Psych and Neuro Abnormality

Psych and Neuro Abnormality

I saw my psychiatrist today. She was kind of miffed at the neurologist for suggesting that the trilafon is behind the music stuff playing in my head. She intends to email her and set her straight as she has never heard of such a thing. She said that I am a mystery to her. I laughed. She wanted me to read Oliver Sacks to get a better idea of things being weird in psychiatry/neurology. I told her I would look him up.

I was able to get my pain meds filled without a problem, thank god. If there was a problem, I was going to raise hell. I purposely stayed at the pharmacy to make sure there were any glitches. Then when I was walking home, my ankle said it wasn’t going to work anymore. I was going down an inclined part of the walkway and it just gave out on me. I was cursing myself for having walked that part of the street. It can be a trigger for my ankle giving out on me. Luckily, I had my trusty cane with me so it helped. I am really pissed because tomorrow I was going to meet up with some friends and now I can’t do that. My week is done.

Today was extremely humid so of course I am a sweaty mess. I have to wait till my pain meds kick in to take a shower. I was going to shave but seeing as I won’t be going out tomorrow, I might as well keep my whiskers. It will have to be a quick shower anyways as my ankle and foot will murder me if it’s a long one.

My mother had dinner for me when I came home. I ate it quickly, then went up to my room to cool off. Now I am craving pizza. I can’t decide if I want a whole or a half. I just want two slices but they won’t deliver just two. I wish I could just walk to the pizza place but I can’t. Guess I will have to wait till tomorrow to satisfy my pizza craving.

I told my psychiatrist about the book I am writing. She didn’t seem that enthusiastic about it. But she is happy that I am writing. I also told the NP about my writing adventures. She was a little enthused about it. I told her about my pain being horrendous and she didn’t have anything to say to me. She just gave me my script and off I went. I found out that my diagnosis is “other chronic pain”. It was on the prescription. That doesn’t help me. I guess I never will find out why my ankle likes being a fucking pain. Another abnormality.

Civic Duty and other things

Civic Duty and other things

I saw my neurologist, who wasn’t really helpful in figuring out why I listen to music in my head all the time. She thinks it might be my antipsychotic causing the problem, or some medication that I am taking. So as long as the lyrics don’t tell me to kill myself, I am to live with the music stuck, on repeat, in my head. Just fucking lovely. Not only do I have to live in pain, I got to deal with this bullshit.

After the appointment, I was kicking myself for not bringing my Kindle to read as it was a long train ride back to town. I decided to do my civic duty because they were holding city elections today. So I did that. As I just got off the bus, and the next one would probably be at least a half hour to an hour, I decided to walk home. I didn’t want to stand around for the next bus. It was a long walk but I was feeling okay. That all changed once I hit the main street where I live. I was maybe ¾ home when my ankle was saying fuck you. The other side of the street was blocked off with cones so I wasn’t sure if I could cross where I was. So I decided to be a good citizen and walk to the crosswalk as it was close to my house anyways. While going by a convenience store, I decided to play the Powerball game as it’s $555 million. I expected to be in and out but nope, I got behind a guy that was playing all sorts of numbers left and right. I was ready to just walk out when he finished playing close to $40 worth of lottery numbers. Unreal. I got my quick pick and hurried home. I was starving and I was getting hot because it was really humid out. The last time I ate was around 0530 this morning. And it was now around 1230.

I came home and made a cheeseburger. I cooked it really well. In fact, I think I overcooked it to my tastes but the burger was sitting in the fridge for a few days and I wanted it well done. My ankle was not happy with the cooking. I changed and went up to my room with the AC on and rested. About an hour later, exhaustion struck and I needed a nap. My cousin must have called about an hour later. I knew what that was about. My mother wasn’t home yet so that meant she went shopping. No way was I going up and down stairs with my ankle screaming at me. I ignored the calls. They knew I was home and my mother was bullshit. But my cousin is a fairly healthy male so why the fuck can’t he bring the bags upstairs?? It pisses me off that I am expected to just because I am home. So I didn’t care that my mother was mad. My ankle is killing me and I still have two appointments tomorrow that I need to attend to. I have no idea how I am going to manage. I need to get my pain meds refilled and I need to see my psychiatrist.

I am really hoping the “black box” warning I heard about doesn’t affect me tomorrow. I will really be bullshit if I don’t get my meds because of these stupid warnings. But I won’t know until then whether or not I will get my meds. It’s a worry that is in the back of my head.

I wrote a little bit in my journal this morning as I had time before my appointment. I had about an hour so I was really early. I rather be early than late anyways. And with the T, it’s better to be early. I just wish I had my Kindle so I could knock down some Dostoevsky. I really wasn’t thinking about it because I had such a shitty sleep and woke up an hour and a half before my alarm went off. I didn’t dare try to go back to sleep because I really wanted to make coffee. I made it perfectly and it was so good, I wish I had more so I could have had a second cup.

NYT Article

Today, at this time, my article http://opinionator.blogs.nytimes.com/2015/09/08/love-hate-and-suicide/?_r=0
Was published a year ago, in the New York Times. It was a very proud moment for me. It still fills me with joy whenever I think about it. I wish I had written more stuff like this, but unfortunately, I don’t have control over my writing. Sometimes things come to me and it’s a hit. Sometimes it sucks but I write and publish it on my blog anyway because maybe someone can relate to it.

nyt_lovehatesuicide

In the picture, that is where it all started. On a notepad. I think I do most of my best writing when I handwrite. I just wrote something today and it was a little short of 850 words. I don’t know if it will ever be a prize like this New York Times article but it will be going in my book. I won’t be sharing it on my blog because there are somethings that I don’t want published. I have published so much of the book on my blog that it’s getting hard to write “original” stuff. Of course, I then edit the blogs so that they are formatted and not gibberish for the book. I am getting close to completing the book. I might be done by the end of this month if I really work on it.

Depressed Because Pain Sucks

Depressed because pain sucks

I thought I would escape the pain demons tonight but I was wrong. Zaps started a little while ago and now my foot is throbbing uncontrollably. I just took some pain meds, which I was hoping to avoid because most of my day has been pain free. I should have known that around 2300, my pain would increase.

I am deeply depressed. I am thinking of suicide again. It is the only thing that helps me to relax and gives me hope that my pain will end. I know that it will cause others pain by my death, but I just cannot go on living like this. I would say that I am too young to die, but there are kids dying every day because of cancer and other horrible diseases, or by stupid parents that leave them in hot cars.

No one knows what causes my pain. I am terrified of seeing another PCP because I am afraid he or she will not believe my pain because it very rarely happens during the day. I have most of my pain at night, when I don’t have an appointment with a doctor. Even then, I am sure they won’t be able to diagnose what is wrong. This has been going on for more than 4 years now. My quality of life sucks. I vacuumed the rug near my bed because I was tired of little shits of lint and other stuff getting on my bed because my feet track them there (I am barefoot most of the time). Most of it is lint or pebbles or paint chips from the stairs. Where the pebbles come from, I have yet to figure out. I found one on my near my “office”. How it got there is a mystery as I don’t have my feet anywhere near where I found it.

I am thinking of increasing the Zoloft but am afraid to ask my doc about increasing it, only because the stupid “wonderful” system that they have might screw up the dosage change again like it did before or totally delete it once it has been changed. It’s a very fucked up system. Even my pain meds have to be “added” though I have been taking it for years now when I go for a refill. So damn stupid. Yet the stupid system still has the abilify there even though it has been months now that I haven’t been taking it. Go figure that one out. Or rather don’t try. It will give you a brain cramp.

I have noticed the last few months how much my moods and suicidality have been surrounded by my pain. I think my therapist finally got it today after she read the letter that I wrote to her on Aug 24th. She saw how devastating my moods can be when my physical pain is at its highest level. I am in pain tonight but not at a suicidal level, thank goodness. The pain I feel now is just a mild, annoying throbbing due to the electric zaps that I had. These zaps are terrible and can go on forever or just a little while. I never really know but the longer they persist, the deeper the pain levels are once they stop. It’s worse than a severe cramp in my foot.

I should be sleeping now but pain is keeping me up. I have to get up in about 8 hours. I will be lucky to sleep at least 6. I am very tired. My head wants to rest. For the first time in weeks, I don’t have music drilling my head. It’s just playing softly, like background noise. I wonder if my neurologist can figure it out. It will make for an interesting story in my book. A nice short chapter. Most of my chapters in my book are short. I think the longest story is the first one and the rest are 1200 words or less. I am striving for at least 850 words per chapter. It is fun to write. I hope my readers will buy my book once it is published. If they don’t that is okay too. Most of the stories are on my blog anyways, with a few exceptions. So basically, the book is a blog production that is in paperback. It will also be on Kindle for those that have e-readers.

I didn’t think I would finish my book this year. I am getting closer to it. 80 pages shouldn’t take me long, if I keep at it for the rest of the month. Maybe the beginning of October I can start looking for an editor again. My last editor just flew the coop and I have no idea where she went. I have a Twitter buddy that has agreed to work with me. I have no idea how much she will ask but I will pay her around $300. My book isn’t that long (word wise) so it might work out. If she wants more than that, I will have to wait a while to raise the funds. Course that will mean no Amazon spending for the next few months. I miss shopping there and getting “presents” when the orders come in. But sacrifices need to be made. I do have to place one Amazon order my next paycheck as I need my senna and eye drops. Getting them at Walgreens or CVS is just way expensive.