Saturday Blog 56

I had woken up at a decent hour but I was in pain. I took some meds and went back to sleep. I slept most of the day. I just had some breakfast/lunch. I am not that hungry for dinner. I have a splitting headache that is making me want my pillow.

It’s been a cloudy day for the most part. The only time I went outside was to check for mail. I found that someone had moved my bags and I am pissed at that. My sister wants the space that my bags are in to put a cabinet for her toiletries. I like having my bags near the door because then I don’t have to forget it and go back up the stairs for it, especially if I am in a rush to catch the bus.

Despite sleeping most of the day, I am still wicked tired. I tried watching the game but my headache got worse and my allergies were bad as the pollen kept blowing in the windows in the kitchen. It’s very cool out, only about 60 degrees. It’s been nice but I am back to wearing winter PJs. I was going to take a shower but I don’t feel like it. I am too tired. Maybe I will try tomorrow.

Because I woke up really late, I didn’t make coffee. I was having a weird dream about my friend in South Africa. I dreamt he came to Boston and I was wheeling him around in his wheelchair (he is disabled due to CES). I was taking him all around MGH for some reason. We also went swimming. Just as I was starting to wake up, I was going to take him for coffee and dinner. I think that was why coffee was on my brain. If it was an hour earlier, I would have made it. I usually like to have my coffee before 1500. Any time after that, and I run the risk of not sleeping well.

I don’t know if this headache is going to turn into a migraine or not. I took some Excedrin to calm it down. I still need to take my meds but it’s too early right now. Think I am going to just take trilafon now and then take the rest of my meds later tonight.

Friday Voting

Friday voting

I spent most of the day voting to try and get my favorite second baseman into the All Star Game Tuesday. You could have voted via text, website, or Twitter. I mostly used text and Twitter because it was easier than registering my email address every time I opened a browser. And since I had a pop up virus of some sort on my phone, I haven’t been too keen on using the web browser. Results will be some time later today, I think. Hope all the texts helped him.

I saw my psychiatrist today and she is okay with me using the trilafon because it is helping me. I told her there will be days where I might have to take 8 mg because of agitation and stuff. Today I didn’t take it and was really agitated and psychotic after my appointment. I didn’t take any with me, which I guess I am going to have to start doing.

We talked about baseball while I was there. I told her my opinion on our “ace” pitcher. I think he is a loser and a player, not really sincere at all. He hasn’t pitched too well in his last three starts. I really cannot stand him. And the Sox are paying him over $30 million a year for him for the next three years. I told her I was voting for Pedroia, our second baseman. She really likes him.

I had some time to kill after I came home and was waiting for the bus. I decided to get a sandwich that I love at the Au Bon Pain. I saw they had red velvet cookies so decided to get a couple with the sandwich. I had it for dessert after dinner. I wasn’t crazy about it. It had white chocolate chips and I am not a white chocolate lover. It was okay but definitely would not be buying them again.

My sister asked me to babysit tonight. I told her yes. I was going to take a shower but now I don’t think I am going to. It’s kind of cold and there is no heater in the bathroom because it’s broken. My brother-in-law still hasn’t fixed it, though he keeps saying he will. I honestly don’t think he will until his garden is over with. He spends a lot of time in the backyard during the summer months. It’s his stress reliever.

I finally finished “A Common Struggle” yesterday morning. It is a good book, if you like hearing about how a Kennedy deals with his addictions and mental illness. He fought so that we would have equality among mental illness and addictions to be treated the same as physical illnesses. The problem is, there just isn’t money out there for the mental health budget as it’s the first thing they close. Or there just isn’t enough clinicians out there to treat the high number of patients who wait for months to years for a therapist or psychiatrist. From what I gathered on Twitter, psychiatry is not as popular a specialty as it once was. I have no idea if this is because residency programs are shutting down or what. One of my friends, who’s psychiatrist retired, was seeing a nurse practitioner and then she left her. I know it’s a harrowing specialty but why be a psychiatric specialist if you aren’t going to stay there. Granted more people have chronic illness as well as psych illness these days than ever. Even my psychiatrist was asking me how I keep all my meds straight as I am on so many. The only one they didn’t have on my med list today was the sertraline. She had to add it, again, with the right dose this time. Now I have plenty of it as the pharmacy accepted the script. It’s kind of odd because I just filled it last week. I have no idea how my insurance paid for it but it did. It’s only odd because they wouldn’t allow the trilafon to go through last week when my doc sent it. I had to pay out of pocket for it just to get fourteen pills.

My ankle is starting to hurt but I can’t take any pain meds because I am babysitting soon. I think I am going to try and see if my niece wants to watch the Labyrinth with me. If not, I will just watch it on my laptop. I am kind of scared to watch it only because as a kid I was scared of the movie. I hope now that I am an adult (or try to act like one anyways 😉 I can watch it.

Random 667

Random 667

I saw my neurologist today. It was more of a catch up appointment as I wasn’t really having too much nerve pain. I told her it had quieted down a month after my father’s death. She already knew so I didn’t have to tell her. I was grateful because I wasn’t sure how I was going to be if I had to tell her. I told her about the New York Times article, which I thought I sent her but I guess I didn’t because she doesn’t recall it. So I sent it to her this evening when I came home.

It took me a long time to get home than it did getting there. My ankle was a mess by the time I got home. I am glad I took my cane with me. I am in wicked pain and tomorrow I have to go out again. I don’t have to do much walking.

I should have taken a trilafon before leaving the house but I didn’t want to be drowsy. Big mistake. I got really paranoid and psychotic while on the bus and on the train. When I got to the new station I put my music on and it helped with the noises in my head. I knew I had a long train ride so I brought my Kindle. I read on the way to the appointment, which helped quiet down the voices more. By the time I reached my appointment, I was less paranoid. It helped that the train didn’t have that many people on it. I was going toward the end of the line anyways. Coming back home was a different story. Crowds were on the train as people were coming home from work and the places they were visiting. I was kicking myself for not bringing any meds with me.

I was starving by the time I reached home. I ordered a pastrami sub and fries. My mother bought me Oreo ice cream. I had a couple spoons and that was all I could stomach. I got pretty full off the fries. Oreos are my true cookie weakness. I had bought three packages of Oreo thins and I am down to my last pack. They are like potato chips, you can’t eat just one.

I forgot to tell my neuro about the atypical migraines. I guess we’ll have to wait and see if I get another one. I had a rough night sleeping. I went to bed around 2200 or a bit later and then woke up around midnight. I checked messages on my phone. I meant to take some meds because my arms were spazzing on me for some reason and felt like spaghetti. I rolled over on my back and fell asleep. I then woke up three hours later with my back hurting me. I can’t sleep on my back for this reason. I took some meds and waited for them to work.

While I was up, I wrote FB a message of what I just described. A friend in California texted me a little after I sent the message. It was almost 0400 and I had no idea who would be texting me at that hour. It was her. She had some news to tell me. So we talked for about an hour or until I got really drowsy from the meds. It was close to 0500 when I went back to sleep. When I woke up later this morning, I so needed coffee. I made my Pike’s and it was so good. I was contemplating going to Starbucks when I reached the Square on the way home but the bus was there and I really wanted to get home to take some pain meds. My ankle was not too happy with me. I forgot I had turned my phone’s sound off while I was at the doctor’s office. I had a missed call from my friend. She didn’t leave a message so I didn’t call her back. I am sure I will talk to her later tonight.

Allergies and Other Boring Things

Allergies and other boring things

Since I woke up this morning, I have been sneezing my head off. No matter where I go in the house, I sneeze. My eyes have been watering like a hose has been turned on. I just put antihistamine eye drops in and they feel a little bit better. I also have been taking diphenhydramine all day. It’s been helping a little bit. Least the runny nose has stopped. I feel okay despite all this so I don’t think I am coming down with a cold.

The house is hotter than hell. I don’t know how my mother can stand it. I am worried about her because the last time it was this hot her sugar dropped. I am keeping an ear out but it’s kind of difficult with the AC running.

I haven’t heard back from my psychiatrist so I guess what I wrote was acceptable. I was nervous I was going to get a phone call after I sent it but I didn’t. I hope she liked the blog I sent her. I haven’t responded to my friend about the email she sent. I really don’t know what to say to her. Sometimes I don’t respond because there isn’t anything that needs responding to. I do give her encouragement when it is needed. I just wish I could write my book like she is writing hers. So far my book is about my psychotic episodes and how I deal with it with my medication. My first story is about darkness. I need to edit it some more because there isn’t some things that I like in it. But it’s hard to delete stuff when you are looking for a high word count.

Some of the stuff in my book, I posted on my blog. I was hoping to try it out on my readers to see if they liked it or not. Unfortunately, I don’t have many readers every day so I don’t get responses like I used to. This is mostly wordpress readers not internet. I think I get more internet traffic than WP, which is okay. As long as my blog gets read, I really don’t care who is reading it. I had a reader from Guam but haven’t seen him/her in a while.

My first book hasn’t sold too well. It went for around 100 copies, not including the books I sent out to potential reviewers that still hasn’t returned one review. I am upset about that. I think they were just interested in a free signed book.

So while I am trying to think of stories to write, I have been reading like crazy, well as crazy as the depression and psychosis will take me. For a while, I didn’t do any reading because my depression was so bad and my father was so ill. I remember reading a blog the other night that detailed how angry I was that he wasn’t taking care of himself. I gave him a year to live, less than that if he didn’t do what his doctors were telling him. He died a few months later. I still can’t believe how quickly he deteriorated. Less than twenty days in the nursing home. We did bring him home because that was his last request before he became non communicative. He just became a shell of a man. It was heartbreaking to see, even though I had a lot of resentment towards him. Anger as well. Actually, a whole lot of negative feelings toward him, even in his last hour. I had taken a picture of him while he was lying in the casket. He looked like he had a smirk on his face. That is how I wish to remember him rather than how he looked on his death bed. He died peacefully, in his bed, not at the nursing home. It took some doing because otherwise we would be paying a huge ambulance bill. I am grateful the nursing home doctor wrote that it was medically necessary for transport. I won’t forget that.

I hope I don’t have to see my mother die that way, frail and thin, almost skin and bone. She has gained weight over the years, which hasn’t helped her health much. But as long as she is eating and drinking, I know she is okay. My biggest fear is that she will get cancer of some sort because she was a heavy smoker. Thankfully, her chest CT was clear during her last admission.

Because I took Benedryl tonight, I skipped my Ativan dose. I also took some magnesium supplements for the spasms that I had in my back today. Every time I stood for longer than 5 minutes, I became hunched over and my seized up. It was awful. I helped my mother empty the dishwasher and it took me longer because I had to keep sitting down to ease the spasms. I haven’t done anything in two days so I have no idea why my back hurts. I hope it’s not because of the humidity because summer just started and I don’t want to be house bound. I have to go out tomorrow for my appointment or I will be charged a $75 no show fee.

My Sox are winning tonight. I checked the score on my phone and when I went back to the internet, it said my phone had a virus on it. So weird because I didn’t have the thing open while I was using it. I just closed the browser and opened a new one. Pissed me off though because I just had a system update that was supposed to fix the “security” of the phone. Yeah, right. And my last name is sucker.