Tag: psychological pain

nobody gets me

by Midnight Demon, posted in Chronic pain, chronic physical pain, depression, psychache, suicide, suicide attempt

Nobody gets me

I had my monthly check in with my PCP (primary care provider) and it did not go well. He didn’t believe the weight I gave him so I had to go on the scale, which I hate. I really have issues with my weight and this bothered me more than usual. The he tells me that I should have a more structured day and be more active. I am like are you fucking kidding me? I am lucky if I take a shower more than once a week and brush my teeth at least three times a week. I didn’t tell him this. I didn’t want him to think I was a real loser. So we talked about getting out of the house and walking around the block at least once a day. I felt like he didn’t get me because some days that is totally impossible because I just don’t feel like it or I am too tired from a night of not sleeping. He then tells me he just doesn’t want to give me pills every month. Well, sorry doc, that is what I need right now. I need to have the pills for when the pain is so bad I want to end my life. I don’t have the pills chances are I am going to make an attempt on my life. Just that simple. I can no longer tolerate my pain being above a 9 on a 0-10 scale.

Then we discussed my weight and I really wanted to get the hell out of there. I hate my weight, I hate my body. I hate it but there is little I can do about it as I can’t walk a treadmill. I could possibly do a bike but that takes every effort to join a gym, which I am thinking about. It will at least get me out of the house. I just don’t know if going for 5-10 mins each time is going to be helpful. I really don’t want to spend that much money for a 15 min workout. I can gradually pick it up but I will be afraid of pain returning. Walking kills me so maybe, just maybe, riding a bike will be easier. I don’t know until I try it but that may never happen. I would like a gym with a pool. But those are rare. When I was with the hospital, I had those benefits but never used them, well maybe once.

I had therapy with my therapist today and really lied through my teeth to say that I wasn’t going to kill myself this weekend. I just was yessing her to death so I could get off the phone. She was just really annoying me with questions and she brought up my family to find out how constricted I was. I hate her. I really do. She brings up my family and how they will not be able to handle my death. I don’t care. I can’t focus on that. I need to die and I am going to try this weekend. End of story. I am tired of struggling. I am tired of being in pain. I hate myself and always will, there is no changing that. I had started writing my will and have looked it over. There is nothing more that I wish to add.

Now it just depends on if I can get a hotel this weekend or not. I just need to get away. If I end up killing myself then that will be good but I don’t want to try something and fail again. It will be too much to do that. My therapist thinks I should be in the hospital but I won’t go. I really don’t want to go and the only way that will happen is if I am forced to go in. I am kind of sad because I know that this will be a shock to my psychiatrist. It is our 20th anniversary this week. I just feel that if I put it off I am only harming myself. I am making myself suffer longer. If I had cancer, people would want my suffering to end. Why can’t they see that this is the same thing? I am tired of hurting. I am tired of being in pain, both physically and mentally. Nobody gets that.

ramblings 30

by Midnight Demon, posted in Chronic pain, suicide, suicide attempt

Ramblings 30

I don’t know what to write tonight. I had a sucky day. First my LTD check didn’t come like it was supposed to so I am broke until Wed when my SSD check comes in. If my LTD doesn’t come through, I can’t go back to school because I will still owe the $900 and I can’t pay that off with my SSD alone. I use my SSD to live on, pay expenses such as my rent, cell phone bill, cable bill, and my medication/insurance. After all is said and done there isn’t too much left over to do much else, except for groceries.

Second thing that pissed me off was that my PCP wants me to be more active. I don’t see how as I have been avoiding being in pain for so long I don’t know how to be active. But he also wants me to have structure in my life. Well isn’t that dandy, so do I. I can’t work right now because I am just too overwhelmed with things to try and work. I can barely take care of myself and barely go out anymore. I am working slowly to do that but it’s tough when all you want to do is stay in your comfy bed all day. I give myself little assignments. Like going to the pharmacy to pick up my prescription or drop a letter off in the mail. Yes I still use snail mail for my technologically illiterate therapist who refuses to use email I set up for her. She rather waste trees by have me mail her my writing and blogs. It’s pathetic but it gets me out of the house. If I am so inclined I will go to Starbucks for my coffee. Today I had to go out of the house to see the PCP. Though I also wanted to get a haircut but that isn’t happening until Wednesday I hope, unless I can get my cousin to cut it. It’s been two weeks since my last cut and it’s already too long for me. I like my hair wicked short, almost down to the skin. That is a good cut. But then I love men haircuts, especially military crew cuts.

So my day started off bad then got worse because now I am supposed to lose weight. I wish I dropped a pound every time some one tells me this. I would be skinny in no time! But I hate myself for being this heavy and that just feeds into the low self-esteem issues I have. I have never been thin in my adult life but I have never been more than 200 pounds either. It just demoralizes me because I hate the way my body is. I just can’t stand it. It has sent me into a suicidal tailspin again. Though now without my LTD check I don’t think I will be able to get the hotel like I was planning. If anything it would be my get away plan, though not necessarily a suicide plan, though I still like to keep that option open.

what it’s like to be in physical pain

by Midnight Demon, posted in cauda equina syndrome, CES, Chronic pain, chronic physical pain, depression, physical pain, suicide, suicide attempt

Last night I was in wicked bad pain. I started to think about ending my life again. The pain was that bad. I don’t know what caused my pain to flair up. I didn’t do anything more than I usually do when I have a day to chill, which is most days. I took a walk to the post office and sub shop to get a sub, then went to the liquor store to get a drink and cash my scratch ticket. Then walked home. I guess I was walking out of sorts as I didn’t wear my AFO. It sucks to use it for short walks but I guess me not wearing it is causing some flare ups.

Today pain is not that bad. I did some reading on a big book that I am reading, Alexander Hamilton. I am making headway slow but sure. I have to read it when I am not too tired as my eyesight will become unfocused now. It really sucks but this week I am going to visual therapy to correct it. My eye muscles just need some adjusting. I should also be taking a multivitamin but it is a pain to remember everything I have to take. Last week I filled my weekly pill holder with everything I have to take with extras such as omega 3, vitamin d, senna, and iron. My night time meds looked like a meal. I normally take at least a half dozen pills a night, not including my pain or anxiety meds so with these pills added, there were a lot. Then I had to eat something to cover it so to coat my stomach. I tried not to eat too much, just a bowl of cereal or a slice of toast. But sometimes I will have a meal, like scrambled eggs and toast. My eating habits are not usual as I don’t eat regularly. I tend to eat every 6 or 7 hours, if that. And usually only have one or two meals a day, even though I am home and it isn’t good. I just don’t have an appetite most days.

I take a lot of meds for my various medical and psychiatric illnesses. I used to only take meds for my psych condition but since CES entered my life, I am on more meds than I can shake a stick at. And that is if I am having a good day. A bad day, I take more, especially to control the pain. Or if I just want to escape I will take some Neurontin. That drugs takes your to another planet for a couple of hours but lately it hasn’t been as effective as it once was. Which is disappointing. The only downside of this med is that it gives you the hungry horrors the next day. I have gained more weight on this med than any other but I try and eat better when I have the horrors because I know I will be eating more. It is the only time that my appetite will increase.

Anyways, last night was a bad night and now I am feeling fine and good, least for now. Pain doesn’t usually start until around 2100. If it is not too bad I will take pain meds and then be able to sleep in an hour or two. If I am up more than that, it’s going to be a night similar to last night where nothing can touch my pain and I am off to thinking bad thoughts again.

Sometimes weather can play a part in it. Right now it’s snowing so I know that the pain last night was more because there was precipitation on its way than anything. I am sensitive to this. I am just grateful it didn’t knock my back out. I have had rain storms do that and soon as it stops, I am fine. It is the weirdest thing to be in excruciating pain, not being able to move any back muscles one minute and then be fine the next.

another night of pain 2

by Midnight Demon, posted in cauda equina syndrome, CES, Chronic pain, chronic physical pain

19/20-Feb-13 0115

I had a long day today and I am not kidding. I have been up since 0700 and it is now 0100. I did way too much and I did it without doing too much. I just had a long day. First it was with my eye appointment and dinner with friends. I did some exercises while waiting for the bus and my foot refused to go heel to toe. It kept swerving to go back to the heel. Tired. Then I did some dorsiflexion and that really made my foot hate me. I thought I was getting better because the pain had decreased some but I can’t fix the weakness that is in my foot. Not after 12 years. It just refuses to cooperate with me and I really don’t think any amount of physical therapy is going to get my foot a 5-5 again. I have had so many trips to physical therapy that I know the exercises by heart. I might do them if I feel like it but none of them address the weakness in my foot to make it stronger. But then I am pessimistic about it ever returning to a 5-5. If fatigues quickly to go to a 3-5 and then I am screwed the rest of the day. I found this out tonight. It was tough walking home because I could feel my foot swerving to walk and by the time I was half way to my street, the pain started and I had to stop. When going up on the curb, I barely cleared it, almost stumbling. This makes me depressed and distraught. Tomorrow I am supposed to start a psychotherapy group and I am afraid that I am going to have to wear the AFO because I don’t know if my foot is going to be ok. I am exhausted but right now but I have pain and my meds have not kicked in. My back is aching because it is raining outside. All I want is some sleep but my foot/ankle is angry at me right now. I hate myself for doing the stupid exercises. I should have known I was fatigued but it’s hard to realize when there is no pain. Now I am feeling the pain because I am finally at rest and I want to go to sleep. It is always like that. Soon as the body is ready to sleep, the pain says “no stupid you are not going to sleep because you did too much today and you are going to pay for it”. I am such an idiot. Here I thought I was doing something constructive and all it did was make me hurt. I am ready to say fuck it about the group but it is my first meeting. Maybe things won’t be bad tomorrow like I predict it will. I just hope I can wake up early enough to make myself a cup of coffee before leaving the house. Priority number one!!