Tag: therapy

CRPS doesn’t care about hot temps

by Midnight Demon, posted in blogging, chronic physical pain, CRPS, depression

CRPS doesn’t care about hot temps

It has been muggy in the house the past few days as a warm front is passing through. Temps have been above 70 degrees and I have had the AC going. You would think that would be a cause of my foot being cold but I shut off the AC a few hours ago and then my foot got cold then exploded in pain. I have been miserable since. All I have had to eat today is two donuts and coffee. I don’t really feel like eating. I’ve slept most of the day. I am just so tired. I dealt with bad emotions last night. My anxiety was at its worst. Sometimes it is hard to know it is anxiety and I need an Ativan to calm down. Once the medication works, I can think clearer and not so dark sometimes.

I had therapy. I asked for an extra session as the dysphoria was really getting to me. It has gotten to the point where I don’t even want to shower because I don’t want to see myself naked. I wish there were no mirrors in the bathroom. I hate looking at myself. Sometimes I look at myself and think damn I look good and other times I hate myself so damn much I can’t stand looking at me. I have been meaning to trim my beard all week but that hasn’t happened. I just don’t have the energy for self-care. I was able to brush my teeth this morning before taking my meds. I find that if I brush after having my morning void is easier than trying to do it after I have had my coffee.

My day started late because after I took my morning meds I went back to sleep and didn’t get up till around 1300. I had coffee because it has become a routine to have coffee when I wake up. I tried to take a nap after coffee because I was feeling tired but I couldn’t sleep. I was too anxious I would sleep through my appointment.

I realized today that I had a really nuts therapist who really thought she had possession of me. In a way I am glad I am no longer in that relationship but I miss her sometimes. She provided me care when no one else did and was my biggest supporter in my efforts to be me. She went to the poster session with me at my first conference. My psych was to show up but never did. My psych is someone who I miss terribly. It is coming on two years now that she has been gone. It still hurts like the day we said goodbye. We still keep in touch and have had a few zoom calls since then. I never thought this psychiatrist would be on zoom but she did.

I have to plan my grocery delivery. I got to remove some stuff from my cart so I don’t go over my limit. I am going to the store on Monday with my cousin. I will get the stuff I am removing then. I need to have the heavy stuff delivered so it is easier to bring upstairs. The ice cream and steak I can get at the store.

3500th Blog post

by Midnight Demon, posted in blogging, chronic physical pain, CRPS, depression

3500 blog post

This is my 3500th blog post. I have been blogging since 2012, the year I got disabled. It was a tough year and I was depressed and suicidal most of the time. I had a lot of time on my hands and so I think writing about how I was feeling helped to get stuff out of my head. This blog has been a lifesaver for me. I don’t know what I would do without it.

Yesterday was a really challenging day. I had therapy in the morning. It was stressful. We talked about things that were hard to talk about. She is good at keeping me on point rather than going off on a tangent. I told her I would work on self-care and brushing my teeth/showering. I have been bad at doing these things. I don’t like brushing my teeth but I know it has to happen. I have been showering at least once a week but sometimes I can go 10 days without a shower. I need to work on clearing my bed for the week as I have nothing scheduled the rest of the week. It would be good to change my sheets.

After therapy, I had an hour before I had to leave to get my 2nd vaccine shot. I took public transportation to the hospital and back. I was seen really quickly at the vaccine clinic. I was in and out in twenty minutes. I then went to the square and got a caramel macchiato. I had a half hour before the bus was to come so I just sat on a bench and drank it. It was peaceful at the station. Not too many people were there. I was already feeling pretty tired. I brought a Powerade bottle with me to drink so I would stay hydrated. PT was torture. She had me do one of the machine and within a minute or two, my CRPS ankle flared up. I went as slow as I could possibly go. I didn’t care. I was exhausted and just wanted my bed. Afterwards she worked on my legs to get the knots out. She accidently put too much pressure on my nerve injured thigh and I screamed in pain. She avoided the area the rest of the session. My legs felt better but I got up too quick and got dizzy. She had me drink some water and rest. I then realized I had not eaten all day. I ordered Kung Pao chicken on the way home from PT. It was so good. I really love this dish.

Today I have been tired because I was up in the middle of the night again. I woke up at 1 to pee and had trouble getting back to sleep. It could be a side effect of the vaccine as well but I am going for my long day yesterday and being up in the middle of the night as a reason why I am so exhausted today.

I don’t know if I will listen to the entire game but I am going to listen to the first couple of innings. They are facing the Braves, which has been on a hot streak. We have been on a losing streak so will be fun to see what happens. I love baseball so much. I am keeping track of games lost/won again on Twitter. Right now their record is 29-19 and we are in first place.

I got a craving for donuts so I ordered them. Now I am happy because I haven’t had donuts in more than a year since the pandemic started. I am going to try and take my night meds around 7 but it might be earlier. I am just so damn tired but if I go to bed now, I most certainly will wake up before midnight and be up all night.

Wednesday’s Musings

by Midnight Demon, posted in blogging, chronic physical pain, FTM, gender dysphoria, mood disorders, PTSD, transgender

Wednesday’s musings

I had a hard session in therapy Monday. We talked about mourning my mother for not being the mother I needed. It was hard realizing this is what I have to do to get past all these negative emotions I have about my mother. Right now she is in the hospital with either pneumonia or fluid around her heart and lungs and I just can’t deal. I was worried when she wasn’t up when I got up this morning but I didn’t think she had pneumonia. Her sugars were extremely high yesterday, so high that her monitor couldn’t give a number. I care for her as another human being but it is hard when I don’t get respect. The hospital called me to get her medication list and I was deadnamed and I am sure misgendered as well. I was probably called daughter as well. It’s things like this that hurt so much.

I also talked about the weight clinic and how my weight is keeping me from completing my transition. I wrote this on Twitter the other night: “In a frank mood right now. Kind of depressed and suicidal. All because I am a woman who desperately wants to be a man. I’ve dreamt of the day I would get these fucking things off my chest but b/c of a BMI I can’t have surgery. Which leaves me feeling suicidal. People always talk about saving trans lives but they never look at what is in the way of transitioning. I need to be a certain weight for me to be who I am. Totally sexist and discriminatory. I have weight issues and body issues. Going to a weight clinic seems shameful to me. Which only adds to me calling me a fat fuck who should die. Going to a weight clinic is not going to solve the BMI issue when losing weight already fucks with my head. Need to lose weight shit I will starve myself to that end before going to a clinic. And who’s to say once I lose the weight there won’t be another issue to prevent me from being a man? But apparently I can get my uterus out without a problem. Breasts seem to be an issue all the time. I just don’t know if my suicidality will end up killing me before I am a certain BMI.”

It fricken sucks that a number is keeping me from transitioning to a man. I told my therapist I would have my pcp make the referral to the weight clinic and see what they say. She reiterated to me that they are not my family and so wouldn’t abuse or shame me. I am so scared of doing this because of these reasons. I hope that I don’t have to become a salad eater to lose the weight I need to lose. I can only eat salad with a ton of dressing on it. I really like spinach salads but my mother always ends up boiling the spinach on me no matter how many times I tell her not to. She drives me crazy.

I have a UTI that I am waiting to be treated for. I hope they will treat me. I am going to call in a half hour if they don’t call me first. I need to know because peeing hurts so bad and I am going every two fricken hours. I feel so depressed about this. I have been in pain with this infection for the past ten days and I am sick of it. I called my doctor and am waiting for him to respond. I hate waiting. I really do.

Day 11 of Covid

by Midnight Demon, posted in blogging

Day 11 of Covid

It has been more than 24hrs since I ran a fever so I think I am out of the quarantine now. I am feeling so damn tired and the docs can’t do anything for me as the time for antibody treatment has passed. I need to give my shot today of testosterone. It will be at the increased dose. I am kind of nervous about it. I plan on giving it to myself after I write this blog.

I don’t think I am going to be looking at my blog stats anymore. The numbers have been terrible lately. It seems on days I write have better numbers than on days I don’t. Maybe now that I am not so sick from Covid I will write more. It is just hard because I sometimes don’t have the clarity to write.

Monday I had therapy and I told her about my eating problems. She took it as a control thing. I am supposed to eat something every day until I see her again. That is going to be hard to do but maybe not as I am out of quarantine now and can leave the house. I still want to go to Starbucks and have a latte. I also want a sandwich. I might have UberEats deliver me one. I don’t know if I will be strong enough to walk. I need to go to the pharmacy and pick up my meds. I am kind of nervous about it because coming back home always makes me short of breath. It is a nice day out so maybe it won’t be so bad walking.

I need to wash my clothes that have covid on them, including my masks. I don’t know if I will be able to do it today as I am awfully tired. I woke up in the middle of the night to pee and it took me forever to get back to sleep. I realized last night that I lost my sense of smell. I still have my sense of taste so I am glad about that. I just can’t smell anymore. I hope it comes back. I wanted to get my vaccine but they are saying that I need to wait a month for it to happen. Fuck. That sucks.

I pre-ordered Taylor Swift’s new version of Fearless and even though it said I purchased it, it still won’t download on my phone. I have to talk with Amazon about it but I can’t be bothered right now. So I am just listening on the amazon app. I don’t know when I am going to talk to the people at Amazon to find out why my music isn’t downloading properly. But least I can listen to her music. It makes me feel in a good mood when I listen to her music.

I got a new baseball history book that I plan on reading sometime today. I can’t wait. I have never been so excited to read a history book before. I hope that it has what I am looking for or I will just write my own the way I want it.