Tag: complex regional pain syndrome

bored to tears

by Midnight Demon, posted in blogging, chronic physical pain, depression, mood disorders

Tonight my mother will be making fish. I saw the heads and tails were still on them. I won’t be eating that tonight, because ewww. I know that is how they come but her having to dissect them just freaks me out. And it is tilapia, which I don’t particularly like anyways. It’s a very thin fish that just doesn’t taste very good after it’s been thawed out. I’d rather have cod or haddock.

I have been pretty bored today. And my foot is a jerk. Just when I wanted to take a shower to go out, it starts hurting really bad. All I did was move it a little bit and it explodes in pain. I had to wait for pain meds to calm it down some so I could shower. By the time I was done showering, my hip went on strike. I give up. I guess I am not going to go to Walgreens to see if they have the new Oreos S’Mores cookies. I will try again tomorrow.

I was looking for a photo mailer to mail a pic for a friend. I have been meaning to send it to him and I just came across it. I failed to find it, which is why I wanted to go to Walgreens, too. I need a couple of mailers as I have some stuff to send out. Why must pain always dictate what I do? It totally sucks. And seeing that I am incapacitated, I decided to write a review for a research article I came across while looking for the mailer. I must have at least three copies, if not more, of this article. I thought it was a good idea but then the pain meds turned my brain to mush. Now I can barely write this blog. I am kind of blunted in my thinking patterns. It also doesn’t help that my vision seems to be impaired. I have been having a hard time focusing today for some reason. I really think it is because I have been solely using single vision lenses for the past month and not my progressive glasses. I can’t wait till next week when I can order them. I really hope that they can make the lenses out of the existing frames that I have. I really don’t want to buy another set of frames. I have too many old pairs of glasses laying around my room. I am also hoping that if the glasses don’t cost me that much, I can get a new phone. My phone keeps acting up and it’s pissing me off. Yesterday my therapist was calling and it took four rings for the stupid call answer button to come on. I am just glad it didn’t go to voicemail by then. Usually the call answer button comes on before the number even registers but this time it was the reverse. I am so done with this phone. And if I can’t use it as a fricken phone, what is the point of it?? My therapist was kind of in distress last night. She doesn’t know what she did, but she erased all my text messages that I sent her. She was literally panicking when we were talking about it. I kept telling her it was ok, that I am sure it’s there but hidden some how. After we talked, I sent her a text of my latest short story. She said it was the only text from me. OOPS. I think she needs another phone, too, but that will give her super anxiety. I find it funny and I do laugh. She is just so anti-technology, I just don’t get it. I mean, I use my phone for emails, texts, Twitter, Facebook, and the main thing, a phone. She just uses it for texts and phone.

I am going to write the review for that article. It will be another blog post and I will share it with my therapist friends on Twitter. I haven’t written a review in some time and it will give me something to do. I have written about this article in other papers that I have written, but never solely on this material.

I thought about editing the blog I wrote the other day but didn’t. It just seems like I don’t have the brain power to get my thoughts coherent enough to put on paper. And it’s very hard to write when you have a foot that explodes just because it feels like it. Also sucks when you stand up and your hip decides to go wonky. I hate being in pain all the time, every single fucking day. It just takes so much out of me and I end up doing nothing. Then I am bored to tears. I just want to give up. Just take my life and end things so that I won’t be suffering anymore. Because me not even being able to write because my brain turns to mush due to the medications I have to take to control my pain, just sucks.

Pain and suicide

by Midnight Demon, posted in Bipolar Disorder, cauda equina syndrome, chronic physical pain, depression, suicidality

I started off my day in pain, around 0400. I hate waking up in pain. I stayed up for a little while and finally gave in to taking pain meds around 0800 when I just couldn’t take it anymore. I texted my therapist and she gave me a time for today. I really need someone to talk to. I feel like I am losing my mind with this loss of sleep. I went back to sleep after I had breakfast and the pain meds kicked in. I had weird dreams about my psychiatrist. We were on a boat and she wanted to give me a cortisone injection in my hip. That was the first dream. The second dream was also on a boat but other than that, I don’t remember much. What was weird, is that when I woke up, my hip was hurting me. I think I need to go back to physical therapy to get it looked at. It has been bothering me for some time now, since November of last year. I sneezed and pulled my back out. It took me a month to recover and then I sneezed again right before Christmas and took it out again. I have been limited in what I can do. Today I walked to Walgreens which is only a block and half from my house. By the end of the block, my hip was in agony and I didn’t think I was going to make it but I pushed through. It got a little better by the time I reached the store. I only went in for a couple of items and by the time I reached home, I was still sore. I haven’t done any lifting or sneezing the past few days so I am not sure why my hip is bothering me so much. I know it’s muscular because if I rub where it hurts, there are knots there. I just hope that it’s not the beginning of getting my nerve condition again. I have no other symptoms, like radiating pain down my leg or increase in loss of my bowels or bladder to make me think I am in trouble. But the thing with CES, Cauda Equina Syndrome, things can escalate quickly and without warning. The main reason I don’t want to make a fuss about it, is that I know most physical therapists don’t understand nerve injuries. Yes, muscle pain is common in back injuries but my back muscles have been injured because of nerve damage. That is why my hip goes out when I have a horrific sneeze attack.

My foot still hurts. It has been hurting more since I came back from the store. I can’t stand that I am still having trouble walking after all this time. Last night, I had swelling, severe pain, and the veins popped out in my foot. I don’t get how this is not CRPS, Complex Regional Pain Syndrome. I know the skin changes are not that drastic. But then when I see a doc, I don’t have the worse pain of my life. I might be a 3-5 on a scale of 1-10 when I see a doc. What annoys me is that my PCP doesn’t believe that I have this condition, even after three doctors have told me I have it. It just makes me want to kill myself in frustration. Severe pain always brings out the suicide part of me, not like it isn’t already there to begin with. The pain just gives me the little push I need to think about it more. I just feel trapped. I know that if I kill myself, more than 115 people will be crushed. The people most devastated will be my family and psychiatric team (therapist and psychiatrist). It is this reason why I haven’t attempted. I think that if I had a place to go to, I might be more willing to try. I don’t want to kill myself at home because I don’t want my family to find me like that. But I can’t afford a hotel room and I can’t risk someone finding me in a public place, like a park or something. I can picture myself going through with any of my methods that are running in my head, but I just don’t have the guts to actually go through with it. I am pathetic.

Cinco de Mayo 2015

by Midnight Demon, posted in Bipolar Disorder, cauda equina syndrome, chronic physical pain, depression, mood disorders, suicidality, suicide

Cinco de Mayo 2015

I got my S’mores frappucino with a shot of espresso. I had to have a real caffeine kick. I didn’t think I was going to go out because all the stuff I took for my bowels suddenly worked, all morning, for me. But things settled down after lunch and I was able to go out.

Had therapy and my therapist doesn’t remember reading the blog I sent her last week. The part she did remember was the nest part, which to me is similar to a hope box. She didn’t call it that and said she wanted to have things remind me of how important I am to people and such. It’s hard to do that when I am still in an environment that doesn’t fully support me in my illness. Today, I told her that my mother made me feel bad because I don’t do things “useful” around the house. My mother wanted me to put her breakfast plate in the sink to be “useful” and it made me upset. I don’t get why my mother has to be mean to me. I feel that giving her half of my paycheck every month to cover the bills of the house should let me live here, too. I just don’t get it.

I got really angry today so I posted on Twitter my feelings. A fellow CES sufferer saw a doctor today for her disability claims. He discounted her having CES, Cauda Equina Syndrome, saying she HAD CES, but once you have surgery, you no longer have it. That infuriated me. Infuriate is my word today as I have used it several times. I don’t get how a doctor can say something like that. If she had a stroke, the result would be the same. I just don’t get it. I really don’t and the more this happens, the more I distrust the medical profession. To me, despite their high degree, are all bozos, unless proven otherwise. I have yet to find a doctor that helped me with my ankle. No one wants to believe that I still have nerve damage in it. That the weakness is just from tendonitis. Just pisses me off, big time. So I have to take pain medication to quiet the pain. Normally, tendonitis heals with rest and therapy. I have been resting for three years now and I still have flare ups of pain. And no one can tell me why I am in pain or why my ankle swells up and all the veins in my foot pops out when I am in severe pain. Course, a doctor has yet to see this happen because it only happens in the after hours, late at night with the pain so bad I want to kill myself. It doesn’t flare up during appointment hours or even during an appointment. I am hardly in pain during the day, usually. But after seven in the evening, almost every night, the pain will rise and if I don’t start taking pain meds it becomes out of control. I have been fortunate that lately I have stayed on top of it. I am kind of lucky that I no longer work because if Friday was any indication, I would not be able to walk and stand eight hours a day. I would be in too much pain. Friday I walked more than I should have and paid heavily for it. Only reason I walked too much was because the eyeglass place made my glasses wrong. If the idiot explained to me what he meant by distance, we wouldn’t have had this problem. I still haven’t gotten my glasses back yet. I will call tomorrow and find out when they will be ready. I need them to read Dostoevsky. The glasses I am currently wearing can only go so far and then I start straining my eyes to see with them. It sucks having bad eyesight. I have been wearing glasses since I was in first grade.

My therapist and I talked about the chat that had me upset Sunday night. It’s like, am I smarter than all these clinicians and therapists in this chat when it comes to suicide prevention? I understand they want research and evident based treatment, but the research is there. If I know about it, why don’t they? I don’t get it. I don’t even hold a bachelor’s yet I know what needs to be done for a suicidal patient. Understanding, compassion, empathy, and the client telling his story. Treatment can be DBT based or CBT. I understand not everyone is trained in these modalities. There is a “short” kind of CBT, Cognitive Behavioral Therapy, that seems to help veterans in as little as five sessions. This is from what I have gathered on the internet vines and through the research of Jobes. So why do they not trust these kind of therapies is beyond my understanding. If they are looking to predict a suicide, they will have to wait a really, really long time for that to happen. You can’t predict a suicide anymore than you can predict cancer in a patient. And if this prediction is what they mean by prevention, they don’t understand anything about suicide at all.

Random 347

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, depression

I did a lot of walking today, more than what I normally do. I am hurting, a little bit, but it was worth it. I have to keep on trying to stretch my limits so I can hopefully get back to work sometime this year. I was really tired today but I forced myself to get up and go. I got my glasses and because the glasses were more than the sunglasses, I got the sunglasses free! I only paid for one pair. That is half of what I need. I also need to get the multifocal glasses, which I probably will get online, now that I have the pupillary distance that is needed. I also got a haircut today. It was done by the same guy but he gave me a different cut! This cut will last me a while, though not as long as if he cut it closer like the last time.

I didn’t know what to have for lunch so went to my favorite pizza place and had a slice. Even though I went to Starbucks today, though I didn’t stay to write or even have something to eat. I really wanted to get the glasses out of the way and then go home. I stood way too long trying to find a pair of glasses that I liked. I found a frame that was on sale and got that. The sunglasses selection was not that great. They must have had a few dozen to choose from, none of which really stood out for me.

I am not that pleased that my legs are killing me right now. Other than walking every day, I don’t know what else to do to increase my endurance. It really sucks that I can walk half a block and then my calves cramp up. I have to try and be more active. It’s the only way that I am going to increase my stamina. I think it might also help my mood. But I don’t want to suffer at night with big time pain. That is one thing I don’t need! Because even though I am feeling proud of myself for walking the distances I did today, if I am hurting later it will be for not. I will be really upset with myself. I have to conserve my energy for Monday when I go to the museum with my friend. I don’t plan on doing anything tomorrow. Sunday is my niece’s birthday party. I suppose I will show up for food and snacks, then make a get away.

Took a shower to get the loose hair off of me. It was really hot because my mother had just finished washing clothes. Felt really good though. Now I can go to sleep, hopefully. I was going to make a steak dinner but I don’t think I will. I am too tired to cook. If I get hungry later, maybe I will. I still haven’t made my fish and chips. I probably will make that sometime this weekend.

In a week, I will have new glasses. I hope that I see better. It’s getting tough to read the Idiot because the print is straining my eyesight. I have been reading a chapter at a time to get through the thick book. It is one of my favorites of Dostoevsky’s books. I am glad that I took that Russian class. I have always been fascinated by Russia, the old, not so much the new. The new Russia has been broken up into so many pieces that I don’t know it anymore. Hell, I don’t even know the European geography anymore as so many countries have formed. I would have to take a class to know it all again.

And just like that, my ankle is throbbing. Is it too early to go to bed at 1800? I really don’t care if I wake up later. I just don’t want to deal with this pain today. But I know that I taxed it a little bit more today than any other day. I really hope this doesn’t cause a flare up. My friend has timed tickets to the event we are going to on Monday. It will really suck if I can’t make it because of my bum ankle. I don’t want to get ahead of myself. I just took a couple of pain pills to head off more pain. I really don’t want this to turn into a flare up. Only thing I have to do tomorrow is go to the pharmacy to fill my pain med prescription. But I can do that on Sunday, if I want to just chill tomorrow.