a day of business calls

A day of business calls

I didn’t sleep well last night. I kept waking up every fricken hour from 1a on. I finally gave up sleeping at 7. I took my meds and then paid my bills. I had enough left over to put some funds in Starbucks and buy a book. I then put my alarm on for 930 so I could see if I could sleep for an hour before I had to get up and ready for getting my haircut. I didn’t sleep. I kept on getting notifications that kept me up. I should have turned off my phone or put the no disturb on so just my alarm would go off. I will have to remember that for next time.

I had my coffee and biscuits. My sister came up for a short time to tell me about my sister in law. She was diagnosed with liver cancer in March and now it has metastasized to her abdomen. She is now in hospice care. Her family is in denial that she is sick which isn’t helping her. Apparently she is so depressed over the news she just isn’t doing much to take care of herself and is in the ICU because she is dehydrated. I feel bad for her. My brother in law is also in denial about her sister’s health. I just feel bad for her son. He is going through so much.

After I had coffee I got dressed and ready for the bus. I had planned on going to Starbucks after the haircut but forgot my bag so I just went to get a drink for me and my barber. On the way back to the barber shop I became short of breath again. I don’t know why as it is all level ground, no inclines or hills. I know this is because of Covid and being deconditioned. My PT said my breathing would be the last to be better. I want to be better now! Dammit.

After I got my haircut, I was again out of breath when I got home. I had to sit in the kitchen for a bit to relax before going up to my room. I had some water and then went up to my room. I changed into my PJs, turned on the AC, checked my phone for more messages and then rested for a couple of hours. I didn’t sleep but the rest did me good. I was finally able to call my insurance and find out why the copays were so high. Turns out my PT place is billing several dates of service under one date so it looks like one visit is costing me $30, $50, or $60 dollars depending on how many visits is processed.  I emailed the billing and asked why wasn’t this reflected in my statement so it doesn’t look like one visit is costing me more than my $15 copay. I am waiting for a response.

I also called uro because I need catheters. I have one box left. The nurse I left a message to called the supply company and they said they would rush the order. I still have to have my provider change the daily catheter number so I can get more catheters to hold me through the month. I sent a message 5 days ago and haven’t heard back so I sent another message asking what the status is.

All this calling made me tired and seeing as I didn’t eat anything, I was also nervous/anxious. I took an Ativan and ordered Chinese food, my favorite dish, Kung Pao chicken. It was so good. They didn’t have the double order like before. I guess you can only order a bowl now, which is sad. I might have to change to another Chinese restaurant to get more Kung Pao rather than more rice. I just didn’t want to place a big order.

I got a response to the message I sent to my therapist the other day. She isn’t happy with me because I sent her “provocative” text messages. I was having a bad pain day yesterday and was texting her about what I was taking. I guess she took it as “provocative” messages. She also said repeatedly that she knows my knowledge of things is great and she said this throughout the session. Funny, I don’t remember her saying that at all. I guess when she said I didn’t go to med school, it threw out whatever else she was saying. I am trying to do what she has asked of me by doing the work outside of therapy like doing the work in the suicidal thoughts workbook. I have been meaning to do it but I am just too tired because I haven’t slept good the past few nights and been in a lot of pain.

I don’t know if I am going to listen to the game tonight. I am feeling awfully tired and I don’t know if the game will cause me to get agitated if there are bad plays. I get involved in my games when I am listening or watching it. I am going to take my night meds early because I want to make sure I go to bed at a decent hour. Last night I was late in taking my meds and it disrupted my sleep. I also bought 3mg of melatonin to take at the suggestion of my psychiatrist. I told him the 5 mg was giving me a hangover the next day. We’ll see if the 3 mg is better.

Don’t you

Don’t you

Don’t you is a new song on Fearless Taylor version. It is my new favorite song. I have been listening to it since I left PT an hour ago. I have had a long day and I know I usually set a 500 word limit for myself but today has been a fucking day. I started the day with an appointment with urology. I have been given strict orders on how long between voids. I usually have 6 hours but they want it to be 4 especially if I have been drinking a lot and can’t go. Which means that if I can’t go on my own, I have to cath. I’ve also been given a hat to measure my urine. If I am going between the 4-6 hours and have a lot of urine >300mLs, I need to go more frequently. This is to prevent my bladder from stretching. Which means putting myself on a fricken timer for bladder reminders. Fuck. I thought I was done with this shit. Things were going so fucking well and now they suck. I really don’t want to be thinking of bladder function all the damn time. This just really sucks.

I came home and was dizzy. I had bought a Gatorade while waiting for the bus and drank that. I was going to wait to order food but as I was dizzy I thought I should eat something so I ordered a big mac. It’s all I’ve eaten today and probably will be. I just came home from PT and feel more dizzy than I did this afternoon so I am just going to drink Gatorade and rest. My blood pressure is normal so that is good. I know I am probably dehydrated because I haven’t been drinking throughout the day. I also been sweating a lot so that just adds to my exhaustion. I really hope that I can get up tomorrow morning for my vaccine appointment.

PT has gone well. My shoulder is much better than it was four months ago. Today was my last session for it. Next week I start the covid deconditioning program at the PT place. I already know it is going to take a lot out of me. I was working on one the machines today and did five minutes, twenty-two seconds and I was perspiring and exhausted from it. It is one of the machine the PT said I would be using so yay. She was testing my shoulder to see how I would do.

I am completely exhausted. But I wanted to write a blog because it has been days since I last wrote. I am going to watch China Beach and rest the rest of the day before med time.

exhausted

Exhausted

I’ve been listening to “tis the damn season” by Taylor Swift since noon time. Just a damn good song. I went to PT. It went well. I had to get some dry needling on my shoulder because it became hard as a rock. I need to put some heat on it later. We discussed Covid and she said there was a conditioning program that my PCP can refer me to so that I can get my strength back. I said I would get the referral when I got home.

After PT, I went to the square to get my ATM card to my name instead of my dead name. It took about a half hour. The weather got colder and there were snow flurries. I got a wrap at the grocery store so I would have something to eat for my dinner. It was a good turkey with brie and cranberry sauce. It is my favorite kind of wrap.

I am in my room and I am freezing. I just want to get under the covers and sleep. I am totally exhausted. My legs are killing me. Today is my niece’s birthday but I don’t think I am going to go to her party as it isn’t until 7 and I am really tired right now. I just told my sister I wasn’t going down for cake. I am too tired. I am having bladder cramps and they are really bad. I came close to having cath tonight because it had been more than 6 hours since I last voided. I am not in a good space right now. I feel like my body is failing me and I am so upset with the gender dysphoria of having cramps that feel like period cramps. I still don’t know if it is my uterus or bladder giving me these cramps. But it is going on three days now.

I bought some BZK wipes in case I do have to cath. Least I can wipe myself and not have to worry so much about getting an infection. I just put them in the bathroom. I feel like the cramps are my fault that I should have gone to the bathroom sooner or something but if anything the cramps should be going away now that my bladder is empty and it is not. I am so frustrated that I can’t tell if it is my uterus or not. I shouldn’t have a uterus to begin with for fucks sake. I really need to see the gyn so I can get a hysterectomy and be done with it. The dysphoria I am having with these stupid cramps is horrible. I really just want to die. I want to act on my thoughts. I won’t though for the sole reason this will pass, eventually. I am going to call the gyn tomorrow and see if I can schedule an appointment to see her for the female exam that I hate so much. I am overdue for the test and she needs to do a pre op exam. I am not looking forward to this exam at all. But I can’t put it off anymore. The cramping needs to stop.

Day 11 of Covid

Day 11 of Covid

It has been more than 24hrs since I ran a fever so I think I am out of the quarantine now. I am feeling so damn tired and the docs can’t do anything for me as the time for antibody treatment has passed. I need to give my shot today of testosterone. It will be at the increased dose. I am kind of nervous about it. I plan on giving it to myself after I write this blog.

I don’t think I am going to be looking at my blog stats anymore. The numbers have been terrible lately. It seems on days I write have better numbers than on days I don’t. Maybe now that I am not so sick from Covid I will write more. It is just hard because I sometimes don’t have the clarity to write.

Monday I had therapy and I told her about my eating problems. She took it as a control thing. I am supposed to eat something every day until I see her again. That is going to be hard to do but maybe not as I am out of quarantine now and can leave the house. I still want to go to Starbucks and have a latte. I also want a sandwich. I might have UberEats deliver me one. I don’t know if I will be strong enough to walk. I need to go to the pharmacy and pick up my meds. I am kind of nervous about it because coming back home always makes me short of breath. It is a nice day out so maybe it won’t be so bad walking.

I need to wash my clothes that have covid on them, including my masks. I don’t know if I will be able to do it today as I am awfully tired. I woke up in the middle of the night to pee and it took me forever to get back to sleep. I realized last night that I lost my sense of smell. I still have my sense of taste so I am glad about that. I just can’t smell anymore. I hope it comes back. I wanted to get my vaccine but they are saying that I need to wait a month for it to happen. Fuck. That sucks.

I pre-ordered Taylor Swift’s new version of Fearless and even though it said I purchased it, it still won’t download on my phone. I have to talk with Amazon about it but I can’t be bothered right now. So I am just listening on the amazon app. I don’t know when I am going to talk to the people at Amazon to find out why my music isn’t downloading properly. But least I can listen to her music. It makes me feel in a good mood when I listen to her music.

I got a new baseball history book that I plan on reading sometime today. I can’t wait. I have never been so excited to read a history book before. I hope that it has what I am looking for or I will just write my own the way I want it.