Hurting and done with docs

I am hurting. I talked to my psych who wanted me to talk to my pcp on the phone after all that happened. I’ll send him a card. My endo is setting me up with a pcp that might be better. Ok I have high standards but being in chronic pain you really don’t want to be jerked around after you’ve seen 20+ doctors, 3 who have said I have CRPS yet my former pcp not believing nor the doctor that he sends me to. I’ve had enough of seeing every friggen doctor in Boston and surrounding areas in every possible specialty. Took 8 years and now I may be permanently disabled because of the delay in care. I love my psych and we work well together. I really wish there were more doctors like her. But they are too far and in between and I am tired of trying one last time just to get nowhere. So when I tell my pcp I have increase in bone pain that wasn’t there before and he blows me off, sorry. You’re fired. I don’t care how nice he is. And he is nice but he doesn’t want to deal with complex medical issues that a primary doctor should deal with. I hope the PCP my endo doc is sending me to can deal. She said he is nice. I said the doc I am seeing is nice too, but doesn’t want to deal with my complex medical stuff. In some ways, I am glad because after one the NPs asked inappropriately about my gender reassignment surgery when I was seeing her for a sore foot, I kind of lost faith in the office. I am hoping being in a transgender practice will be different. My endo said there are support groups and stuff there so will look into it when I have my first visit.

I am in pain and canceled my appointment with my therapist for Monday. I have PT in the morning and I am not going to somehow fly 5.6 miles (9 km) to his office. Taking the T is just too rough. I don’t have time to go home and rest because by then I will have to go as he has a 24 hour cancellation policy. I am kind of pissed at him still for telling me to Google relaxation tips when I am having anxiety about sleeping due to pain. I mean, WTF am I seeing him for if I can just use Google??

I came home from my appointments and I was hurting. Both calves were sore like I had been walking all day. I have no idea why they were hurting. I put the heating pad on my right one soon as I got changed into my PJs. Then my foot felt like it was being crushed. My mother then said dinner was ready. Well, I will be down when I can figure out a way to go downstairs. My right heel is killing me every time I stand. I already took a pain med. I hope this isn’t one of the I can’t sleep if my life depended on it night. I really would like to do some baking tomorrow. I am out of cookies and the monster is getting angry, lol. I also want to make a key lime pie. I have no idea if I will like it as it is made with jello and yogurt mixed with cool whip. Sounds good anyways. Whether it will, who knows. I almost ate the yogurt today as I came home hungry and needed food. I had a pop tart instead.

Tonight, after I had dinner. I was washing my hands after the bathroom and was looking at my chin. There was nothing wrong with it except it looked more angular. I don’t know if I am noticing things or what. No one said anything when I posted my transition pics so I don’t know. I am tired. I took my night meds and HOPE they fucking make me sleepy. I want to read a chapter or two of Harry. Last night I read a chapter of John Grisham’s Sycamore Row and then finished the chapter of Harry Potter I was on. I swear I am addicted to these books. And seeing as it is now Feb, I guess reading two books in January isn’t going to happen. I have a few books lined up once I finish the Harry Potter books. I just got to make a commitment to actually spending time reading rather than just being on social media. I wish I brought a book today as I had 40 minutes to kill as I was early for my psych appointment.

I will be going up on my mood stabilizer this weekend. I really haven’t had any side effects so that is good. I was hoping to jump to 100 mg but she wants me to go to 75 mg for two weeks. Oh well. I still need to figure out how to pay for one of my meds as I am short. I miscalculated my med budget. I thought I would be able to get the T later this month, which I still might, but depends on how much I go up. I have no idea why my doc ordered an estradiol level. I can never figure out how to interpret the result. It is low whatever phase I am in, which it should be as I am on testosterone, duh. But I am still producing it which means, I hope, increasing the dose of T. I see her in four months for another check. She is nice and I do like her. I just wish she fricken told me she was in the TG program! Damn. It would have been easier for me to bring it up, but no matter. I am started on my transition and now I just got to adjust my T to get manlier.

transition day 140

So today is day 140 of my transition. I posted yesterday my update but thought I would do here as it has been a while. I might make this a short post for those that are following so be ready for a duplicate, lol. Things are still the same. The only thing I have to report is that the hair on my chin is growing in more finely than before. Also, I shave my head. It used to be that I would have to keep up with it daily or up to three days. Now it is daily or every other. My hair is growing really fast and pretty soon I am going to need to seriously budget barber expenses to put my barber’s kids through college, lol. I keep a military cut and even though I got it cut last week, it is the length I had it before seeing him. So I will have to work out something with my barber to get haircuts on months I can’t afford to see him. I tried cutting my own hair and it was a disaster so not doing that again! I need to shave before I lose the lines where I am supposed to shave. It is tricky in the back because I can’t see but I can feel where I need to and if I goof up, a few days time is all I need for it to regrow.

There have been no other changes. My voice is still in and out at times. My family hasn’t noticed a change but that might be because I am around them all the time. Hoping with increase in dose, that won’t be the case. I really look forward to the day I come downstairs with stubble on my face and my voice like a man’s. HAHA shock my mother day!

New slippers and more pain

New slippers and more pain

I had to buy new slippers because the ones I have been wearing for almost three years now are worn out. They were my father’s. I put them in the box the slippers came in. These have more support than the old ones and are much softer, which is why my CRPS foot hated them. I am not sure it will get used to them. Some times the allodynia isn’t this bad. I am still in a sort of flare so hoping when the weather is back to above freezing, I won’t hurt so much with the top of my foot. It has been doing the sweating but staying dry and cold thing all day. It is driving me nuts. I would put a sock on but because it feels like it is sweating and is sensitive to materials right now, I don’t think it is a good idea. If it becomes a block of ice, I will have no choice.

I put through a couple prescriptions today and one of them was more than it was last month. I had to call my insurance to find out why and they said because the cost of the drug was low so it had to be charged a dispensary fee. Crooks. It is only a dollar more but if any of my other meds are more than that, I am screwed as I made sure to have enough money for meds this month. I have five meds I need a month that I cannot get through mail order. I am all set with my mail order meds at least through maybe April, I think because I had refilled them all the end of December. Last year they didn’t cost me much for a 90 day supply and I hoping for the same this year. But the 5 I get at the pharmacy all have different fill dates so I have to remember to have the cash for them. I am hoping my T dose will increase when I see the doc on Friday, which means getting a new script for it. I budgeted for it but if she say gives me two vials, I am screwed because I just budgeted for one. All tricky trying to remember this shit only because I am an impulsive buyer and will spend when I think I have enough when in reality I really don’t. Thanks Bipolar Disorder! I wish one of my checks took into account the cost of living like SSD but it doesn’t so I just have a fixed amount every month. I buy little things when I know I can afford them. I really need to stop it but I can’t help it. I see something, I want it.

I bought an OTG (on the go) thing and didn’t realize my phone wasn’t compatible with it. And because my brother in law took down the recycle, I no longer have the packaging it came with so can’t return it. I am not going dumpster diving for it either. Too fucking cold out. I thought it was a neat thing. Maybe when I eventually upgrade my phone it will have this feature. I might end up selling it for whatever. I don’t know. I am too tired to think about that right now. It was like 8 bucks so not a huge loss.

I hope I can sleep tonight as I slept late today. My med alarm went off and then I went back to sleep, which hasn’t happened in a long while. I took Benadryl before I went to sleep last night so I was kind of still hung over. I need to read Harry today. I haven’t been able to read since Sunday I think. I hate when pain ruins my reading rhythm. Harry is the only book I can read on a daily basis or close to it. But once I stop, seems I just forget about the book and it will be a while till I pick it up again. If I can get another book in this month, that would be good. I am doing another reading challenge. I know I shouldn’t but otherwise, I don’t think I will read the books I buy.

A couple of months ago, I had a problem with my music where, after Amazon told me to uninstall/reinstall their app, I thought I lost music. Turns out, I didn’t. And in downloading all the songs that Amazon app had lost, I created duplicates of the songs. It turned out that the app I was using just wasn’t showing the music on my phone! So I junked it, which I hated doing because I had paid for the no ads thing. I went through different apps and found one that was kind of good. Only thing that sucks is that I needed to remake my playlists. One playlist, rock, had a lot of songs on it as I just downloaded whole albums or artist in. I couldn’t remember who it was and then there are songs I didn’t want. The nice thing about this new app that I have been using is that once you delete a song from the playlist, it is gone unlike the app I paid for. So I just created my Mary Chapin Carpenter playlist. I got distracted and put one of her albums in the wrong list. UGH. I had to redo it. There are two albums of hers that I do not want in my playlist because they are the same songs as her previous albums so I didn’t want duplicates. In her latest album, Sometimes just the Sky, it has some of her previous songs but recorded differently. The album is okay and I do like it but there is one song that I do not like, even though she does, LOL.

So today is day 140 of my transition. I posted yesterday my update but thought I would do here as it has been a while. I might make this a short post for those that are following so be ready for a duplicate, lol. Things are still the same. The only thing I have to report is that the hair on my chin is growing in more finely than before. Also, I shave my head. It used to be that I would have to keep up with it daily or up to three days. Now it is daily or every other. My hair is growing really fast and pretty soon I am going to need to seriously budget barber expenses to put my barber’s kids through college, lol. I keep a military cut and even though I got it cut last week, it is the length I had it before seeing him. So I will have to work out something with my barber to get haircuts on months I can’t afford to see him. I tried cutting my own hair and it was a disaster so not doing that again! I need to shave before I lose the lines where I am supposed to shave. It is tricky in the back because I can’t see but I can feel where I need to and if I goof up, a few days time is all I need for it to regrow.

There have been no other changes. My voice is still in and out at times. My family hasn’t noticed a change but that might be because I am around them all the time. Hoping with increase in dose, that won’t be the case. I really look forward to the day I come downstairs with stubble on my face and my voice like a man’s. HAHA shock my mother day!

Long week of pain and no sleep

Long week of pain and no sleep

To my daily readers, I apologize for not writing. I have been hit with depression, pain, and insomnia all week so didn’t feel much energy to post, not even a picture. Usually I snag a pic during the night time hours as that is when the Twitter account I follow posts the cute pics. But I haven’t even looked at Twitter that much because I just couldn’t even read the tweets. If something caught my eye, I did but the majority of the accounts I follow didn’t get read. I just didn’t have the energy.

Tuesday, I had emailed my psychiatrist to ask if I didn’t sleep could I page her to talk. She responded and asked would I go along with a “brief” admission to see my sleep/wake cycle. Well that shut down all communication with her. I responded with no as I know what that entails and I wasn’t up. I wasn’t suicidal and the reason I couldn’t sleep was because of fucking pain! Yesterday I did an experiment with the Lamictal to see if it was the culprit in the insomnia now that my dose has increased. I think it sort of was because I finally was able to sleep last night until 2 PM today. Granted I had taken some Benadryl to help, but still, that is the most sleep I have had in like two weeks.

Yesterday I had my groceries delivered and wanted to make this low carb chicken dish that was sort of like a Florentine chicken. I thought it came out delicious. My mother said it sucked. I also didn’t make any side dishes with it (I was really hurting and just wanted to get off my fucking feet so didn’t think to make one). So she had whatever she had and then reheated her chicken cacciatore that she made the other day. I wanted to bring the leftover to my barber today but it is too late now to do it. I don’t like reheated chicken. If there are left over chicken dishes, I will eat the chicken cold, including Chinese food.

Tuesday, I was up at 530 after getting maybe 2 hours of sleep. I didn’t want to go back to sleep because there was stuff I wanted to do. So I got my haircut and then I baked chocolate chip cookies with the new recipe I had. OMG these cookies are so friggen good! I love them. I bought more chocolate chips in my grocery order just so I had enough to make more cookies if I felt up to it. My friend who gave me the recipe asked if I halved the recipe and I said no. She said I was going to have a shit load of cookies and I did. I had like 4 trays of cookies. But they are yummy so I don’t care. The batter is thick and took some time to mix in the oats and chips in it. I thought I mixed it well but there was just plain oats at the bottom of the batter. I just scooped it on the tray. I didn’t care. I was getting tired as it took me 3 hours to make these as our oven sucks. Each tray took around a half hour to make (give or take 5-10 minutes). The bottom baked better than the top, which meant shuffling the tray. My niece liked the cookies and she doesn’t like oatmeal! I am glad I have cookies to eat because, well, I am a cookie monster. I also bought sugar cookies with my grocery order. LOL told ya, I am a monster. I also bought the roast beef that I love. My hope is to make sandwiches on days I have therapy as the day is long. The bus schedule sucks and if I miss a bus it could be up to two hours before I can go home.

I thought I was a financial wizard this month as I had 30 bucks left in my account but, alas, nope. I forgot to pay one bill, which will be on Monday as I don’t yet have a credit on the grocery order. I was supposed to get a pound of American cheese and only got half. They over charge you anyway and it takes like 5 days to get the money back into the account. I got the email this morning saying the credit has been issued so I hope by Tuesday I can pay this one last bill. I withdrew cash so I can pay for my meds this month. I did sort of buy stuff at Amazon but it was much needed. I shaved my head last night with a new blade and got razor burn so bad. I used the oil, too, so I don’t know why it hurt so much. So I bought an after shaving balm. I also bought cooling racks for the cookies because the trays we have SUCK!! You can only fit like 4-5 cookies on the rack. That is only not even ½ a tray of cookies! So I bought bigger ones. They weren’t that expensive, $16 for 4, which I thought was a deal. I don’t go to stores and I know Walgreens doesn’t sell them. I know they probably sell the after shave but I wanted a balm not a liquid. Hope it works because it took a while for it to calm down and I was in so much pain with my feet I just had to endure the burn on my head.

I found some exercises for my foot to do until I go to PT next week. I am getting so stressed out with going again. It is just that it is a long bus ride and then I have the appointment, then a bus to the station for the long bus ride home. I might cancel the appointment because I have two doctor appointments the following day and if I am sore (which I could be), walking is going to be difficult and I got to go to two different buildings, which means walking around the hospital. But I want to see how the beginning of the week goes with regards to my sleep. If I am not sleeping well or get into a flare, it will be a no go. I did the exercises last night and today I am not hurting too much with my right foot, though the side where the tendon tear is, is hurting. I probably did too much yesterday because after the cooking dinner, I numbed my foot to take a shave and shower.

I bought chicken patties and had one today. I forgot how good they were. I might have another one after my mother watches her LOUD shows and is out of the kitchen. I spent nearly $200 on groceries because I was tired of not having food by the end of the month except whatever my mother made. I wanted to get fish sticks or filets but it was really expensive. Even the chicken patties were expensive but you are paying for the price of having it delivered. My iced coffee which I bought 5 of was $28. I wanted to have it last for a month. I love the iced coffee better than hot. I might mix and match as I still have the K-cups to make coffee.

My transition is going okay. I think my mother is noticing my voice changes because she said something earlier this week. She doesn’t know I am on T. I have had some throat irritation and she thought it was because of the cold. HAHA nope. I asked around and apparently it is due to voice changes. I am happy. I also accidently sent a friend a video that was suppose to go to someone else. Her husband saw the video and was immediately like who is that guy. That made me smile. I haven’t seen him since before my transition and he isn’t on Facebook. I felt bad on the error. I got to pay more attention to who I am sending stuff too! Geez! My sideburns are still thicker. I did notice some fuzz while I was making the said video last night. So maybe the hair will come in soon. My mustache is still taking forever to grow since I last shaved it. I see the TG doc next week so I hope she increases the dose. It will be my off week so if she wants bloods done, I can possibly have it. It will just depend on how I am feeling that day. Fridays can be either busy or crazy in the blood drawing lab. If it is crazy, I will wait. As long as she doesn’t need a urine sample because I hate giving one. Well, I don’t. My bladder does. Damn nerve injury caused retention so bad I need at least three hours before I can go after drinking a lot of fluid. Used to be an hour. Now, nope. I think the meds also don’t help. But it is what it is. Until next time my friends. And thank you for reading!