finding care in the off hours

Last night I was in the throws of pain again. But my thoughts didn’t immediately turn to darkness Like they normally do. I wrote an email to my pdoc about what has transpired during the week and that I haven’t been faithful in taking the increase in my mood stabilizer for reasons beyond my control. Mostly because I have been driving and I don’t want to be drowsy behind the wheel. I also asked her if there was a hotline number she knew of to call in times of distress. She gave me one.

This all lead me to thinking maybe I should have a blog about this important issue…finding care during the off hours. For most people in therapy, when they are in distress after hours their and before their next session is to seek help in the local ER. This can be costly, as copays have more than doubled to deter such visits. But for mental health, there should be an exception made as there is really no other place to go while in distress. I understand that the cost is higher because care is more urgent and is most likely is trying to ward off unnecessary visits. But when you are in crisis, how can that be unnecessary? For the mental health field, there are no urgent care centers to go to in distress. It’s either you see your therapist or go to the ER (Emergency room). There is no in between. SO what are you supposed to do when you are somewhat distressed and cannot wait till your next visit with your therapist?

There are self-soothing measures. You take a bath/shower, read, journal, brush your hair for 100 strokes, eat something, etc. But when all is said and done, and you still feel terrible, then what? Most therapists have some kind of plan in place, or should be able to give you a hotline number such as Lifeline 1800-273-8255 (US only) or the national hotline number 1800-784-2433 (US only). I have tried calling the Lifeline hotline but have never been patient enough to wait to get transferred to someone. The other number I have not tried. There is also a text # 20121 and you text 121help. I don’t know where I got that number from but when I tried it the other day, it didn’t work. I never got connected to anyone, but that might be because of the hour.

There are chat groups, I am told, where you can discuss suicidal feelings and not be “punished/banned” or turned away. Unfortunately, I do not have that URL to share as I have not looked into that chat room. But when you are in distress, are you really going to google something??

There is something called a Crisis Response Plan that I sometimes use when I am in distress. UNfortnately, the last few times I have been in distress, all of the self-help went out the window and I didn’t use anything. I just ruminated about what I was going to do. It’s not perfect trying to save your life when you feel like ending it. I was not in the frame of mind to seek help.

Therapists think that a suicidal person always calls for help when in crisis and that simply is not true. Most clients become impulsive, wants to get rid of the negative feelings NOW and are in my experience, not likely to reach for help.

For me, writing has helped but not everyone has that option to them. I will blog my distress and might be fortunate to have a few bloggers comment to show support or to chat. But that doesn’t happen all the time. Most of the it’s hit or miss. My frequent blog readers might not be online at the time of my post and so not get it.

Sunday I participated in a chat that was for crisis intervention and I learned that there was a crisis text chat available. The intervention was either through chat or text message. I am going to looking into using this the next time I am in distress or when my mood goes south. It’s not always easy to think of these thing when your mind is thinking of ending your life. To use a DBT term, you just cannot tolerate the distress because it is unbearable.

I have been trying to identify when I am in distress so that I can reach out for help but it’s not so easy. The last few time I have used distraction or music to help me out of the intolerable feelings. I also will write in my blog or my journal but it seems like all bets are off if I am in intolerable physical pain. Chronic pain mixed in with getting my menses and dealing with it has been difficult this past two weeks. The waiting for pain medication to kick in is sometimes not fast enough to deal with mentally.

I wish there was some help I could have regarding physical pain and lethality but there are few pain specialists that deal with mental health issues and fewer still, psychologists that deal with pain issues. Even crisis help lines don’t know hot to deal with physical pain that is behind suicidal ideation. In a perfect world, you would like to see someone that is well rounded in chronic health issues and suicidality. Unfortunately, I don’t think they exist or they may just be too far and in between to help the greater good.

When I was being evaluated at my local pain clinic, I saw a pain psychologist. His job was to help me deal with pain. But he didn’t offer me an real advise the first time meeting him. I would have to set up a series of sessions with him but unfortunately this happened when I lost my car and he is too far out to see. If I saw him with public transportation, it would be a two hour commute, both ways.

The hardest part of being alone with your thoughts is that you are left to your own devices before the next session or when office hours are available. I wish there could be urgent care centers that are specific to mental health issues. Because not all crisis needs to result in a hospitalization. Sometimes just talking with an understanding person is the best treatment mental health professionals can provide.

Mr. Hyde and nerve pain

I have been thinking the past few days. Yes that has been the smoke that has been circulating in the air in Boston. Apparently on Tuesday in the throws of another pain episode I was barely aware of, I sent my therapist a text. It said that I cannot go on living like this, with this level of pain. I have no recollection of sending it. I knew I sent it because it is my phone but it sounded more of Mr. Hyde. I have been trying to wrap my head around Hyde. He likes to come around at various times and sometimes I can “catch him” and other time he alludes me. But I am cracking down on when he is likely to occur. When I am deeply hopeless, suicidal, and in severe physical pain. All three must be present for Hyde to emerge. The sucky part about this is my safety because Hyde want to die. I wasn’t in danger of dying, as far as I know, Tuesday but I could have. I just wanted to sleep, and fairly succeeded on doing that. I also have to be in a sleep state to bring Hyde out. He is more likely to show himself while I am overtired. Like I am now.

I just had zaps go through my foot. Just imagine the shock you get when you place your tongue on a 9 volt battery, minus the metallic taste and you have the zaps I get in my feet. Sometimes they are stronger than a 9 volt. And they jolt me awake, like tonight. I was ready to turn in but my PTSD symptoms (hypervigilance and anxiety) have taken over. It is going to take another Ativan to calm down. Hyde doesn’t like Ativan too much. It makes me really sleepy so I do sleep. It doesn’t cause me to do other weird stuff like Neurontin does. I know that I am not having another attack of CES and that things will be ok but in my head, I am “excited” and fearful of when the next zap is going to come. Usually if I stretch out my legs, it makes it worse. So I have to sit with my legs up so they don’t get zapped. And there is nothing I can take for it. The zaps come and go as they please. They don’t last long enough for me to take anything, but boy do they cause havoc!!

I am listening to Luke Bryan. He has some really good songs that I love listening to over and over again. He has that southern voice that I just love. It can be a fast song or a slow one and I just swoon over his voice. It’s not relaxing like Mary Chapin, but it will do.

I really need to go to bed soon. It’s after midnight and I need to be up at six. I need to take a shower and get ready to take my sister’s car. I will need a large coffee to help my mood. The good thing is that I don’t need to rush because I don’t have to pick up my father till 830. I then have to take him for a blood draw for his Coumadin test. He doesn’t know it yet but he will.

Well, I think the zaps have settled down some. I hope I get some sleep tonight. Or tomorrow is going to suck…

Suicidal thinking

It’s finally a nice day, at least seventy degrees out. It is making it warm in the house. I am watching the Sox game. I had spent the afternoon with my sisters for Mother’s day and then retreated back upstairs. I am still feeling really tired, even though I had a good sleep last night.

I had a rough night. I was in severe pain. It was not unbearable but it was more annoying me than anything because it was the third night in the row that I have had to deal with this pain. I texted my therapist because I was feeling really suicidal about it. I just didn’t want to deal with the pain at all but what choice did I have? I couldn’t chop my foot off as much as I would have liked or downed my pain medication like I was thinking about. I guess I am lucky that my pain medication has Tylenol in it because if it didn’t, I probably wouldn’t care. But I don’t want to lose my liver and die that way. Plus I probably would never be on any pain medication ever again if I did OD on my meds. That is something that I take more serious and I don’t want to lose that ability.

Dealing with my menses have just made dealing with pain that much more intolerable. I just am very grumpy and the slightest thing annoys me. I just can’t seem to tolerate things I used to tolerate, my annoying pain included.

Little things such as my pain can set off suicidal thinking. It is extremely hard to pull back when you are annoyed. I am trying to better identify this and to seek help so that I won’t make an attempt on my life again. In the ideal world, most therapists would like clients to call someone when they are on the brink. But rarely does this happen because of hopelessness. You just think that no one would understand what you are going through. I once texted a crisis line that I was thinking of overdosing on my medication. Instead of dealing with the idea of overdosing, they decided that I should talk to a nurse to see if it was safe to take another dose. HUH??? I have all but given up on calling for help when I need it.

Sucky day

Not having a good day. My pdoc’s schedule was all messed up so she was almost 30 mins late to see me. I felt like leaving but I stayed anyways. I asked her multiple times if I was a waste of her time. She said I was projecting. A nice psych term. It basically means I am putting my feelings (being a waste of time) on to someone else. She wants me to consider going in the hospital but there is no way I can. I have to take my father to his numerous doctors appointments this month. Next week is a double header so there is no way for me to go in. Plus all they will do is babysit me. I refuse to go to groups because they are useless. I never get anything out of it and the group leader (who runs most of the groups) is an idiot. We constantly butt heads. She is very condescending and I don’t like her.

I texted my therapist about this. She also wants me in the hospital. But then she knows that I am feeling really bad if I want to stop therapy. I also told her that my pdoc increased my mood stabilizer so hopefully that will help. If I remember to take it. I won’t be able to take it while I am driving my father around the world. It makes me sleepy sometimes.

I also put in a call to my repro endo doc because my fucking menses showed up last night. I am so mad. With all the technology that this world has, why is it so difficult to stop a menstrual cycle?? At this point, I am seriously thinking of a hysterectomy because what the hell do I need it for anyways? I am not going to have kids this late in my life, not like I was waiting to have them anyways. I never wanted to have children because I don’t want to pass on my depressive genes.
Saw my PCP and it was determined that I have a yeast infection under my arm. FUCKING great!! Now I really have to shower every day. I was really hoping it was just a dermatitis thing and would go away with some cortisone cream. Nope. UGH. Today is not my day.

My mood still sucks. I just want to die. Told my pdoc today that I just don’t have the energy to kill myself. I don’t have the energy to do anything. I just want to hibernate, which, if I go in the hospital, that is all I will do anyways. They don’t force you to go to group. I will just isolate and be by myself. And it’s not like they will start me on an antidepressant. My pdoc would if there was one out there for me. I hope increasing my mood stabilizer works.

I am supposed to pick up my niece tonight. I really don’t want to. I want to keep my foot up because it is hurting but I told my sister I would. I am just so tired. I had two doc appointments today. Then was standing in line forever at Walgreens, in my AFO. I hate standing too long because there is no cushion, just plastic so my foot hurts. I won’t wear it again when I pick up my niece. It’s already swollen so I probably will make things worse trying to force my foot in boot.

Did I mention my mood sucks? My pdoc thinks it is because I got my menses. I have to deal with them for a week. I am not happy about this but it’s the only course of action. I have to stop the pill for a week and then restart it. Might as well do that today and then the following Sunday, restart it. So not happy about this. Another reason why I need to shower every day. I have to tonight because I just feel gross, even though I took one yesterday. I need to buy some nice smelling shampoo to motivate me to take a shower. I think that might help. I really hope I don’t get cramps. I usually don’t, haven’t in a while but I still have knots in my stomach because of constipation. I still haven’t found a regimen that regulates me everyday. It sucks. And soon as I find something that works, I forget to do it every day. I am my own worse enemy. I know that if I were to go in the hospital, my meds would be given to me and I wouldn’t have to dish them out every night. That would be the only benefit of going on the hospital. I also wouldn’t have to worry about what to eat. Meals would be given. I wouldn’t have to cook some thing for myself. The food is not that bad.

I have been thinking about writing another paper. I was talking with my therapist yesterday about it and I wish I was writing down what I was saying. Now I forgot. It will be about different suicide theories. That is all I will say for now.