Sunday Blog 21

Sunday Blog 21

My mother needed eggs so I went to the store to get some as they were on sale. She could have told me this when I went to the grocery store yesterday but she didn’t. Idiot. She makes me so mad because she just thinks that I am an able bodied person that can do things.

I still need to find a 10 inch pie plate to make my cake. I was going to use a square pan but it’s 11 inches and I think it would be too big. I am going to see if I can just get a disposable pan at Walgreens or the dollar store.

My brother in law took out my AC this morning. I am glad because there is going to be possible snow tomorrow. Figures because I was planning on going to the Museum of Fine Arts. I still haven’t figured out how to get to the green line to get there. I guess I will have to take the bus to the orange line and then transfer. That will be the easiest way. But it means no Starbucks. I will have to make it at home. I made it today and it was perfect. The half and half was good and didn’t curdle.

My mother made a stir fry for dinner instead of stuffed chicken breasts. I like the stir fry better so I am glad she made it. She also made baked potatoes. I usually add salt and butter to it but tonight I couldn’t be bothered so just ate it plain. It was okay. I am not a huge baked potato fan. I usually like them mashed or in a salad of some sort. My favorite is when my mother makes them in a vinegar salad. I think it’s healthier than with mayonnaise or mashed.

Before dinner, I laid down because I was feeling really sleepy. My mother called just when I was about to hit some deep sleep so I feel kind of groggy. So of course, my ankle has decided to flare up. I am so sick of being in pain. If it wasn’t Thanksgiving this week, I might attempt. I just don’t care anymore. I need to go to the pharmacy tomorrow and fill my prescription. I wish it was a lethal dose of doxepin. Fat chance of ever getting that again. I will drop it off before heading to the museum, if the weather permits.

Now that I know my mother isn’t going to be calling me so I can take my pain meds and head toward oblivion. Least I hope to. Never know with chronic pain. I filled my med box this morning as I was up early to allow my brother in law access to my AC. I still have three hours before I can take them. So damn long. I think I am going to crash and hope that it doesn’t keep me up all night. Sometimes I can wake up from a nap, take my meds, and then fall back to sleep. I know I have been up and down the stairs most of the day, which doesn’t help my ankle pain. I need a shower but it’s not happening tonight. I have been running hot and cold all day today, not mood wise but feeling wise. I was wicked hot when I came back from the store and then I was freezing cold when I went to make my lunch. I just couldn’t get warmed up. Now I am feeling hot again. I was wearing my new Nebraska fleece pullover. It was warm and the sleeves are too long for me (I am short so men’s XL’s don’t always fit right). I was disappointed it didn’t have pockets. But I love it just the same. Now I just have to get a Nebraska hat and I will be set.

bewitching hour has hit

Bewitching hour has hit

It’s now 0200. I can usually fall asleep within the next half hour or I will be up all night. It’s an either or battle that I face. As I am not really tired, I say that I am going to be up most of the night. I just took some Neurontin as my foot is starting to burn. I was having a conversation with a Canadian friend of mine about this drug. She take 1800 mg/day and still has nerve pain in her foot. That is an adequate dose. I take any where between 600-1200 mg or more a night. I find that taking the dose all at once is helpful for me and keeps the nerve pain away for at least 24-48 hours. Of course, if I am in a bad pain flare, that can be less coverage and I will need to take it on a regular basis for a while.

The drag races have started in my area. I don’t know why cars must have their tires screech in the midnight hours. It’s so stupid. I just hope no accidents occur or people get hurt. If I knew exactly where they were racing, I would report them. I don’t know what the police would do because by the time they would show up, the cars could be gone. So annoying.

I had fun watching my niece tonight. We didn’t watch a movie like she said we were going to. She just played on her tablet and I napped. I was in a pizza coma so slept for about an hour. Probably why I am still up. I played on my phone or on my laptop. There was some funny shit going on about Pence and his experience at the theater for the musical “Hamilton”. People are so creative in creating memes and stuff that I am just in awe. There was also some stuff going on about the president-elect and his business that is still going on. I am really afraid for this country and what is going to happen in the next four years. No wonder I am so suicidal. I honestly don’t want to be around should this country go down the toilet after all the stuff Obama did to get us back on track.

My psychiatrist didn’t ask me what my plans were for ending my life and I didn’t tell her. I just told her flatly that I was suicidal. She made me tell her that I would page her should that change to acting on my feelings. I told her that only time it really becomes a problem is when my pain levels are through the roof and I can see no way out of it in sight. Sure I have a date set and will have the pills I plan on using but I have a feeling my dorky therapist is going to be watching me like a hawk. There is no longer going to be any wiggle room about this is in therapy. It just depresses me because it just makes me feel defeated. And I don’t want to let my psychiatrist down by attempting. She is trusting me a heck of a lot. I have never lied to her. That is why our relationship has always been a good match. I have always been straight with her and she knows this. I am wicked torn. Part of me just wants to say fuck you and end it and then part of me doesn’t because I know I will lose the trust of my two professionals that care an awful lot about me. That trust is what is keeping me from being inpatient right now.

My psychiatrist and I did go over going in the hospital but I told her there was no “treatment” there anymore. I would just be babysat and that is not what I need. Besides, with the holiday coming up, I really don’t want to be in the hospital. Maybe afterwards. I don’t know if it would help. The biggest thing is the admitting doc always asks “what set you off” and honestly, I don’t know. Why am I choosing now to be inpatient rather than last week? I don’t know. I hate being inpatient only because I hate being on their schedule for meds and stuff. I rather be on my schedule but that isn’t how it works.

My pillow is calling me. I hope I am able to sleep through the night without waking up in pain. It’s late enough so I hope to be awake enough by the time the football game starts. But who knows, I might be sleeping all day because I have been up half the night.

Run around day for nothing

Run around day for nothing

I thought I had an appointment at 0900 this morning. I set my alarm at good time to get dressed and brush my teeth. I unfortunately, didn’t get up right away and when I checked my watch, I was late. I left the house hurriedly to catch the bus or I would have been screwed. I had to get coffee or I was going to be a bitch. I was fifteen late only for the secretary to tell me my appointment was canceled and rescheduled! I was so damn pissed. The appointment was reschedule on Halloween so I never got notified. Then I thought maybe an email was sent and I just never read it. My ankle was smarting so I decided to go home before my next appointment, which I thought was at 11 but it was at 1. I was all screwed up today.

I got home and took my meds. I checked for an email and there wasn’t. Now I was really mad. I woke up for nothing and rushed out of the house for nothing. I shouldn’t have come home though. I was getting lazy and comfy so I didn’t want to go out again, but I had to see my psychiatrist. So I brushed my teeth and then left to go to the bus stop. I left really early and so waited. There was a homeless guy at the stop and we made conversation. I felt really bad that I didn’t have any money on me to give him. I knew they were going to give him grief on the bus. I tried to use my pass twice for him but it wouldn’t work. He had to use whatever change he had. I felt really awful.

I got to my appointment okay. I was feeling really tired and hungry as I didn’t eat anything and all this running around was making me tired. I was glad my psychiatrist’s office is the building closest to the train station so I didn’t have to walk too much. I flatly told her I was suicidal. I didn’t say that I had plans but we came to an agreement. I told her that during my pain episodes I am likely to kill myself but am getting worried that not being able to walk might override my walk three feet to the bureau to get the meds I need to kill myself. She wants me to page her, at whatever hour, to talk about it. We briefly discussed the hospital but I told her I wanted my mother’s turkey and I didn’t want to be inpatient as that just sucks during the holidays. I also told her I would go in but they mess up my meds so much that I would be at the med counter forever taking pills. Plus, the way my pain meds are written, I wouldn’t be taking them the way I take them at home. I would be screwed and that might send me over the edge when I got out.

She reiterated that she wants me to page her when I feel suicidal or just need to talk about things. She wants me to be in contact with her more frequently and wants to know how my Thanksgiving went. I told her I would send her a blog. I apologized for not sending her blogs because they have been shitty lately and I know they would worry her.

Despite drinking a lot of caffeine today, I feel really tired. I had four shots of espresso this morning and another two this afternoon when I had my lunch. You would think that would keep me up and not feel drowsy. Yeah, right. I guess I needed the caffeine to help offset all the running around I did today. I just hope it doesn’t back fire on me and then I am up most of the night due to restlessness. Being in pain is going to be a given because my ankle is already sore. There were no seats on the train ride home so I had to stand a few stops before one became available. Then the next stop, a large woman sat next to me, invading my personal space. I was not happy. The worse part was that she was on her damn phone so I couldn’t move. I hate people like that. I know I am not a thin person but at least have respect for the person sitting next to you.

I told my psych about how my therapist’s anxiety is interfering with our sessions. I just feel like all she does is talk and I listen, not speaking what I want to say, which leaves me feeling frustrated and useless. I didn’t tell her that my therapist forced a session on me yesterday. That might not have gone too well. My therapist is nuts though. Sadly, she admits it freely so there is no hope.

the pain game

The pain game

Since around 2100 yesterday, I have been in constant pain. My only reprieve has been when the pain meds actually have taken some of the throbbing away. Last night it was my toes that were in agony. Tonight, the top of my ankle, where the foot and ankle meet is the subject of tonight’s pain game. This type of pain, I have been having most of the day, since 0530. I have been on pain meds around the clock. I just took a strong pain pill because I don’t know what else to do.

I meet with my psychiatrist tomorrow morning and I plan on telling her how suicidal I am. I am risking my freedom in doing so, but I feel she should know. Maybe, if I am bold, I might tell her she is better off without me and that I will be dying soon. Probably not the best way to talk to a psychiatrist, but I am tired of just saying things are fine when they aren’t. I might pose to her a theoretical situation and see what her response is. I also want to convey to her that if I should die, it’s not her fault. She has been with me for 24 years and has done the best she could do for me. Between the pain and the voices that keep telling me that I deserve to die and should kill myself, there is nothing more that can be done.

I’m tired of this Merry-go-round that I am on. It just keeps spinning and there is no getting off. I am wicked dizzy from it. And this time I have made up my mind to end things, to get off the go round for once and for all.

I never did take that nap that I wanted. My mother decided to clean the oven. It’s a self cleaning oven so she turn it on but didn’t realize that when you have grease, you can’t use it. The kitchen and the house filled up with smoke and it still smells terrible. I thought my mother just burned something in the oven but I guess that wasn’t the case, per se.

I had a friend that commented on my Twitter post about being in pain. She can’t believe it hasn’t “gone away” yet. She doesn’t understand chronic pain. It never goes away. Or it might for a little while and then will come back with a vengeance. I have found some like minded “spoonies” on Twitter. It’s been helpful to know that I am not alone with my CRPS and chronic pain issues. We don’t talk about being suicidal or how it affects our moods, however.