Don’t you is a new song on Fearless Taylor version. It is my new favorite song. I have been listening to it since I left PT an hour ago. I have had a long day and I know I usually set a 500 word limit for myself but today has been a fucking day. I started the day with an appointment with urology. I have been given strict orders on how long between voids. I usually have 6 hours but they want it to be 4 especially if I have been drinking a lot and can’t go. Which means that if I can’t go on my own, I have to cath. I’ve also been given a hat to measure my urine. If I am going between the 4-6 hours and have a lot of urine >300mLs, I need to go more frequently. This is to prevent my bladder from stretching. Which means putting myself on a fricken timer for bladder reminders. Fuck. I thought I was done with this shit. Things were going so fucking well and now they suck. I really don’t want to be thinking of bladder function all the damn time. This just really sucks.
I came home and was dizzy. I had bought a Gatorade while waiting for the bus and drank that. I was going to wait to order food but as I was dizzy I thought I should eat something so I ordered a big mac. It’s all I’ve eaten today and probably will be. I just came home from PT and feel more dizzy than I did this afternoon so I am just going to drink Gatorade and rest. My blood pressure is normal so that is good. I know I am probably dehydrated because I haven’t been drinking throughout the day. I also been sweating a lot so that just adds to my exhaustion. I really hope that I can get up tomorrow morning for my vaccine appointment.
PT has gone well. My shoulder is much better than it was four months ago. Today was my last session for it. Next week I start the covid deconditioning program at the PT place. I already know it is going to take a lot out of me. I was working on one the machines today and did five minutes, twenty-two seconds and I was perspiring and exhausted from it. It is one of the machine the PT said I would be using so yay. She was testing my shoulder to see how I would do.
I am completely exhausted. But I wanted to write a blog because it has been days since I last wrote. I am going to watch China Beach and rest the rest of the day before med time.
I’ve been listening to “tis the damn season” by Taylor Swift since noon time. Just a damn good song. I went to PT. It went well. I had to get some dry needling on my shoulder because it became hard as a rock. I need to put some heat on it later. We discussed Covid and she said there was a conditioning program that my PCP can refer me to so that I can get my strength back. I said I would get the referral when I got home.
After PT, I went to the square to get my ATM card to my name instead of my dead name. It took about a half hour. The weather got colder and there were snow flurries. I got a wrap at the grocery store so I would have something to eat for my dinner. It was a good turkey with brie and cranberry sauce. It is my favorite kind of wrap.
I am in my room and I am freezing. I just want to get under the covers and sleep. I am totally exhausted. My legs are killing me. Today is my niece’s birthday but I don’t think I am going to go to her party as it isn’t until 7 and I am really tired right now. I just told my sister I wasn’t going down for cake. I am too tired. I am having bladder cramps and they are really bad. I came close to having cath tonight because it had been more than 6 hours since I last voided. I am not in a good space right now. I feel like my body is failing me and I am so upset with the gender dysphoria of having cramps that feel like period cramps. I still don’t know if it is my uterus or bladder giving me these cramps. But it is going on three days now.
I bought some BZK wipes in case I do have to cath. Least I can wipe myself and not have to worry so much about getting an infection. I just put them in the bathroom. I feel like the cramps are my fault that I should have gone to the bathroom sooner or something but if anything the cramps should be going away now that my bladder is empty and it is not. I am so frustrated that I can’t tell if it is my uterus or not. I shouldn’t have a uterus to begin with for fucks sake. I really need to see the gyn so I can get a hysterectomy and be done with it. The dysphoria I am having with these stupid cramps is horrible. I really just want to die. I want to act on my thoughts. I won’t though for the sole reason this will pass, eventually. I am going to call the gyn tomorrow and see if I can schedule an appointment to see her for the female exam that I hate so much. I am overdue for the test and she needs to do a pre op exam. I am not looking forward to this exam at all. But I can’t put it off anymore. The cramping needs to stop.
Day 11 of Covid
It has been more than 24hrs since I ran a fever so I think I am out of the quarantine now. I am feeling so damn tired and the docs can’t do anything for me as the time for antibody treatment has passed. I need to give my shot today of testosterone. It will be at the increased dose. I am kind of nervous about it. I plan on giving it to myself after I write this blog.
I don’t think I am going to be looking at my blog stats anymore. The numbers have been terrible lately. It seems on days I write have better numbers than on days I don’t. Maybe now that I am not so sick from Covid I will write more. It is just hard because I sometimes don’t have the clarity to write.
Monday I had therapy and I told her about my eating problems. She took it as a control thing. I am supposed to eat something every day until I see her again. That is going to be hard to do but maybe not as I am out of quarantine now and can leave the house. I still want to go to Starbucks and have a latte. I also want a sandwich. I might have UberEats deliver me one. I don’t know if I will be strong enough to walk. I need to go to the pharmacy and pick up my meds. I am kind of nervous about it because coming back home always makes me short of breath. It is a nice day out so maybe it won’t be so bad walking.
I need to wash my clothes that have covid on them, including my masks. I don’t know if I will be able to do it today as I am awfully tired. I woke up in the middle of the night to pee and it took me forever to get back to sleep. I realized last night that I lost my sense of smell. I still have my sense of taste so I am glad about that. I just can’t smell anymore. I hope it comes back. I wanted to get my vaccine but they are saying that I need to wait a month for it to happen. Fuck. That sucks.
I pre-ordered Taylor Swift’s new version of Fearless and even though it said I purchased it, it still won’t download on my phone. I have to talk with Amazon about it but I can’t be bothered right now. So I am just listening on the amazon app. I don’t know when I am going to talk to the people at Amazon to find out why my music isn’t downloading properly. But least I can listen to her music. It makes me feel in a good mood when I listen to her music.
I got a new baseball history book that I plan on reading sometime today. I can’t wait. I have never been so excited to read a history book before. I hope that it has what I am looking for or I will just write my own the way I want it.
Day 6 of covid19
I am in my 6th day of quarantining and being sick from covid. I feel really tired and weak. I have been trying to stay hydrated but it has been difficult as all I want to do is sleep. Today I felt a little better so made my coffee and had my breakfast cookies with it while in bed. My sister has been helpful in getting me food and stuff but I haven’t been too hungry.
Taylor Swift released her version of Fearless today and I have been having trouble downloading the songs after buying the album. There just seems to be a glitch between my phone and Amazon music app. The app is awful and with each update, gets worse and worse. But I am listening to the app as that is the only way to listen to the music right now. I am not entirely up for listening to music because my head feels so wonky due to covid. I just feel like I have the worst cold ever.
I need to shower today. I haven’t had a shower since last week. I know it is going to take a lot of energy to shower and wash up. I know I will feel a little better if I take one. It might clear up my nose for a little bit. I hate a stuffy nose more than anything. I hate being sick. All I keep thinking of is the setback this is going to cost me because I am not being active like I wanted to be. I just want to sleep all the time. I will be out of quarantine Tues. I cannot wait. I probably will still stay in my room but I am going to go for a walk somewhere soon as I get clearance from the government. Then I can schedule my vaccine so I don’t get it again.
I finally got the stimulus money so I plan on calling the probate court when I feel a little better to order a certified copy of my legal name change so I can get my passport renewed. I’ve been wanting to get my passport renewed for a while but I never had the money for it. The total cost for getting it is around $200, which includes getting my certified paperwork.
I am fighting a nap so hard. I am trying not to sleep too much today but it is getting exhausting. The fatigue I feel is way worse than my normal fatigue. I really hate that this is going to decondition me further. I think I am going to have to be in PT the rest of the year to get some of my strength back. My PT is good though so I am glad I have a good therapist. Sucks I couldn’t see her this week though. I canceled my appointment because I thought I would be getting the vaccine and too messed up by the shot to see her. Nope. Now I got to reschedule the vaccine yet again.