Tag: Blogging

fatigue continues

by Midnight Demon, posted in blogging, cauda equina syndrome, Chronic pain, chronic physical pain, CRPS, depression

Fatigue continues

I had a difficult night sleeping. I had a bad dream where my molester was at my house and I was accusing him of abuse, which he denied. Then he got so mad he tried to kill me. I woke up very scared and it took me a while to get back to sleep. I then had to pee and I must have been holding on to the pee longer than I thought because then my abdomen started hurting after I was empty. I managed to go back to sleep and slept till a little after 8. I used the bathroom again and it was the same thing. I was very full and my bladder hurt when I was empty. I didn’t drink that much during the time I was awake. I was careful not to. I took my morning meds when I came back to my room and then went back to sleep again. I woke up a little after 12 and I was so damn tired. I wanted to go to the grocery store to exchange a coffee but I fear the trip will wear me out too much so I don’t want to go.

I also have been having frozen moments where I feel like I can’t move. Like I am stuck. I don’t know if it a symptom of PTSD or a side effect of the medication I take. I got to talk to my psychiatrist about it when I see him on Tues. I also need to ask him if he would give me a 90 day supply of the Latuda as it is the most expensive medication that I take and it will a lot when I have to pay again next year. I got to budget my meds until I reach $300 deductible. I have six meds that I get at the retail pharmacy. The rest are mail order. If I can get the Latuda on mail order that would be good because it is $140 for 90 days.

I took a double dose of Miralax today because it has been days since I moved my bowels. I am getting so backed up. When I got up, I had two cups of coffee and sometimes that triggers me to go to the bathroom but lately it hasn’t done it. I will double dose until I go and then go back to regular dosing. I take this with Gatorade and it just seems like the stuff takes away the flavor and just leaves the sugary taste behind. That is all that I feel like I am drinking, sugar.

Usually after every shower, I take a selfie and post it. I do this so there is a record of when I last showered as I usually don’t remember. It has been five days since I last took one so I might end up taking one tonight before bed. I stopped shaving the back of my head and sides so I am just going to let it grow. Yesterday I was going to see my barber but I used the money to get the keys to the house as my mother didn’t have the full amount to pay for them. I canceled my appointment but will go sometime next week.

Shoulder is really hurting so when I went downstairs to put my dinner in the oven, I heated up the heat pack. It helped a little bit but caused my neck to hurt. So now when I go back downstairs, I need to put heat on my neck. I am making a beef pot pie for dinner and hope I don’t burn myself again. I have not had luck with these pies. The first one, I got a 2nd degree burn and the last one I made, I burned my finger. Think I got to wear oven mitts when taking the pie out of the oven and when I transfer it to a plate.

groceries and more groceries

by Midnight Demon, posted in blogging, cauda equina syndrome, chronic physical pain, CRPS, depression

Groceries and more groceries

I had my groceries delivered today. I ordered a lot of Gatorade and Powerade to last me for the month. Every month my mother asks me why I buy so much and I tell her it is my monthly supply. I brought up all the bags except for my cereal. I totally forgot they were there until I came home from the pharmacy and saw them there. There are like ~7 bags left to bring up to my room. I have been doing it by myself, which is taking me some time because I have to take breaks. My arm is so damn sore but it is a good sore not a bad one.

I sent my therapist a message last night about how I was suicidal but I was too tired to kill myself. I said I was pathetic. She responded and said that I wasn’t pathetic. I need to address the pain. I asked how and she said by talking about it and using coping skills. I hate coping skills. It is just this broad umbrella of things. It is like saying you need a screwdriver for the screw you want to tighten but you have so many damn screwdrivers you don’t know which one to use. It is really frustrating. And when you are already upset and looking for something to soothe you, you want something right now that will work not something that will frustrate you more.

I ordered my glasses and will file a claim with my insurance company so I can get reimbursed. Hope it isn’t a hassle. I have not done this before. They should be shipping out soon. I just hope the frames fit me. I ordered a small so we’ll see. Friday I need to start the process of changing my bedding because I spilled Gatorade on my blanket and sheets last night. I grabbed the bottle a little too tightly and it spilled. Most of it got on me so I had to change my shirt.

I am in a lot of pain with my shoulder because of lifting all the bottles of Gatorade and Powerade I bought. I don’t think I can lift the remaining bags tonight. I still haven’t changed back into my PJs from when I left for the pharmacy. I might keep on the thermal socks. It is supposed to snow tonight. I hope all the snowing happens tonight and not in the morning. We aren’t supposed to get that much, only an inch or so but walking in it can be yucky. I rescheduled my appointment with my PT for tomorrow morning. I hope I sleep tonight or getting up is going to be difficult. I also scheduled an appointment with OT for January. I thought it was for pelvic floor but it is for cathing. It is with the same OT I saw last year.

I think I am going to have to double dose the Miralax as the new meds are really constipating me. And because I mostly stand when I cath, I am not using the same muscles to poop. I was able to crap a little today but it wasn’t enough. My stomach feels so awful.

I have three updates and need to restart my laptop. I just installed Win 11. It is okay so far. All my programs seem to be running okay. Tomorrow in between appointments I will be going to see a locksmith about getting some keys made for the screen door that was just put on. It is an odd shaped key so I hope they can do it. I don’t know who else will be able to do it.

It’s 115a

by Midnight Demon, posted in blogging, chronic physical pain, CRPS, depression, mood disorders, painsomnia

I’ve been in severe pain since 1900 last night. I don’t know what I did to cause this flare. I know part of it is because I was emotional today with the news of my BFF who is like a little brother to me. I love him so much. I wish there was something I could do for him. I am going to try and call him every week just to check in on him.

I’ve been scrolling on twitter most of the night. I did read Medical Apartheid. I finished the ugly chapter I was on about eugenics and how white people wanted to expunge African Americans. This went on until the year 2000 where they set up clinics to sterilize or force them on birth control. One of the campaign sayings was something like better to be an addict than to have a child. Shows how depraved people were about addiction. Rather than deal with the issue, they rather the person suffering from addiction was sterile or on the long term birth control Norplant. Just makes me sick. The next chapter is on radiation and Blacks. I don’t know if I can stomach it. I thought I could read this but it is really sad what these people have gone through after their freedom was given.

I am tired but I can’t sleep due to pain. I’ve already taken what I could. I even took ibuprofen to try and stop the pain. I think I could be hungry but I don’t feel like going downstairs to make something to eat. I would just have cereal though. I found a box of honey nut Chex while I was putting groceries away yesterday. I love that flavor.

Because of my grocery delivery, I canceled my therapy appointment. I won’t have therapy this week. I will see her on Mon. We have a lot to talk about. I should probably write some of it down so I don’t forget. I hate writing stuff down because once it is out of my head and on paper, I forget about it.

I made an appointment for my eye exam in a couple of weeks. It is outside of Boston at a new place. I just hope the doctor is nice. It is in the afternoon so I am not so sleepy. I think there is a bookstore near there so I might go book shopping after.

Red Taylor’s Version

by Midnight Demon, posted in blogging, Chronic pain, chronic physical pain, CRPS, depression, mood disorders

Red Taylor’s Version

I am still waiting for my CDs to be delivered from Amazon so I am listening to this album via Amazon Music because I pay for the unlimited. I had downloaded the songs but apparently the buy CD get digital free doesn’t work anymore. I have downloaded the songs but they are just on the app and not on my phone.

I just finished listening to the album the entire way through, without the shuffle on or repeat on. I fucking love it. Her version of Better Man is so fricken cool. I still think of my father with this song. I was ok with Babe but Jennifer Nettles sings it better. And for the life of me I cannot think who sang Better Man first so I had to google it to find Little Big Town did. I listened first on speaker and now I am listening via headphones to get a better experience of it. Some of the songs sound better than the original version. You can definitely hear the more mature Taylor’s voice on the album. I love the addition of violins to Last Time. When the album first came out I was fixated on this song. I must have listened to it a thousand times but I just love the melody of the song rather than I listened to the lyrics.

The “All too well” 10 minute version is so fucking cool. It kind of messed me up when listening to it because of the added lyrics. I cannot wait to see the movie tonight at 7pm. I cannot believe how well this song is. I thought it would be instrumental but I am so glad there is lyrics. There are a couple of songs that I didn’t hear before because they were on the deluxe album and I didn’t purchase it. Ronan was and is a sad song. It is about a four year-old’s death. The lyrics are stunningly beautiful. I never heard this song before now but I heard about it from a fellow Swiftie I follow on Twitter. Amazon delivered my songs and I got them on my phone now. After dealing with my stupid MP3 app, I have all 30 songs in a folder/playlist so I don’t have to play each album separately. Dumb thing.

Arm is hurting me today but that is because I am using the muscles a little more and I made the mistake of lifting my arm while trying to lift my Tshirt up so I could put my phone in my pocket. I am more left handed than I think I am. I write like a second grader because that was the last time I wrote with my hand. I never realized how much I use my arm until I hurt it. Even typing hurts my sore forearm.

I had two cups of coffee back to back as I was listening for the first time the new album. It caused colon blow but I am ok. I made it to the bathroom in time. But I am so damn tired. I could nap right now. I was up a few times during the night. I woke up sometime before 4 to use the bathroom. I didn’t know if I had to go or not when I woke up. I never really went back to sleep. I got up around 9. I took my meds and then listened to the album as I made coffee. I had the kitchen to myself as my mother was leaving the house for an appointment. I had a bowl of cereal as I was starving. I hadn’t eaten anything since last night when my mother made eggplant. I haven’t been eating too good lately. I just been eating one meal a day. My mother is making fish tonight so I will have some of that. I didn’t have lunch yet. I don’t really know what to make. I should make some eggs. I haven’t had them in a while. I don’t know.