nerve pain sucks

I woke up this morning and it felt like my little toe on my nerve damaged foot was cutting into my other toe next to it. It was really hurting but I just cut the nail so I knew it couldn’t be the cause. I was feeling kind of crummy and decided to shave my goatie off as it was annoying me and then take a shower. Whatever was causing my toe to hurt, was worse when my foot hit the water. As much as the shower felt good to the rest of my body, my toe hates me now. I asked my mother to look at the toe as I can’t bend down to see it nor have the agility to look at the stupid thing thanks to four back surgeries. She said that it looks like I have a blister forming or a corn. Great. Now I just have to wait and see what forms and what kind of pain I will be in over the next couple of days.

I hate having nerve damage. My toes are extremely sensitive because of the after effects due to Cauda Equina Syndrome. I got this syndrome more than ten years ago and I am still dealing with it. I hate waking up in pain or staying up in pain almost every single night. The doctors have nothing to do for me. I just take pain meds and hope for the best.

I really am tired of dealing with the nerve pain. Everything intensifies when I try to touch my toes. Cutting my toenails are the worse. I have to wait till the nerve pain is down to a minimum in order to get a hold of my foot to do the deed.

This leaves me very depressed. I miss my old self where I could do the things normal people take for granted. Like taking a long hot shower, taking a long walk, or just standing for more than ten minutes. I have since my original diagnosis have another painful diagnosis of CRPS, Complex Regional Pain Syndrome. This is fun (said with severe sarcasm). My toes and foot become as cold as ice and then when they warm up, I am in such severe pain all I can do is think about death.
Not only is physical pain exhausting it drags you down mentally. You feel like you are a loser because you can no longer do the things you once were able to do.

I hope my pain is not going to be exhausting tonight. I am hoping to catch a nap now as I am overcome with exhaustion just from taking a shower. I hate when that happens.

ramble 56

Tonight will be the first week without baseball. I already miss it. I know it will be back in 90 days or so. But how can you go from watching 170 or so games to none? The experience is depressing.

I tried my hand at editing again today. It made me depressed reading my life and what I wrote. So I deleted a lot. I know it was probably wrong but oh well. And then I came to a part that made no sense what so ever. It was like some blogs got smooched together or something and that is probably what happened. So more editing is in my future. But I am glad I got some of it done today. I am thinking of adding the blog I wrote the other day, hodgepodge of blogs, to the book. It has helped so many people in my blog and the AAS so I feel that it is necessary to get the word out. Think I will put it in where I emptied all the other junk.

I keep having dreams that my book is going to be super successful and then I have moments, like now, that feel that it is going to be a flop. I might be ok for the first few months but I don’t think it will after that. Oh author’s doubt is high today.

My suicidality is a little lower today. I am still angry at my therapist and appreciate the feedback I got back on it. Maybe on of these days I will stay on the national hotline long enough to see if they will help me. Samaritans doesn’t seem to keep you on the phone that long. Course the last time I called was years ago, though I have called the National Hotline (800-255-TALK) a couple of times. The hard part is waiting on the line when you want someone to pick up. I guess they are routing your call to the nearest call center or something but it still sucks. I found that texting is better. There is a text number 20121 and you just text 121help. I find that better than talking to someone sometimes. Most of the times I just talk to my blogger friend or another friend or blog. Blogging has been the most helpful to me because I get to express what ever I want to say without being judged by anyone. I might not get any likes or comments or both but least my thoughts are out there. Sometimes it helps someone because they are going through the same thing. There are days I don’t get a response to something but then I do and it validates what I feel. And I think that is the important thing.

My pain levels are scattered today. I woke up with my left calf muscle feeling tight. No matter how many times I tried to stretch it today it just won’t get lose. I should try a hot pack on it or something. I plan on kneading it later. Sometimes it is tight because I have little knots in it.

this is the story of my pathetic life with depression and chronic physical pain

I had a very distressing session with my therapist. She was all freaked out that I had thought of a clever plan to end my life. She didn’t like it one bit to say the least and I get another session tomorrow. OH JOY. I don’t think I can contain myself, not!

I started reading her the post I wrote yesterday. I think I might have gotten through the second paragraph crying and then I couldn’t finish reading it as I was sobbing so much. Funny how I didn’t cry when I wrote it. Weird, actually. I guess what I write does have feelings even if I am unaware of them.

I didn’t get back to my writing friend yesterday. I was too exhausted and drugged up to write an email. I don’t even know how I mustered up the blog. I didn’t write the blog in word like I usually do. It makes it easier in case there is a glitch somewhere and I don’t have to start over because of it.

I went out today but I didn’t shower or brush my teeth. I just threw some clothes on and waited for the bus. I wanted a cheeseburger really bad so went to the Joshua Tree and they had one with avocado! I loved it. I didn’t like the fries. They were way too oily. But the burger was everything I was looking for even though my taste buds didn’t appreciate it. It will sustain me for a day or so. I don’t think I will eat anything else today. I had my coffee that tasted like shit. I drank half of it and threw it away. I felt bad doing it but I knew that if I tried to finish it, it would come back up on me. As you can probably tell, I haven’t been eating or drinking good. I planned on buying a case of water for my room but forgot. I know I am dehydrated because my lips are severely chapped. I just can’t keep up with the fluids. And besides, more fluids means more leak accidents. I rather stay retentant.

I am craving a cup of chamomile tea so I might make that later. I really feel like I am stuck in a mudslide or cement or something similar. It take me forever to walk places. I feel like everything is uphill even if it is not. I don’t get out of breath or anything like that. It is just a struggle to walk, even with the pain I have been having.

I feel rotten that I can’t try my plan to kill myself today. I know now that it probably would not be a great idea. My bed would probably try to come with me even though it weighs more than I do but who knows. I am bad with physics and things and would probably end up strangling myself just enough to lose consciousness and someone to find me in time.

Because I am still going to be here thanks to my terrible therapist, I ordered my groceries to be delivered tomorrow. They are going to come between 730 and 930. Are they for real?? UGH Nothing like waking up early sitting around waiting. But then I can have my nice cold cut sandwich with bakery bread, pickles and chips! Damn I forgot to buy soda! Oh well. I don’t need the calories anyways.

So this is the story of my pathetic life with depression and chronic physical pain.

distress intolerance

Tolerating distress

I have been in a bad mood for the past hour. I have been in wicked bad pain and it has me thinking of ending my life once again. It is after midnight my time and there is no one that I can really call that will really understand what it is I am going through. I tried reaching out to a few people but as it is a late hour, I got no where.

Then I thought about all the DBT bullshit that I have been through and thought I am doing this wrong. What if I am supposed to be feeling the distress as much as it is intolerateable? I don’t know if that is a word but it is the closest thing that I can think of to describe what I am feeling. The thinking is that if you tolerate the feelings you are better off. I am not sure how. Feeling this way sucks and all I want to do is get rid of it. I mean I am feeling this way only because my foot is killing me and there is nothing I can do except wait for the pain medication to kick in and give me some relief. Listening to my favorite playlist is helping me. I listened to Laura Branigan and her voice always soothes me. I thought about writing in my journal but I am not up to putting pen to paper just yet.

My AAS blog was just published and it started off with today I am in distress because I wanted to kill myself. Why am I still alive when I want so badly to be dead. I just can’t go through with it and it is killing me, being alive, and suffering so much. I know that if I were a dog or cat, I would have been let down already. Funny how we are more humane to animals than we are to humans. The reasons are many and I won’t get into it because I am just not sure it will help me calm down. Anytime I talk about hurting myself I get riled up. And when you throw in that humans suffer because it is, well, expected, it just pisses me off. Would you expect a person dying of cancer to suffer?? Or Parkinson’s disease or any other terminal illness? That is what irks me so much, I have a non-terminal illness and am expected to suffer and go about my life like it is not weighing me down. I hate being like this. I cannot tolerate it. So the hell with the distress intolerance bullshit. It is not helping me just making me wish that I was dead all the more.