mental status. I have a friend on Facebook that wants me to try some lotion that she found on the site. I am weary because they don’t really work the way they say they do. Then you are on their email list forever.

I talked my mother into making pancakes for supper. It made me happy. I love her pancakes. They are just regular ones, not the kind I make. I think she double batched the recipe so she can have more to save for later. I got hungry afterwards despite have six pancakes. I really haven’t eaten anything all day so I am making up for it now. I had the leftover Chinese food from last night.

Pain has been up and down for most of the day. I had to take some pain meds when I woke up from my nap because I was really hurting. I woke up with a headache that I am still trying to make go away. I am not sure it is a migraine or not. But it is annoying me.

I emailed my psychiatrist late last night. I thought she would respond but she hasn’t yet. I really need an appointment with her as I need refills on a few of my meds. Actually, all my meds that I take for psych I need a refill on. I also want to ask her if I could take my BP pill as a PRN for when the PTSD gets activated rather than always using Ativan to calm me down. Ativan works, don’t get me wrong, I just don’t want to be dependent on it.

I got to take my meds soon, but first I need to fill my box. I meant to do it earlier today but never got around to it. It’s like if I don’t do things when I first think of them, they just don’t get done. I should have done it last night while I was up so damn late. I am just glad I didn’t turn suicidal. The pain was manageable but it was still causing me anxiety because my last three toes are numb. I couldn’t feel them when I touched them. That would explain why they feel “weird”. I don’t know why they are numb all of a sudden. I am not having any other symptoms of CES. I can’t move my toes on that foot because of the nerve damage I suffered. It’s worse now with the pain syndrome. The numbness really set off my PTSD and it took forever for me to relax and realize I didn’t have to go to the ER or have surgery or anything else that was running through my head at the time. It’s scary stuff going through something so life changing. It haunts you. If I didn’t have a time bomb of all herniated discs in my back, I wouldn’t be so worried. But all my discs are herniated and that is cause for concern because one wrong move or fall or something can mean more surgery and more nerve damage. I really don’t want that to happen to me. I think if I got CES for the third time, I would kill myself rather than go through a rehab process again or try to learn to walk again. Twice was enough for me.

too much pain and no sleep

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, depression, mood disorders

Too much pain and no sleep

After the game last night, I couldn’t settle down right away. I was excited and kept reliving the touchdown over and over in my mind. Then my pain flared up. I took some meds and thought I would be asleep soon. Sleep never came. I was up most of the fucking night. Soon as I got my ankle pain under control, my toes started so I had to take more meds. It was a vicious cycle. It didn’t help that my PTSD anxiety got activated. That just made everything worse.

Before I knew it, 0200 hit. That was it. I was up for the night. And I was. I didn’t go to sleep until I took a Benadryl. This was at 0600 or so. Then I wake up 3.5 hours later. Great. I stayed up till 1330 and then fell back to sleep again. I still don’t feel rested and I just took my night time meds to try and get ahead of the game. I am really tired.

Because I was catching up on sleep, I didn’t do any errands today. I had to go to the bank and the store to buy more half and half. I also want cocoa puffs. I guess I will try tomorrow if the weather isn’t too bad. We are supposed to get snow with freezing rain. It might just be rain, who knows.

I’ve been feeling really depressed most of the day because I had such a horrible night. Being up all night really sucks, especially when you can’t calm down because your anxiety is getting the best of you. Or the slightest move you make hurts you like a SOB. Last night I couldn’t win for trying and it really got to me. I really was thinking of a way out. I started writing in my journal. I just wrote until I fell asleep, basically. It was all I could do to get the anxiety out and the thoughts under control again. Tomorrow is my 16th anniversary of my nerve condition, Cauda Equina Syndrome. That is when all this hell began. No matter how many time I tell myself that I am NOT getting CES again, my body goes into panic mode and I can’t calm the fuck down. It really sucks when you can’t move because that doesn’t help the case.

There really isn’t anyone to talk to when it’s 0300. Not too many night owls to distract you. So you are stuck in your own world until the meds finally exhaust you or you are just plain exhausted and collapse. I really wish I slept longer this morning. I could have done at least one thing like go to the store for the half and half. I could have had my coffee and maybe the day wouldn’t have been a sleep day.