Random 935

Random 935

I woke up before dawn in pain. I took my meds and pretty much slept all day. I didn’t wake up till around 1515. I was having a strange dream, but I don’t remember it now. I ordered a burger and onion rings for my dinner. My sister was having a party for my nephew as his birthday is next week but half the family is going to Italy starting tomorrow. I won’t see my sisters and nieces for almost two weeks. I am going to miss them.

I made a few phone calls while I was waiting for my food and the party to start. I called my PCP’s office to see if my prescription was ready to be picked up. It was so I will be going tomorrow to get it. The next was to the neurology clinic. I wanted to see the doctor’s colleague and instead I got a fricken resident who specializes in Multiple Sclerosis. That isn’t going to help me! I was so annoyed. I am going to call tomorrow and request someone else that is not a resident and who specializes in CRPS. I don’t need a regular neuro, I already have one. I need someone that knows about this pain condition so I can know if there is a better treatment out there. I don’t think there is but doesn’t hurt to see a specialist.

I emailed my psych about this and she apologized for not calling me back yesterday. She said she might call me later or tomorrow. It’s been later and I still haven’t heard from her so I guess she will call me tomorrow. I just want to talk to her about taking a lot of Neurontin lately. I know it’s not helping my weight but it is helping me sleep more soundly, better than Ativan. Once I get to sleep that is. I’m just worried that I am using too high a dose as I just play with the dosing. Sometimes I take 900 mg, other times I take 1200 mg. Sometimes it’s twice a day I will take either of these dose or higher. Then there will be days I don’t take any. It doesn’t help my physical pain, just the burning that I get. But I have gained 10 pounds while using it and I hate it.

My pain in the ass aunt came over. After the cake, she was telling me how to make money by writing about her family, like I don’t know anything about books. UGH, I had to explain to her that unless you get a good PR and publisher, you won’t make a cent. She wanted me to write it. Like fucking hell will I spend the hours with her writing this book. I can’t stand being with her for more than 5 minutes. I hate her with all my being. She tries to get on my “good” side but I see right through her. Then she was telling me the story of JK Rowling and how she is a billionaire now. I laughed and asked her do you know how many publishers rejected her work? Almost all of England. She got rejected over 20 times and she persisted. I am grateful she has and the whole Potterworld is too.

Despite sleeping all day, I still feel tired. I had a rough night of pain as I didn’t go to sleep till at least 3 only to wake up a few hours later, still in pain. Now after the party, my pain is back from sitting too long. Never fails.

0230 Blog

0230 blog

I’m in horrible pain tonight. I just had some ice cream because I felt like having it. I just took some Ativan and more pain meds. I had taken a strong pain pill hours ago but I don’t want to take anymore tonight. I took 900 mg of Neurontin and that was my second dose. I just take whatever I feel like taking with the Neurontin. I don’t care. It’s out of my system within 8 hours so as long as I sleep it off, I am okay. I don’t sleep it off and I am a zombie.

I paged my psych to discuss the Neurontin dosing as I tend to substitute it for my pain meds just so I can sleep rather than be in pain. Sleep has been the only real pain reliever for me. I get into a deep sleep with the drug better than my pain meds or Ativan. The hard part is actually getting to fucking sleep. Every time I lie down, my damn pain increases, making it nearly impossible to fall asleep.

My psych never called me back. I waited until midnight. She will most likely call me in the morning or early afternoon. I just hope I am semi awake. Her ringtone is something that will wake me up. I plan on making iced coffee tomorrow. I hope I make it right.

Something is going on with my big toe. There is a tendon that keeps popping up when it severely hurts. I have noticed it will involuntarily move upwards. I try to move it downwards but because of the nerve damage I have to touch it and move it with my hand, which causes me pain because it is so sensitive to touch.

I created a Facebook group for people that is up after midnight. It’s called After Midnight Club. Here is the link
https://www.facebook.com/groups/1885382218387087/

just in case any readers who are on Facebook want to join. It an open group, for now, so posts can be seen through the public. Once I get more people in the group, I will make it closed so only members can see the posts.

I’m going to try this thing called sleep now. If it doesn’t work, I will be back, maybe…

wicked hot hot

Wicked hot hot

It’s been awful with the humidity the past few days. Today I had to go out in it for my therapy appointment. I brought a facecloth with me so I could dab at the sweat. I had perspiring but there is nothing I can do about it in warm weather.

I woke up before six to use the bathroom and then I went back to sleep for almost 5 hours. It was around 11 I woke up. I was hungry and didn’t know what I wanted to make. I have a package of bacon that I need to use but didn’t have time to cook it. I really didn’t feel like making it. It was too hot. I just made some toast. Before I went downstairs, I checked my internet and I still didn’t have it. There were no messages on my phone either so Verizon didn’t call me.

After I made my toast, I got ready to head to Starbucks. The bus was late, even though it wasn’t too full. Thankfully, it had the AC cranked. I ordered my Starbucks through the app so it would be ready by the time I got there. I wanted to try the mobile order. It was easy once I figured out how to order my drink. It’s not complicated as I just get 4 shots of espresso on ice. I had a reward so I used it for my breakfast sandwich. It was all ready by the time the bus got to the Square. Neat.

After I had breakfast, I wrote in my journal. After an hour, I was bored. I wish I brought a book with me. I was really nervous about my therapy appointment. I wasn’t in pain as I took some meds before leaving the house. I needed to buy water as I knew I would be thirsty in the heat. I bought it at Starbucks and then left for the train station. I was early so I let a few trains pass before I got on. It was only a few stops I had to go.

I was sweating a lot by the time I reached the office. Luckily, they had AC in the waiting room. I cooled off some and thought about what to talk about with my therapist. I almost left a few minutes before he called me in. I was so nervous. I began nervously asking him if he minded me going through with transitioning. He answered with a damn question. I fucking hate that. I was getting annoyed and I guess he could sense it so then I asked if he cared about me or was I just a paycheck to him. I explained that a therapist was using me at one point for my insurance and he said he doesn’t take people on unless he cares about them. I felt good in that answer. Then I started crying for whatever reason. I guess the frustration and relief of his answers were reassuring me that I didn’t have to go find another therapist. That this was going to work.

We talked about my ex-therapist and how it was when I picked up my things. I told him about the things that I had gotten back and the blog I wrote about the paper in high school I wrote. I also told him about the book where a poem or essay was published in high school. He didn’t seem impressed but I wasn’t looking at him so not sure. I kept staring at his bookcase, taking inventory of his books. I also told him about the New York Times article and how upset I was over the comments attacking me and my ex-therapist.

I paused and thought about the transition and how I came out to my oldest niece and cousin. I told him about it and how I am going to move forward with it. He said that the stuff about my ex-therapist I should not fill up with the whys or other noise. It would just be harming me. That is hard to do because I still feel responsible for her ending therapy, even though my psych and him has told me it’s not my fault. I think in time I will have that sink in.

He also wanted to know where I was in the transition. So I said that I need a physical and then I can call the LGBTQA health center to move forward. They need that for the initial appointment. It would be several appointments before I was going to get hormone therapy, least according to the information sheet I read online from the center. I told him the reaction my mother had to someone who went through transition and I felt like dying. He wants to work on my response because there is no changing her. I told him I was fearful of being kicked out and he said he would work with me on finding sources so that doesn’t happen. I know at this point my mother is dependent on my check so I have that leverage. I just don’t know if she will be amenable to living with a man. I’ll cross that bridge when I get to it.

All in all, the appointment went better than I thought. He knows this is a huge transition for me and that I am grieving the loss of a 16 year relationship. He said I am like a tootsie pop, tough on the outside but soft inside. I jokingly asked him how many sessions did it take for him to figure that out. He said it with some affection which eased my guard. I am still learning to trust him, something that I never thought I would have to do, again.

pain rant 3

Pain rant 3

I left my bed and as I was taking the sheets off my foot, my big toe didn’t like it. The whole foot exploded in pain. There went the plans I had with my sister to go out for dinner. I had a frozen dinner for a late lunch and then a peanut butter and jelly sandwich for dinner. My foot and ankle pain has been off the charts. I had to take a strong pain pill. It still hasn’t settled down and I took it about 4 hours ago.

The game is about to start soon. I hope it will distract me from the pain. I have been draining my phone’s battery as I still don’t have internet so been using my phone for social media. I only connect to the hotspot if I need to. I hope to have my net back tomorrow, or at least a phone call as to why it is still off.

I wrote out a few things I wanted to discuss with my therapist tomorrow. I thought the list would be longer but it was essentially three things. I wrote them in my phone so I wouldn’t have to bring in paper. Depending on the first question, which is does he care, I will then go to my next question. If he doesn’t care, there is no point in continuing the conversation.

My thoughts have been really in the toilet. It’s hot in the house so I barely leave my room, except to use the bathroom or get something to eat, which just causes me pain going up and down the stairs. I feel like I am confined and it doesn’t feel good. I hope my pain is down by tomorrow so I can see my therapist but it’s going to be hotter and more humid. I hate this kind of weather. I really hate summer.

I really just want to die because it would be better than living this life of pain every single day and night. I just am losing my patience with it. I can’t tolerate it anymore. Only relief I get is when I sleep because I am exhausted.

Just went to the bathroom for the hundredth time today. I don’t know why my bladder gets so damn full as I haven’t been drinking a lot of fluids today. I know I probably should in this heat but it causes me to leak more so I don’t drink. I think I found out why my big toe hurts me all the time. I have a tendon that is popping up. I can’t move my toes downward because of my nerve injury. I can move it up but not down, least the big toe anyway. I’ll have to go back to the foot doc and see what they say. I am sure nothing will be done and they will just tell me to keep doing what I have been doing (which is just take my pain meds and hope the pain goes away). I am tired of that bullshit. It gets old so quickly.