CRPS Unpredictability

About 45 minutes ago, I have no idea what I did. I was in my normal fetal position with my feet on top of one another. I moved my bad CRPS foot into the curve of my good ankle and it felt like I was trying to snap it in half. I cried. I screamed OW. No one would hear me. My mother was knocked out. I tried to remain still but that just made the pain worse. I had to sit up and take a BT med. Carefully I maneuvered my feet so I could turn to sit up. Pain was all over my ankle and foot. I didn’t want to live anymore. What would be the point? More pain?

I posted on social media that I wanted to blog but I couldn’t find the words. All I could think to say was I am in pain. I posted why can’t I end it? Why? A few friends responded. I got a phone call from my cousin in Texas. I didn’t answer. I didn’t want to talk. I can’t talk when I am like this. My mind is in the gutter and no one understands. No one gets this pain because they don’t feel it every day like I do.

I posted to my CRPS group. Some of them get it. Some have been where I am. Rain is the only thing stopping me from ending it right now. I don’t care. I am reserving some emergency cash for when I feel like this again and the weather is better. Maybe i won’t go through with it.

I got a lot going on the next few weeks. Don’t know how but I’ve booked an appt nearly every day the last week in August. That is going to kill me and I’ll have to cancel some of those appts.

The thing that bothers me is that aside from doing a few dishes and showering, that is all I did today. I’ve rested most of the day. So why the fuck am I in pain now?? I had put on a sock on the offending limb because it got cold. Now it is hot. I am scared that taking it off is going to cause me more pain. But the sock is irritating me so needs to come off. Fucker

One thought on “CRPS Unpredictability

  1. Resilient Phoenix

    I’m so sorry you’re having bad pain right now. I have CRPS too so I can relate. I also struggle with OCD, severe anxiety, and depression and have felt many times like ending it. Please don’t end it. As hard as it is, please continue to stay strong and share your story. The world needs you. The CRPS community needs you. From one CRPS warrior to another, please hold on. Gentle hugs.

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