Tag: physical pain

A bad night followed by a tiring Sunday

by Midnight Demon, posted in cauda equina syndrome, chronic physical pain, depression, mood disorders, suicide

A bad night followed by a tiring Sunday

I had a bad night of pain last night. I was beside myself. I felt like going to the emergency room but I didn’t know which one would be best for me. It was after 10 pm so it would be crazy hour with drunks coming in and such. Or maybe it would be too early for them. I don’t know. I never went. I just took a strong pain medication and tried my best to sleep.

I was in pain and wanted to kill myself and I wanted to kill myself because I was in horrible pain. I got away this night unscathed. But I am wicked tired today. It hurts to think. I woke up around 0630. I could make a pot if I really wanted to but I think I will pass. I have been trying distraction as best as I can but it’s not working for me anymore. I am listening to music but it doesn’t help my mood. Nothing is helping. I am hearing voices again. They started off as British but now they are just remnants of conversations I have had with my father. It is very disturbing. Hopefully a little perphenazine will work.

Even if I did know what to do last night, I doubt my needs would have been met. That is if I knew what they were. I felt like calling my psychiatrist and asking her what to do. I just was in a bad place and pain was the chief cause of it all. I felt like I needed to talk to someone, someone that knew what I was going through and would be an understanding ear. There are few of those around on a Saturday night. My one blogger friend has started dating so she wasn’t available. My therapist certainly wasn’t available. I wasn’t having a neurological emergency so my neurologist was out. It was a combination of it being a med/psych emergency. And who really deals with that?? I wasn’t staring down a bottle of pills. I wasn’t contemplating hanging myself. I just didn’t want to be anymore. The pain and the “demons’ had collided. Not even blogging was helping because I couldn’t think of what to write. I was in a tough spot and needed someone to talk to that knew about chronic physical pain and being suicidal.
Right now my ankle is killing me. I can barely move it without pain. And I haven’t done anything. I guess two days straight of activity is a no-no. I wanted to change my sheets today but that doesn’t seem to be in the works for today. My mother is hurting too. She wanted to clean the kitchen floor until her back went out on her. I swear it is the weather that is causing most of our pain. I suppose I should call my father and see how he is doing but I really don’t feel like it.

But I finally found something to control my appetite. Kellogg’s mini frosted shredded wheat. I love it. And it has fiber so I have been going a little more regularly without pills, which is a bonus. Any thing that gets my bowels moving without a pill is nice. Now if only I can psych myself up to take a shower, that would be nice. I have gone almost a week without taking one. I think Tuesday night was the last time I took one, but don’t quote me on that. This sucks. I just took a couple of pain pills so I can take a shower. This is what my life has become and no one gets it. It is so frustrating to try and explain what I am going through and be heard. Sure my therapist gets it, but there is more worry in her voice than understanding. She will just go off about how many spoons I don’t have when all I want her to do is listen to me, not tell me what I already know.

The temp dropped over night. There is a chill in the air that wasn’t there yesterday. My mother had the damn kitchen door open when I got up to have breakfast this morning. I was freezing and I am usually not one to complain about the cold. But I was grumpy because I was awake and I was hungry. It was bad enough that I had to wear my slippers to go down the stairs. I really need to take a shower today. I think it will help me feel a little bit better. But it might cause me more pain and that is what I am afraid of.

nuances of Chronic Pain

by Midnight Demon, posted in blogging, cauda equina syndrome, Chronic pain, chronic physical pain, depression, mood disorders, suicide

Today has already been a long day. I again had weird dreams and then woke up before my alarm by at least a half hour. I didn’t do anything to wake up. I just went to the bathroom and then went back to sleep until the alarm went off. I should have grabbed a pop tart as I was hungry by the time I got dressed and stuff. I had my coffee and wrote until it was time to see my doc.

I am happy that I my PCP listened to me and gave me enough pills to cover me for the month. However, I am unable to fill it. I have to wait two days for my next refill. I had a feeling it was going to be too early and I was right. Fuck! I have two pills to last me 2.5 days? And then the pharmacist tells me they are changing the classification of the medication. I don’t know what that means. She said I would have to go to the doctor to get the prescription. Well, I do that anyways so I don’t see the big deal. They already ask me for my ID. Now if they need a diagnosis, they are getting cauda equina syndrome.

After my appointment, I felt a little energetic so I walked the long block to the other bus stop. I did it in less than 10 mins, which is good for me. It was 0.4 miles. I am guessing that is my limit without pain. If I walk more than that, then I am hurting, which is good to know. I didn’t have to walk back so that was good. I figure, if I can slowly increase my walk route, from where I walked before (1.2 miles roundtrip) I should be able to slowly lose weight and feel better about walking. But then there are days where just going around the block can cause me pain so I guess today is a good day. It started out rough because I was walking in mud. I didn’t think I would be able to walk to the bus stop when I left my house this morning. But after my doctor’s appointment, I had some energy and felt like I could do it. I know there are time I might not be always able to, but today I count that as an accomplishment. Now, to just hope that I am not hurting big time tonight and the next few days. My ankle is throbbing but it’s mild. I am not swearing, least not yet.

So I am disappointed that I can’t get the new script filled and that next month might be more of a hassle getting it filled. I knew these changes were going to happen. It’s all because a senator’s son overdose on narcotic medication. His belief is that the meds “caused him to commit suicide, not the pain”. What a crock. He is clueless so people with chronic pain now have to suffer because of this idiot, who is not even a medical professional!! I really “love” when these non-medical people make decisions for us. It makes treating chronic pain that much more difficult and no one many commit suicide because they cannot be helped by their doctors.

I did have a problem with making a month appointment with my doctor for next month. I just hope it isn’t too soon or too late. That is the problem that I have been having lately, getting an appointment with my doctor for my pain meds. It shouldn’t be this hard. So I have to wait for the secretary to call me.

I am glad I can walk the distance I did today. I hope that tomorrow I can walk again without pain. But we’ll see what happens tonight.

I just don’t know anymore

by Midnight Demon, posted in cauda equina syndrome, chronic physical pain, depression, physical pain, suicidality

I just don’t know anymore

I have been in pain for more than 24 hrs now so if this is a little squirrely, that is why. I just cannot take the pain anymore. It is driving me absolutely insane. I spent the last hour or so writing in my journal things that shouldn’t be mentioned in the blog (stuff my therapist wanted me to write). I felt so ashamed afterwards. I was stuck with images in my head of the events that happened to me. I just want to be dead again. I know it has been at least a month since I last felt this way. Certainly was around the time of Robin Williams’s death. I felt like it was my turn. Well, dammit, why the hell not? I am so sick of being in pain.

I have tried to control my pain but my meds seem to be ineffective. I think I might have to take the stronger meds to break the cycle. But I don’t want to because the last time I took that drug, Jekyll appeared. I am wicked tired and all I want to do is sleep and I know that if I take this drug, chances are that Jekyll will come out. And god only knows what he will write. I find it odd that I have two “alters” and they are both male.

I didn’t take a shower today. I got a migraine and then things kind of went downhill after that. My pain worsened to what it is now. It is throbbing like a SOB and stabbing at the same time. It hurts right at the joint where my foot and ankle bone meet. That area is the most painful right now. I just want relief. I have contemplated taking the handful of pain pills that I have left. It will really suck if I take them because then I will have NOTHING. I know I am going to run out of my meds before the 28th of this month. My doc is supposed to write a 28 day supply but he wrote it for 30 days. Big help, not! I don’t know why I told him I needed less pills. But then, things were going well and I wasn’t in pain as much. The past few months have been awful and I keep meaning to tell him I need more pills because it just isn’t enough but I keep forgetting. Plus I am scared that he will say no. I doubt it, but you never know. I bet if my pain were under control, my blood pressure would be too.

I keep fighting sleep. I know that if I go to bed now, chances are good that I will wake up around midnight or 1 or 2 in the morning. I took my meds so I don’t have to get up again but I might have to go to the bathroom. I drank a lot of water at dinner because I am dehydrated. I didn’t eat too much, just had breaded cauliflower for dinner. I wasn’t that hungry. Which is good because I feel bloated.

My mother just struggled to get up the stairs. Her life would be so much better if she would take something consistently for her pain. But nope. Won’t even take a damn aspirin. Pisses me off because she always complains she is in pain. I refuse to give her sympathy because I know there are meds out there she can take but she won’t so there.

I have the ceiling fan on despite it being cool outside. I have been having hot flashes for most of the day. It is only about 70 degrees in my room so I don’t know why I have to put the fan on but I am hot and I hate being hot. I think it is because of the damn pain I am in. 24 hours. I didn’t even do too much yesterday so I don’t know why I am in so much damn pain. But I guess walking is my downfall. And my sister thinks I will be able to walk a dog. Please. I can barely get to where I need to go without hurting myself and you want me to take care of an animal?? NO. Not happening. Get a cat. I will clean the litter box twice a day. That I can do!

I don’t know why I am in so much damn pain. It’s not like I did anything today. I didn’t go up and down the stairs too much, but maybe I did. I never know what is minimal and what is a lot. My body doesn’t bother to tell me until it has surpassed its limit and then tells me the next day or later that night when I want to fucking sleep. It is terrible. Normal ankle movement should not bring you such pain!!!

The only thing keeping me sane right now is listening to music. I need that muse in my head because without it, I think I might do something drastic.

agitated ramble

by Midnight Demon, posted in blogging, chronic physical pain, depression

I didn’t have therapy today. I was hoping a spot would open up but it never happened. Now I have to wait till Tuesday to talk to my therapist again. This sucks. I had a very busy day and need to talk about it.

I took my father to his appointment and surprisingly, he didn’t cause my already high blood pressure to skyrocket. I went to my appointment and just as I thought, my PCP increased the new blood pressure medication that I am on. Luckily, I was spared the weight issue/reprimand.

I have been feeling anxious all day. I have been up since 0530 and I can’t seem to calm down. I took an Ativan when I took my morning meds, hoping that would calm me down some but it hasn’t. I don’t know why I am such a friggen wreck. I am wicked tired, actually, I am beyond tired. I know that I won’t be able to rest as I am too restless to stay still long enough to sleep. I just have been going all day. I had a bad dream that caused me to wake up at 0530. I don’t remember what it was about now. I know it had to do with my mother. I just hope the dream doesn’t come true.

I think most of it has to do with the transgender piece I wrote yesterday, not the public version but the password protected one. I don’t think my therapist has read it yet and I am nervous about it.

I got an email from my pdoc asking if I can come in earlier tomorrow and I am like whoa, our appointment isn’t until next week. I really don’t want to do ANYTHING tomorrow because my leg is acting up. I got the nerve pain zaps last night and my foot has been on fire since it happened. I haven’t been able to calm it down because there is nothing I can take for it. I need a day to rest after I spent most of the day in my AFO brace (ankle/foot orthotic). My leg is also angry at me because my PCP had to press on my leg to see if it hurt. Fucker. Now I have to take my pain meds to quiet that down too. I am just going to have a party tonight with my meds and see what works and what doesn’t. I got to get rid of this anxiety first though. I think I will take an Ativan and hope for the best. Then I can take the nerve pain med and hope it puts the fire out in my foot. It sucks to have your foot constantly burning and knowing there is nothing you can take for it. I was driving today so I was limited in what I could take. It is just driving me crazy and I know that is probably one of the reasons why my anxiety is up and why I am so restless. I just can’t sit still. But writing has given me something to focus on, least for the time being.

I don’t really feel like I am hypomanic as I do not have a good mood. I am still really depressed. This agitation is killing me though. I think I am going to take some of my nerve pain meds and see if that calms me down. If it doesn’t, I will take an anti-psychotic. I just cannot stand being like this. And I really want to take a nap, though it is getting close to bed time so I probably shouldn’t. UGH!!! So frustrated.

I am happy that my PCP didn’t restrict the number of pills I got for my pain meds due to my psych hospitalization. He asked if I did something and I told him no. He doesn’t need to know what lead to the hospitalization, just that I was there because my blood pressure was crazy! This is the second time that my blood pressure was out of control during an inpatient psych visit. I don’t know if it was because of the stress that I was under or what. But I do know that I need to lose some weight to keep it under control with ONE medication rather than two. My biggest fear is that I will become hypotensive (low blood pressure). But I have been monitoring my bp at home so I don’t think that will be a problem. I take my blood pressure twice a day and the pressure seems to be worse at night. Happened while in the hospital too so no change there. Though I did want to slap one of the mental health workers when she asked me if I was drinking enough. Stupid dumbass. My pressure would be low if I was dehydrated. And I drank lots while I was in the hospital. Mostly ginger ale and juice cocktail (OJ and cranberry juice). I wish I could have had some vodka with the juice sometimes. I swore I was going to have a shot of gin when I got out but I still haven’t had it. I lost the feeling for drinking. Plus, it doesn’t mix with my pain meds.

I took my nerve pain meds. It better knock out the stupid burning pain that I am experiencing. I don’t usually have this type of pain. I usually have a physical type of pain that is helped with pain meds (narcotic kind). The nerve pain meds are not narcotic. And it doesn’t make sense since I have increased my mood stabilizer as that also can knock out nerve pain. Man, things are really messed up. I am on too many meds. I got to find a way to get off them.