psychosis, therapy, and other things

I had therapy today as usual. We talked more about the psychosis and how I have been dealing with it, or not really. I told her I thought I would email my psychiatrist today to inform her of an agenda for when we meet on Friday. I want to tell her that I think we need to get the psychosis under control. I sent her yesterday’s blog in the email so she has a better idea of what I am talking about.

We talked a little about my father. I told her I have been reading blogs about his treatment towards me and other stuff but I was very vague and don’t remember the incident I was describing. I had to look at the date I wrote it to know what I was talking about. He was a difficult man. Hard to believe it will be three months that he has been gone. I still haven’t cried much for him, if at all.

Then I get an email from writing friend today that thinks my psychosis is caused by the grief of my father. She doesn’t know what happened this weekend so I am dismissing most of what she was talking about. Plus she kept calling my father “dad” which just annoyed me. He isn’t a “dad” in any sense of the word. The guy only thought about himself. It was only in the last year that he started giving us money on the fly but even then we had to pay him back. I never wanted his money for this reason. There was always a catch to it.

In the email I sent to my pdoc, I also told her what I wanted to talk about that didn’t involve the hospital. I told her about what happened with my mother. She is stable for now but that can change in a week or two. Hell, it can change today or tomorrow. You just don’t know with diabetes, even if you constantly monitor your levels.

Today I am less psychotic because I took my meds yesterday. I spaced it out so I did take 8 mg of trilafon. Today I plan on doing the same. It seems to be working. I am not as paranoid or agitated. The AC isn’t speaking to me. I haven’t played music so I am not sure the lyrics have changed on me. Last night, I was listening to Bon Jovi. There were songs I had to skip because I didn’t care for them. Then the Sox game got hot last night so I listened for a while. The voices wanted me to read but there was no way I could listen to the game and read so I turned the game off. I was reading Patrick J. Kennedy’s book, A Common Struggle. I didn’t there would be similarities between us but there were, as far as our illnesses go in managing it on a daily basis. I don’t have the addiction issues he has but I know what it’s like trying to manage being bipolar and psychosis. Then I read the part of losing his dad just before my therapist called me.

I asked my therapist if she reads and she laughed, thinking I was calling her illiterate. She usually doesn’t read fun books, just professional stuff. I told her about A Common Struggle and how I was interested in it. I didn’t tell her the reason I had an interest in the primary author (PJK) but did tell her the background of the book. He pushed for mental health and addiction parity while in Congress, all while battling his addiction to drugs and alcohol and bipolar disorder. I really don’t know how he didn’t accidently kill himself but I think he was on that road had he not had treatment at the various places he went to. He was never really suicidal until his girlfriend said things were over between them. It was the first time he had such thoughts.

Anyways, we talked about the book in therapy and how it stirred up feelings about my father. Last night he was on my mind. I think he is always going to be on my mind even though he is gone. I am just glad I am not hearing his voice while being psychotic because that would be very dangerous.

I didn’t go out today, again. It’s too hot out and I am fearful it might spike another psychotic episode if I go. I don’t really want to be around people. Tomorrow I have to go out because I have an appointment with my neurologist. I haven’t seen her in two years, and not much has changed. I still have pain that is unexplained. The reason I made the appointment was because I was having nerve pain, but that seems to have resolved. I think all the standing I was doing the month of April and dealing with the impending death of my father just caused a flare up. Now that I am back to my regular routine, or rather no routine, things have calmed down.

I am missing my cold brewed iced coffee from Starbucks. I will have it on Friday when I see my psych. Feels like ages since I last saw her and it’s only been three weeks.

Disconnect

Disconnect

I had therapy today and gave my therapist an update on the activities of the weekend. It didn’t help that I was feeling paranoid and the AC was talking to me. I had taken a trilafon before she called but it hadn’t worked yet. Now my MP3 player is being commanding. I feel like I am losing it. I was telling my therapist about how the voices were acting up in November of last year so obviously, the abilify was losing it’s effectiveness then. I think it was holding me from becoming full blown psychotic like I am now. It has been going on for months now. I don’t usually pay attention because I always hear voices. I have two that are prominent. It’s usually when objects talk or the lyrics of songs change that things get worse for me. She thinks the stress of this weekend might have caused me to go overboard.

I also told her of the dream I had about my psychiatrist that I had this morning. In the dream, I was asking to take 8 mg of trilafon and she said she didn’t know me well enough to make that decision. I woke up from the dream like, WTF. I have known my psychiatrist for the past 20 years. If she doesn’t know me by now, she never will. But it was just a dream. I am debating calling her today but I am afraid she will tell me to go to the hospital. But I can’t because my mother’s health is so precarious right now. She can’t be left alone anymore.

I don’t know if going back to the abilify is going to help me or not. Even while I was taking the abilify things were bad. I might have to try something new but I am not sure what is out there that I can try. Most of the newer antipsychotics have risks of diabetes and I am at a higher risk because of my mother. This is why I don’t take olanzapine. I loved that drug. It worked well with the voices and paranoia. Unfortunately, my psychiatrist didn’t like it because it was shown to have a higher risk of diabetes than other antipsychotics so took me off it. I was very sad. I am at a medium dose of abilify so I have some room to increase it. I don’t know if my psych wants to do this. I meet with her on Friday and will bring it up to her. That is if I am not fearful. Last time I was paranoid of her. It was not a good visit.

I was telling my therapist that even though I am writing, I feel disconnected from it. I think with the psychosis being so bad, I just don’t feel emotions like I used to. Things are either one extreme or the other or not at all. I feel numb most of the time. I don’t know why this is. There just is this disconnect. Even while things were going on with my mother, I didn’t feel much of anything. I knew what to do and stuff but I really wasn’t at all concerned about my mother that much. I didn’t feel high off adrenaline or anything. I just did what needed to be done. I knew she was in good hands but at the same time, it felt like I was feeling nothing at all. I know the voices were extremely loud as they wanted to know what was going on. But it wasn’t like I could talk with them with a crowd full of emergency personnel. I would have been taken away.

Today is really muggy and the next two days are going to be worse. I have the AC off right now because it was talking to me but my room is starting to get warm again. I am still feeling paranoid despite being alone in my room. The only other person home is my mother. But the voices are really loud today. While I was reading, the reading voice was so loud I could barely understand what I was reading. Probably why I was dreaming of taking 8 mg of trilafon. I should be able to take another dose in an hour or two. I really am tempted to take at least a 5 mg dose of abilify to see if does anything. Probably won’t because I am so out of whack.

My writing friend has come back into my inbox. She needs someone to be accountable to and so emails me after she has written a page or two. I haven’t responded yet because I am not sure what to say. I am not thinking too clearly at the moment to say anything back.

I made some progress with the Harry Potter book that I am reading. I now have 15 chapters to go. If I read at least 2 chapters a day for the next week, I should finish it. It has been on my reading list since February.

Independence Day 2016

Independence Day 2016

My day started out rough. I slept really late after being up in the middle of the night. I had slept for an hour and a half and then woke up for a few hours. It was hard to get back to sleep. I am glad I slept till around 1030 as I was tired. I decided to make coffee and when I went to the kitchen, my crazy aunt was over. She was visiting my mother. She talked the whole time I drank the coffee. My ears hurt from her voice. She would get so caught up in whatever she was saying I thought she was going to cry a few times. She is such a drama queen. It took her at least a half hour to leave because she wouldn’t shut up. I had heard the story at least three times already, if not more.

After she left, I scurried back to my room. I called my sister to see what she was up to as I haven’t seen or heard from her since Saturday. She wanted me to come down as she was making potatoes. I went down and she said she was having a cookout later this afternoon. She invited a friend over. I was fidgety in my room so after a little while, I went back downstairs. My uncle and cousins were over so I went down to say hello. I got a little bit of sun as it was so hot out.

My mother came down to see her brother and then everyone left. I thought it was funny. We then had something to eat and then I had to go back to my room. I was so warm. I had a beer while we ate. My brother in law bought shady beer and it’s pretty good. I drank most of it, which I usually don’t do. I am not a beer drinker at all. But I will have one or two over the course of the summer.

Voices are flaring up today. I think my aunt and the heat just caused them to act up. The voices know I don’t like my aunt very much. She grates my nerves like nails on a chalkboard. I am feeling kind of out of it and I would take a trilafon but I just had a beer and don’t think it would mix very well. I will take it before bed though. I really need to talk to my pdoc about taking it every day. I see her on Friday. I am still debating on seeing my neurologist on Thursday. I haven’t been in as much nerve pain as I was when I made the appointment two months ago.

I have been in a low mood for most of the day. I just can’t seem to shake it. I have tried reading but my concentration hasn’t been so great. I wanted to read last night before bed but it never happened. I took a shower today and it just about wiped me out. I was so tired afterwards. And this was after I had a cup of coffee. My niece is a coffee junkie like I am and I saw her make her iced coffee this afternoon. To me, it was gross as she used instant coffee. The smell alone was gagging me. I cannot stand instant coffee. I thought it was blasphemy. But she drank it.

I really thought the Sox were going to lose today because they were down 4-0 by the 2nd inning. It wasn’t until the bottom of the 3rd they started cooking with gas. They overtook the Rangers and were beating them 5-4. The final score was 12-5. I am happy they won. We needed a win.

As today is Independence Day, I expect there to be fireworks of some sort this evening. I hate fireworks and loud noises. I hope my AC noise will drown out the sounds.

Sunday Blog 14

Sunday Blog 14

I didn’t do a hell of a lot today but I made breakfast. I made oatmeal pancakes with buttermilk. It was good but the pancakes fell apart easily. It was messy. I then cleaned up after myself because my mother was still in the hospital. I called her and she didn’t think she would be coming home today but she did. While I was waiting for her to come home, I watched the baseball game. It was pissing me off because every time they had a runner on first base, they kept trying to pick them off. I hate when they do this because I want to see the batter pitched to not the throw to first! It made it a long game.

When my mother came home, the Sox finally scored some runs. Seven in one inning. I was happy because they were toast yesterday afternoon. It was ridiculous. They lost 21-7. I stopped watching when the game was 13-1. Today they won 10-5. I am glad they took the series and played better ball than yesterday.

I made supper for my mother and myself. My mother is all black and blue from the fall she took the other night and from all the poking from the needles and stuff. There were only two pans left for my mother to wash. My ankle started acting up because I was standing most of the time I was cooking.

I finally read a couple chapters in Harry Potter this morning. I am making slow progress. I will read some more before bed. I really need to take a shower but I need my ankle to settle down some first. I just took a pain pill, my second of the day. Even though I have been home alone most of the day, I have been going up and down the stairs a bit. I had to take the trash and recycling out. Then my niece needed some clothing so I had to go to the first floor to get it for her. My mother needed more ice so we took some from my sister’s freezer as she has an ice maker. Then I went up to my room a few times to play on my laptop before my mother wanted cooking done. It has worn me out.

I did make coffee this morning. I made it a little bit stronger than I usually make it because I didn’t put enough water in the French press like I usually do. It was still good. I was hoping to go poop but that hasn’t happened yet and it’s been a couple of days. I am going to be hurting when I do go. I am not looking forward to it. I had some baked beans tonight with dinner so I am hoping that moves things along.

My cousin called me this morning. She wants me to come visit her to have a pool party. I forgot she has a pool. I really don’t feel like talking to her today so I will call tomorrow. I am just wiped out from doing “normal” activities. Being on my feet didn’t help. But it’s not like you can cook sitting down.

Last night I was reading some old blogs. Seems my depression started sometime in September and just got worse in January through April. I also talked about the voices so they have been active for quite some time, even while on the abilify. I am glad I have this blog to monitor my symptoms because I don’t always remember what I write or when the beginning of something is. I had a few flashbacks this weekend of my father’s death and of his downfall. I was reading some of my posts back in March of this year. I mostly talked about him being mean to me, which he always was. He thought he was being funny. I guess the recurrence of the cancer and him not responding to the radiation treatments caused him to deteriorate. I just can’t believe it happened so quickly.

I think I am able to write the story now without it being traumatic for me. Most of the PTSD symptoms have calmed down. I know I was just triggered by going to the floor that my father was in and walking by the room. He spent almost 10 days on that floor where my mother was.

If I really want to make a dent in the books that I bought the last few months, I really need to get reading. My pile keeps getting higher and higher instead of smaller. I keep looking at the pile and it’s starting to overwhelm me. I had started an Excel sheet of the books that I read and how long it took me to read it. It’s mostly a spreadsheet of when I started a book and when I finished it. Since my father’s death, I have only finished two books. I have a challenge going on in GoodReads.com and my goal is to read 40 books in a year. I am not even at the 10 book mark and it’s July. I have the time to read; it’s just that sometimes I just don’t have the concentration because of my illness. I don’t carry a book to Starbucks anymore because I never read there. I just write in my journal. I don’t even write in general anymore while I am there. If I have a plan, which is rare, I usually carry it out. But lately, I just want my iced coffee, write in my journal for an hour, and then go home. I haven’t brought the psychology book that I bought a few months ago to Starbucks in weeks. Maybe I will try that this week.