Tag: cauda equina syndrome

Cramping and other things

by Midnight Demon, posted in baseball, Bipolar Disorder, blogging, cauda equina syndrome, chronic physical pain, depression, mood disorders

Cramps and other things

Last night, I fell asleep sometime after the 7th inning of the Cubs/Mets game. Mets won and will be going to the World Series!!! Baseball season is still going on and as long as it is, I will be paying attention. I fell asleep before the game was over. It was a blow out anyways and I didn’t think the Cubs were going to come back. Unfortunately, I must have moved my ankle the wrong way while I was sleeping because it cramped up pretty good. I couldn’t get it to straighten out without manually pushing it. I hate when I get cramps like that. It’s around 0415 when it started. I am glad it went away but now I can’t sleep. I took my pain meds and some Ativan in case the cramps come back. My ankle is really hurting from being contorted so I am hoping the pain meds help.

I was reading my Twitterline last night and a family doctor that I follow tweeted about a study of back pain and narcotics, saying that it wasn’t any good. I didn’t read the article because I knew it would upset me. I have heard over the years that the pain med I take is not good for acute pain, just chronic pain. Now I have this article and I don’t know what to think. I just know that if I was given pain meds when I first hurt my back, I might have avoided seeing a chiropractor and not ended up with cauda equina syndrome! I might have ended up with it the second time, anyway as I certainly wasn’t seeing a chiropractor then. If you have herniated discs, I encourage you NOT to see a chiropractor. I am not writing off the whole profession, just be wise that not all of them care about your spine and will want to keep you as a patient for as long as possible. I was helped before I got injured but then after I got injured, I wrote them off because I had herniated discs or slipped discs. Any spinal manipulation can cause CES if you have herniated discs. And don’t get me started on epidural injections. Those are just a money maker for doctors and have no real benefit for YOU. There is a 50% chance you might be helped and a chance you could get worse symptoms. I have scar tissue on my back (four back surgeries will do that) and in my nerves so I will NEVER get a shot in the back, no matter how enticing the doc may be.

I think the Mets and the Blue Jays are going to be in the Series. I could be wrong. Jays are facing a won game elimination so they really need to come back if they are to play. I really don’t want to the Royals to win.

My old laptop battery is dead. It cannot be revived. I luckily found one that was cheaper than $50 at Office Depot on Amazon.com. I love Amazon, I can get practically anything there. I always make sure that I go over $35 so I get free shipping. This order, I am ordering a bunch of baseball movies. I don’t know if I will be able to play them on my laptop as the screen is messed up, I might have to wait. But I got the classics like Sandlot, Major League and a League of her own. I wanted Bull Durham but it’s out of stock right now. I figured the movies might help my baseball depression, though it’s slowly moving toward my regular depressive state. I keep having thoughts of ending my life. I imagine doing something that takes my life away and then my niece finds me. It is unsettling because I don’t want her to be the one that finds me. It will be too traumatic for her. Not to say it will be any easier on another person, but a little kid would be too much.

One of the authors that I follow on Facebook posted pictures of this new writing space. I wish I could clear my room so I can get to my desk and then clear off my desk so I can have a space to write. Maybe it will be better than writing from my bed all the time. It might help me mentally not to have all that junk on my desk. I know most of it are my disability papers and old invoices and such. I haven’t touched them in more than two years so I think it’s safe to junk them. My author friend had his laptop and an old typewriter, but no paper. I found this odd. How are you supposed to type if you have no paper? It was very tidy, which kind of unnerved me. I am not a neat freak. I can’t stand things in proper places. I like clutter, but not too much. Unfortunately, I have a ton of clutter and can’t get out from underneath it. I have a bunch of my clothes in a box right now because I just can’t get to my closet because of stuff. It may sound strange but the clutter makes me feel more grounded and packed in. I like it even though it drives my family members crazy. Sometimes it does annoy me, especially when I am looking for something and can’t remember where it is.

Meds are kicking in now. I hope I wake up in time to make pancakes. I am addicted to oatmeal pancakes. They are my favorite food right now. It will be a good hearty breakfast. Until later.

Depressing Monday

by Midnight Demon, posted in Bipolar Disorder, chronic physical pain, depression, mood disorders

Depressing Monday

I have been feeling pretty down all day. I woke up early, before 0630. I took some meds and then made breakfast. I went back to sleep because the meds made me sleepy. When I woke up a few hours later, I got some energy to go to Starbucks with the hope of working on the short story that I wrote a few weeks ago. No such luck. It was a story about how my therapist and pdoc are the roots of my tree. Now that my therapist and I are having problems and might separate, I no longer have an interest in writing about it. I have thought about writing about the difficulties of keeping the roots together and how they can irritate me, but like I said, I am finding it hard to concentrate on it. I just look at the blank page and nothing comes to mind. I think I need to print out the copy of the story so I can work on the beginning of it before I get to the difficulties part.

I sprayed my room with Renuzit before I left for Starbucks and I think I am allergic to the scent. I haven’t stopped sneezing since coming in my room. Oi. I have used the spray before so I don’t know why I am sneezing like a lunatic right now. It is cold so I don’t have the ceiling fan running. That’s probably why the scent is bothering me so much.

Last night, I was being triggered by my foot/ankle pain. I was having intrusive memories of my surgeries and being in the hospital recovering from them. It gave me such anxiety that I had to take two Ativan to calm down. Then Hyde and Jack (my mean alter) wanted me dead. I texted my therapist asking if there was an opening in her schedule to let me know. She texted me back saying she didn’t have an opening and I don’t think she will be calling to check in with me either. Hyde usually comes out when I am depressed and in pain. But Jack coming out is unusual. He is one that is attached to my therapist and my anger for her. I can’t explain it more than that. The anger piece goes deeper than my therapist. I don’t express my anger very well and I think Jack is the holder of it. He came out during a letter I wrote to my therapist earlier this year and it shocked me. I thought I only had Hyde to contend with. My pdoc wanted to call him Jekyll but I nor he liked it much. So we settled on Jack.

I usually don’t get triggered with PTSD when I am in pain, unless it is severe. I think I am more vulnerable this month because it is an anniversary month. And it was more than my foot/ankle that was hurting. My leg felt like it had a tourniquet on it and that is always a trigger for me. I tried distraction and ignoring the pain, but I was still very anxious and nervous. Then the memories started and I just wanted to die. Hyde and Jack came out and I knew I was in trouble. I really think I should be dead. I don’t want to work on anything in therapy, nor do I care if my therapist drops me at this point. I really don’t care about anything. I feel wicked empty, like I have no organs or anything inside of me. My reality testing proves this wrong when I breathe. It’s such an odd sensation. I haven’t felt empty in a very long time. I guess that is part of this depressive episode I am going through. I am also tired all the time, no matter how much sleep I get. Lately I have been getting around 5 hours straight and then a few hours in the morning between 8 and 11. It’s rare for me to sleep later than 7. Even if I go to bed at 3 I am up around 0630.

Been listening to Luke Bryan all day. There is just something about his music that somewhat puts me in a better mood. Unfortunately, it’s not happening today. Nothing seems to break through this dark cloud that is following me. I wanted to get my AC out of the window tonight but I can’t even bring myself to text my brother in law to ask him. I just feel like I am asking too much or that I will be bothering him. I can’t stand this state that I am in. I know that he will take it out for me. I just have to move two things to give him access to the window but I can’t bring myself to get the energy to do so. The temp is going to drop tonight and it’s already cold in my room. I know it’s cold because in addition to my comforter on my bed, I have my fleece throw blanket on. And I am not hot. I am just so depressed, I can’t get motivated to do the things I need to do. I certainly can’t take the AC out by myself. I might drop it or it might fall out of the window. I am not good at that stuff plus I can’t lift anything heavy any way because of my back issues. It will get out this week. I just don’t know when.

Waking up Early and other things

by Midnight Demon, posted in Bipolar Disorder, blogging, chronic physical pain, depression, mood disorders, suicide

Waking up Early and other things

I have been up since around 0630. I got about five hours of sleep as I went to bed around 0130. I emailed my neurologist last night because I am running low on my medication for nerve pain. I don’t take it often so the refills have expired. Just got a response from her. As I suspected, I need to see her to get the meds. UGH. I hate dealing with her office staff. I could try and get it from my PCP. I see the NP the 26th so I will wait until then. I have enough to keep me going until then. If she doesn’t give me it, I will make an appointment to see the neuro.

I plan on changing my sheets today. It’s something that needs to happen but it always is a pain in the ass to do because of my back issues. I always throw out the back of my hip when I change the sheets. But then, I can stand too long and it will go out on me, too. I still haven’t gotten it checked out. It has been a problem for me for the past year. I took it out last Thanksgiving when I sneezed. It got better but then I sneezed after Christmas and it went out again. I have been in pain ever since. This time I am going to try and not keep so much stuff in my “office” side of the bed. That will make it easier to change the sheets because then I don’t have to keep moving stuff around.

I also want to work on the story I wrote a few weeks ago. I am loaded with good coffee so I hope it makes me want to write. I am trying to avoid going back to sleep so I had coffee. I won’t be going to the Square because I need to pick up my niece later today. But I need to change the sheets first. That is a priority.

I got a lot of views on my paper on the analysis of the song “How to save a life”. And most of the viewing from countries today have been from Ireland. I like that my blog has international readers. It means a lot to me to have readers from other countries reading my blog. Granted the majority of my readers are from the US. But today, Ireland is the top country. It could change over the course of the day. I love watching my stats because it’s fun. I learn through the search engine what readers brought them to my blog and then I can have a post about the search so that other readers, usually those with Cauda Equina Syndrome, can find my blog easier. My all time most read blog is my Knackered post.

I have therapy again today. I texted her with some things that I thought about. I got interrupted so many times yesterday with family stuff that I wasn’t able to write about it. I had started a blog with ideas and rather than sending it to her, I just texted her because it was easier. It was only a few things and it fit on a text. I hope that we can continue the conversation. After 14 years, it will be very difficult not to be in contact with her if we end. Our 15th anniversary date is in January.

Because I am feeling very hopeless and my therapist asked me to, I have put off the date that I was going to end my life. I feel defeated because now I will have to continue to live when I don’t want to. And because of the holidays, I don’t want to end my life then, which means I will have to see my next birthday. It was something I have been trying to avoid this past year. I wanted to stay 39 forever. It shouldn’t be so complicated, but it is. I hate living. It is such a damn struggle all the time. And the thought that I keep having bowel accidents doesn’t appeal to me for living. I have tried to deal with this stuff the best I could but I am so tired. I get no relief from the daily physical pain I have. I am tired of people telling me I need to lose weight when I don’t have the motivation to or the mobility to do so. I wish I could walk like I used to but I can’t. If I could, I wouldn’t be disabled from work. I know my job was stressful and it caused me to be very suicidal at times, but least it gave me something to look forward to every day. It gave me some purpose. Now I have none of that. Sure, I write but other than this blog, I doubt people would buy my book. It’s really depressing and powerful writing that no one sees or understands. It’s not a hopeful book. How can I write about hope when I don’t have any? I just think my death is the only way out of this misery that I am in.

Last night I was writing in my new journal. I was describing what I am saying right now. I might have to go into the hospital because I feel like I am going to snap. One more trigger and I am afraid I might go into constriction and then I will attempt to take my life. But I really don’t want to go there. Just the thought of the bullshit and my meds being split up because they don’t have the right tablet dose keeps me away. I take 12 pills a night. Last time I was in the hospital I had to take almost 16 pills. It was the same medication, but they didn’t have my BP med in a 40 mg tablet so they split it in 10 mgs tablets. That is four pills I had to take. I don’t know if they will have my other BP med in the dose. I would hate to take fucking another 4 pills for that, too. But there is no treatment while you are in the hospital. You just go to groups that are for arts and crafts, mostly. There is no psychotherapy going on in any of these groups or even in the meetings with your case worker. It’s just an adult babysitting system. Someone checks on you every 15 minutes and you talk with staff, which turns out usually to be better than talking with your case worker and psychiatrist. If I go to the unit I was before, that is how it is. If I go to another unit, you just get 15 minutes with the “team” and that is all. Sometimes you meet with your staff person, sometimes you don’t. It sucks. I rather just stay outpatient and struggle than be inpatient. Least I can have my electronics and not be watched.

Organization and Sleep Loss

by Midnight Demon, posted in Bipolar Disorder, blogging, cauda equina syndrome, chronic physical pain, depression, mood disorders

Having a hard time sleeping. My family members and my bowels had me do the stairs repeatedly the last few hours. I am hurting big time. I think I might have to go to the bathroom again as my bladder is sending me weird signals. I went an hour ago so I don’t understand why I would have to go again as I didn’t drink anything except a sip of water to take some pills. It is so frustrating living with Cauda Equina syndrome when your body functions are dictated by guesswork. I think the Imodium has settled the gas and loose stool that I had been having. Don’t know the cause of that. I think it might have been the milk that I had earlier tonight. Sometimes milk causes me to be intolerant. I don’t know why as I can drink a latte fine, hot or cold. Just doesn’t make sense to me.

I did some research into the suicide stuff I learned today. One of the articles that looked promising was just a trial protocol that didn’t have any information on it. That got tossed in the trash. The other article was about evidence based practice that helps suicide prevention. I haven’t read it yet as I was discouraged from the other article/protocol that I read. The slightest things have been bringing me down today. I did see another article from Jobes on CAMS and inpatient treatment. I will read that later. I need to print it out and I don’t want more stuff on my bed as I am trying to clear it off. I was able to clear one corner of my bed. Now I just have to throw my clothes some where. Maybe I will throw them in a hamper and I won’t see them till next summer (they are summer clothes).

I was going through today’s tweets about the suicide summit and found an interesting article about suicide and vitamin D and a protein called hCAP18. I got very excited as I haven’t seen that molecule since my research days. Unfortunately, the slide didn’t say very much and I really would love to know the specifics and how they tested it and where. The slide also said vitamin D receptors so now I am really curious about this article. I tried Googling it, but got no where. I don’t think it’s in print yet. But I want to talk to the guy and see if he can share more information about it. I tweeted the person to see if he has an email or Twitter account that I can contact him.

All this research and I became awake. I also was looking for therapists in my area. I wish suicide was an area where people were focused on but nope, not a category. Some of them didn’t even have mood disorders as an area of specialization, which I thought was odd. Most people that seek out therapists are going to be depressed or have anxiety issues of some kind. I hope that I don’t have to call someone. I am hoping my therapist reads her letter before our appointment. I will be disappointed if she doesn’t have time to read it. I’ll also be really sad because it will just mean that our time has come to an end. I can’t keep playing these “games” anymore. I just can’t. I am tired of struggling with a therapist that is becoming more and more like an airhead or just playing stupid.

While going through my files, I realized I didn’t back up everything like I thought I did. I have a lot of files that need to go on my thumb drive. It sucks because I don’t have the motivation to do it. It won’t take long, but I need to make a new folder and figure out where I am going to place the folder in my old files so that it’s all together. I still need to type up a bibliography of the folder I am collecting for the hard copies of these files so I know where they are. It’s work and I know I have time to do it. It is tedious and I just don’t want to do it. But it needs to be done so I don’t go crazy looking for the damn thing when I do need it. I have hard copy files all over the place. In my room and office. They need a central home where I don’t have to look in three different places to find them. I should organize all my CAMS articles in one place so it’s easier. One day I will do this. Not now at 0100 when I need to sleep.

While I was having bowel issues, I was thinking about how I would kill myself if I crapped my pants again. I have loose stool so it is a possibility. I just can’t go through the humiliation, again. I am already feeling like a loser because of what happened the other day. I wanted to go out today but I have a feeling my ankle is not going to allow it. I might be able to get to Walgreens and pick up my meds, but that will be the only trip. I doubt I can go to Starbucks. The buses are running on a normal schedule despite it being a holiday (Columbus day in the US).

Yesterday was “National Coming Out Day”. And I didn’t come out. I figured why bother. Both of my sisters know I am transgendered yet still call me their sister, instead of brother. There is no way I can tell my mother. I still fear her throwing me out of the house, or her not believing me. That will hurt worse than being kicked out of the house. I just hate myself big time every time I think about it. So I try not to think about it. Then I think, why isn’t there a national coming out day for heterosexuals? That is what bothers me. People just assume you are straight unless proven otherwise. It sickens me. I remember not too long ago there was suicide hotline that was just for trans people and some idiot got all high and mighty saying it wasn’t needed because we were all people. Really? You think it’s easy coming to terms that you are a male trapped in a female’s body or vice versa? Fuck you, you have no idea what the hell you are talking about. Sometimes when you are suicidal you need someone that knows that you are going through to help you through what crisis. Not someone that is straight and has no fucking clue. Because empathizing just isn’t going to be enough when you are dealing with someone’s life.