All I want to do is sleep

All I want to do is sleep

I had a very rough night last night. I was so exhausted, I couldn’t sleep. Then this doctor made a tweet that really made me angry. So we exchanged words last night, well after midnight. I was so pissed, I couldn’t calm down. And my foot wasn’t helping because soon as I would relax, it flared up in pain. I had taken a strong pain pill to see if that helped. It did bring the pain down, made me a little high, and was about to knock me out but I just couldn’t relax enough to sleep.

My sister reminded me that I had to babysit and as the hours passed by, I knew I was going to be fucked for the day. I think I finally did fall asleep around 0330 and then woke up about 5 hours later. I checked my phone to see if I needed to go downstairs and there were no messages so I tried to sleep. I did for an hour or so. I then tried calling my niece to see if she was okay and there was no answer. She doesn’t pick up the phone. It is really annoying. So I went downstairs to check on her to find she wasn’t at home. My older niece told me that she had gone to the park. So that left me to do whatever I wanted to do.

I went back up to my room, with the intention of going back to sleep but my stomach was doing flip flops. Then I got hungry. I made a bagel with cream cheese and then went back to my room. I couldn’t sleep. I was wicked exhausted and still am. A couple of hours went by so I decided to make lunch and then try again to sleep. I was successful this go around. Least until my mother called me to help fix dinner. Her sugar dropped so she needed help. We had asparagus and eggs for supper. I would have had the cauliflower but I was so full off the asparagus I couldn’t eat it.

I finally got a response back from my psychiatrist. She wants me to keep her posted. I might page her tomorrow, just to talk. Part of the reason I couldn’t sleep was because the voices were talking to me the whole fucking time. They were keeping me up with their endless chatter. I wanted to take a trilafon last night but I never got the chance. I was so upset over what that doctor had said that it really agitated me. I was going to blog about it and actually started one but never got done because I was so tired.

I texted my therapist to call me or let me know if there was an appointment available. I haven’t heard anything back. It’s really warm today so I didn’t want to go out in the condition I was in. It would have made me more tired. I am going to take my meds early tonight and hope I sleep until tomorrow morning, like at least after 0400! Pain is still there but it’s getting better. I hope it doesn’t flare up again. My suicidality has increased over the pain the last three days. It wouldn’t be good to have a fourth night of pain.

Severe pain continues

Severe pain continues

I finally was able to sleep around 0230 or so. All the meds I was taking finally knocked me out so I could sleep. I shut my phone off so I wouldn’t be disturbed. I woke up around 1100, which was good. But the pain was still there and now my upper ankle is hurting me like I have been standing on it all night. I know that this pain is nerve pain because it’s more of a throbbing pain like the rest of my ankle and foot.

I needed coffee when I woke up so I made it. I brewed Pike’s coffee, a Starbucks blend. It is strong coffee but not the acid burning kind. I find that it is stronger than the Brazil coffee that I have. I wasn’t hungry so I didn’t make anything. I planned on making hot dogs, which I just had. They were yummy. I bought Fenway Franks which are the best dogs on the planet, to me anyway. I then had a piece of pumpkin pie. I am so full. I think I will have supper later tonight, if I get hungry. I still have the ribs from yesterday to finish off. I plan on making biscuits sometime today but it depends on how my foot is feeling. Taking a shower and making lunch really brought back the pain so I am going to rest for the next few hours.

Sox game is starting. I was going to listen to it but my favorite pitcher is pitching and he has been sucking big time lately. I really think he still has potential to be a great pitcher. I just think something mentally is going on. Maybe the pressure of being in Boston is getting to him. His first outing he pitched a no hitter and he hasn’t pitched well since. So every time he is on the mound people are expecting him to pitch well. Only reason I am not listening to it is that it is painful to hear him pitch badly. Much worse to watch.

I am glad I was able to shower. I feel better, a little bit than I did last night. I emailed my psychiatrist twice last night. I sent her my blog and then a few hours later, I sent her an email exactly telling her what was on my mind. It wasn’t good. Between the voices creeping up and the severe pain, I am suicidal, again. The voices aren’t telling me to harm myself. But they are just encroaching on my space. They want to know everything that I am doing, all the time and why I am doing it. If I pick this coffee over that one, they want to know why. If I take a pill, they want to know why I don’t take two instead. It’s exhausting. I wrote a lot last night. I had started writing at 0130 that day so around 2340 I continued where I left off. I think I wrote until it was well after 0100. I don’t even remember what I wrote. I still fear a hospitalization is coming. I just don’t want to go back because I don’t want to be doped on meds. I can still function, well, as a psychotic person can. I am used to it. I am not scared except when I am paranoid. But that is mostly when I am out and about. It’s really hot today so I am just staying in my room.

I plan on reading more of “Common Struggle”. It’s a good book and it’s hooking me in because he is at the point where he is realizing he has an alcohol and drug problem. I find it amazing when people recover and do something about their illness. He also has been pushing mental health parity in the US Congress. He really wants brain diseases (mental illness) and addiction to be treated the same way as diabetes and cancer. Unfortunately, there is more stigma to fight because people don’t seek help for fear of not being helped or being told to “tough it out” or think positive thoughts. Most often, people seek help and find there are huge waiting lists to see someone. The same is true everywhere. Sometimes even after a suicide attempt, there isn’t a bed available so they stay in the medical ER until a bed becomes available, only to be released a few days later with the “promise” not to try again. No follow up or after care is given, usually. There just isn’t money to follow up. That is why I think it’s a joke that some places are taking on the “Zero suicide” initiative. That is all well and good until someone falls through the cracks and kills himself or herself.

Some Thoughts on a Saturday Evening

Some thoughts on a Saturday evening

I recently found out that a friend of mine on Twitter lost someone by suicide. She had interviewed this person two years ago for her photo thing called “Live Through This” (www.livethroughthis.org). I was sad to hear this because I thought people who were interviewed were somehow free of suicidal thoughts, that they had their life together after their attempt. I never was interviewed because I don’t want the exposure and I didn’t think I had anything positive to contribute because my moods were so bleak. I also was actively suicidal at times. I still think one day I will die by my own hand, that is if some alien parasite doesn’t take it first.

I have been reading over my blogs from 2-3 years ago. The blogs were all about the severe pain I was in with my ankle/foot and how suicidal it was making me. I also wasn’t getting any support from my PCP. He just wanted to “fix” me but really couldn’t. He also was very discriminating towards me because of my weight. There were blogs on the visits where he just wanted me to be more active. How was I going to be more active if I couldn’t walk without severe pain? Even on the last visit he wanted me to go to some program to learn to live with the pain and gain function. I know he doesn’t want me on my pain medication but I really don’t have a choice. It’s either be on this medication or end my life. That is how I see it.

This evening, I have been thinking about suicide. My foot has been aggravating me all day. It didn’t help that I kept on going up and down the stairs or that I fixed my lunch or put away all my groceries. I just don’t want to be in pain anymore. And I am tired of being in this depression that has been going on for months. Despite me being on medication for it, I don’t feel relief. It could be that the grief of my father has clouded my thinking. I just know that I can’t go on living like this. I have the means to end my life. I just don’t know if it will be enough. I don’t want to attempt and fail. That to me will be worse than dying.

I have been trying not to think about this plan that I cooked up months ago. I just am so sad. I have been reading today to distract myself. I was reading “Common Struggle” by PJ Kennedy. He was talking about his addiction to alcohol and pain meds. He was hooked on oxycontin. I was on that drug many years ago. It worked for me but then it made me kind of manic. I was glad to get off it. I am glad I am no longer taking it. It just did a number on me psychologically. My current pain meds don’t affect me that way. They help the pain and make me sleepy at times, but not all the time. If I am already exhausted, sure, I will get sleepy. But if I am already catching my second wind, they will not knock me out. I don’t know why sometimes it does and sometimes it doesn’t. It’s just weird. And it’s the same dose that I take so I really can’t understand it. But getting back to Kennedy, he made me appreciate that I do not have an addiction problem when I could very easily. Addiction runs in my family, but mostly for the illicit kind like cocaine and heroin. I have had one cousin die from a speedball (combo of coke and heroin). They ruled it an accidental death but I learned that a week before he died he was giving away possessions so I think it was more of a suicide.

I often wonder what it would be like to be dead. I just don’t want to be anymore. I am tired of living. In Kennedy’s book, he said that he didn’t have suicidal tendencies because if he did, he would probably be dead. Given the amount of alcohol he consumed and the pain meds, I would say he wouldn’t survive an attempt. I wonder why I am still alive. I know it has been a long while since I last attempted. But even though I have meticulously planned out a suicide plan, I have never gone through with it. My therapist or psychiatrist always seem to pull me away from going ahead with the plan, either with increased sessions or with them telling me how devastated they would be with my loss. I don’t get what they see in me.

I always feel they will be better off without me. They can’t stop me. No one can really. Sure they can hospitalize me but there is always discharge a few days later. And I know the system to get out and in. They know I know this. It’s just a matter of time before I act on my feelings. It may not be today or tomorrow but it will be soon.

blog post 2008–short story

This is a short story I wrote back in June of 2008. Hope you like it.

Walk the dog. Water the lawn. Clean the ceiling. That’s what he says every Tuesday evening while driving me home. He has seen many things in his lifetime and I wonder if I will live to be his age. He is a man aged sixty-four. He loves working with children and has spent his life as a teacher and guidance counselor. He never married and still takes care of his aging mother, who has better hearing (and a better memory) than he does.

Eyes of a child come around frequently, then they are off to watch the fairy godparents give Timmy childhood wishes that adults would like to have. Just make a wish, and “Poof!” it’s done. Bills are paid, school is finished, and degrees are earned all in the blink of an eye. No hard work to be done, no studying all night to cram for that final. Just a wave of the wand and like magic — degree earned.

When I was little, my godmother used to make me Easter Sunday dresses. I didn’t know much about my godfather until I became a teenager. My last memory of him was his giving me a plastic mechanical dog whose tail waved when you walked him. Life was simple then. You knew you were different, but it did not matter what anyone thought of you. To this day, I still hold on to that value of not caring what people think — a good measure of one’s self-esteem.

Times changed; presidents changed. You learned about the cold war. The Berlin Wall fell, though you didn’t know why it was built to begin with. You read about Edgar Allan Poe and fell in love with him. His stories seem to talk to you and you could understand the pain and anguish of his writings better than most people. Russia was then called the U.S.S.R. Now it is a cluster of little, separate countries that you still do not know or care about. If you do care, your friend Google can help you find the information and more. Trips to the library are now practically nonexistent. Who needs an encyclopedia when you have Wikipedia.

This country interested you because of the vast differences in the government structure. You can never understand why people were prosecuted or executed because their religion is different, or they dared to write something against the government.

Grade school you remember the war between Nicaragua and Costa Rica. Something to do with guns is what it was about and decided it was a place that you wouldn’t want to go vacation anytime soon.

One spring you decide life’s not worth living anymore and one Sunday you decide to end it. No Easter dress was worn. You were sixteen and life was just too much for you to go on. You had sought help but that help decided to leave the state. It was your third counselor in a year. The hopelessness was too much to hold on to.

Hope for life ends when you woke up the next morning. You realize by summer that medication might work but your therapist says you need to work through the pain not go around it, whatever that means. Found another friend, PDR (physician drug reference). It tells you all about meds and how to take them, what side effects, and how much needed for an overdose. Everything you need to know when you speak medicalese.

My first psych hospitalization was when I was sixteen. I met a guy who wanted my Tigers hat so I sold it to him for ten bucks, said he will give it to me when he sees his lawyer. Never saw a lawyer enter the ward, never saw my money either. I learned many things about the loony bin that summer. Trilafon made the voices go away but then things got too quiet and couldn’t think. Most people called it anti-psychotics, I just called them nothing.

Voices kept me out of the Navy which kept me from seeing the world, which kept me from college, which kept me from medical school, which kept me from being a commander of the fleet. A place of hate, a place of despair, a place of loss is always inside me and I couldn’t get away. How I longed to leave home and never return. But a sense of responsibility always kept me from leaving.

I didn’t need the USN for being a commander in Starfleet. What better place to travel the galaxy and back. A secret life I created that no one knew or cared about. Commander One was someone important, someone who was strong and happy. An orphan who was raised by Starfleet officers. He could do anything. The holodeck was all that I needed for my escape. I started living a double life, one in the twentieth century and one in the twenty-fourth.

I graduated from high school near the top of the class. Women were more attractive than men. I got a plan for higher education. Finally going away, thought Maine was my ticket out. But my learning would be life instead, or trying to see if it would work for me. I met a Jewish doctor who finally cared. Least until the voices said she didn’t. I went to the one of the best U.S. psych hospitals. It didn’t offer me much other than mashed potatoes and a diagnosis that didn’t fit my style. Staff wanted me to “talk to my feelings and give them a name”. I gave the staff names like asshole and bastard instead. Found out that a bagel can be set on fire after 8 of the 20 minutes in the microwave. It also evacuated the floor pretty quickly, causing havoc on a trauma unit. I saw it as revenge on being kept against my will and having a diagnosis that wasn’t correct.

Therapist number ten was my match. She tried to help with the aid of DBT, different bullshit therapy. She didn’t like me refusing her and we fought for control of the driver’s seat. I eventually won. During this time I had found my first love, someone who had been a pen pal and thought would always be there. My match was burned and so was my love at the same time. Time for a different matchbook and this time all fires were out. Red Tape prevented four months of work but it eventually found its way in.

The journey to adulthood has not been easy. Strife with auditory hallucinations at the young age of five is where it all begins. Voices became friends and took control of the young life, constantly telling the child that everything she did was wrong. The voices were always negative and had their own secrecy. When they were discovered, they told the teenager to commit suicide. They knew they would be destroyed. But after the medication and the solitude of the mind, the bearer missed the voices and stopped the medication to have some noise again, to not feel so alone. But suicide did not go away. It lingers because, as one knows, it is the ultimate escape from pain — not the kind of pain you get from a broken limb, nor the kind that comes from the flu. It is the mental pain that comes from despair, sadness, and hopelessness.

During all of this tragedy, the hero in our story seems to find resiliency that no one else can seem to bear, this despite having a father who is a pathological gambler, who would spend money on his narcissism, rather than household bills and necessities such as electricity.

The perfect escape had laid in joining the service. How I wanted to be that Starfleet officer I had always dreamed about.