finding care in the off hours

Last night I was in the throws of pain again. But my thoughts didn’t immediately turn to darkness Like they normally do. I wrote an email to my pdoc about what has transpired during the week and that I haven’t been faithful in taking the increase in my mood stabilizer for reasons beyond my control. Mostly because I have been driving and I don’t want to be drowsy behind the wheel. I also asked her if there was a hotline number she knew of to call in times of distress. She gave me one.

This all lead me to thinking maybe I should have a blog about this important issue…finding care during the off hours. For most people in therapy, when they are in distress after hours their and before their next session is to seek help in the local ER. This can be costly, as copays have more than doubled to deter such visits. But for mental health, there should be an exception made as there is really no other place to go while in distress. I understand that the cost is higher because care is more urgent and is most likely is trying to ward off unnecessary visits. But when you are in crisis, how can that be unnecessary? For the mental health field, there are no urgent care centers to go to in distress. It’s either you see your therapist or go to the ER (Emergency room). There is no in between. SO what are you supposed to do when you are somewhat distressed and cannot wait till your next visit with your therapist?

There are self-soothing measures. You take a bath/shower, read, journal, brush your hair for 100 strokes, eat something, etc. But when all is said and done, and you still feel terrible, then what? Most therapists have some kind of plan in place, or should be able to give you a hotline number such as Lifeline 1800-273-8255 (US only) or the national hotline number 1800-784-2433 (US only). I have tried calling the Lifeline hotline but have never been patient enough to wait to get transferred to someone. The other number I have not tried. There is also a text # 20121 and you text 121help. I don’t know where I got that number from but when I tried it the other day, it didn’t work. I never got connected to anyone, but that might be because of the hour.

There are chat groups, I am told, where you can discuss suicidal feelings and not be “punished/banned” or turned away. Unfortunately, I do not have that URL to share as I have not looked into that chat room. But when you are in distress, are you really going to google something??

There is something called a Crisis Response Plan that I sometimes use when I am in distress. UNfortnately, the last few times I have been in distress, all of the self-help went out the window and I didn’t use anything. I just ruminated about what I was going to do. It’s not perfect trying to save your life when you feel like ending it. I was not in the frame of mind to seek help.

Therapists think that a suicidal person always calls for help when in crisis and that simply is not true. Most clients become impulsive, wants to get rid of the negative feelings NOW and are in my experience, not likely to reach for help.

For me, writing has helped but not everyone has that option to them. I will blog my distress and might be fortunate to have a few bloggers comment to show support or to chat. But that doesn’t happen all the time. Most of the it’s hit or miss. My frequent blog readers might not be online at the time of my post and so not get it.

Sunday I participated in a chat that was for crisis intervention and I learned that there was a crisis text chat available. The intervention was either through chat or text message. I am going to looking into using this the next time I am in distress or when my mood goes south. It’s not always easy to think of these thing when your mind is thinking of ending your life. To use a DBT term, you just cannot tolerate the distress because it is unbearable.

I have been trying to identify when I am in distress so that I can reach out for help but it’s not so easy. The last few time I have used distraction or music to help me out of the intolerable feelings. I also will write in my blog or my journal but it seems like all bets are off if I am in intolerable physical pain. Chronic pain mixed in with getting my menses and dealing with it has been difficult this past two weeks. The waiting for pain medication to kick in is sometimes not fast enough to deal with mentally.

I wish there was some help I could have regarding physical pain and lethality but there are few pain specialists that deal with mental health issues and fewer still, psychologists that deal with pain issues. Even crisis help lines don’t know hot to deal with physical pain that is behind suicidal ideation. In a perfect world, you would like to see someone that is well rounded in chronic health issues and suicidality. Unfortunately, I don’t think they exist or they may just be too far and in between to help the greater good.

When I was being evaluated at my local pain clinic, I saw a pain psychologist. His job was to help me deal with pain. But he didn’t offer me an real advise the first time meeting him. I would have to set up a series of sessions with him but unfortunately this happened when I lost my car and he is too far out to see. If I saw him with public transportation, it would be a two hour commute, both ways.

The hardest part of being alone with your thoughts is that you are left to your own devices before the next session or when office hours are available. I wish there could be urgent care centers that are specific to mental health issues. Because not all crisis needs to result in a hospitalization. Sometimes just talking with an understanding person is the best treatment mental health professionals can provide.

Sucky day

Not having a good day. My pdoc’s schedule was all messed up so she was almost 30 mins late to see me. I felt like leaving but I stayed anyways. I asked her multiple times if I was a waste of her time. She said I was projecting. A nice psych term. It basically means I am putting my feelings (being a waste of time) on to someone else. She wants me to consider going in the hospital but there is no way I can. I have to take my father to his numerous doctors appointments this month. Next week is a double header so there is no way for me to go in. Plus all they will do is babysit me. I refuse to go to groups because they are useless. I never get anything out of it and the group leader (who runs most of the groups) is an idiot. We constantly butt heads. She is very condescending and I don’t like her.

I texted my therapist about this. She also wants me in the hospital. But then she knows that I am feeling really bad if I want to stop therapy. I also told her that my pdoc increased my mood stabilizer so hopefully that will help. If I remember to take it. I won’t be able to take it while I am driving my father around the world. It makes me sleepy sometimes.

I also put in a call to my repro endo doc because my fucking menses showed up last night. I am so mad. With all the technology that this world has, why is it so difficult to stop a menstrual cycle?? At this point, I am seriously thinking of a hysterectomy because what the hell do I need it for anyways? I am not going to have kids this late in my life, not like I was waiting to have them anyways. I never wanted to have children because I don’t want to pass on my depressive genes.
Saw my PCP and it was determined that I have a yeast infection under my arm. FUCKING great!! Now I really have to shower every day. I was really hoping it was just a dermatitis thing and would go away with some cortisone cream. Nope. UGH. Today is not my day.

My mood still sucks. I just want to die. Told my pdoc today that I just don’t have the energy to kill myself. I don’t have the energy to do anything. I just want to hibernate, which, if I go in the hospital, that is all I will do anyways. They don’t force you to go to group. I will just isolate and be by myself. And it’s not like they will start me on an antidepressant. My pdoc would if there was one out there for me. I hope increasing my mood stabilizer works.

I am supposed to pick up my niece tonight. I really don’t want to. I want to keep my foot up because it is hurting but I told my sister I would. I am just so tired. I had two doc appointments today. Then was standing in line forever at Walgreens, in my AFO. I hate standing too long because there is no cushion, just plastic so my foot hurts. I won’t wear it again when I pick up my niece. It’s already swollen so I probably will make things worse trying to force my foot in boot.

Did I mention my mood sucks? My pdoc thinks it is because I got my menses. I have to deal with them for a week. I am not happy about this but it’s the only course of action. I have to stop the pill for a week and then restart it. Might as well do that today and then the following Sunday, restart it. So not happy about this. Another reason why I need to shower every day. I have to tonight because I just feel gross, even though I took one yesterday. I need to buy some nice smelling shampoo to motivate me to take a shower. I think that might help. I really hope I don’t get cramps. I usually don’t, haven’t in a while but I still have knots in my stomach because of constipation. I still haven’t found a regimen that regulates me everyday. It sucks. And soon as I find something that works, I forget to do it every day. I am my own worse enemy. I know that if I were to go in the hospital, my meds would be given to me and I wouldn’t have to dish them out every night. That would be the only benefit of going on the hospital. I also wouldn’t have to worry about what to eat. Meals would be given. I wouldn’t have to cook some thing for myself. The food is not that bad.

I have been thinking about writing another paper. I was talking with my therapist yesterday about it and I wish I was writing down what I was saying. Now I forgot. It will be about different suicide theories. That is all I will say for now.

still struggling

Still struggling with the depression. I feel like it is strangling me at this point. I still don’t want to go to therapy but my therapist is persistent and talked me into a session tomorrow, our normal time. I had cancelled it but, of course, she kept it open. I just feel like I can’t get a grip on this thing. I just want to do nothing.

I really wanted a cup of coffee today but there was no cream at my sister’s. I was bummed. I could have went to the store to buy it but found reasons not to. I had to take a shower today as I didn’t take one in almost a week. I did, then tripped over the towel I was using and tweaked my back. I have been hurting ever since. Now I really don’t want to do anything. My mother has been bugging me to get eggs. I will tomorrow, or try to. Depends on how I feel tomorrow. Maybe I can get my starbucks coffee and be a little happy about something.

I have been listening to music to try and help my mood. So far the playlist is on all my songs so it has been helpful because there have been songs I haven’t heard in a while. Some of the songs have meaning, others are just upbeat enough to take me out of the misery for a little bit. I keep trying to fight the depression but it’s tough. Seems like whatever I try to do, it backfires on me and I end up feeling 10 times worse.

I got rudely woken up this morning by my doctor’s office. Because I have a UTI, they were calling to see if I improved. I was so mad because I was in such a sound sleep. I didn’t return the call but the nurse was persistent. She called me again. I told her I was fine. Still having spasms but they are less. Hope this course of antibiotics works. I see my PCP Friday so we’ll see. Thank god the leaking has stopped. I was getting worried there for awhile.

I also see my psychiatrist again on Friday. I don’t know why I need to see her again. It’s not like she can do anything for me. She just wants me to ride out this depression and I can’t stand it. I am very frustrated that there is nothing to do when I get like this. The suicidality has subsided a little bit but I still feel like there is a black cloud following me. I just feel so hopeless and why bother with treatment. It just sucks. I really hate feeling like a piece of shit all the time. I wish there was a medication that worked for me.

Midnight Demon, The book detailed

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Having a crazy day. I got up early this morning, for no reason other than waking from another weird dream. I went to see my pdoc today, which was good because she always calms me down when I am psychotic/delusional. She thinks I am just anxious over what is happening with my book and everything. She is probably right. I am not used to anxiety. I hate it and feel very uncomfortable when I feel it.

I got to sign my book for her. She really is proud of what I have accomplished. She even showed my book off in her class as a writing example. I am so happy she really likes the book.

The book is about my blogs and my struggle with mental illness and cauda equina syndrome. Cauda Equina Syndrome (CES for short) is a neurological medical emergency when a lumbar disc ruptures and you have weakness in your legs, lose your ability to control your urine/fecal matter, and have numbness down your legs. I write about this because people should be aware of what can happen with more than back pain.

My mental illness consists not only of depression, but of psychosis, paranoia, and delusions as well as Post Traumatic Stress Disorder. I write about my suicidal history more than anything because it is a suicide attempt survivor book.

I also have my personal experiences with the mental health system from the various therapists that I have seen over the years as well as the multiple hospitalizations I went through.

I hope you will support me by buying a copy of my book! It is available through Kindle and paperback through this link. Unfortunately, those are the only formats available at this time. I am going to look into iBooks eventually so iPad users can have access if they don’t want to download Kindle app. I am also trying to get it available via Nook but that might take some doing as I am not familiar with that format.