Tag: writing

another night of pain 2

by Midnight Demon, posted in cauda equina syndrome, CES, Chronic pain, chronic physical pain

19/20-Feb-13 0115

I had a long day today and I am not kidding. I have been up since 0700 and it is now 0100. I did way too much and I did it without doing too much. I just had a long day. First it was with my eye appointment and dinner with friends. I did some exercises while waiting for the bus and my foot refused to go heel to toe. It kept swerving to go back to the heel. Tired. Then I did some dorsiflexion and that really made my foot hate me. I thought I was getting better because the pain had decreased some but I can’t fix the weakness that is in my foot. Not after 12 years. It just refuses to cooperate with me and I really don’t think any amount of physical therapy is going to get my foot a 5-5 again. I have had so many trips to physical therapy that I know the exercises by heart. I might do them if I feel like it but none of them address the weakness in my foot to make it stronger. But then I am pessimistic about it ever returning to a 5-5. If fatigues quickly to go to a 3-5 and then I am screwed the rest of the day. I found this out tonight. It was tough walking home because I could feel my foot swerving to walk and by the time I was half way to my street, the pain started and I had to stop. When going up on the curb, I barely cleared it, almost stumbling. This makes me depressed and distraught. Tomorrow I am supposed to start a psychotherapy group and I am afraid that I am going to have to wear the AFO because I don’t know if my foot is going to be ok. I am exhausted but right now but I have pain and my meds have not kicked in. My back is aching because it is raining outside. All I want is some sleep but my foot/ankle is angry at me right now. I hate myself for doing the stupid exercises. I should have known I was fatigued but it’s hard to realize when there is no pain. Now I am feeling the pain because I am finally at rest and I want to go to sleep. It is always like that. Soon as the body is ready to sleep, the pain says “no stupid you are not going to sleep because you did too much today and you are going to pay for it”. I am such an idiot. Here I thought I was doing something constructive and all it did was make me hurt. I am ready to say fuck it about the group but it is my first meeting. Maybe things won’t be bad tomorrow like I predict it will. I just hope I can wake up early enough to make myself a cup of coffee before leaving the house. Priority number one!!

support groups and other things

by Midnight Demon, posted in Chronic pain, chronic physical pain, depression, mood disorders, psychache, suicide, suicide attempt

I had emailed my eye doc saying I was having problems with my eyes while reading, especially when I was tired. I just coughed it up to being fatigued but he wanted to see me the next day (today) and did some tests. Apparently my eyes have decided to go in different directions when I am reading so I have to go to visual therapy. It is basically physical therapy for the eye. Oh joy.

I am going to dinner tonight in Stoughton, south of where I live with some friends of mine. We have a good time and because my friend just came back from Germany, I am sure she has some chocolates for me . German chocolate is sooo good. Last time I had it, the damn mice ate it when we had a few. I was so mad. Mice enjoying my chocolate. Damn rodents!

Yesterday I was supposed to have a blog post in the AAS but it got scrapped for another few weeks. The post that got published was a hit. It was about support groups and now everyone wants one for suicide attempt survivors. If I knew the platform, I would do it. I am glad my post got bumped because support groups are important. I know that if I didn’t have my CES group, I would feel alone and probably would have killed myself because of the isolation you feel after something so traumatic happens to you. You are never the same after something like CES affects you. I know with suicide attempt it is similar. People attempt for different reasons but mostly to escape the psychological pain they are feeling.

Speaking of psychological pain. I recent came across another psychological pain scale that has some promise if it ever gets across the board. But the hard part is that most of these scales have to go through rigorous critical review from committees of all sorts before being accepted as an assessment tool used for the emergency rooms and urgent care units. Plus in busy settings, things will get missed and then what are you going to do when the person is positive for psychological pain? You can’t just leave them hanging and say have a nice day or come back when you have more pain. That would be unethical and unprofessional. And most academic psychiatric emergency rooms are almost always filled with “real” psychiatric emergencies such as the actual attempts and psychotic behaviors of drug use or because of schizophrenia/mania. Though each case should be evaluated by a mental health professional before an attempt be made. I suppose if this were to be implemented a special unit would have to be designated for it to speed up the process and long waits avoided. Or if this were implemented in the psych ER it would be more ideal than the general ER (Emergency Room/ward/department).

new journal and Crisis Response Plan

by Midnight Demon, posted in depression, mood disorders, suicide, suicide attempt, writing

I started a new journal tonight. And like every other journal before it, the first two things that go into it is my crisis response plan and the Holden psychache scale, though lately it just is my response plan.

I tried finding the response plan online but all I found was emergency planning and a very LONG one that the Navy cooked up, most likely from the article I read about military suicide crisis training. I tried to find the article but I am unable to locate it in my files. I haven’t searched my thumb drive because I can’t locate that either. GGGRRRR so I hope I am not plagiarizing when I post this plan here on my blog:

Crisis response plan:
When thinking about suicide, I agree to do the following:

Step 1: Try to identify my thoughts and specifically what’s upsetting me
Step 2: Write out and review more reasonable responses to my suicidal thoughts
Step 3: Do things that help you feel better for at least 30 mins (examples can include, trying to sleep, play internet games, brush hair 100 times, write in a journal, listen to music, etc)
Step 4: Repeat all of the above
Step 5: if thoughts continue, get specific and I find myself preparing to do something, I will call XXX @ 555-555-5555 or suicide hotline
Step 6: if I cannot reach above I will call my therapist or psychiatrist
Step 7: if I am still feeling suicidal and I don’t feel like I can control my behavior, I go to the ER or call 911 (or whatever the local emergency line is for your country)
I have found having this in my journal useful when I have been hospitalized because it provides a plan of something that they need for discharge and I don’t always carry the card or the paper with me but I do carry my journal.

The second thing is Holden’s(Holden, Mehta, Cunningham, & McLeod, 2001) psychache scale and I don’t feel comfortable posting that here but you can look it up in the reference I have posted if you have access to the library.

I tend to hold off on it because I haven’t been using it lately. I know what the scale looks like and after a while you can manipulate it to whatever you want it to be from high to low. Plus when I feel numb or “fine” it’s hard to tell what kind of psychological pain I am in. My therapist and I used to use it to gauge how suicidal I was but then it just got to be like a joke. Or that the tables have turned on me because I was the one that brought in the scales and the response plan. My therapist didn’t have a clue about suicidality, which is typical of most therapists. That is why they like to pawn you off or come up with lame “safety contract” that is really a legal form for THEM not YOU. Least with the Response plan it give you something to take home with and is more detailed than anything I have come across.

Holden, R. R., Mehta, K., Cunningham, E., & McLeod, L. D. (2001). Development and preliminary validation of a scale of psychache. Canadian Journal of Behavioural Science, 33(4), 224-232.

A baseball movie

by Midnight Demon, posted in baseball, sports, writing

Since the end of the Post Season baseball games, there were commercials for the movie “trouble with the curve”. Tonight I finally saw the movie and loved it. Baseball season might not be starting just yet so I had some fun with this movie. I had no idea what went into scouting reports until I saw this film. And the movie is right, you can’t know something with statistics that you can’t see with your eyes. In his book, The Red Sox Years, Francona talked about this a little bit. He was given daily reports on scouting and pitching and upper management wanted the say in the lineup because this batter was better with the opposing team’s pitcher. Francona never really used these reports to influence his lineup. A player was going to play because he had a gut feeling and usually he was right. Statistics can only be on one playing field, paper. You can’t know what the player is going to do in rainy weather versus sunny weather, hot weather versus cold, etc. I think a lot of the games that have won the world series have become champions because they did not get rest in between series. My theory is that if a team cools off, say has a few days rest in between, that is bad and they are going to be swept. I have never seen a world series go to game 5 in the past 3 years. But I could be wrong. I know for the past 2 have been swept in 4 games, both to the National league. It has been a long time since the American league has won a World series game. 