Category: CRPS

Am I weak?

by Midnight Demon, posted in Bipolar Disorder, Chronic pain, chronic physical pain, CRPS, depression, grief, mental illness, mood disorders, physical pain, psychache, suicidality

I called UNCLE. I was slowly drifting off to la la land and then the unknown entity in the form of a knife started stabbing the middle of my foot. I am filled with such despair right now, I’m beside myself.

I just want to die but I can’t leave my room because I can’t bear weight on my damn foot. I’ve been trying to distract most of the night but I am angry. Angry the meds work on certain pains I get in my foot and ankle, angry my PCP doesn’t meet with me frequently enough to see what I am going through, angry that I am forced to use mobility aids around the house to try and lessen my pain. Angry that my friends in real life don’t get what I am going through. My sister came up to visit and she wanted me to go downstairs to see her. I told her I was in too much pain. There was silence. I felt like I could hear her thoughts saying yeah right, like I would stay in my room to avoid her. 

The past few days have been awful pain wise. I’ve been trying my best to stay on top of it but it’s hard when the pain keeps changing and now it is affecting my bones. I get severe bone pain in my foot and ankle, specifically, the malleolus and metatarsals. But only half of my foot and ankle hurt. The last three toes going up to my ankle and outer foot/ankle hurt really bad. It is draining me. I can’t tolerate the pain. I want to die.

I’ve been thinking about my therapist that I’ve been seeing the last few months. I’m going to be straight with him and see if he is willing to help me or just play with his nails. I need encouragement if I’m to continue living. I haven’t gotten that from him at all. I miss my ex-therapist. She always provided encouragement and support. 

I see my psychiatrist Friday. She has been on vacation the past few weeks, but I’ve been emailing her about what has been happening in her absence. I’ve come up with a suicidal plan. I think I emailed it to her, I’m not sure. If I did, She didn’t respond. Im sure we’ll talk about it when i see her. If my therapist doesn’t want to help me with my problems, I’m going to stop seeing him. I mean, what would be the point? Ramble for 45 minutes every week with no feedback or analysis of what I am talking about? I’ll have better luck talking to a wall.

Chronic pain has got to settle down. It is killing me and will kill me. Even though I’m on pain meds, and they do work, however my pain is so intense and unpredictable that I never know when I need to take a pill to control it. I can’t say, ok at 7 pm the pain is going to be this so I’ll take this pill at 6 pm so I’m not hurting. It doesn’t work that way. Maybe in a perfect world.

I’ve been fighting sleep since 2130. Every time I get relaxed enough to drift off, my pain increases or I feel like my foot is on fire. Then I need to take another med to calm the flames. Trouble is, this med takes hours to work so in the meantime, I’m hurting and going berserk with pain.

Why is it when I talk about killing myself, people just don’t want me to die? I understand but if I was an animal, I would have been euthanized by now. Why can’t humans be euthanized? I know in certain countries you can be via assisted suicide. But I don’t have the money needed to fly there and pay for services just to die in a foreign land. I am so sad I no longer can work or walk anymore. Being in pain sucks. I do have the suicide disease. My dream come true. Now I just need a concrete plan to go ahead with it.

Early morning post

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, CRPS, depression, mood disorders

I woke up around a half hour ago because my bladder said so. My teeth hurt so I took some ibuprofen. I also have nerve pain so I took some neurontin. Don’t think that was a good idea as I want to leave the house early but we’ll see.

Was having a weird dream. Someone in my house needed speech therapy and we all had to go through it. Who it was, I am not sure. I also had a pressing home that I had to leave the house to see my girlfriend. This was the second dream I dreamt that I had to go to New York to see her. Weird because I don’t have any friends in N.Y. 

An old friend from childhood sent me a PM on Facebook. I responded. Haven’t talked to him in years. 

It is going to be a hot one today. The house is already humid. Yuck. I really hate summer. I wish I could say that it will be over soon but I read somewhere that it will be hot until November. Great. No fall weather.

Don’t know what is going on with my ankle but it has been quiet, except for the nerve pain. I haven’t had physical pain since Wed. Hope that continues but I know it can change in a heartbeat. And I will be going out today so anything can happen. I just hope my pain levels are low enough so I can go on the cruise tomorrow.

Going to try to go back to sleep. Morpheus is calling me.

Can’t pass out due to pain

by Midnight Demon, posted in Bipolar Disorder, Chronic pain, chronic physical pain, CRPS, depression, disability, grief, mood disorders, physical pain, suicidality

I’ve been fighting sleep for the past two hours. Every time I think it is safe to lie down, my ankle or foot acts up after about 10 to 15 mins. I took this and that but I’m still awake. In a few mins I’m going to take more pain meds as I’m due. Man, I wish my doc would put me on extended release pain meds so I don’t have to take them around the clock.

My sister ordered food and invited me to have some. I couldn’t say no to pizza and fries, even though I had something to eat about an hour before. Now my stomach is hurting because I ate too much. Oh well. I really should be watching what I eat but I hate doing it so I don’t. My weight is a yo-yo anyways. I lose and gain the same 5-10 pounds. I have been drinking more water instead of soda. Small changes which I hope will help in the long run.

I’ve been thinking about therapy. Maybe in my next session I’ll see what he really knows about the different modalities. I’m tired of talking about myself. I just feel like I ramble and don’t get any feedback so why bother. Or he’ll throw out some analysis but it will stop there without a way to help me. How am I supposed to get better if he doesn’t help me along the way? It’s just getting frustrating. 

I really would like to sleep. With all the meds I take, I should be knocked out with a few hours. Pain is a bitch. It is really draining me the hell out of me. I should look into getting an adjustable bed. Maybe then I can sleep while sitting up without it hurting my back. My mother bought one but she doesn’t like it. 

I have been thinking bad thoughts about how to get rid of my ankle. I just don’t want it anymore. It is too painful. And the pain travels down my foot into my toes, all on the outer part of it. Only exception is when my big toe acts up for whatever reason. 

The whole thing is making me very depressed and suicidal at times. I don’t want to be disabled. I want my crummy job back or maybe go back to school to finish my degree. But I can’t last more than a few hours out of the house and I can’t walk very far without severe pain. Depressing.

ER visit

by Midnight Demon, posted in Bipolar Disorder, cauda equina syndrome, chronic physical pain, CRPS, PTSD

So I went to the ER tonight because my psych was worried something more was happening when I told her I couldn’t move my toes. It gets like that when I’m in severe pain but it sets off PTSD symptoms. I was having an anxiety attack which is why I called her. Anyway, the ER found nothing wrong with me and didn’t do any tests. I said just send me home so I can take my pain meds. The attending forcibly moved my toes downward causing me excruciating pain. Then told me I could move them. I told her she could move them, not me. Jerk face. She discharged me with me to follow up with my GP  I sent my psych and GP an email telling them the ER did nothing for me as I was “normal”. I am beyond exhausted and in more pain than I was when I walk in. Hope I sleep tonight. The novacaine wore off so now my teeth hurt. Just been a really long day.